The 20 Best PHACE Syndrome Doctors in The United States

Find the Top PHACE Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 440 doctor with experience in PHACE Syndrome near The United States. Of these, 339 are Experienced, 80 are Advanced, 16 are Distinguished and 5 are Elite.

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440 providers found
    Elite in PHACE Syndrome
    Neuroradiology | Radiology
    Elite in PHACE Syndrome
    Neuroradiology | Radiology

    Precision Spine And Peripheral Nerve Center

    185 Berry St., Lobby 6, 
    San Francisco, CA 
    Languages Spoken:
    English, Portuguese
    Accepting New Patients

    Dr. Christopher Hess is a neuroradiologist, a specialist in diagnosing nervous system disorders with advanced imaging technologies. He uses MRI to diagnose and monitor neurodegenerative disorders such as dementia, and movement disorders such as Parkinson's disease and epilepsy. He also has expertise in diagnosing vascular anomalies (abnormalities involving blood vessels) and in CT-guided spinal procedures. He serves as chair of the UCSF Department of Radiology and Biomedical Imaging. Hess earned his medical degree at the University of Illinois College of Medicine. He earned a master of science degree and doctorate in electrical engineering at the University of Illinois at Urbana-Champaign. He completed a residency in radiology and a fellowship in neuroradiology at UCSF. Dr. Hess is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Arteriovenous Malformation, Aplasia Cutis Congenita, Deep Brain Stimulation, and Vertebroplasty. Dr. Hess is board certified in American Board Of Radiology, Neuroradiology and American Board Of Radiology, Diagnostic Radiology. Dr. Hess is currently accepting new patients.

    Elite in PHACE Syndrome
    Elite in PHACE Syndrome

    Radiology Department-Froedtert Hospital

    8750 William Coffey Dr, 
    Milwaukee, WI 
    Languages Spoken:
    English

    Mohit Maheshwari is a Radiologist practicing medicine in Milwaukee, Wisconsin. Dr. Maheshwari is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

    Advanced in PHACE Syndrome
    Neurosurgery
    Advanced in PHACE Syndrome
    Neurosurgery

    Carolina Neurosurgery & Spine Associates - Charlotte

    225 Baldwin Ave., 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joe Bernard is a Neurosurgery provider practicing medicine in Charlotte, North Carolina. Dr. Bernard is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Stroke, Subdural Hematoma, Thrombectomy, and Sacral Nerve Stimulation. Dr. Bernard is board certified in American Board Of Neurological Surgery. Dr. Bernard is currently accepting new patients.

    Learn about our expert tiers
    Elite in PHACE Syndrome
    Elite in PHACE Syndrome
    1701 Divisadero St Fl 3, 
    San Francisco, CA 
    Languages Spoken:
    English

    Ilona Frieden is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

    Elite in PHACE Syndrome
    Dermatology | Pediatrics
    Elite in PHACE Syndrome
    Dermatology | Pediatrics
    730 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Dawn Siegel is a Dermatologist and a Pediatrics provider practicing medicine in Palo Alto, California. Dr. Siegel is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 43 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Clouston Syndrome.

    Elite in PHACE Syndrome
    Dermatology | Pediatrics
    Elite in PHACE Syndrome
    Dermatology | Pediatrics
    6809 122nd Ave, 
    Kenosha, WI 
    Languages Spoken:
    English

    Kristen Holland is a Dermatologist and a Pediatrics provider practicing medicine in Kenosha, Wisconsin. Dr. Holland is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Vascular Birthmark, and Pityriasis Rubra Pilaris.

    Experienced in PHACE Syndrome
    Neurosurgery | Vascular Surgery
    Experienced in PHACE Syndrome
    Neurosurgery | Vascular Surgery

