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    Last Updated: 10/30/2025

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    MediFind found 1104 doctor with experience in Rett Syndrome near The United States. Of these, 998 are Experienced, 74 are Advanced, 20 are Distinguished and 12 are Elite.

    Location
    LocationClose
    1,104 providers found
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      2200 Children's Way, Suite 30330, 
      Nashville, TN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeffrey Neul is a Pediatric Neurologist and a Pediatrics provider in Nashville, Tennessee. Dr. Neul is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, FOXG1 Syndrome, Angelman Syndrome, and West Syndrome. Dr. Neul is currently accepting new patients.

      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      930 20th St S, Suite 101, 
      Birmingham, AL 
      Languages Spoken:
      English
      Accepting New Patients

      Alan Percy is a Pediatric Neurologist and a Pediatrics provider in Birmingham, Alabama. Dr. Percy is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, FOXG1 Syndrome, CDKL5 Deficiency Disorder, and West Syndrome. Dr. Percy is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Rett Syndrome
      Pediatrics | Pediatric Neurology | Neurology
      Elite in Rett Syndrome
      Pediatrics | Pediatric Neurology | Neurology
      6701 Fannin St, 
      Houston, TX 
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Glaze is a Pediatrics specialist and a Pediatric Neurologist in Houston, Texas. Dr. Glaze is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Angelman Syndrome, Prader-Willi Syndrome, and Epilepsy. Dr. Glaze is currently accepting new patients.

      Learn about our expert tiers
      Elite in Rett Syndrome
      Pediatric Neurology | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      David Lieberman is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Lieberman is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Aphantasia, Autism Spectrum Disorder, and Mosaicism. Dr. Lieberman is currently accepting new patients.

      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Eric Marsh is a Pediatric Neurologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Marsh is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Epilepsy, West Syndrome, and CDKL5 Deficiency Disorder.

      Elite in Rett Syndrome
      Neurology | Pediatrics
      Elite in Rett Syndrome
      Neurology | Pediatrics

      Texas Childrens Physician Group

      6701 Fannin St, 
      Houston, TX 
      Languages Spoken:
      English

      Bernhard Suter is a Neurologist and a Pediatrics provider in Houston, Texas. Dr. Suter is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, West Syndrome, Spasmus Nutans, and FOXG1 Syndrome.

      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      University Physicians Incorporated

      13123 E 16th Ave, 
      Aurora, CO 
      Languages Spoken:
      English
      Accepting New Patients

      Timothy Benke is a Pediatric Neurologist and a Pediatrics provider in Aurora, Colorado. Dr. Benke is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, West Syndrome, Spasmus Nutans, and CDKL5 Deficiency Disorder. Dr. Benke is currently accepting new patients.

      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Peter Heydemann is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Heydemann is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Congenital Toxoplasmosis, Primary Amebic Meningoencephalitis, and Duchenne Muscular Dystrophy. Dr. Heydemann is currently accepting new patients in some locations.

      Elite in Rett Syndrome
      Pediatric Neurology | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Neurology

      Noran Neurological Clinic, P.A.

      3601 Minnesota Dr, Suite 200, 
      Bloomington, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Timothy Feyma is a Pediatric Neurologist and a Neurologist in Bloomington, Minnesota. Dr. Feyma is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Cerebral Palsy, Focal Dystonia, Partial Familial Epilepsy, and Microvascular Decompression. Dr. Feyma is currently accepting new patients.

      Elite in Rett Syndrome
      Neurology | Pediatric Neurology
      Elite in Rett Syndrome
      Neurology | Pediatric Neurology

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Robin Ryther is a Neurologist and a Pediatric Neurologist in Saint Louis, Missouri. Dr. Ryther is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Photosensitive Epilepsy. Dr. Ryther is currently accepting new patients.

      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Northeast Georgia Physicians Group Inc

      1315 Jesse Jewell Pkwy Ne, Suite 300, 
      Gainesville, GA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Tarquinio is a Pediatric Neurologist and a Pediatrics provider in Gainesville, Georgia. Dr. Tarquinio is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Epilepsy, Seizures, and Absence Seizure. Dr. Tarquinio is currently accepting new patients.

