The 20 Best Koolen De Vries Syndrome Doctors Near Me in seattle, WA

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 54 doctor with experience in Koolen De Vries Syndrome near seattle, WA. Of these, 52 are Experienced and 2 are Advanced.

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54 providers found
    Advanced in Koolen De Vries Syndrome
    Interventional Cardiology | Cardiology
    Advanced in Koolen De Vries Syndrome
    Interventional Cardiology | Cardiology
    Referral may be required

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English, Mandarin
    Accepting New Patients
    Offers Telehealth

    Drew Baldwin is an Interventional Cardiologist and a Cardiologist practicing medicine in Seattle, Washington. Dr. Baldwin is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 114 other conditions, according to our data. His clinical expertise encompasses Coronary Heart Disease, Angina, Atherosclerosis, and Heart Failure with Preserved Ejection Fraction (HFpEF). Dr. Baldwin is board certified in American Board Of Internal Medicine, Subspecialty Interventional Cardiology. Dr. Baldwin is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Gastroenterology
    Advanced in Koolen De Vries Syndrome
    Gastroenterology
    Referral may be required

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English, Arabic, German, Hindi, Korean, Spanish, Vietnamese
    Accepting New Patients
    Offers Telehealth

    Diana Mcfarlane is a Gastroenterologist practicing medicine in Seattle, Washington. Dr. Mcfarlane is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Encopresis, Bowel Incontinence, Gastroparesis, and Collagenous Colitis. Dr. Mcfarlane is board certified in National Commission On Certification Of Physician Assistants. Dr. Mcfarlane is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Rheumatology
    Experienced in Koolen De Vries Syndrome
    Pediatric Rheumatology
    Referral may be required

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
     (4.5 miles away)
    Languages Spoken:
    English, Mandarin, Spanish, Vietnamese
    Accepting New Patients
    Offers Telehealth

    Stephen Wong is a Pediatric Rheumatologist practicing medicine in Seattle, Washington. Dr. Wong is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Juvenile Dermatomyositis, CHARGE Syndrome, Koolen De Vries Syndrome, and Juvenile Idiopathic Arthritis (JIA). Dr. Wong is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Nephrology | Transplant Surgery
    Experienced in Koolen De Vries Syndrome
    Nephrology | Transplant Surgery
    Referral may be required

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English, Hindi, Korean, Mandarin, Spanish
    Accepting New Patients
    Offers Telehealth

    Ahmad Mahallati is a Nephrologist and a Transplant Surgeon practicing medicine in Seattle, Washington. Dr. Mahallati is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Acute Kidney Failure, Kidney Transplant, and Simultaneous Pancreas Kidney Transplant. Dr. Mahallati is board certified in American Board Of Internal Medicine, Subspecialty In Nephrology and American Board Of Internal Medicine. Dr. Mahallati is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Languages Spoken:
    English, Castilian, Filipino, Korean, Spanish
    Accepting New Patients
    Offers Telehealth

    Jonathan Medina-Beckwith is a Cardiologist practicing medicine in Seattle, Washington. Dr. Medina-Beckwith is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Familial Hypertrophic Cardiomyopathy, Sengers Syndrome, Hypertrophic Cardiomyopathy (HCM), and Subvalvular Aortic Stenosis. Dr. Medina-Beckwith is board certified in Family Nurse Practitioner, American Academy Of Nurse Practitioners. Dr. Medina-Beckwith is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Emergency Medicine | Undersea and Hyperbaric Medicine
    Experienced in Koolen De Vries Syndrome
    Emergency Medicine | Undersea and Hyperbaric Medicine
    Referral may be required

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
     (0.3 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English, Elamite, Spanish
    Accepting New Patients
    Offers Telehealth

