The 20 Best Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy Doctors in The United States

Find the Top Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 288 doctor with experience in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy near The United States. Of these, 230 are Experienced, 54 are Advanced and 4 are Distinguished.

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288 providers found
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English

    Raymond Wang is a Medical Genetics provider practicing medicine in Orange, California. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Pompe Disease, and Adenoidectomy.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    N Building - Education Building And Lerner Research Institute

    9620 Carnegie Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English, French, German, Spanish
    Offers Telehealth

    Angelika Erwin is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Erwin is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Megalencephalic Leukoencephalopathy with Subcortical Cysts, Multiple Sulfatase Deficiency, Gaucher Disease Type 3, and Gaucher Disease Type 1. Dr. Erwin is board certified in American Board Of Medical Genetics And Genomics, 2013.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Internal Medicine
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Internal Medicine

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Wendy Raskind is an Internal Medicine provider practicing medicine in Seattle, Washington. Dr. Raskind is rated as a Distinguished provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Cowden Syndrome, Phacomatosis Pigmentovascularis, and Peutz-Jeghers Syndrome.

    Learn about our expert tiers
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neurology
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neurology

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Marie Davis is a Neurologist practicing medicine in Seattle, Washington. Dr. Davis is rated as a Distinguished provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Niemann-Pick Disease, Spastic Paraplegia Type 7, and Huntington Disease.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Marc Patterson is a Pediatric Neurologist practicing medicine in Rochester, Minnesota. Dr. Patterson is rated as a Distinguished provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Leukodystrophy, and CACH Syndrome.

    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Nurse Practitioner
    Distinguished in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Nurse Practitioner

    Baptist Health Medical Group Family Medicine

    1919 State St Ste 446, 
    New Albany, IN 
    Languages Spoken:
    English
    Offers Telehealth

    Janet Hollis is a Nurse Practitioner practicing medicine in New Albany, Indiana. Ms. Hollis is rated as a Distinguished provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Vitamin D Deficiency, Opioid Induced Constipation, and Emphysema.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pulmonary Medicine | Intensive Care Medicine | Internal Medicine
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pulmonary Medicine | Intensive Care Medicine | Internal Medicine

    Taubman Center

    1500 E Medical Center Dr, Floor 3 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Benjamin Singer is an Assistant Professor in Pulmonary and Critical Care Medicine in the Department of Internal Medicine at the University of Michigan. He received his undergraduate degree in mathematics at the University of Michigan in 2002. Dr. Singer completed his medical training and PhD in Neuroscience through the Medical Scientist Training Program, and subsequently completed residency in Internal Medicine and fellowship training in Pulmonary and Critical Care Medicine, all at the University of Michigan.Approximately half of patients who survive an episode of critical illness experience long term brain dysfunction, in the form of anxiety, depression, post traumatic stress, or cognitive impairment. Dr. Singer’s research focuses on basic and translational studies of long-term brain injury after critical illness, with a focus on sepsis. These studies utilize animal models of sepsis and patient autopsy specimens to examine the immune and vascular responses to sepsis in the brain that persist for weeks to months after the outward signs of illness have resolved. In collaboration with Dr. Bob Dickson, he also examines the role of the gut microbiome in initiation of brain injury and multiorgan failure during sepsis. The goal of this work is to identify strategies to minimize and rehabilitate ongoing brain injury in sepsis survivors. Areas of special clinical focus include the care of patients with advance neuromuscular disease requiring chronic assisted ventilation. Dr. Singer is supported by a National Institute of Neurological Disorders and Stroke Career Development Award, MICHR, and University of Michigan Depression Center. Dr. Singer is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Lung Metastases, Acute Interstitial Pneumonia, Obesity Hypoventilation Syndrome (OHS), and Interstitial Lung Disease. Dr. Singer is board certified in Internal Medicine, Pulmonary Disease, and Critical Care Medicine.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    32+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sumit Parikh is a Pediatric Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 32 years. Dr. Parikh is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 168 other conditions, according to our data. His clinical expertise encompasses Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, Leigh Syndrome, and MELAS Syndrome. Dr. Parikh is board certified in American Board Of Psychiatry And Neurology, 2006.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics | Pediatric Pulmonology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics | Pediatric Pulmonology

    Children's - Pulmonology Clinic

    333 N. Santa Rosa St., 2nd Floor, Floor 2, 
    San Antonio, TX 
    Languages Spoken:
    English

    Kelly Smith is a Pediatrics specialist and a Pediatric Pulmonologist practicing medicine in San Antonio, Texas. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. His clinical expertise encompasses Cerebral Hypoxia, Congenital Unilateral Pulmonary Hypoplasia, Short Rib-Polydactyly Syndrome Type 1, and Bronchogenic Cyst. Dr. Smith is board certified in American Board Of Pediatrics and American Board Of Internal Medicine.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Internal Medicine | Geriatrics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Internal Medicine | Geriatrics

