The 20 Best Rett Syndrome Doctors in The United States

Find the Top Rett Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 1099 doctor with experience in Rett Syndrome near The United States. Of these, 992 are Experienced, 75 are Advanced, 18 are Distinguished and 14 are Elite.

Location
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1,099 providers found
    Elite in Rett Syndrome
    Elite in Rett Syndrome

    Northeast Georgia Physicians Group Neurology

    4445 South Lee Street, Suite 310, 
    Buford, GA 
    Experience:
    22+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Tarquinio is a Neurologist practicing medicine in Buford, Georgia. He has been practicing medicine for over 22 years. Dr. Tarquinio is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Epilepsy, Seizures, and Absence Seizure. Dr. Tarquinio is board certified in American Board Of Psychiatry & Neurology, Neurology With Special Qualification In Child Neurology - 2013. Dr. Tarquinio is currently accepting new patients.

    Elite in Rett Syndrome
    Medical Genetics
    Elite in Rett Syndrome
    Medical Genetics

    Greenwood Genetic Center– Greenwood

    106 Gregor Mendel Circle, 
    Greenwood, SC 
    Languages Spoken:
    English
    Accepting New Patients

    Steven Skinner is a Medical Genetics provider practicing medicine in Greenwood, South Carolina. Dr. Skinner is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Increased Head Circumference, Angelman Syndrome, and Hypotonia. Dr. Skinner is currently accepting new patients.

    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology

    Vanderbilt University

    2200 Childrens Way, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Neul is a Pediatric Neurologist practicing medicine in Nashville, Tennessee. Dr. Neul is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, FOXG1 Syndrome, Angelman Syndrome, and SHORT Syndrome.

    Learn about our expert tiers
    Elite in Rett Syndrome
    Pediatrics
    Elite in Rett Syndrome
    Pediatrics

    Children's Of Alabama

    1600 7th Ave S, 
    Birmingham, AL 
    Languages Spoken:
    English

    Alan Percy is a Pediatrics provider practicing medicine in Birmingham, Alabama. Dr. Percy is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, FOXG1 Syndrome, West Syndrome, and CDKL5 Deficiency Disorder.

    Elite in Rett Syndrome
    Pediatrics
    Elite in Rett Syndrome
    Pediatrics

    Baylor College Of Medicine

    6701 Fannin St, 
    Houston, TX 
    Languages Spoken:
    English

    Huda Zoghbi is a Pediatrics provider practicing medicine in Houston, Texas. Dr. Zoghbi is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Rett Syndrome, Spinocerebellar Ataxia Type 1, Olivopontocerebellar Atrophy, Spinocerebellar Ataxia, and Deep Brain Stimulation.

    Elite in Rett Syndrome
    Elite in Rett Syndrome

    Kennedy Krieger Institute

    707 N Broadway, 
    Baltimore, MD 
    Languages Spoken:
    English

    Walter Kaufmann is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Kaufmann is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Fragile X Syndrome, Autism Spectrum Disorder, and Stereotypic Movement Disorder.

    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    David Lieberman is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Lieberman is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Aphantasia, Autism Spectrum Disorder, and Mosaicism.

    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology

    Office

    3401 Civic Center Blvd Fl 10, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Eric Marsh is a Pediatric Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Marsh is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Epilepsy, West Syndrome, and CDKL5 Deficiency Disorder.

    Elite in Rett Syndrome
    Elite in Rett Syndrome

    Baylor College Of Medicine

    6701 Fannin St, 
    Houston, TX 
    Languages Spoken:
    English

    Bernhard Suter is a Neurologist practicing medicine in Houston, Texas. Dr. Suter is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, West Syndrome, Spasmus Nutans, and FOXG1 Syndrome.

    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology

    Children's Hospital Colorado

    13123 E 16th Ave, 
    Aurora, CO 
    Languages Spoken:
    English

    Timothy Benke is a Pediatric Neurologist practicing medicine in Aurora, Colorado. Dr. Benke is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, West Syndrome, Spasmus Nutans, and CDKL5 Deficiency Disorder.

    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology

    Office

    1725 W Harrison St Ste 718, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Peter Heydemann is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Heydemann is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Congenital Toxoplasmosis, Primary Amebic Meningoencephalitis, and Duchenne Muscular Dystrophy.

    Elite in Rett Syndrome
    Neurology
    Elite in Rett Syndrome
    Neurology

    Bloomington/Edina Clinic

    3601 Minnesota Dr Ste 200, 
    Edina, MN 
    Languages Spoken:
    English

    Tim Feyma is a Neurologist practicing medicine in Edina, Minnesota. Dr. Feyma is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 123 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Cerebral Palsy, Focal Dystonia, Partial Familial Epilepsy, and Microvascular Decompression.