    Texas Health Neurosurgery And Spine Specialists

    800 5th Ave, Ste 500, 
    Fort Worth, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Moneeb Ehtesham is a fellowship-trained neurosurgeon with specialized expertise in cerebrovascular/endovascular neurosurgery and complex spinal surgery. He has served in teaching and senior academic research and leadership capacities for over two decades. Dr. Ehtesham currently serves as an Associate Professor at the TCU Burnett School of Medicine. His areas of special focus include open and endovascular surgery for aneurysms and other cerebrovascular conditions as well as spinal surgery. Additionally, he has been recognized for his research in the areas of stem cell therapies and brain tumors. He was a recipient of the Young Investigator Award from the American Association of Neurological Surgeons and Congress of Neurological Surgeons.Dr. Ehtesham completed his neurological surgery residency at Vanderbilt University Medical Center in Nashville, where he served as chief resident in his final year. He also completed his neurointerventional/ endovascular neurosurgery fellowship at Vanderbilt. Dr. Ehtesham is a Diplomate of the American Board of Neurological Surgery and a Fellow of the American Association of Neurological Surgeons and the American College of Surgeons. Dr. Ehtesham is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Subarachnoid Hemorrhage, Stroke, Subdural Hematoma, Laminectomy, and Stent Placement.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Neuromonitoring Associates

    9811 W Charleston Blvd, # 2641, 
    Las Vegas, NV 
    Languages Spoken:
    English

    . Dr. Thomas is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Seizures, Cervical Myelopathy, Memory Loss, and Generalized Tonic-Clonic Seizure. Dr. Thomas is board certified in American Board Of Psychiatry & Neurology and American Board Of Clinical Neurophysiology.

    Distinguished in PHACE Syndrome
    Dermatology
    Distinguished in PHACE Syndrome
    Dermatology

    University Of Wisconsin Medical Foundation Inc

    1 S Park St, 
    Madison, WI 
    Languages Spoken:
    English

    Beth Drolet is a Dermatologist practicing medicine in Madison, Wisconsin. Dr. Drolet is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Hemangioma, Sternal Cleft, Aplasia Cutis Congenita, and Clouston Syndrome.

    Distinguished in PHACE Syndrome
    Neuroradiology
    Distinguished in PHACE Syndrome
    Neuroradiology

    Kaiser Permanente Santa Clara Medical Center

    700 Lawrence Expy, 
    Santa Clara, CA 
    Experience:
    18+ years
    Languages Spoken:
    English

    Mark Mamlouk is a Neuroradiologist practicing medicine in Santa Clara, California. He has been practicing medicine for over 18 years. Dr. Mamlouk is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Cerebrospinal Fluid Leak, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Tissue Biopsy.

    Distinguished in PHACE Syndrome
    Pediatrics
    Distinguished in PHACE Syndrome
    Pediatrics

    Driscoll Children's Hospital

    3533 S Alameda St, 
    Corpus Christi, TX 
    Languages Spoken:
    English

    Denise Metry is a Pediatrics provider practicing medicine in Corpus Christi, Texas. Dr. Metry is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

    Distinguished in PHACE Syndrome
    Distinguished in PHACE Syndrome

    Iu Health Dermatology-Downtown Indianapolis

    550 University Blvd Ste 3240, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Anita Haggstrom is a Pediatrics provider practicing medicine in Indianapolis, Indiana. Dr. Haggstrom is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 135 other conditions, according to our data. Her clinical expertise encompasses Hemangioma, Vascular Birthmark, Aplasia Cutis Congenita, PHACE Syndrome, and Tissue Biopsy.

    Distinguished in PHACE Syndrome
    Distinguished in PHACE Syndrome

    Dermatology Program

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Marilyn Liang is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Liang is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Hemangioma, Kaposiform Hemangioendothelioma, Hemangioendothelioma, and Cutis Marmorata Telangiectatica Congenita.

    Distinguished in PHACE Syndrome
    Distinguished in PHACE Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Sarah Chamlin is a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Chamlin is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 31 other conditions, according to our data. Her clinical expertise encompasses Hemangioma, Vascular Birthmark, Aplasia Cutis Congenita, and Familial Multiple Nevi Flammei.

    Distinguished in PHACE Syndrome
    Distinguished in PHACE Syndrome

    Office

    3500 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    James R Treat is a Pediatrics provider practicing medicine in Philadelphia, Pennsylvania. Dr. R Treat is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Cutis Marmorata Telangiectatica Congenita, PHACE Syndrome, Pityriasis Lichenoides Et Varioliformis Acuta, and Livedo Reticularis.

    Distinguished in PHACE Syndrome
    Pediatrics
    Distinguished in PHACE Syndrome
    Pediatrics

    Birthmarks & Vascular Anomalies Center

    1825 4th St, 
    San Francisco, CA 
    Languages Spoken:
    English

    Erin Mathes is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Mathes is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Lamellar Ichthyosis, and Aplasia Cutis Congenita.