    Northwell Health Physician Partners University Physicians Group Medicine At Huguenot Avenue

    1042 Huguenot Avenue, 
    Staten Island, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Frank Cardello is a primary care provider, practicing in Internal Medicine and Geriatrics in Staten Island, New York. Dr. Cardello is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Idiopathic Edema, Milroy Disease, Lymphedema-Distichiasis Syndrome, and Aagenaes Syndrome.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatrics

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English

    John Carl is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Carl is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Croup, Primary Ciliary Dyskinesia (PCD), Ciliary Dyskinesia-Bronchiectasis, Adenoidectomy, and Myringotomy. Dr. Carl is board certified in American Board Of Pediatrics, 2000.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Orthopedics | Orthopedics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Pediatric Orthopedics | Orthopedics

    Pediatric Orthopaedics In Lawrenceville

    4401 Penn Avenue, 
    Pittsburgh, PA 
    Languages Spoken:
    English, Turkish
    Accepting New Patients

    Ozgur Dede, MD, is a double fellowship trained, board-certified pediatric orthopaedic and spine surgeon at UPMC Children’s Hospital of Pittsburgh.Dr. Dede earned his medical degree from Hacettepe University in Ankara, Turkey where he also completed his orthopaedic surgery residency training. He pursued subspecialty training in pediatric orthopaedic surgery and spine surgery in the United States and completed 4 years of surgical fellowship training at Cincinnati Children's Hospital Medical Center, the University of Pittsburgh School of Medicine, Alfred I duPont Hospital for Children, and the UCSF Spine Center.His clinical interests include treatment of spinal problems in children including scoliosis, spondylolysis, spondylolisthesis, cervical instability, disc herniation and spinal stenosis. He also treats neuromuscular conditions including cerebral palsy and spina bifida, arthrogryposis and other syndromic afflictions.  His research interests include the non-operative and operative management of all types of pediatric scoliosis as well as management of hip and lower extremity deformities in children with spasticity.View Dr. Dede’s full list of publications from PubMed. Dr. Dede is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Osteotomy, and Spinal Fusion. Dr. Dede is board certified in American Board Of Orthopaedic Surgery. Dr. Dede is currently accepting new patients.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Intensive Care Medicine | Pulmonary Medicine | Internal Medicine
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Intensive Care Medicine | Pulmonary Medicine | Internal Medicine

    Taubman Center

    1500 E Medical Center Dr, Floor 3 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Sara Mirza is an Internal Medicine specialist and an Intensive Care Medicine provider practicing medicine in Ann Arbor, Michigan. Dr. Mirza is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Cerebral Hypoxia, Lung Metastases, Acute Respiratory Distress Syndrome (ARDS), Gastrostomy, and Bone Marrow Aspiration.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Obstetrics and Gynecology | Neonatology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Obstetrics and Gynecology | Neonatology

    Trinity Health Of New England Medical Group - Maternal Fetal Medicine

    114 Woodland St, 4th Fl, 
    Hartford, CT 
    Experience:
    27+ years
    Languages Spoken:
    English
    Accepting New Patients

    Mary Janicki is a Neonatologist and an Obstetrics and Gynecologist practicing medicine in Hartford, Connecticut. She has been practicing medicine for over 27 years. Dr. Janicki is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Gestational Diabetes, Placenta Previa, Premature Infant, and Preeclampsia. Dr. Janicki is board certified in American Board Of Obstetrics & Gynecology, Maternal & Fetal Medicine , American Board Of Obstetrics And Gynecology, Maternal & Fetal Medicine, Maternal And Fetal Medicine , American Board Of Obstetrics & Gynecology , and American Board Of Obstetrics And Gynecology, Obstetrics & Gynecology. Dr. Janicki is currently accepting new patients.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neurology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    21+ years
    Languages Spoken:
    English
    Offers Telehealth

    James Liao is a Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 21 years. Dr. Liao is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Chorea, Movement Disorders, Parkinson's Disease, Drug Induced Dyskinesia, and Deep Brain Stimulation. Dr. Liao is board certified in American Board Of Psychiatry And Neurology, 2020.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Medical Genetics | Pediatrics

