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    Last Updated: 01/09/2026

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    MediFind found 443 doctor with experience in PHACE Syndrome near The United States. Of these, 341 are Experienced, 81 are Advanced, 16 are Distinguished and 5 are Elite.

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    LocationClose
    443 providers found
      Elite in PHACE Syndrome
      Pediatrics | Dermatology
      Elite in PHACE Syndrome
      Pediatrics | Dermatology
      1701 Divisadero St, 
      San Francisco, CA 
      Languages Spoken:
      English

      Ilona Frieden is a Pediatrics specialist and a Dermatologist in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

      Elite in PHACE Syndrome
      Elite in PHACE Syndrome

      Ucsf Medical Group Business Services

      3100 San Pablo Ave, 
      Berkeley, CA 
      Languages Spoken:
      English

      Christopher Hess is a Radiologist in Berkeley, California. Dr. Hess is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are PHACE Syndrome, Clouston Syndrome, Ectodermal Dysplasias, Deep Brain Stimulation, and Vertebroplasty.

      Elite in PHACE Syndrome
      Radiology | Interventional Radiology
      Elite in PHACE Syndrome
      Radiology | Interventional Radiology

      Childrens Specialty Group Inc

      9000 W Wisconsin Ave, 
      Milwaukee, WI 
      Languages Spoken:
      English

      Mohit Maheshwari is a Radiologist and an Interventional Radiologist in Milwaukee, Wisconsin. Dr. Maheshwari is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are PHACE Syndrome, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

      Learn about our expert tiers
      Elite in PHACE Syndrome
      Dermatology
      Elite in PHACE Syndrome
      Dermatology
      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      Dawn Siegel is a Dermatologist in Palo Alto, California. Dr. Siegel is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Vascular Birthmark.

      Elite in PHACE Syndrome
      Elite in PHACE Syndrome
      9200 W Wisconsin Ave, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Kristen Holland is a Dermatologist in Milwaukee, Wisconsin. Dr. Holland is rated as an Elite provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Vascular Birthmark, and Pityriasis Rubra Pilaris. Dr. Holland is currently accepting new patients.

      Ali R. Zomorodi
      Advanced in PHACE Syndrome
      Neurosurgery
      Advanced in PHACE Syndrome
      Neurosurgery

      Duke Neurological Disorders Clinic - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English, Farsi
      Accepting New Patients
      Offers Telehealth

      Ali Zomorodi is a Neurosurgery provider in Durham, North Carolina. Dr. Zomorodi is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Acoustic Neuroma, Schwannoma, Cerebral Artery Bypass Surgery, and Extracranial-Intracranial Bypass Surgery. Dr. Zomorodi is currently accepting new patients.

      Joe D. Bernard
      Advanced in PHACE Syndrome
      Neurosurgery
      Advanced in PHACE Syndrome
      Neurosurgery

      Carolina Neurosurgery & Spine Associates - Charlotte

      225 Baldwin Ave., 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Joe Bernard is a Neurosurgery provider in Charlotte, North Carolina. Dr. Bernard is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Stroke, Subarachnoid Hemorrhage, Thrombectomy, and Sacral Nerve Stimulation. Dr. Bernard is currently accepting new patients.

      Advanced in PHACE Syndrome
      Neurosurgery
      Advanced in PHACE Syndrome
      Neurosurgery

      The University Of Chicago Medical Center

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Arabic, French, German
      Accepting New Patients

      Issam Awad is a Neurosurgery provider in Chicago, Illinois. Dr. Awad is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Cerebral Cavernous Malformation, Hemangioma, Stroke, Thrombectomy, and Carotid Artery Surgery. Dr. Awad is currently accepting new patients.

      Advanced in PHACE Syndrome
      Advanced in PHACE Syndrome

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Bradley Bohnstedt is a Neurosurgery provider in Indianapolis, Indiana. Dr. Bohnstedt is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Stroke, Extracranial-Intracranial Bypass Surgery, and Cerebral Artery Bypass Surgery. Dr. Bohnstedt is currently accepting new patients.

      Advanced in PHACE Syndrome
      Neurosurgery | Radiology
      Advanced in PHACE Syndrome
      Neurosurgery | Radiology

      Wellstar Medical Group LLC

      61 Whitcher St, Suite 3110, 
      Marietta, GA 
      Languages Spoken:
      English, Arabic
      Accepting New Patients
      Offers Telehealth

      Ahmad Khaldi is a Neurosurgery specialist and a Radiologist in Marietta, Georgia. Dr. Khaldi is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Stroke, Posterior Fossa Tumor, Stent Placement, and Thrombectomy. Dr. Khaldi is currently accepting new patients.