    Experienced in PHACE Syndrome
    Neuroradiology | Neurosurgery
    Experienced in PHACE Syndrome
    Neuroradiology | Neurosurgery

    Swedish Cerebrovascular Center

    550 17th Avenue, Suite 110, 
    Seattle, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Monteith's philosophy of care is to approach the care of each of his patients as if they were a member of his own family. He strives to give his patients the best possible outcome by combining the latest technological advances with personalized clinical care. When possible, he uses endovascular or minimally invasive surgical approaches, so that his patients can recover from their procedure and get back to their normal lives as soon as possible. Dr. Monteith is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Congenital Cardiovascular Shunt, Normal Pressure Hydrocephalus, Extracranial-Intracranial Bypass Surgery, and Cerebral Artery Bypass Surgery. Dr. Monteith is board certified in American Board Of Neurological Surgery. Dr. Monteith is currently accepting new patients.

    Distinguished in PHACE Syndrome
    Neurosurgery | Neurology
    Distinguished in PHACE Syndrome
    Neurosurgery | Neurology

    Sutter Pacific Medical Foundation

    1100 Sutter St, Flr 6, 
    San Francisco, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Lewis Leng is a Neurologist and a Neurosurgery provider practicing medicine in San Francisco, California. Dr. Leng is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Arterial Calcification of Infancy, PHACE Syndrome, Hydrocephalus, Balloon Sinuplasty, and Awake Craniotomy. Dr. Leng is board certified in Neurological Surgery.

    Distinguished in PHACE Syndrome
    Dermatology
    Distinguished in PHACE Syndrome
    Dermatology
    4202 W Oakwood Park Ct, 
    Franklin, WI 
    Languages Spoken:
    English

    Jack Steiner is a Dermatologist practicing medicine in Franklin, Wisconsin. Dr. Steiner is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses PHACE Syndrome, Clouston Syndrome, Aplasia Cutis Congenita, and Ectodermal Dysplasias. Dr. Steiner is board certified in American Board Of Dermatology.

    Distinguished in PHACE Syndrome
    Dermatology | Pediatrics
    Distinguished in PHACE Syndrome
    Dermatology | Pediatrics
    5141 Broadway, 
    New York, NY 
    Languages Spoken:
    English

    Christine T Lauren, MD, is an Associate Professor of Dermatology and Pediatrics at Columbia University Irving Medical Center and serves as an Associate Designated Institutional Official at New York-Presbyterian Hospital.She received her undergraduate degree from Cornell University and her medical degree from Columbia University’s College of Physicians and Surgeons, where she was elected to the Alpha Omega Alpha Honor Society. Dr. Lauren completed her pediatric residency at the Children’s Hospital of Philadelphia, where she served as chief resident, and returned to New York-Presbyterian Hospital, Columbia campus for her dermatology residency and pediatric dermatology fellowship. Dr. Lauren is board-certified in both dermatology and pediatrics. She is a fellow of the American Academy of Pediatrics and the American Academy of Dermatology, and an active member of the Society for Pediatric Dermatology and the Pediatric Dermatology Research Alliance. She currently serves on the executive committee of the American Academy of Pediatrics’ Section on Dermatology.Dr. Lauren’s clinical and academic interests include atopic dermatitis and other inflammatory skin conditions, vascular birthmarks, neonatal dermatology, and medical education. She is actively involved in clinical research and has authored numerous peer-reviewed publications and book chapters in both dermatology and pediatrics. She has been a strong advocate for medical training, previously serving as Program Director of the Dermatology Residency Program. In her current role as an Associate Designated Institutional Official at New York-Presbyterian Hospital, she supports graduate medical education across multiple specialties and campuses. Dr. Lauren is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Vascular Birthmark, and Atopic Dermatitis. Dr. Lauren is board certified in Pediatrics, Dermatology, and Pediatric Dermatology.

    Showing 1-20 of 440

    Last Updated: 04/28/2026

    What is the definition of PHACE Syndrome?

    PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

    When should I see a PHACE Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a PHACE Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank PHACE Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by PHACE Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a PHACE Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different PHACE Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a PHACE Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my PHACE Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female PHACE Syndrome doctors in The United States?

    Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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