The 20 Best Koolen De Vries Syndrome Doctors Near Me in Seattle, WA

Find the Top Koolen De Vries Syndrome Experts and Specialists

The 20 Best Koolen De Vries Syndrome Doctors near Seattle, WA

Last Updated: 02/22/2026

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MediFind found 58 doctor with experience in Koolen De Vries Syndrome near Seattle, WA. Of these, 55 are Experienced and 3 are Advanced.

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58 providers found
    Drew Baldwin
    Advanced in Koolen De Vries Syndrome
    Interventional Cardiology | Cardiology
    Advanced in Koolen De Vries Syndrome
    Interventional Cardiology | Cardiology

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Drew Baldwin, MD, is a board-certified cardiologist specialized in cardiovascular disease and interventional cardiology. His interests include coronary artery disease, preventive cardiology, cholesterol management, cardiac rehabilitation, echocardiography, nuclear cardiology, peripheral vascular disease, valvular heart disease, and transcatheter aortic valve replacement.Dr. Baldwin listens to each patient's unique story interpreting their health issues and addressing them with the arsenal of advanced evidence-based treatment options now available. He makes a point to educate patients about their conditions and the treatments available using terms they can understand.Dr. Baldwin is a Fellow of both the American College of Cardiology and Cardiovascular Angiography and Intervention.Away from work he enjoys literature arts and the outdoors. Dr. Baldwin is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Coronary Heart Disease, Angina, Atherosclerosis, and Heart Failure with Preserved Ejection Fraction (HFpEF).

    Ahmad Mahallati
    Experienced in Koolen De Vries Syndrome
    Nephrology | Transplant Surgery
    Experienced in Koolen De Vries Syndrome
    Nephrology | Transplant Surgery

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    "Ahmad Mahallati, MD, specializes in nephrology (kidney disease), renal transplantation and diabetes.Dr. Mahallati dislikes the use of the word ""patient"" because he prefers to treat people who walk into his office as individuals; as fathers, brothers, sisters, mothers, daughters and sons with connections to the greater community and not isolated entities. He aspires to think outside the box and to provide options as part of the art of medicine.Dr. Mahallati is a member of the American Medical Association and American Society of Nephrology. He was named the American College of Physicians Resident of the Year at Harbor Hospital in 2007 and received a Scholarship and Professionalism Award there in 2006.In addition to practicing medicine, Dr. Mahallati enjoys portrait painting (featured on ABC News' ""Nightline"") and hiking with his wife and golden retriever.". Dr. Mahallati is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Acute Kidney Failure, Kidney Transplant, and Simultaneous Pancreas Kidney Transplant.

    Davut Savaser
    Experienced in Koolen De Vries Syndrome
    Emergency Medicine | Undersea and Hyperbaric Medicine
    Experienced in Koolen De Vries Syndrome
    Emergency Medicine | Undersea and Hyperbaric Medicine

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Davut Savaser, MD, is a board-certified emergency medicine physician with additional certification and specialization in undersea and hyperbaric medicine. He is committed to providing compassionate, informed, evidence-based care for patients with conditions requiring treatment with hyperbaric oxygen therapy. He also offers dive medical clearance and exams.Dr. Savaser received an Excellence in Hyperbaric Medicine Award from the Undersea and Hyperbaric Medical Society in 2021, in which he holds fellowship status (FUHM). He is a Fellow of the American College of Emergency Medicine (FACEP) and American Academy of Emergency Medicine (FAAEM). He serves as an editor for the wound care section of The Journal of Emergency Medicine.Away from work, Dr. Savaser enjoys fishing, golf, boating, swimming, snorkeling, free-diving, SCUBA diving, basketball and spending time with his family. Dr. Savaser is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Inappropriate Sinus Tachycardia (IST), Koolen De Vries Syndrome, Aseptic and Alopecic Nodules of Scalp (AANS), and Systemic Sclerosis (SSc).

