MediFind found 380 doctor with experience in X-Linked Myotubular Myopathy near The United States. Of these, 292 are Experienced, 74 are Advanced, 9 are Distinguished and 5 are Elite.
Penn Neuroscience Center - Neurology
James Dowling is a Neurologist in Philadelphia, Pennsylvania. Dr. Dowling is rated as an Elite provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Horizontal Gaze Palsy with Progressive Scoliosis. Dr. Dowling is currently accepting new patients.
Carsten Bonnemann is a Pediatric Neurologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Bonnemann is rated as an Elite provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, Centronuclear Myopathy, and Gastrostomy.
Martin Childers is a Physiatrist in Seattle, Washington. Dr. Childers is rated as an Elite provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Limb-Girdle Muscular Dystrophy.
The Regents Of The University Of California
Perry Shieh is a Neurologist and a Neuromusculoskeletal Medicine provider in Los Angeles, California. Dr. Shieh is rated as an Elite provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Tubular Aggregate Myopathy.
Nancy Kuntz is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Kuntz is rated as an Elite provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Thymectomy.
Advocate Medical Group Neurology
David Randall is a Neurologist in Park Ridge, Illinois. Dr. Randall is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Lambert-Eaton Syndrome, Peripheral Neuropathy, Chronic Inflammatory Demyelinating Polyneuropathy, and Myasthenia Gravis.
MN - Neuro
Margherita Milone is a Neurologist in Rochester, Minnesota. Dr. Milone is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Progressive External Ophthalmoplegia, Necrotizing Myopathy (NM), Nemaline Myopathy, and Congenital Fiber-Type Disproportion.
Brigham And Women's Hospital, Neurosciences Center
Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is currently accepting new patients.
Shelly Mills is a primary care provider, practicing in Family Medicine in Defiance, Ohio. Dr. Mills is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Centronuclear Myopathy, Congenital Muscular Dystrophy Type 1A, Tubular Aggregate Myopathy, and Central Core Disease.
Baystate Medical Practices Inc
Anant Shenoy is a Neurologist in Springfield, Massachusetts. Dr. Shenoy is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Generalized Tonic-Clonic Seizure, and Limb-Girdle Muscular Dystrophy Type 2A. Dr. Shenoy is currently accepting new patients.
State University Of Iowa
Katherine Mathews is a Neurologist and a Pediatrics provider in Iowa City, Iowa. Dr. Mathews is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, Dystrophinopathy, and Friedreich Ataxia. Dr. Mathews is currently accepting new patients.
Saint Luke's Hospital Of Trenton
Jessica Snyder is a primary care provider, practicing in Family Medicine in Princeton, Missouri. Dr. Snyder is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy. Dr. Snyder is currently accepting new patients.
Mayo Clinic
Elie Naddaf is a Neurologist in Rochester, Minnesota. Dr. Naddaf has been practicing medicine for over 17 years and is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Inclusion Body Myositis, Cytoplasmic Body Myopathy, Nemaline Myopathy, and Myositis. Dr. Naddaf is currently accepting new patients.
Mayo Clinic
Teerin Liewluck is a Neurologist in Rochester, Minnesota. Dr. Liewluck is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Necrotizing Myopathy (NM), Limb-Girdle Muscular Dystrophy, Myositis, and Inclusion Body Myositis. Dr. Liewluck is currently accepting new patients.
Stefan Nicolau is a Pediatric Neurologist and a Neurologist in Mansfield, Ohio. Dr. Nicolau is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Becker Muscular Dystrophy. Dr. Nicolau is currently accepting new patients.
University Andrology Lab LLC
Nizar Chahin is a Neurologist in Portland, Oregon. Dr. Chahin is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Nemaline Myopathy, and Lambert-Eaton Syndrome.
University Professional Services
Michael Lieberman is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Lieberman is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Centronuclear Myopathy, Collagen VI-Related Myopathy, Nemaline Myopathy, and Benign Autosomal Dominant Myopathy. Dr. Lieberman is currently accepting new patients.
Hospital For Special Care
Kevin Felice is a Neurologist in New Britain, Connecticut. Dr. Felice is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, Spinal Muscular Atrophy (SMA), and Spinal Muscular Atrophy Type 3.
Layton Family Practice, LLC
Casey Stelter is a primary care provider, practicing in Family Medicine in Ogden, Utah. Dr. Stelter has been practicing medicine for over 24 years and is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. His top areas of expertise are Diabetic Neuropathy, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Stelter is currently accepting new patients.
Pendleton Community Care, Inc.
Carmen Rexrode is a primary care provider, practicing in Family Medicine in Franklin, West Virginia. Dr. Rexrode is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. Her top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Familial Hypertension, and Hypertension. Dr. Rexrode is currently accepting new patients.
Last Updated: 01/09/2026


