The 20 Best Clouston Syndrome Doctors Near Me in Detroit, MI

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 30 doctor with experience in Clouston Syndrome near Detroit, MI. Of these, 26 are Experienced and 4 are Advanced.

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30 providers found
    Experienced in Clouston Syndrome
    Medical Genetics
    Experienced in Clouston Syndrome
    Medical Genetics
    Referral may be required
    25 Michigan St Ne Ste 2100, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Laurie Seaver is a Medical Genetics provider practicing medicine in Grand Rapids, Michigan. Dr. Seaver is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Hypotonia, 1p36 Deletion Syndrome, Smith-Magenis Syndrome, and Potocki-Lupski Syndrome. Dr. Seaver is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral required

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Danish, German, Icelandic
    Accepting New Patients
    Offers Telehealth

    Johann Gudjonsson is a Dermatologist practicing medicine in Ann Arbor, Michigan. Dr. Gudjonsson is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Benign Chronic Pemphigus, Psoriasis, Darier Disease, Cutaneous Lupus Erythematosus (CLE), and Vitrectomy. Dr. Gudjonsson is board certified in Dermatology. Dr. Gudjonsson is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Hindi, Kannada, Tamil, Telugu
    Accepting New Patients

    Trilokraj Tejasvi is a Dermatologist practicing medicine in Ann Arbor, Michigan. Dr. Tejasvi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, Mycosis Fungoides, and Lymphomatoid Papulosis. Dr. Tejasvi is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Brighton Center For Specialty Care

    7500 Challis Rd, Entrance 1, Level 2, 
    Brighton, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mio Nakamura is a Dermatologist practicing medicine in Brighton, Michigan. Dr. Nakamura is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 51 other conditions, according to our data. Her clinical expertise encompasses Psoriasis, Plaque Psoriasis, Melanoma, and Actinic Keratosis. Dr. Nakamura is board certified in Dermatology. Dr. Nakamura is currently accepting new patients.

    Advanced in Clouston Syndrome
    Pediatrics | Dermatology
    Advanced in Clouston Syndrome
    Pediatrics | Dermatology
    Referral required

    Cosmetic Dermatology & Laser Center

    1500 E Medical Center Dr, Floor 1 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Jennifer Mancuso is a Pediatrics specialist and a Dermatologist practicing medicine in Ann Arbor, Michigan. Dr. Mancuso is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 75 other conditions, according to our data. Her clinical expertise encompasses DRESS Syndrome, Hidradenitis Suppurativa, Keratosis Pilaris, and Vascular Birthmark. Dr. Mancuso is currently accepting new patients.

    Advanced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Advanced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    University Of Michigan Pediatric Genetics Clinic

    1540 East Hospital Drive, Floor 6, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Amanda Pritchard is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Pritchard is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 150 other conditions, according to our data. Her clinical expertise encompasses Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant. Dr. Pritchard is board certified in American Board Of Medical Genetics And Genomics, Clinical Biochemical Genetics - 2019 , American Board Of Pediatrics, Pediatrics - 2016, and American Board Of Medical Genetics And Genomics, Medical Biochemical Genetics - 2019 . Dr. Pritchard is currently accepting new patients.

    Advanced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Advanced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    University Of Michigan Pediatric Genetics Clinic

    1540 East Hospital Drive, Floor 6, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Hannibal is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Hannibal is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 167 other conditions, according to our data. His clinical expertise encompasses Aase Syndrome, Alstrom Syndrome, Char Syndrome, and Filippi Syndrome. Dr. Hannibal is board certified in American Board Of Medical Genetics And Genomics, Clinical Biochemical Genetics - 2020 and Clinical Genetics & Genomics. Dr. Hannibal is currently accepting new patients.

    Experienced in Clouston Syndrome
    Family Medicine
    Experienced in Clouston Syndrome
    Family Medicine

    Henry Ford Family Medicine-Flint

    1515 W Atherton Rd, 
    Flint, MI 
    Languages Spoken:
    English, Hindi, Punjabi, Urdu
    Accepting New Patients
    Offers Telehealth

    Bhagwan Sayal is a primary care provider, practicing in Family Medicine in Flint, Michigan. Dr. Sayal is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Cellulitis, Meige Disease, Primary Intestinal Lymphangiectasia, and Lymphangiectasis. Dr. Sayal is currently accepting new patients.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    Referral may be required

    Henry Ford Medical Center-Columbus

    39450 W Twelve Mile Rd, 
    Novi, MI 
    Languages Spoken:
    English
    Accepting New Patients

    David Ozog is a Dermatologist practicing medicine in Novi, Michigan. Dr. Ozog is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Keloids, Muir-Torre Syndrome, Basal Cell Skin Cancer, and Epidermal Nevus. Dr. Ozog is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Henry Ford Medical Center-Farmington Road

    6530 Farmington Rd, 
    West Bloomfield, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Rawaa Almukhtar is a Dermatologist practicing medicine in West Bloomfield, Michigan. Dr. Almukhtar is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Rosacea, Actinic Keratosis, Kaposiform Hemangioendothelioma, and Fetal Cystic Hygroma. Dr. Almukhtar is currently accepting new patients.