    Learn about our expert tiers
    Karen Stout
    Experienced in Koolen De Vries Syndrome
    Cardiology
    Experienced in Koolen De Vries Syndrome
    Cardiology

    Heart Institute At UW Medical Center – Montlake

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Karen Stout is a Cardiologist in Seattle, Washington. Dr. Stout is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Tetralogy of Fallot, Endocardial Cushion Defect, Heart Valve Repair, and Aortic Valve Replacement.

    Catherine Otto
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle,, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Catherine Otto is a Cardiologist in Seattle,, Washington. Dr. Otto is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Aortic Valve Stenosis, Marfan Syndrome, Bicuspid Aortic Valve, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

    Diana Mcfarlane
    Advanced in Koolen De Vries Syndrome
    Physician Assistant
    Advanced in Koolen De Vries Syndrome
    Physician Assistant

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Diana McFarlane, PA-C, specializes in gastroenterology, pancreaticobiliary disease, inflammatory bowel disease, acute GI bleeding, abdominal pain, hepatology, cirrhosis, viral hepatitis, alcoholic liver disease, functional bowel disease, motility disorders especially focused on gastroparesis, irritable bowel syndrome, pelvic floor disorders, fecal incontinence, constipation and GERD.Diana has special medical interest in small intestinal bacterial overgrowth, narcotic bowel syndrome, chronic pain syndrome, holistic care and complementary medicine.Diana and her family love Seattle, skiing, and climbing. Additionally, she loves yoga, event planning, helping at the kids' school, and gardening. Ms. Mcfarlane is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Koolen De Vries Syndrome, Malabsorption, Protein Deficiency, and Rectocele.

    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology

    Uw Medicine/Harborview Medical Center

    325 9th Ave, 
    Seattle, WA 
     (0.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Joshua Thaler is an Endocrinologist in Seattle, Washington. Dr. Thaler is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Obesity, Seckel Syndrome, Sjogren-Larsson Syndrome, Rapadilino Syndrome, and Orchiectomy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    1200 12th Avenue South, 
    Seattle, WA 
     (2.4 miles away)
    Languages Spoken:
    English

    Ishwar Bhat is a Radiologist in Seattle, Washington. Dr. Bhat is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pleurisy, Pleural Effusion, Gallbladder Disease, and Progressive Familial Intrahepatic Cholestasis Type 2.

    Experienced in Koolen De Vries Syndrome
    Neuroradiology
    Experienced in Koolen De Vries Syndrome
    Neuroradiology

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Michael Doherty is a Neuroradiologist in Seattle, Washington. Dr. Doherty is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Stroke, Scoliosis, and Sciatica.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Heart Institute At UW Medical Center – Montlake

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Yonatan Buber is a Cardiologist in Seattle, Washington. Dr. Buber is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Isthmian Coarctation, Coarctation of the Aorta, Arrhythmias, Heart Valve Repair, and Cardiac Ablation.

    Experienced in Koolen De Vries Syndrome
    Cardiology | Pulmonary Medicine
    Experienced in Koolen De Vries Syndrome
    Cardiology | Pulmonary Medicine

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Joshua Benditt is a Cardiologist and a Pulmonary Medicine provider in Seattle, Washington. Dr. Benditt is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Acute Interstitial Pneumonia, Lung Metastases, Interstitial Lung Disease, and Bronchogenic Cyst.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    4800 Sand Point Way Northeast, 
    Seattle, WA 
     (4.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kristina Tarczy is an Ophthalmologist in Seattle, Washington. Dr. Tarczy is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Strabismus, Amblyopia, Brown Syndrome, and Retinopathy of Prematurity. Dr. Tarczy is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    4800 Sand Point Way Northeast, 
    Seattle, WA 
     (4.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Stephen Seslar is a Pediatric Cardiologist in Seattle, Washington. Dr. Seslar is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Wolff-Parkinson-White Syndrome, Congenital Heart Disease (CHD), Arrhythmias, Kawasaki Disease, and Cardiac Ablation. Dr. Seslar is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Russell Saneto is a Pediatric Neurologist in Seattle, Washington. Dr. Saneto is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Leigh Syndrome, Epilepsy, Epilepsy in Children, and West Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle,, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Luciana Young is a Pediatric Cardiologist in Seattle,, Washington. Dr. Young is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Marfan Syndrome, Perrault Syndrome, Arachnodactyly, and Coarctation of the Aorta.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Randolph Otto is a Pediatric Radiologist in Seattle, Washington. Dr. Otto is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Optic Glioma, Cystic Fibrosis, Cerebellum Agenesis Hydrocephaly, and Hydrocephalus.

