The 20 Best Clouston Syndrome Doctors Near Me in Washington, DC

Find the Top Clouston Syndrome Experts and Specialists

The 20 Best Clouston Syndrome Doctors near Washington, DC

Last Updated: 02/22/2026

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MediFind found 18 doctor with experience in Clouston Syndrome near Washington, DC. Of these, 17 are Experienced and 1 are Advanced.

Location
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18 providers found
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    MedStar Health: Dermatology At Lafayette Centre

    1133 21st St NW Bldg 2, 
    Washington, DC 
     (0.3 miles away)
    Languages Spoken:
    English

    Kristen Russomanno is a Dermatologist in Washington, Washington, D.c.. Dr. Russomanno is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Melanoma, Actinic Keratosis, Hypohidrotic Ectodermal Dysplasia, and Fetal Cystic Hygroma.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
     (1.8 miles away)
    Languages Spoken:
    English

    Roger Packer is a Pediatrics provider in Washington, Washington, D.c.. Dr. Packer is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Brain Tumor, Diffuse Midline Glioma H3 K27M-Mutant, Neurofibromatosis, and Medulloblastoma.

    Experienced in Clouston Syndrome
    Hematology | Oncology
    Experienced in Clouston Syndrome
    Hematology | Oncology

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
     (1.8 miles away)
    Languages Spoken:
    English

    Srivandana Akshintala is a Hematologist and an Oncologist in Washington, Washington, D.c.. Dr. Akshintala is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neuroendocrine Tumor, Ectodermal Dysplasias, and Thyroidectomy.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Pediatrics
    Experienced in Clouston Syndrome
    Pediatrics

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
     (1.8 miles away)
    Languages Spoken:
    English

    Gary Rogers is a Pediatrics provider in Washington, Washington, D.c.. Dr. Rogers is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Craniosynostosis, Metopic Ridge, Plagiocephaly, Craniectomy, and Bone Graft.

    Experienced in Clouston Syndrome
    Hematology | Oncology
    Experienced in Clouston Syndrome
    Hematology | Oncology

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
     (1.8 miles away)
    Languages Spoken:
    English

    Erin Hall is a Hematologist and an Oncologist in Washington, Washington, D.c.. Dr. Hall is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Familial Multiple Lipomatosis, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    111 Michigan Ave Nw, W3.5, 600, 
    Washington, DC 
     (1.8 miles away)
    Languages Spoken:
    English

    Seth Berger is a Medical Genetics specialist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Berger is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Fetal Edema, Hydrops Fetalis, Hemolytic Disease of the Newborn, and Alpha Thalassemia.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    111 Michigan Ave Nw, 
    Washington, DC 
     (1.8 miles away)
    Languages Spoken:
    English

    Dina Zand is a Medical Genetics specialist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Zand is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Agyria Pachygyria Polymicrogyria, Cerebellar Hypoplasia, Lissencephaly 1, and Miller-Dieker Syndrome.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Privia Medical Group LLC

    5530 Wisconsin Ave Ste 730, 
    Chevy Chase, MD 
     (5.7 miles away)
    Languages Spoken:
    English

    Cynthia Deklotz is a Pediatrics provider in Chevy Chase, Maryland. Dr. Deklotz is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Plaque Psoriasis, Psoriasis, Acanthosis Nigricans, and Pachyonychia Congenita.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    DermAssociates Silver Spring

    10313 Georgia Ave, 
    Silver Spring, MD 
     (8.1 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Ashley Dilorenzo is a Dermatologist in Silver Spring, Maryland. Dr. Dilorenzo has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Pityriasis Lichenoides Chronica, Pityriasis Lichenoides, Pityriasis Lichenoides Et Varioliformis Acuta, and Epidermal Nevus.

    Experienced in Clouston Syndrome
    Radiology | Nuclear Medicine
    Experienced in Clouston Syndrome
    Radiology | Nuclear Medicine

    Texas Radiology Associates Llp

    9804 Wildwood Rd, 
    Bethesda, MD 
     (8.2 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Dawood Tafti is a Radiologist and a Nuclear Medicine provider in Bethesda, Maryland. Dr. Tafti has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Pneumomediastinum, Pleurisy, Pleural Effusion, and Desmoid Tumor.