      Advanced in PHACE Syndrome
      Neurosurgery | Interventional Radiology
      Advanced in PHACE Syndrome
      Neurosurgery | Interventional Radiology

      Yale University

      20 York St, 
      New Haven, CT 
      Languages Spoken:
      English
      Offers Telehealth

      Charles Matouk is a Neurosurgery specialist and an Interventional Radiologist in New Haven, Connecticut. Dr. Matouk is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Stroke, Hydrocephalus, Normal Pressure Hydrocephalus, Thrombectomy, and Stent Placement.

      Advanced in PHACE Syndrome
      Advanced in PHACE Syndrome

      Jefferson University Physicians

      909 Walnut St, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Pascal Jabbour is a Neurosurgery provider in Philadelphia, Pennsylvania. Dr. Jabbour is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Stroke, Thrombectomy, and Stent Placement.

      Erik F. Hauck
      Experienced in PHACE Syndrome
      Neurosurgery
      Experienced in PHACE Syndrome
      Neurosurgery

      Duke Neurological Disorders Clinic - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Erik Hauck is a Neurosurgery provider in Durham, North Carolina. Dr. Hauck is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Arteriovenous Malformation, Subarachnoid Hemorrhage, Stent Placement, and Transmyocardial Revascularization. Dr. Hauck is currently accepting new patients.

      Allan H. Friedman
      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome

      Duke Cancer Center Brain Tumor Clinic

      20 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Allan Friedman is a Neurosurgery provider in Durham, North Carolina. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Glioma, Astrocytoma, Glioblastoma, Awake Craniotomy, and Laminectomy. Dr. Friedman is currently accepting new patients.

      Lewis Z. Leng
      Distinguished in PHACE Syndrome
      Neurosurgery
      Distinguished in PHACE Syndrome
      Neurosurgery

      Rowland Way Care Center

      101 Rowland Way, Suite 220, 
      Novato, CA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Lewis Leng is a Neurosurgery provider in Novato, California. Dr. Leng is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Arterial Calcification of Infancy, PHACE Syndrome, Hydrocephalus, Balloon Sinuplasty, and Awake Craniotomy. Dr. Leng is currently accepting new patients.

      Jack E. Steiner
      Distinguished in PHACE Syndrome
      Distinguished in PHACE Syndrome

      Aurora Dermatology

      4202 W Oakwood Park Ct, Ste 200, 
      Franklin, WI 
      Languages Spoken:
      English

      Jack Steiner is a Dermatologist in Franklin, Wisconsin. Dr. Steiner is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are PHACE Syndrome, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

      Rand L. Werbitt
      Advanced in PHACE Syndrome
      Advanced in PHACE Syndrome

      Advanced Specialty Care

      488 Main Avenue, 
      Norwalk, CT 
      Languages Spoken:
      English

      Rand Werbitt is a Dermatologist in Norwalk, Connecticut. Dr. Werbitt is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Actinic Keratosis, Epidermoid Cyst, PHACE Syndrome, and Warts.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome

      The Medical College Of Wisconsin Inc

      9697 Saint Catherines Dr, 
      Pleasant Prairie, WI 
      Languages Spoken:
      English, Farsi, Latin, Spanish
      Accepting New Patients

      Hirad Hedayat is a Neurosurgery provider in Pleasant Prairie, Wisconsin. Dr. Hedayat is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Subdural Hematoma, Chronic Subdural Hematoma, Stroke, Thrombectomy, and Stent Placement. Dr. Hedayat is currently accepting new patients.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome

      Sentara Medical Group

      400 Sentara Cir, Suite 201c, 
      Williamsburg, VA 
      Languages Spoken:
      English
      Offers Telehealth

      Ikuko Laccheo is a Neurologist in Williamsburg, Virginia. Dr. Laccheo is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Cervical Myelopathy, Opisthotonos, Muscle Spasms, and Spinal Tumor.

      Experienced in PHACE Syndrome
      Dermatology
      Experienced in PHACE Syndrome
      Dermatology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Polish, Spanish

      Lacey Kruse is a Dermatologist in Chicago, Illinois. Dr. Kruse is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Familial Multiple Nevi Flammei, Stork Bite, Aplasia Cutis Congenita, and Linear Hamartoma Syndrome.

      Showing 1-20 of 443

      Last Updated: 01/09/2026

      What is the definition of PHACE Syndrome?

      PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

      When should I see a PHACE Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a PHACE Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank PHACE Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by PHACE Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a PHACE Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different PHACE Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a PHACE Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my PHACE Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female PHACE Syndrome doctors in The United States?

      Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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