    Jonathan Medina
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jonathan Medina-Beckwith, DNP, ARNP, is a family nurse practitioner specializing in hypertrophic cardiomyopathy and inherited cardiac conditions. Jonathan practices with a philosophy centered on evidence-based medicine and compassionate, personalized, whole-person care. With background training in family medicine and genetics, he is particularly well-equipped to care for individuals with inherited heart conditions.Jonathan focuses on building meaningful connections so he can understand each patient’s unique background, preferences and health goals. By combining this personalized approach with evidence-based medicine, he provides care that is both scientifically sound and tailored to each person’s needs. His goal is to empower patients with the best possible options and support them in making informed decisions that align with their values and promote long-term well-being.Away from work, Jonathan enjoys running, travel and learning foreign languages.Conditions treated:Cardiac amyloidosisDilated cardiomyopathyHeart failureHypertrophic cardiomyopathy. Mr. Medina is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Neurofibromatosis, Koolen De Vries Syndrome, and Heart Failure with Preserved Ejection Fraction (HFpEF).

    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Oncology | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Oncology | Pediatrics
    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English, Polish, Spanish

    Peter Leahy is a Medical Genetics specialist and an Oncologist in Seattle, Washington. Dr. Leahy is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Maple Syrup Urine Disease, Succinyl-CoA:3-Ketoacid CoA Transferase Deficiency, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Beta-Ketothiolase Deficiency.

    Jonathan C. Kopelovich
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology | Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology | Otolaryngology

    Proliance Surgeons

    1231 116th Ave NE #915, 
    Bellevue, WA 
     (6.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    My practice encompasses medical and surgical treatments of diseases related to the head and neck in children. As a pediatric otolaryngologist I am fortunate to be on the front lines providing solutions for common problems in children such as chronic ear infections, obstructive sleep apnea and chronic sinus and nasal drainage. I work closely with other pediatric providers to deal with complex issues, many of which manifest at birth. My primary interests include endoscopic management of the pediatric airway, hearing options for children with congenital or acquired hearing loss e.g. cochlear implants, treatment of chronic ear disease and surgical management of cleft lip and palate. My job is to help families navigate choices and find optimal solutions for their children's health and well-being. My joy is to see the children doing well. Dr. Kopelovich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hearing Loss, Enlarged Adenoids, Stridor, and Nasal Septal Hematoma.

    Trac M. Duong
    Experienced in Koolen De Vries Syndrome
    Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Otolaryngology

    Proliance Surgeons

    1231 116th Ave NE #915, 
    Bellevue, WA 
     (6.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Trac Duong practices all aspects of adult and pediatric otolaryngology with a special interest in treating disorders of hearing and balance, as well as infections of the ear and skull base. He has performed operations to improve hearing including BAHA (bone-anchored hearing aid) and cochlear implantation. He also diagnoses and treats patients with dizziness and vertigo, including Meniere’s disease. Dr. Duong is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Infant Hearing Loss, Cholesteatoma, DFNB1, and Jones Syndrome.

    Showing 1-20 of 58

    Last Updated: 02/22/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Seattle, WA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Seattle, WA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Seattle, WA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Seattle, WA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Seattle, WA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Seattle, WA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Seattle, WA?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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