    Allison Siegel
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Capital Area Pediatrics, Inc.

    407 N Washington St, Suite 100, 
    Falls Church, VA 
     (7.1 miles away)
    Experience:
    15+ years
    Languages Spoken:
    English
    Offers Telehealth

    Dr. AllIson Siegel is board certified in pediatrics and joined the Falls Church office of Capital Area Pediatrics in 2014.Dr. Siegel completed her pediatric residency at the University of Maryland. She graduated from the University of Maryland School of Medicine in 2011 and completed her undergraduate studies at the University of Pennsylvania in 2007.Her areas of special interest include child development and behavior.In her spare time, she enjoys playing tennis, hiking, and learning to cook. Dr. Siegel is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are AEC Syndrome, Clouston Syndrome, Ectodermal Dysplasias, and Zlotogora-Ogur Syndrome.

    Constantine A. Stratakis
    Experienced in Clouston Syndrome
    Medical Genetics | Gastroenterology
    Experienced in Clouston Syndrome
    Medical Genetics | Gastroenterology
    9000 Rockville Pike, 
    Bethesda, MD 
     (7.4 miles away)
    Languages Spoken:
    English

    Constantine Stratakis is a Medical Genetics specialist and a Gastroenterologist in Bethesda, Maryland. Dr. Stratakis is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cushing's disease, Neuroendocrine Tumor, Gastrointestinal Stromal Tumor, Hormone Replacement Therapy (HRT), and Orchiectomy.

    Experienced in Clouston Syndrome
    Neurosurgery
    Experienced in Clouston Syndrome
    Neurosurgery

    Office

    10 Center Dr Rm 3D20, 
    Bethesda, MD 
     (6.1 miles away)
    Languages Spoken:
    English

    John Heiss is a Neurosurgery provider in Bethesda, Maryland. Dr. Heiss is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Chiari Malformation Type 2, Syringomyelia, Chiari Malformation, Laminectomy, and Posterior Fossa Decompression.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    49 Convent Dr Rm 4a56, 
    Bethesda, MD 
     (6.1 miles away)
    Languages Spoken:
    English

    Leslie Biesecker is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Biesecker is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Proteus Syndrome, Proteus-Like Syndrome, Acromicric Dysplasia, and Lenz Microphthalmia Syndrome.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Children's National Hospital

    1400 Forest Glen Rd Ste 335, 
    Silver Spring, MD 
     (6.6 miles away)
    Languages Spoken:
    English

    Colleen Cotton is a Pediatrics provider in Silver Spring, Maryland. Dr. Cotton is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hidradenitis Suppurativa, Molluscum Contagiosum, Vascular Birthmark, and Warts.

    Experienced in Clouston Syndrome
    Pediatric Gastroenterology
    Experienced in Clouston Syndrome
    Pediatric Gastroenterology

    Walter Reed National Military Medical Center

    8901 Rockville Pike, 
    Bethesda, MD 
     (7.1 miles away)
    Languages Spoken:
    English

    Cade Nylund is a Pediatric Gastroenterologist in Bethesda, Maryland. Dr. Nylund is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Esophagitis, Infantile Pyloric Stenosis, Autism Spectrum Disorder, Viral Gastroenteritis, and Endoscopy.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    MedStar Health Headache Center At McLean

    1420 Beverly Rd Ste 300, 
    Mclean, VA 
     (7.2 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Carrie Dougherty is a Neurologist in Mclean, Virginia. Dr. Dougherty has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Migraine, Headache, Migraine with Brainstem Aura, and Progressive Hemifacial Atrophy.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Center For Skin Surgery PLLC

    8301 Old Courthouse Rd, 
    Vienna, VA 
     (10.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Naiem Issa is a Dermatologist in Vienna, Virginia. Dr. Issa is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Autosomal Recessive Hypotrichosis, Acne, Alopecia Areata, and Psoriasis.

    Showing 1-18 of 18

    Last Updated: 02/22/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor near Washington, DC?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor near Washington, DC?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors near Washington, DC?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors near Washington, DC?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor near Washington, DC?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor near Washington, DC?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors near Washington, DC?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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