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    Last Updated: 10/30/2025

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    MediFind found 11 doctor with experience in Clouston Syndrome near Ann Arbor, MI. Of these, 9 are Experienced and 2 are Advanced.

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    LocationClose
    11 providers found
      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Amanda Pritchard is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Pritchard is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Aase Syndrome.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Mancuso is a Dermatologist in Ann Arbor, Michigan. Dr. Mancuso is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are DRESS Syndrome, Hidradenitis Suppurativa, Keratosis Pilaris, and Linear Hamartoma Syndrome. Dr. Mancuso is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Clouston Syndrome
      Pediatrics | Medical Genetics
      Experienced in Clouston Syndrome
      Pediatrics | Medical Genetics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Mark Hannibal is a Pediatrics specialist and a Medical Genetics provider in Ann Arbor, Michigan. Dr. Hannibal is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aase Syndrome, Filippi Syndrome, CHARGE Syndrome, and Smith-Kingsmore Syndrome.

      Learn about our expert tiers
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Christina Sloan is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Sloan is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Chromosome 8p Deletion, Chromosome 6q Duplication, Delayed Growth, and Fragile XE Syndrome.

      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      Shane Quinonez is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Quinonez is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Pompe Disease, Dihydrolipoamide Dehydrogenase Deficiency, MELAS Syndrome, and Propionic Acidemia.

      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Kristen Lee is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Biotinidase Deficiency, Delayed Growth, Beta-Ketothiolase Deficiency, and Triple X Syndrome.

      Experienced in Clouston Syndrome
      Pediatric Nephrology | Pediatrics
      Experienced in Clouston Syndrome
      Pediatric Nephrology | Pediatrics
      1500 East Medical Center Dr, 8th Floor C.s. Mott Childrens Hospital, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      Friedhelm Hildebrandt is a Pediatric Nephrologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Hildebrandt is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Nephronophthisis, Nephrotic Syndrome, Focal Segmental Glomerulosclerosis, Achalasia Microcephaly Syndrome, and Kidney Transplant.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English, Hindi, Kannada, Tamil, Telugu
      Accepting New Patients

      Trilokraj Tejasvi is a Dermatologist in Ann Arbor, Michigan. Dr. Tejasvi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, Mycosis Fungoides, and Lymphomatoid Papulosis. Dr. Tejasvi is currently accepting new patients.

      Experienced in Clouston Syndrome
      Neurosurgery
      Experienced in Clouston Syndrome
      Neurosurgery
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English

      Neena Marupudi is a Neurosurgery provider in Ann Arbor, Michigan. Dr. Marupudi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hydrocephalus, Tethered Cord Syndrome, Chiari Malformation Type 1, Craniosynostosis, and Laminectomy.

      Experienced in Clouston Syndrome
      Pediatric Otolaryngology | Pediatrics | Otolaryngology
      Experienced in Clouston Syndrome
      Pediatric Otolaryngology | Pediatrics | Otolaryngology

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Glenn Green is a Pediatric Otolaryngologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Green is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Tracheobronchomalacia, Acquired Tracheomalacia, CHARGE Syndrome, Adenoidectomy, and Myringotomy. Dr. Green is currently accepting new patients.

      Experienced in Clouston Syndrome
      Medical Genetics
      Experienced in Clouston Syndrome
      Medical Genetics

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Tomoyasu Higashimoto is a Medical Genetics provider in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia.

      Showing 1-11 of 11

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near Ann Arbor, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near Ann Arbor, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near Ann Arbor, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near Ann Arbor, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near Ann Arbor, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near Ann Arbor, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near Ann Arbor, MI?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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