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    Last Updated: 01/09/2026

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    MediFind found 18 doctor with experience in Rett Syndrome.

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    LocationClose
    18 providers found
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Psychiatry
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Psychiatry

      Rush University Medical Group

      1725 W Harrison St, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Elizabeth Berry-Kravis is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Berry-Kravis is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Fragile X Syndrome, Niemann-Pick Disease, Autism Spectrum Disorder, and Rett Syndrome. Dr. Berry-Kravis is currently accepting new patients.

      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Eric Marsh is a Pediatric Neurologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Marsh is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Epilepsy, West Syndrome, and CDKL5 Deficiency Disorder.

      Distinguished in Rett Syndrome
      Pediatric Neurology | Neurology
      Distinguished in Rett Syndrome
      Pediatric Neurology | Neurology

      Noran Neurological Clinic, P.A.

      3601 Minnesota Dr, Suite 200, 
      Bloomington, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Timothy Feyma is a Pediatric Neurologist and a Neurologist in Bloomington, Minnesota. Dr. Feyma is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Cerebral Palsy, Focal Dystonia, Partial Familial Epilepsy, and Microvascular Decompression. Dr. Feyma is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      2200 Children's Way, Suite 30330, 
      Nashville, TN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeffrey Neul is a Pediatric Neurologist and a Pediatrics provider in Nashville, Tennessee. Dr. Neul is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, FOXG1 Syndrome, Angelman Syndrome, and West Syndrome. Dr. Neul is currently accepting new patients.

      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      930 20th St S, Suite 101, 
      Birmingham, AL 
      Languages Spoken:
      English
      Accepting New Patients

      Alan Percy is a Pediatric Neurologist and a Pediatrics provider in Birmingham, Alabama. Dr. Percy is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, FOXG1 Syndrome, CDKL5 Deficiency Disorder, and West Syndrome. Dr. Percy is currently accepting new patients.

      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      University Physicians Incorporated

      13123 E 16th Ave, 
      Aurora, CO 
      Languages Spoken:
      English
      Accepting New Patients

      Timothy Benke is a Pediatric Neurologist and a Pediatrics provider in Aurora, Colorado. Dr. Benke is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, West Syndrome, Spasmus Nutans, and CDKL5 Deficiency Disorder. Dr. Benke is currently accepting new patients.

      Distinguished in Rett Syndrome
      Pediatric Neurology | Neurology
      Distinguished in Rett Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      David Lieberman is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Lieberman is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Aphantasia, Autism Spectrum Disorder, and Mosaicism. Dr. Lieberman is currently accepting new patients.

      Distinguished in Rett Syndrome
      Distinguished in Rett Syndrome
      St. James' Hospital, 
      Dublin, L, IE 

      Daniela Tropea practices in Dublin, Ireland. Ms. Tropea is rated as a Distinguished expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Schizophrenia, Autism Spectrum Disorder, and Fragile X Syndrome.

      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics
      Distinguished in Rett Syndrome
      Pediatric Neurology | Pediatrics
      1725 W Harrison St, Suite 710, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Colleen Buhrfiend is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Buhrfiend is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Aphantasia, Seizures, and Autism Spectrum Disorder. Dr. Buhrfiend is currently accepting new patients.

      Advanced in Rett Syndrome
      Neurology | Pediatric Neurology
      Advanced in Rett Syndrome
      Neurology | Pediatric Neurology

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Robin Ryther is a Neurologist and a Pediatric Neurologist in Saint Louis, Missouri. Dr. Ryther is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Photosensitive Epilepsy. Dr. Ryther is currently accepting new patients.

      Advanced in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      University Of Alabama Health Services Foundation, PC

      1600 7th Ave S, 
      Birmingham, AL 
      Languages Spoken:
      English
      Accepting New Patients

      Amitha Ananth is a Pediatric Neurologist and a Pediatrics provider in Birmingham, Alabama. Dr. Ananth is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Carnitine-Acylcarnitine Translocase Deficiency, Microcephaly Deafness Syndrome, and Mosaicism. Dr. Ananth is currently accepting new patients.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      435 Williamstown Road, 
      Port Melbourne, VIC, AU 

      Nancy Jones practices in Port Melbourne, Australia. Ms. Jones is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. Her top area of expertise is Rett Syndrome.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome
      Cairo, C, EG 

      Amr Elrosasy practices in Cairo, Egypt. Mr. Elrosasy is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Pustules, Subconjunctival Hemorrhage, Acne, Cataract Removal, and Deep Brain Stimulation.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome
      Tanda, GH, EG 

      Mohamed Abo Zeid practices in Tanda, Egypt. Mr. Abo Zeid is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Subconjunctival Hemorrhage, Jock Itch, Athlete's Foot, Colostomy, and Ileostomy.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome
      London, ENG, GB 

      Othman Al Musaimi practices in London, United Kingdom. Mr. Al Musaimi is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Niemann-Pick Disease, Primary Hyperoxaluria Type 1, and Non-Langerhans-Cell Histiocytosis.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome
      Al Mansurah, DK, EG 

      Rashad Mohamed practices in Al Mansurah, Egypt. Mr. Mohamed is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Migraine with Brainstem Aura, Familial Hemiplegic Migraine, Tension Headache, Myasthenia Gravis, and Thrombectomy.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome
      435 Williamstown Road, 
      Port Melbourne, VIC, AU 

      Larry Glass practices in Port Melbourne, Australia. Mr. Glass is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Merkel Cell Carcinoma, Cutaneous T-Cell Lymphoma (CTCL), and Fragile X Syndrome.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome
      Irbid, IR, JO 

      Alina Ghazou practices in Irbid, Jordan. Ms. Ghazou is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Hyphema, Meningioma, Follicular Thyroid Cancer, Rett Syndrome, and Nephrectomy.

      Showing 1-18 of 18

      Last Updated: 01/09/2026

      What is the definition of Rett Syndrome?

      Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

      When should I see a Rett Syndrome doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Rett Syndrome doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Rett Syndrome doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Rett Syndrome doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Rett Syndrome doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Rett Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Rett Syndrome doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Rett Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Rett Syndrome doctors near me?

      Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Rett Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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