The 20 Best X-Linked Myotubular Myopathy Doctors in The United States
Find the Top X-Linked Myotubular Myopathy Experts and Specialists
UCLA Health Westwood Neurology
Perry Shieh is a Neurologist practicing medicine in Los Angeles, California. Dr. Shieh is rated as an Elite provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Spinal Muscular Atrophy (SMA), and Tubular Aggregate Myopathy.
MN - Neuro
Margherita Milone is a Neurologist practicing medicine in Rochester, Minnesota. Dr. Milone is rated as an Elite provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Progressive External Ophthalmoplegia, Necrotizing Myopathy (NM), Nemaline Myopathy, and Congenital Fiber-Type Disproportion. Dr. Milone is board certified in MN State Medical License 2003-2023.
Penn Neuroscience Center - Neurology
James Dowling is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Dowling is rated as an Elite provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Horizontal Gaze Palsy with Progressive Scoliosis. Dr. Dowling is board certified in Neurology - Child Neurology, 2007. Dr. Dowling is currently accepting new patients.
Office
Carsten Bonnemann is a Pediatric Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Bonnemann is rated as an Elite provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Hypotonia.
Gme Office University Of Washington
Martin Childers is a Physiatrist practicing medicine in Seattle, Washington. Dr. Childers is rated as an Elite provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Limb-Girdle Muscular Dystrophy.
Amc
Matthew Murnane is a Neurologist practicing medicine in Albany, New York. Dr. Murnane is rated as an Advanced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 66 other conditions, according to our data. His clinical expertise encompasses Hereditary Sensory Neuropathy Type 1 (HSN1), Andermann Syndrome, Sensorimotor Polyneuropathy, and Septic Arthritis. Dr. Murnane is currently accepting new patients.
OSF Illinois Neurological Institute - Neurology
Christopher Zallek is a Neuroradiologist and a Neurologist practicing medicine in Peoria, Illinois. Dr. Zallek is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Zallek is board certified in American Board Of Electrodiagnostic Medicine and American Board Of Psychiatry And Neurology. Dr. Zallek is currently accepting new patients.
MUSC Health Primary Care
Adrian Strand is a primary care provider, practicing in Family Medicine in Johns Island, South Carolina. Dr. Strand is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Trigeminal Neuralgia, Sickle Cell Disease, Myelitis, and HIV/AIDS. Dr. Strand is currently accepting new patients.
Brigham And Womens Hospital
Anthony Amato is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Amato is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 63 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Polymyositis, Myositis, Thymectomy, and Gastrostomy. Dr. Amato is board certified in Neurology, 1991 and Neuromuscular Medicine, 2008. Dr. Amato is currently accepting new patients.
Virginia Commonwealth University Health System Authority
Nicholas Johnson is a Neurologist practicing medicine in Henrico, Virginia. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Fukuyama Type Muscular Dystrophy, Oculopharyngeal Muscular Dystrophy, Distal Myopathy 2, and Emery-Dreifuss Muscular Dystrophy. Dr. Johnson is currently accepting new patients.
VCU Health - Ambulatory Care Center
Kelly Gwathmey is a Neurologist practicing medicine in Richmond, Virginia. Dr. Gwathmey is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 52 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Gastrostomy, and Tissue Biopsy. Dr. Gwathmey is currently accepting new patients.
Baystate Neurology-Springfield-Main Street
Anant Shenoy is a Neurologist practicing medicine in Springfield, Massachusetts. Dr. Shenoy is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Myasthenia Gravis, Peripheral Neuropathy, Generalized Tonic-Clonic Seizure, and Limb-Girdle Muscular Dystrophy. Dr. Shenoy is currently accepting new patients.
AdventHealth Orlando
Nivedita Jerath is a Neurologist practicing medicine in Winter Park, Florida. Dr. Jerath is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Charcot-Marie-Tooth Disease, Sensorimotor Polyneuropathy, Hyperkalemic Periodic Paralysis, and Hypokalemic Periodic Paralysis. Dr. Jerath is currently accepting new patients.
Vanderbilt Medical Group- Teleneurology
Lindsay Malatesta is a Neurologist practicing medicine in Nashville, Tennessee. Dr. Malatesta is rated as an Experienced provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy (SMA). Dr. Malatesta is board certified in American Board Of Psychiatry & Neurology. Dr. Malatesta is currently accepting new patients.
MN - Neuro
Elie Naddaf is a Neurologist practicing medicine in Rochester, Minnesota. He has been practicing medicine for over 17 years. Dr. Naddaf is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Nemaline Myopathy, Myositis, and Cytoplasmic Body Myopathy. Dr. Naddaf is currently accepting new patients.
Princeton Medical Clinic
Jessica Snyder is a primary care provider, practicing in Family Medicine in Princeton, Missouri. Dr. Snyder is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Centronuclear Myopathy. Dr. Snyder is currently accepting new patients.
Nationwide Children's Hospital
Stefan Nicolau is a Neurologist practicing medicine in Columbus, Ohio. Dr. Nicolau is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion. Dr. Nicolau is currently accepting new patients.
Trustees Of The University Of Pennsylvania
Aileen Foley is a Pediatric Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Foley is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Centronuclear Myopathy.
University Andrology Lab LLC
Nizar Chahin is a Neurologist practicing medicine in Portland, Oregon. Dr. Chahin is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 53 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Myasthenia Gravis, Nemaline Myopathy, and Lambert-Eaton Syndrome. Dr. Chahin is currently accepting new patients.
University Professional Services
Michael Lieberman is a primary care provider, practicing in Internal Medicine in Portland, Oregon. Dr. Lieberman is rated as a Distinguished provider by MediFind in the treatment of X-Linked Myotubular Myopathy. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Congenital Muscular Dystrophy Type 1A, Benign Autosomal Dominant Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion. Dr. Lieberman is currently accepting new patients.
Last Updated: 11/08/2026