      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Elite in Rett Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Vanderbilt University Medical Center

      1301 Medical Ctr Dr, 
      Nashville, TN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Cary Fu is a Pediatric Neurologist and a Pediatrics provider in Nashville, Tennessee. Dr. Fu is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, FOXG1 Syndrome, West Syndrome, and Angelman Syndrome. Dr. Fu is currently accepting new patients.

      Distinguished in Rett Syndrome
      Neurology | General Surgery
      Distinguished in Rett Syndrome
      Neurology | General Surgery

      New York University

      223 E 34th St, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Orrin Devinsky is a Neurologist and a General Surgeon in New York, New York. Dr. Devinsky is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Myoclonic Epilepsy, Dravet Syndrome, Seizures, Epilepsy, and Deep Brain Stimulation.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English

      Frank Longo is a Neurologist in Stanford, California. Dr. Longo is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Dementia, Alzheimer's Disease, Huntington Disease, and Rett Syndrome.

      Advanced in Rett Syndrome
      Internal Medicine
      Advanced in Rett Syndrome
      Internal Medicine

      Franciscan Medical Group

      34503 9th Ave S, Suite 100, 
      Federal Way, WA 
      Languages Spoken:
      English, Mandarin
      Accepting New Patients
      Offers Telehealth

      Alain Lambert is a primary care provider, practicing in Internal Medicine in Federal Way, Washington. Dr. Lambert is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Chronic Kidney Disease. Dr. Lambert is currently accepting new patients.

      Alexis P. Dunne
      Experienced in Rett Syndrome
      Internal Medicine
      Experienced in Rett Syndrome
      Internal Medicine

      Advocate Medical Group Internal Medicine

      80 Templeton Dr, 
      Oswego, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Alexis Dunne is a primary care provider, practicing in Internal Medicine in Oswego, Illinois. Dr. Dunne is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Hypothyroidism, and Obesity in Children.

      Aleksandra A. Jacobs
      Distinguished in Rett Syndrome
      Pediatric Neurology
      Distinguished in Rett Syndrome
      Pediatric Neurology

      Montefiore Medical Center

      111 East 210th Street, 
      Bronx, NY 
      Experience:
      44+ years
      Languages Spoken:
      English

      Aleksandra Djukic, is Associate Professor of Neurology . She completed  her neurology residency at the Albert Einstein College of Medicine. She is a diplomate of the American Board of Psychiatry and Neurology. Dr. Jacobs is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome and Down Syndrome.

      Elia P. Knight
      Distinguished in Rett Syndrome
      Distinguished in Rett Syndrome

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Languages Spoken:
      English

      Elia Knight is a Pediatrics provider in Cleveland, Ohio. Dr. Knight is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are CDKL5 Deficiency Disorder, West Syndrome, Seizures, and Epilepsy.

      Experienced in Rett Syndrome
      Pediatric Neurology | Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology | Neurology

      University Of Vermont Medical Center Inc

      111 Colchester Ave, 
      Burlington, VT 
      Languages Spoken:
      English

      Gregory Holmes is a Pediatric Neurologist and a Neurologist in Burlington, Vermont. Dr. Holmes is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Seizures, Epilepsy, Memory Loss, and Generalized Tonic-Clonic Seizure.

      Experienced in Rett Syndrome
      Experienced in Rett Syndrome

      University Medical Associates Of The Medical University Of South Carol

      171 Ashley Ave, 
      Charleston, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Federico Rodriguez-Porcel is a Neurologist in Charleston, South Carolina. Dr. Rodriguez-Porcel is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Movement Disorders, Parkinson's Disease, Progressive Supranuclear Palsy, Progressive Supranuclear Palsy Atypical, and Deep Brain Stimulation. Dr. Rodriguez-Porcel is currently accepting new patients.

      Showing 1-20 of 1,104

      Last Updated: 10/30/2025

      What is the definition of Rett Syndrome?

      Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

      When should I see a Rett Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Rett Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Rett Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Rett Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Rett Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Rett Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Rett Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Rett Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Rett Syndrome doctors in The United States?

      Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Rett Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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