    Davut Savaser is an Emergency Medicine specialist and an Undersea and Hyperbaric Medicine provider practicing medicine in Seattle, Washington. He has been practicing medicine for over 18 years. Dr. Savaser is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Inappropriate Sinus Tachycardia (IST), Koolen De Vries Syndrome, Aseptic and Alopecic Nodules of Scalp (AANS), and Systemic Sclerosis (SSc). Dr. Savaser is board certified in Subspecialty Certification In Undersea And Hyperbaric Medicine, American Board Of Emergency Medicine and Emergency Medicine, American Board Of Emergency Medicine. Dr. Savaser is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Ophthalmology | Pediatrics
    Referral may be required

    Swedish Cherry Hill

    500 17th Avenue, 
    Seattle, WA 
     (1.1 miles away)
    Languages Spoken:
    English, Arabic, Filipino, Spanish
    Accepting New Patients
    Offers Telehealth

    Kenneth Epley is an Ophthalmologist and a Pediatrics provider practicing medicine in Seattle, Washington. Dr. Epley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Strabismus, Oculocutaneous Albinism, Ocular Albinism, Iridectomy, and Cataract Removal. Dr. Epley is board certified in American Board Of Ophthalmology. Dr. Epley is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Heart Institute At UW Medical Center – Montlake

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English, German, Hebrew, Japanese, Korean, Portuguese, Russian, Spanish
    Accepting New Patients
    Offers Telehealth

    Karen Stout is a Cardiologist practicing medicine in Seattle, Washington. Dr. Stout is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Tetralogy of Fallot, Partial Atrioventricular Canal, Heart Valve Repair, and Aortic Valve Replacement. Dr. Stout is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral required

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle,, WA 
     (3.2 miles away)
    Languages Spoken:
    English, French, Korean, Punjabi, Russian, Urdu, Vietnamese
    Accepting New Patients
    Offers Telehealth

    Catherine Otto is a Cardiologist practicing medicine in Seattle,, Washington. Dr. Otto is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Aortic Valve Stenosis, Marfan Syndrome, Bicuspid Aortic Valve, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement. Dr. Otto is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Otolaryngology | Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Otolaryngology | Pediatric Otolaryngology
    Referral may be required

    Proliance Surgeons

    1231 116th Ave NE #915, 
    Bellevue, WA 
     (6.0 miles away)
    Languages Spoken:
    English, Hebrew, Hindi, Japanese, Korean, Spanish, Thai
    Accepting New Patients
    Offers Telehealth

    Jonathan Kopelovich is an Otolaryngologist and a Pediatric Otolaryngologist practicing medicine in Bellevue, Washington. Dr. Kopelovich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Hearing Loss, Enlarged Adenoids, Stridor, Myringotomy, and Adenoidectomy. Dr. Kopelovich is board certified in American Board Of Otolaryngology and American Board Of Otolaryngology - Head And Neck Surgery. Dr. Kopelovich is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Otolaryngology | Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Otolaryngology | Pediatric Otolaryngology
    Referral may be required

    Proliance Surgeons

    1231 116th Ave NE #915, 
    Bellevue, WA 
     (6.0 miles away)
    Languages Spoken:
    English, Vietnamese
    Accepting New Patients
    Offers Telehealth

    Trac Duong is an Otolaryngologist and a Pediatric Otolaryngologist practicing medicine in Bellevue, Washington. Dr. Duong is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Infant Hearing Loss, Cholesteatoma, DFNB1, Adenoidectomy, and Myringotomy. Dr. Duong is board certified in American Board Of Otolaryngology and American Board Of Otolaryngology - Head And Neck Surgery. Dr. Duong is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Referral required

    Uw Medicine/Harborview Medical Center

    325 9th Ave, 
    Seattle, WA 
     (0.4 miles away)
    Languages Spoken:
    English, Arabic
    Accepting New Patients
    Offers Telehealth

    Joshua Thaler is an Endocrinologist practicing medicine in Seattle, Washington. Dr. Thaler is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Obesity, Robinow Syndrome, Cockayne Syndrome, Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), and Orchiectomy. Dr. Thaler is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Uw Medicine/Harborview Medical Center

