The 20 Best Koolen De Vries Syndrome Doctors Near Me in Spokane, WA

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 15 doctor with experience in Koolen De Vries Syndrome near Spokane, WA. Of these, 15 are Experienced.

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15 providers found
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    911 West 5th Avenue, 
    Spokane, WA 
     (0.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Jeremy Bauer is a Pediatric Orthopedics provider in Spokane, Washington. Dr. Bauer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Spastic Diplegia Infantile Type, Clubfoot, Beukes Familial Hip Dysplasia, Osteotomy, and Rhizotomy. Dr. Bauer is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    911 West 5th Avenue, 
    Spokane, WA 
     (0.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    William Bronson is an Orthopedics provider in Spokane, Washington. Dr. Bronson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Claw Foot, Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, and Spinal Fusion. Dr. Bronson is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Integra Imaging PS

    801 S Stevens St, 
    Spokane, WA 
     (0.7 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Samuel Plesner is a Radiologist in Spokane, Washington. Dr. Plesner has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Lung Nodules, Pleurisy, Pleural Effusion, and Ascites.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Integra Imaging PS

    801 S Stevens St, 
    Spokane, WA 
     (0.7 miles away)
    Languages Spoken:
    English

    Julie Kaczmark is a Radiologist in Spokane, Washington. Dr. Kaczmark is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Gallbladder Disease, Pleurisy, Pleural Effusion, and Aseptic and Alopecic Nodules of Scalp (AANS).

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Integra Imaging PS

    801 S Stevens St, 
    Spokane, WA 
     (0.7 miles away)
    Languages Spoken:
    English

    Jeffrey Nackos is a Radiologist in Spokane, Washington. Dr. Nackos is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pleurisy, Pleural Effusion, Lung Nodules, Ascites, and Gastrostomy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    105 West 8th Avenue, Suite 512C, 
    Spokane, WA 
     (0.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    G Whitehead is a Pediatrics provider in Spokane, Washington. Dr. Whitehead is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Strabismus, Amblyopia, Isolated Duane Retraction Syndrome, and Esotropia. Dr. Whitehead is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    105 West 8th Avenue, Suite 512C, 
    Spokane, WA 
     (0.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Caroline Shea is a Pediatrics provider in Spokane, Washington. Dr. Shea is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Amblyopia, Strabismus, Isolated Duane Retraction Syndrome, and Anton Syndrome.

    Experienced in Koolen De Vries Syndrome
    Neurology | Sleep Medicine
    Experienced in Koolen De Vries Syndrome
    Neurology | Sleep Medicine
    711 South Cowley Street, Floor 2WEST, 
    Spokane, WA 
     (0.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Ramey is a Neurologist and a Sleep Medicine provider in Spokane, Washington. Dr. Ramey is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Obstructive Sleep Apnea, Syringomyelia, Syringobulbia, and Chiari Malformation Type 2. Dr. Ramey is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics

    Shriners Hospitals For Children-Spokane

    911 W 5th Ave, 
    Spokane, WA 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Bryan Tompkins is a Pediatric Orthopedics provider in Spokane, Washington. Dr. Tompkins is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Clubfoot, Legg-Calve-Perthes Disease (LCPD), Knock Knees, Arthrogryposis Multiplex Congenita, and Osteotomy.

    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    911 W 5th Ave, 
    Spokane, WA 
     (0.5 miles away)
    Languages Spoken:
    English, Mandarin
    Accepting New Patients
    Offers Telehealth

    James Annis is a Physician Assistant in Spokane, Washington. Mr. Annis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Koolen De Vries Syndrome, Popliteal Pterygium Syndrome, Amniotic Band Syndrome, and Multiple Pterygium Syndrome. Mr. Annis is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Orthopedics
    Experienced in Koolen De Vries Syndrome
    Orthopedics

    Shriners Hospitals For Children-Spokane

    911 W 5th Ave, 
    Spokane, WA 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Ted Sousa is an Orthopedics provider in Spokane, Washington. Dr. Sousa is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Spastic Diplegia Infantile Type, Claw Foot, Clubfoot, Osteotomy, and Rhizotomy.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics

    Providence Health And Services Washington

    105 W 8th Ave, Suite 454e, 
    Spokane, WA 
     (0.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Sarah Dugan is a Medical Genetics specialist and a Pediatrics provider in Spokane, Washington. Dr. Dugan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Microcephaly, Chromosome 13q Deletion, Increased Head Circumference, and Aase Syndrome. Dr. Dugan is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Experienced in Koolen De Vries Syndrome
    Physician Assistant

    Orthopedics

    820 S McClellan St Ste 300B, 
    Spokane, WA 
     (0.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Brandi Desaveur is a Physician Assistant in Spokane, Washington. Ms. Desaveur is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Sandhaus Ben-Ami Syndrome, Small Patella Syndrome, PIK3CA-Related Overgrowth Spectrum, and Congenital Femoral Deficiency.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology

    Rockwood Clinic PS

    842 S Cowley St Ste 2, 
    Spokane, WA 
     (2.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Alexandra Sebren is an Ophthalmologist in Spokane, Washington. Dr. Sebren is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Amblyopia, Strabismus, Isolated Duane Retraction Syndrome, and Hyperferritinemia-Cataract Syndrome.

    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Experienced in Koolen De Vries Syndrome
    Physician Assistant

    Advanced Dermatology & Skin Surgery

    1807 N Hutchinson Rd, 
    Spokane Valley, WA 
     (6.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Scott Ahrndt is a Physician Assistant in Spokane Valley, Washington. Mr. Ahrndt is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top area of expertise is Koolen De Vries Syndrome.

    Showing 1-15 of 15

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Spokane, WA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Spokane, WA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Spokane, WA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Spokane, WA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Spokane, WA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Spokane, WA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Spokane, WA?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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