    Elite in Rett Syndrome
    Elite in Rett Syndrome

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Robin Ryther is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Ryther is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Rett Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Photosensitive Epilepsy.

    Elite in Rett Syndrome
    Pediatric Neurology | Pediatrics | Neurology
    Elite in Rett Syndrome
    Pediatric Neurology | Pediatrics | Neurology

    Vanderbilt University Medical Center

    1301 Medical Ctr Dr, 
    Nashville, TN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Cary Fu is a Pediatric Neurologist and a Pediatrics provider practicing medicine in Nashville, Tennessee. Dr. Fu is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, FOXG1 Syndrome, West Syndrome, and Angelman Syndrome. Dr. Fu is currently accepting new patients.

    Distinguished in Rett Syndrome
    Pediatric Neurology
    Distinguished in Rett Syndrome
    Pediatric Neurology

    Montefiore Medical Center

    111 East 210th Street, 
    Bronx, NY 
    Experience:
    44+ years
    Languages Spoken:
    English

    Aleksandra Djukic, is Associate Professor of Neurology . She completed  her neurology residency at the Albert Einstein College of Medicine. She is a diplomate of the American Board of Psychiatry and Neurology. Dr. Jacobs is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Rett Syndrome and Down Syndrome.

    Distinguished in Rett Syndrome
    Distinguished in Rett Syndrome

    UT Southwestern - Dept Of Pediatric Neurology

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English

    Dallas Armstrong is a Neurologist practicing medicine in Dallas, Texas. Dr. Armstrong is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Epilepsy, Seizures, West Syndrome, and Rett Syndrome.

    Distinguished in Rett Syndrome
    Distinguished in Rett Syndrome

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English

    Elia Knight is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Knight is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 107 other conditions, according to our data. Her clinical expertise encompasses CDKL5 Deficiency Disorder, West Syndrome, Seizures, and Epilepsy. Dr. Knight is board certified in American Board Of Psychiatry And Neurology, 2013.

    Distinguished in Rett Syndrome
    Pediatric Neurology | Pediatrics
    Distinguished in Rett Syndrome
    Pediatric Neurology | Pediatrics

    Arizona Pediatric Neurology & Neurogenetics Associates, PLLC

    3330 N 2nd St, Ste 402, 
    Phoenix, AZ 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Vinodh Narayanan is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Phoenix, Arizona. Dr. Narayanan is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Tuberous Sclerosis Complex, Tuberous Sclerosis, and Hypotonia. Dr. Narayanan is board certified in Pediatrics and Psychiatry & Neurology (Neurology). Dr. Narayanan is currently accepting new patients.

    Distinguished in Rett Syndrome
    Pediatric Neurology
    Distinguished in Rett Syndrome
    Pediatric Neurology

    The Kennedy Krieger Institute

    Baltimore, MD 
    Languages Spoken:
    English

    After completing her bachelors of science degree in biochemistry from the City College of New York (CUNY), Dr. Smith-Hicks entered the Medical Scientist Training Program at Columbia University College of Physicians and Surgeons, where she obtained her M.D., Ph.D. in 2000. She trained in Pediatrics at the Albert Einstein College of Medicine and completed her Neurology and Pediatric Neurology training at the Johns Hopkins University School of Medicine in 2005. Dr. Smith-Hicks trained as a post-doctoral fellow in the Department of Neuroscience at Johns Hopkins University School of Medicine under the guidance of Dr. Paul Worley. She joined the faculty at Kennedy Krieger Institute in 2010 where she now sees patients with Autism Spectrum Disorder and Rett Syndrome, while conducting basic science research exploring disorders of learning and memory. Dr. Smith is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 80 other conditions, according to our data. Her clinical expertise encompasses Rett Syndrome, Ruvalcaba Syndrome, Autism Spectrum Disorder, and Early Infantile Epileptic Encephalopathy. Dr. Smith is board certified in American Board Of Psychiatry And Neurology.

    Advanced in Rett Syndrome
    Internal Medicine
    Advanced in Rett Syndrome
    Internal Medicine
    34503 9th Ave S Ste 100, 
    Federal Way, WA 
    Languages Spoken:
    English, Mandarin
    Accepting New Patients
    Offers Telehealth

    Alain Lambert is a primary care provider, practicing in Internal Medicine in Federal Way, Washington. Dr. Lambert is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Chronic Kidney Disease. Dr. Lambert is currently accepting new patients.

    Showing 1-20 of 1,099

    Last Updated: 04/28/2026

    What is the definition of Rett Syndrome?

    Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

    When should I see a Rett Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Rett Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Rett Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Rett Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Rett Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Rett Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Rett Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Rett Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Rett Syndrome doctors in The United States?

    Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Rett Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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