MediFind found 315 doctor with experience in Metachromatic Leukodystrophy near The United States. Of these, 236 are Experienced, 67 are Advanced, 8 are Distinguished and 4 are Elite.
Childrens Health Care Associates Inc
Adeline Vanderver is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Vanderver is rated as an Elite provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Aicardi-Goutieres Syndrome, Leukodystrophy, CACH Syndrome, Pol 3-Related Leukodystrophy, and Gastrostomy.
Alessandra Biffi is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Biffi is rated as an Elite provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Leukodystrophy, Metachromatic Leukodystrophy, Hemoglobinopathy, Bone Marrow Transplant, and Bone Graft.
Laura Adang is a Child and Adolescent Psychiatrist and a Neurologist in Philadelphia, Pennsylvania. Dr. Adang is rated as an Elite provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Aicardi-Goutieres Syndrome, Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Gastrostomy.
Massachusetts General Physicians Organization Inc
Florian Eichler is a Neurologist in Boston, Massachusetts. Dr. Eichler is rated as an Elite provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Tay-Sachs Disease, Gangliosidosis, and Gastrostomy. Dr. Eichler is currently accepting new patients.
Meghan Hickey is a Neurologist in Springfield, Massachusetts. Dr. Hickey is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Seizures, Migraine, Autosomal Dominant Partial Epilepsy with Auditory Features, and Tension Headache.
University Of Cincinnati Physicians Company LLC
Lawrence Goldstick is a Neurologist in Cincinnati, Ohio. Dr. Goldstick is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Cerebellar Degeneration, and Peripheral Neuropathy. Dr. Goldstick is currently accepting new patients.
Center For Pediatric Blood And Marrow Transplantation - Pediatric Specialty Care Journey Clinic
Paul Orchard is a Pediatric Hematologist Oncology provider in Minneapolis, MN. Dr. Orchard is rated as a Distinguished provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy.
University Of Cincinnati Physicians Company LLC
Aram Zabeti is a Neurologist in Florence, Kentucky. Dr. Zabeti is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Optic Neuritis, and Neuromyelitis Optica. Dr. Zabeti is currently accepting new patients.
Froedtert Andthe Medical College Of Wisconsin Community Physicians Inc
Ryan Brennan is a Neurologist in New Berlin, Wisconsin. Dr. Brennan is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Movement Disorders, Parkinson's Disease, Essential Tremor, Camptocormism, and Deep Brain Stimulation. Dr. Brennan is currently accepting new patients.
Loyola University Medical Center
Amy Blair is a primary care provider, practicing in Family Medicine in Maywood, Illinois. Dr. Blair is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Breast Cancer, Type 2 Diabetes (T2D), Hypertension, and Familial Hypertension. Dr. Blair is currently accepting new patients.
New York University
Steven Galetta is a Neurologist in New York, New York. Dr. Galetta is rated as an Experienced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Optic Neuritis, Multiple Sclerosis (MS), Brown Syndrome, Concussion, and Thrombectomy.
Jaap-jan Boelens is a Pediatric Hematologist Oncology provider in New York, New York. Dr. Boelens is rated as a Distinguished provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Graft Versus Host Disease (GvHD), Metachromatic Leukodystrophy, Leukodystrophy, Adrenoleukodystrophy (ALD), and Bone Marrow Transplant.
Primary Children's Neurology Clinic - Salt Lake City
Joshua Bonkowsky is a Pediatric Neurologist in Salt Lake City, Utah. Dr. Bonkowsky has been practicing medicine for over 27 years and is rated as a Distinguished provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are CACH Syndrome, Adrenoleukodystrophy (ALD), Leukodystrophy, Krabbe Disease, and Gastrostomy. Dr. Bonkowsky is currently accepting new patients.
The Board Of Trustees Of The University Of Illinois
Masahito Jimbo is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Jimbo is rated as a Distinguished provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Farber Lipogranulomatosis, CACH Syndrome, Leukodystrophy, and Pelizaeus-Merzbacher Disease.
Stanford Health Care
Jacinda Sampson is a Neurologist in Stanford, California. Dr. Sampson is rated as a Distinguished provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Oculodentodigital Dysplasia, Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Thymectomy.
Norman Barton is a Neurologist in Phoenix, Maryland. Dr. Barton is rated as a Distinguished provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Gaucher Disease, and CACH Syndrome.
University Of Texas Southwestern Medical Center At Dallas
Vikram Shakkottai is a Neurologist in Dallas, Texas. Dr. Shakkottai is rated as a Distinguished provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Olivopontocerebellar Atrophy, Spinocerebellar Ataxia, Spinocerebellar Ataxia Type 1, and Drug Induced Dyskinesia.
Johns Hopkins University
Gerald Raymond is a Pediatric Neurologist and a Pediatrics provider in Baltimore, Maryland. Dr. Raymond is rated as a Distinguished provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Zellweger Syndrome, and Leukodystrophy.
Duke Children's Health Center Bone Marrow Transplant Clinic
I’m a pediatric blood and bone marrow transplant specialist. I see patients from all over the world, many of whom have very rare diseases. I take care of patients with leukodystrophies, leukemias and other blood disorders that are resistant to standard treatment, and children with brain injuries like cerebral palsy. It’s rewarding to make a difference when treating challenging diseases. I’ve been fortunate over my career to be able to develop new treatments in the laboratory that I take into the clinic to help patients. In fact, here at Duke I was involved in the first cord-blood transplant anywhere in the world. When meeting with patients, I focus on making their experience more than just the medicine. We have a family support program for things beyond medical needs, which is especially helpful for families that are far from home. Outside of work, I like to knit, bike and spend time with my family. Dr. Kurtzberg is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. Her top areas of expertise are Graft Versus Host Disease (GvHD), Metachromatic Leukodystrophy, Congenital Athymia, Leukodystrophy, and Bone Marrow Transplant.
Cleveland Clinic Main Campus
Sumit Parikh is a Pediatric Neurologist in Cleveland, Ohio. Dr. Parikh has been practicing medicine for over 31 years and is rated as an Advanced provider by MediFind in the treatment of Metachromatic Leukodystrophy. His top areas of expertise are Leigh Syndrome, Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, and MELAS Syndrome.
Last Updated: 10/30/2025