    325 9th Ave, 
    Seattle, WA 
     (0.4 miles away)
    Languages Spoken:
    English, Bengali, Italian, Spanish
    Accepting New Patients
    Offers Telehealth

    Debarshi Mustafi is an Ophthalmologist practicing medicine in Seattle, Washington. Dr. Mustafi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, Tuberculous Uveitis, and Vitrectomy. Dr. Mustafi is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Neuroradiology
    Experienced in Koolen De Vries Syndrome
    Neuroradiology
    Referral may be required

    Uw Medicine/Harborview Medical Center

    325 9th Ave, 
    Seattle, WA 
     (0.4 miles away)
    Languages Spoken:
    English, Spanish, Thai
    Accepting New Patients
    Offers Telehealth

    Michael Doherty is a Neuroradiologist practicing medicine in Seattle, Washington. Dr. Doherty is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Stroke, Sciatica, and Cerebral Arteriovenous Malformation. Dr. Doherty is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required
    1200 12th Avenue South, 
    Seattle, WA 
     (2.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Ishwar Bhat is a Radiologist practicing medicine in Seattle, Washington. Dr. Bhat is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 44 other conditions, according to our data. His clinical expertise encompasses Pleurisy, Pleural Effusion, Gallbladder Disease, and Progressive Familial Intrahepatic Cholestasis Type 2. Dr. Bhat is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Neuromusculoskeletal Medicine
    Experienced in Koolen De Vries Syndrome
    Neuromusculoskeletal Medicine
    Referral may be required

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English, Castilian, Filipino, French, German, Spanish
    Accepting New Patients
    Offers Telehealth

    Gary Stobbe is a Neuromusculoskeletal Medicine provider practicing medicine in Seattle, Washington. Dr. Stobbe is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Urea Cycle Disorders (UCD), Koolen De Vries Syndrome, and CHARGE Syndrome. Dr. Stobbe is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Obstetrics and Gynecology
    Experienced in Koolen De Vries Syndrome
    Obstetrics and Gynecology
    Referral may be required

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English, Castilian, Hindi, Spanish
    Accepting New Patients
    Offers Telehealth

    Angela Hernandez is an Obstetrics and Gynecologist practicing medicine in Seattle, Washington. Dr. Hernandez is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Turner Syndrome, Mixed Gonadal Dysgenesis, Koolen De Vries Syndrome, and Mosaicism. Dr. Hernandez is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Cardiology | Pulmonary Medicine
    Experienced in Koolen De Vries Syndrome
    Cardiology | Pulmonary Medicine
    Referral may be required

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Bridget Collins is a Cardiologist and a Pulmonary Medicine provider practicing medicine in Seattle, Washington. Dr. Collins is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Acute Interstitial Pneumonia, Interstitial Lung Disease, Hypersensitivity Pneumonitis, Endoscopy, and Lung Transplant.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Heart Institute At UW Medical Center – Montlake

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English, Hebrew, Spanish
    Accepting New Patients
    Offers Telehealth

    Yonatan Buber is a Cardiologist practicing medicine in Seattle, Washington. Dr. Buber is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Isthmian Coarctation, Coarctation of the Aorta, Arrhythmias, Heart Valve Repair, and Cardiac Ablation. Dr. Buber is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral may be required

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
     (3.2 miles away)
    Languages Spoken:
    English, Russian, Spanish
    Accepting New Patients
    Offers Telehealth

    Benjamin Dean is a Pediatric Neurologist practicing medicine in Seattle, Washington. Dr. Dean is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Aphantasia, Juvenile Myoclonic Epilepsy, Seizures, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Dean is currently accepting new patients.

    Showing 1-20 of 54

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near seattle, WA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near seattle, WA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near seattle, WA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near seattle, WA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near seattle, WA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near seattle, WA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near seattle, WA?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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