The 20 Best Rett Syndrome Doctors Near Me

Find Doctors who have experience with Trofinetide

Last Updated: 06/30/2026

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MediFind found 18 doctor with experience in Rett Syndrome.

Location
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18 providers found
    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology
    Referral may be required

    Rush University Medical Center

    1725 W Harrison St Ste 710, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Elizabeth Berry is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Berry is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Fragile X Syndrome, Niemann-Pick Disease, Autism Spectrum Disorder, and Rett Syndrome.

    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology
    Referral may be required

    Office

    3401 Civic Center Blvd Fl 10, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Eric Marsh is a Pediatric Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Marsh is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Epilepsy, West Syndrome, and CDKL5 Deficiency Disorder.

    Distinguished in Rett Syndrome
    Neurology
    Distinguished in Rett Syndrome
    Neurology
    Referral may be required

    Bloomington/Edina Clinic

    3601 Minnesota Dr Ste 200, 
    Edina, MN 
    Languages Spoken:
    English

    Tim Feyma is a Neurologist practicing medicine in Edina, Minnesota. Dr. Feyma is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 123 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Cerebral Palsy, Focal Dystonia, Partial Familial Epilepsy, and Microvascular Decompression.

    Learn about our expert tiers
    Distinguished in Rett Syndrome
    Pediatric Neurology
    Distinguished in Rett Syndrome
    Pediatric Neurology
    Referral may be required

    Vanderbilt University

    2200 Childrens Way, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Neul is a Pediatric Neurologist practicing medicine in Nashville, Tennessee. Dr. Neul is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, FOXG1 Syndrome, Angelman Syndrome, and SHORT Syndrome.

    Distinguished in Rett Syndrome
    Pediatric Neurology
    Distinguished in Rett Syndrome
    Pediatric Neurology
    Referral may be required

    Children's Hospital Colorado

    13123 E 16th Ave, 
    Aurora, CO 
    Languages Spoken:
    English

    Timothy Benke is a Pediatric Neurologist practicing medicine in Aurora, Colorado. Dr. Benke is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, West Syndrome, Spasmus Nutans, and CDKL5 Deficiency Disorder.

    Distinguished in Rett Syndrome
    Pediatrics
    Distinguished in Rett Syndrome
    Pediatrics
    Referral may be required

    Children's Of Alabama

    1600 7th Ave S, 
    Birmingham, AL 
    Languages Spoken:
    English

    Alan Percy is a Pediatrics provider practicing medicine in Birmingham, Alabama. Dr. Percy is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, FOXG1 Syndrome, West Syndrome, and CDKL5 Deficiency Disorder.

    Distinguished in Rett Syndrome
    Pediatric Neurology
    Distinguished in Rett Syndrome
    Pediatric Neurology
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    David Lieberman is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Lieberman is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Aphantasia, Autism Spectrum Disorder, and Mosaicism.

    Distinguished in Rett Syndrome
    Distinguished in Rett Syndrome
    Referral may be required

    Kennedy Krieger Institute

    707 N Broadway, 
    Baltimore, MD 
    Languages Spoken:
    English

    Walter Kaufmann is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Kaufmann is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Fragile X Syndrome, Autism Spectrum Disorder, and Angelman Syndrome.

    Distinguished in Rett Syndrome
    Distinguished in Rett Syndrome
    Referral may be required
    St. James' Hospital, 
    Dublin, L, IE 

    Daniela Tropea practices practicing medicine in Dublin, Ireland. Ms. Tropea is rated as a Distinguished expert by MediFind in the treatment of Rett Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Rett Syndrome, Schizophrenia, Autism Spectrum Disorder, and Fragile X Syndrome.

    Distinguished in Rett Syndrome
    Pediatric Neurology
    Distinguished in Rett Syndrome
    Pediatric Neurology
    Referral may be required

    Rush University Medical Center

    1725 W Harrison St Ste 710, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Colleen Buhrfiend is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Buhrfiend is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Rett Syndrome, Aphantasia, Seizures, and Myotonia Congenita.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Robin Ryther is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Ryther is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Rett Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Photosensitive Epilepsy.

    Advanced in Rett Syndrome
    Pediatric Neurology | Pediatrics | Neurology
    Advanced in Rett Syndrome
    Pediatric Neurology | Pediatrics | Neurology
    Referral may be required

    University Of Alabama Health Services Foundation, PC

    1600 7th Ave S, 
    Birmingham, AL 
    Languages Spoken:
    English
    Accepting New Patients

    Amitha Ananth is a Pediatric Neurologist and a Pediatrics provider practicing medicine in Birmingham, Alabama. Dr. Ananth is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Rett Syndrome, Carnitine-Acylcarnitine Translocase Deficiency, Microcephaly Deafness Syndrome, and Mosaicism. Dr. Ananth is currently accepting new patients.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    Cairo, C, EG 

    Amr Elrosasy practices practicing medicine in Cairo, Egypt. Mr. Elrosasy is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Pustules, Subconjunctival Hemorrhage, Acne, Cataract Removal, and Deep Brain Stimulation.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    Tanda, GH, EG 

    Mohamed Abo Zeid practices practicing medicine in Tanda, Egypt. Mr. Abo Zeid is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Subconjunctival Hemorrhage, Jock Itch, Athlete's Foot, Gallbladder Removal, and Colostomy.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    London, ENG, GB 

    Othman Al Musaimi practices practicing medicine in London, United Kingdom. Mr. Al Musaimi is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. His clinical expertise encompasses Rett Syndrome, Barth Syndrome, Niemann-Pick Disease, and Primary Hyperoxaluria Type 1.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    Al Mansurah, DK, EG 

    Rashad Mohamed practices practicing medicine in Al Mansurah, Egypt. Mr. Mohamed is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. His clinical expertise encompasses Familial Hemiplegic Migraine, Migraine with Brainstem Aura, Tension Headache, ADULT Syndrome, and Thrombectomy.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    435 Williamstown Road, 
    Port Melbourne, VIC, AU 

    Larry Glass practices practicing medicine in Port Melbourne, Australia. Mr. Glass is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. His clinical expertise encompasses Rett Syndrome, Fragile X Syndrome, Fibrosarcoma, and Cutaneous T-Cell Lymphoma (CTCL).

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    Irbid, IR, JO 

    Alina Ghazou practices practicing medicine in Irbid, Jordan. Ms. Ghazou is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. Her clinical expertise encompasses Hyphema, Rett Syndrome, Meningioma, and Follicular Thyroid Cancer.

    Showing 1-18 of 18

    Last Updated: 06/30/2026

    What is the definition of Rett Syndrome?

    Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

    When should I see a Rett Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Rett Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Rett Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Rett Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Rett Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Rett Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Rett Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Rett Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Rett Syndrome doctors near me?

    Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Rett Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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