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    Last Updated: 10/30/2025

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    MediFind found 9 doctor with experience in Clouston Syndrome near District of Columbia, US. Of these, 9 are Experienced.

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    9 providers found
      Experienced in Clouston Syndrome
      Neurology | Pediatrics
      Experienced in Clouston Syndrome
      Neurology | Pediatrics
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Roger Packer is a Neurologist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Packer is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Brain Tumor, Diffuse Midline Glioma H3 K27M-Mutant, Medulloblastoma, and Gliomatosis Cerebri.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      111 Michigan Ave Nw, Dept Of Hematology/oncology, 
      Washington, DC 
      Languages Spoken:
      English

      Srivandana Akshintala is a Pediatrics provider in Washington, Washington, D.c.. Dr. Akshintala is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neuroendocrine Tumor, Ectodermal Dysplasias, and Thyroidectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      4200 Wisconsin Ave Nw, Fourth Floor, 
      Washington, DC 
      Languages Spoken:
      English

      Cynthia Deklotz is a Dermatologist in Washington, Washington, D.c.. Dr. Deklotz is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Psoriasis, Plaque Psoriasis, Acanthosis Nigricans, and Melasma.

      Learn about our expert tiers
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Whc Physician Group LLC

      110 Irving St Nw, 
      Washington, DC 
      Languages Spoken:
      English
      Offers Telehealth

      Kristen Russomanno is a Dermatologist in Washington, Washington, D.c.. Dr. Russomanno is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Melanoma, Actinic Keratosis, Hypohidrotic Ectodermal Dysplasia, and Fetal Cystic Hygroma.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Colleen Cotton is a Dermatologist in Washington, Washington, D.c.. Dr. Cotton is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hidradenitis Suppurativa, Molluscum Contagiosum, Vascular Birthmark, and Warts.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      4301 Military Rd Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Francois Boller is a Neurologist in Washington, Washington, D.c.. Dr. Boller is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Charles Bonnet Syndrome, Phantom Limb Pain, Neurosyphilis, and Complex Regional Pain Syndrome.

      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Dina Zand is a Medical Genetics specialist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Zand is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Agyria Pachygyria Polymicrogyria, Cerebellar Hypoplasia, Lissencephaly 1, and Miller-Dieker Syndrome.

      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      111 Michigan Ave Nw, W3.5, 600, 
      Washington, DC 
      Languages Spoken:
      English

      Seth Berger is a Medical Genetics specialist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Berger is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Fetal Edema, Hydrops Fetalis, Hemolytic Disease of the Newborn, and Alpha Thalassemia.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Medstar Medical Group Ii LLC

      3800 Reservoir Rd Nw, 
      Washington, DC 
      Experience:
      17+ years
      Languages Spoken:
      English
      Offers Telehealth

      Carrie Dougherty is a Neurologist in Washington, Washington, D.c.. Dr. Dougherty has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Migraine, Migraine with Brainstem Aura, Headache, and Progressive Hemifacial Atrophy.

      Showing 1-9 of 9

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor in District of Columbia, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor in District of Columbia, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors in District of Columbia, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors in District of Columbia, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor in District of Columbia, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor in District of Columbia, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors in District of Columbia, US?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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