    Lenox Baker Children's Hospital

    3000 Erwin Rd, 
    Durham, NC 
    Experience:
    40+ years
    Languages Spoken:
    English
    Offers Telehealth

    I am a clinical geneticist and a pediatrician with a deep interest in undiagnosed and rare genetic disorders. I provide medical care for children and adults with chromosome 22q11.2 deletion syndrome and diagnostic evaluation for patients with symptoms and signs of genetic disorders, when evaluations have not provided a specific diagnosis. Dr. Shashi is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses DiGeorge Syndrome, Hypotonia, Immune Defect due to Absence of Thymus, and Micrognathia. Dr. Shashi is board certified in American Board Of Medical Genetics And Genomics, Clinical Genetics And Genomics - General.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy

    The Children's Hospital At Montefiore

    3415 Bainbridge Avenue, 
    Bronx, NY 
    Languages Spoken:
    English

    Melissa Wasserstein is a Pediatrics provider practicing medicine in Bronx, New York. Dr. Wasserstein is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Reticulohistiocytoma, and Splenomegaly.

    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Otolaryngology
    Experienced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Otolaryngology

    Proliance Surgeons

    21911 76th Ave W, Suite 211, 
    Edmonds, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Tyler Kimbrough is a board-certified otolaryngologist. Dr. Kimbrough is rated as an Experienced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Chronic Rhinosinusitis with Nasal Polyps (CRSwNP), Infant Hearing Loss, Jones Syndrome, and DFNB1. Dr. Kimbrough is board certified in American Board Of Otolaryngology - Head And Neck Surgery. Dr. Kimbrough is currently accepting new patients.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Internal Medicine | Neurology | Neuromusculoskeletal Medicine
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Internal Medicine | Neurology | Neuromusculoskeletal Medicine

    SSM Health Neurosciences

    1055 Bowles Ave., 
    Fenton, MO 
    Languages Spoken:
    English

    Dr. Kinsella is board certified in internal medicine, neurology, neuromuscular medicine, electromyography and autonomic disorders. He is listed among the Best Doctors in the US since 2005. He was awarded Teacher of the Year from the US Psychiatric Congress in 2009. He is a Fellow of the American Academy of Neurology. He is a native St. Louisan who completed an internal medicine residency at St. John's Mercy in St. Louis, a neurology residency at Brown University in Providence, Rhode Island, and a neuromuscular/EMG fellowship at Columbia University in New York. He is co-director of neurology for SSM Health Neuroscience Institute. Dr. Kinsella has special interest in neuromuscular disorders, EMG and autonomic disorders. His office is located on the SSM Health St. Clare Hospital - Fenton campus. Dr. Kinsella is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Migraine, Orthostatic Hypotension, Parkinson's Disease, and Congenital Mirror Movement Disorder. Dr. Kinsella is board certified in American Board Of Internal Medicine , American Board Of Physical Medicine & Rehabilitation/Neuromuscular Medicine , American Board Of Psychiatry & Neurology , Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Physiatry | Neurology
    Advanced in Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy
    Physiatry | Neurology

    Burlington Building

    325 E Eisenhower Pkwy Ste 100, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Maryam Berri MD, is a Clinical Assistant Professor in the Department of Physical Medicine and Rehabilitation at the University of Michigan Medical School.Clinical work includes concomitant traumatic brain and spinal cord injury, myelomeningocele, cerebral palsy, and neurogenic bowel disease treatment. She is pursuing research in lactational outcomes and management for those with neurological disease. She has a strong interest in medical education as well as education and optimization in practice management for faculty. She serves as the revenue physician lead for the department. She is an active in the rehabilitation Standards Committee with the American Spinal Injury Association.Dr. Berri received her BS degree from the University of Michigan in 2009, and then in 2013, she graduated from the American University of the Caribbean in Pembroke Pines, FL. She then completed her residency in Physical Medicine and Rehabilitation at Wayne State University followed by subspecialty fellowship in Spinal Cord Injury at the University of Michigan. Dr. Berri is rated as an Advanced provider by MediFind in the treatment of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Autonomic Dysreflexia, Brown-Sequard Syndrome, Spasticity, and Neurogenic Bowel. Dr. Berri is board certified in Physical Medicine & Rehab, Spinal Cord Injury Medicine, and Brain Injury Medicine.

    Showing 1-20 of 288

    Last Updated: 04/28/2026

    What is the definition of Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy?

    Polycystic lipomembranous osteodysplasia with sclerosing leukoencephalopathy, commonly known as PLOSL, is a progressive disorder that affects the bones and brain.  "Polycystic lipomembranous osteodysplasia" refers to cyst-like bone changes that can be seen on x-rays.  "Sclerosing leukoencephalopathy" describes specific changes in the brain that are found in people with this disorder.

    When should I see a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. 

    Why is it important to get a second opinion from a different Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctors in The United States?

    Look for the filter feature on the left side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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