    Advanced in Clouston Syndrome
    Medical Genetics
    Advanced in Clouston Syndrome
    Medical Genetics
    Referral may be required
    2799 W Grand Blvd, Cfp 4, 
    Detroit, MI 
    Languages Spoken:
    English

    Kristin Monaghan is a Medical Genetics provider practicing medicine in Detroit, Michigan. Dr. Monaghan is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Hypotonia, Early Infantile Epileptic Encephalopathy, 1p36 Deletion Syndrome, and Microcephaly Deafness Syndrome.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    University Of Michigan Pediatric Genetics Clinic

    1540 East Hospital Drive, Floor 6, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Shane Quinonez is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Quinonez is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 129 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Dihydrolipoamide Dehydrogenase Deficiency, MELAS Syndrome, and Maple Syrup Urine Disease. Dr. Quinonez is board certified in Pediatrics, American Board Of Pediatrics, Pediatrics - 2011, Clinical Biochemical Genetics, American Board Of Medical Genetics And Genomics, Medical Biochemical Genetics - 2015 , American Board Of Medical Genetics And Genomics, Clinical Biochemical Genetics - 2024 , and Clinical Genetics & Genomics. Dr. Quinonez is currently accepting new patients.

    Experienced in Clouston Syndrome
    Medical Genetics
    Experienced in Clouston Syndrome
    Medical Genetics
    Referral may be required

    Pediatric Genetics Clinic

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Tomoyasu Higashimoto is a Medical Genetics provider practicing medicine in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 110 other conditions, according to our data. His clinical expertise encompasses Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia. Dr. Higashimoto is board certified in Family Medicine and Clinical Genetics & Genomics. Dr. Higashimoto is currently accepting new patients.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    Pediatric Otolaryngology Clinic

    1540 E Hospital Dr, Floor 2 Reception A, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kristen Lee is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 138 other conditions, according to our data. Her clinical expertise encompasses Biotinidase Deficiency, Delayed Growth, Beta-Ketothiolase Deficiency, and Triple X Syndrome. Dr. Lee is board certified in Pediatrics, Medical Biochemical Genetics, and Clinical Genetics & Genomics. Dr. Lee is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 7 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Andrea Franson is a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Franson is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Gliomatosis Cerebri, Embryonal Tumor with Multilayered Rosettes, Hepatoblastoma, Pediatric Low-Grade Glioma (pLGG), and Bone Marrow Aspiration. Dr. Franson is currently accepting new patients.

    Experienced in Clouston Syndrome
    Pediatrics | Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatrics | Pediatric Neurology
    Referral may be required

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Leleszi is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Royal Oak, Michigan. Dr. Leleszi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Spasmus Nutans, Seizures, Autism Spectrum Disorder, and Generalized Tonic-Clonic Seizure. Dr. Leleszi is board certified in American Board Of Psychiatry And Neurology. Dr. Leleszi is currently accepting new patients.

    Experienced in Clouston Syndrome
    Neuroradiology | Radiology
    Experienced in Clouston Syndrome
    Neuroradiology | Radiology
    Referral may be required

    Corewell Health William Beaumont University Hospital - Diagnostic Radiology

    3601 West 13 Mile Road, 
    Royal Oak, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Anant Krishnan is a Neuroradiologist and a Radiologist practicing medicine in Royal Oak, Michigan. Dr. Krishnan is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Stroke, Sciatica, Relapsing Multiple Sclerosis (RMS), and Meningioma. Dr. Krishnan is board certified in American Board Of Radiology. Dr. Krishnan is currently accepting new patients.

    Experienced in Clouston Syndrome
    Obstetrics and Gynecology | Neonatology
    Experienced in Clouston Syndrome
    Obstetrics and Gynecology | Neonatology
    Referral may be required

    Corewell Health Beaumont Troy Hospital Maternal Fetal Medicine - 44199 Dequindre Rd

    44199 Dequindre Road, Suite 415, 
    Troy, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Amy Whitten is an Obstetrics and Gynecologist and a Neonatologist practicing medicine in Troy, Michigan. Dr. Whitten is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Gestational Diabetes, Premature Infant, Preeclampsia, and ABO Incompatibility. Dr. Whitten is board certified in American Board Of Obstetrics And Gynecology. Dr. Whitten is currently accepting new patients.

    Experienced in Clouston Syndrome
    Pediatrics | Medical Genetics
    Experienced in Clouston Syndrome
    Pediatrics | Medical Genetics
    Referral required

    Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
    Experience:
    10+ years
    Languages Spoken:
    English, Mandarin, Spanish
    Accepting New Patients

    Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 10 years. Dr. Rossetti is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 87 other conditions, according to our data. Her clinical expertise encompasses Miller-Dieker Syndrome, Smith-Magenis Syndrome, Chromosome 8p Deletion, and Chromosome 6q Duplication. Dr. Rossetti is board certified in American Board Of Medical Genetics And Genomics and American Board Of Pediatrics. Dr. Rossetti is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Pediatric Physical Medicine & Rehabilitation

    2205 Commonwealth Blvd, 
    Ann Arbor, MI 
    Experience:
    17+ years
    Languages Spoken:
    English, Spanish, Telugu
    Accepting New Patients

    Neena Marupudi is a Neurosurgery provider practicing medicine in Ann Arbor, Michigan. She has been practicing medicine for over 17 years. Dr. Marupudi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 51 other conditions, according to our data. Her clinical expertise encompasses Hydrocephalus, Tethered Cord Syndrome, Chiari Malformation Type 1, Rhizotomy, and Laminectomy. Dr. Marupudi is board certified in Neurological Surgery. Dr. Marupudi is currently accepting new patients.

    Showing 1-20 of 30

    Last Updated: 09/19/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor near Detroit, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor near Detroit, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors near Detroit, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors near Detroit, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor near Detroit, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor near Detroit, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors near Detroit, MI?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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