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    Last Updated: 10/30/2025

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    MediFind found 24 doctor with experience in Clouston Syndrome near Minnesota, US. Of these, 22 are Experienced, 1 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    24 providers found
      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics | Pediatric Neurology
      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics | Pediatric Neurology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Experience:
      47+ years
      Languages Spoken:
      English
      Accepting New Patients

      William Dobyns is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Dobyns has been practicing medicine for over 47 years and is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Increased Head Circumference, Lissencephaly, Cerebellar Hypoplasia, and Cortical Dysplasia. Dr. Dobyns is currently accepting new patients.

      Advanced in Clouston Syndrome
      Medical Genetics
      Advanced in Clouston Syndrome
      Medical Genetics

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Dusica Babovic is a Medical Genetics provider in Rochester, Minnesota. Dr. Babovic is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Hereditary Multiple Osteochondromas.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Afsaneh A. Alavi
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English, Farsi
      Accepting New Patients

      Afsaneh Alavi is a Dermatologist in Rochester, Minnesota. Dr. Alavi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hidradenitis Suppurativa, Pyoderma Gangrenosum, Livedo Reticularis, and Erythema Nodosum. Dr. Alavi is currently accepting new patients.

      Learn about our expert tiers
      Sarah S. Asch
      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Hometown Pediatric Dermatology, PLLC

      10 Charles Lake Rd, 
      North Oaks, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sarah Asch is a Dermatologist in North Oaks, Minnesota. Dr. Asch is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Becker's Nevus, Epidermal Nevus, Hidradenitis Suppurativa, and Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects. Dr. Asch is currently accepting new patients.

      Eloise R. Galligan
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Market Street Dermatology

      275 Market St, Suite 215, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Eloise Galligan is a Dermatologist in Minneapolis, Minnesota. Dr. Galligan is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Vascular Birthmark, Hirsutism in Women, Erythema Nodosum, and PHACE Syndrome.

      Experienced in Clouston Syndrome
      Neurology | Pediatric Neurology
      Experienced in Clouston Syndrome
      Neurology | Pediatric Neurology
      2512 S 7th St, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Kenney-Jung is a Neurologist and a Pediatric Neurologist in Minneapolis, Minnesota. Dr. Kenney-Jung is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), Cardiofaciocutaneous Syndrome, CACH Syndrome, Seizures, and Thrombectomy. Dr. Kenney-Jung is currently accepting new patients.

      Experienced in Clouston Syndrome
      Dermatology | Pediatrics
      Experienced in Clouston Syndrome
      Dermatology | Pediatrics

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Megha Tollefson is a Dermatologist and a Pediatrics provider in Rochester, Minnesota. Dr. Tollefson is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Klippel-Trenaunay Syndrome, Progressive Hemifacial Atrophy, Vascular Birthmark, and Hemangioma. Dr. Tollefson is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Associated Skin Care Specialists, PA

      11107 Ulysses St Ne, Suite 200, 
      Blaine, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Steven Kempers is a Dermatologist in Blaine, Minnesota. Dr. Kempers is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Lamellar Ichthyosis, Nonbullous Congenital Ichthyosiform Erythroderma, Fetal Retinoid Syndrome, and Actinic Keratosis. Dr. Kempers is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Nessa Aghazadeh-Mohandesi is a Dermatologist in Rochester, Minnesota. Dr. Aghazadeh-Mohandesi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Epidermodysplasia Verruciformis, Warts, Bullae, and EEC Syndrome. Dr. Aghazadeh-Mohandesi is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Jennifer Hand is a Dermatologist in Rochester, Minnesota. Dr. Hand is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are X-Linked Ichthyosis, Vascular Birthmark, Dystrophic Epidermolysis Bullosa, and Atopic Dermatitis.

      Experienced in Clouston Syndrome
      Medical Genetics | Neurology | Pediatric Neurology
      Experienced in Clouston Syndrome
      Medical Genetics | Neurology | Pediatric Neurology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Radhika Dhamija is a Medical Genetics specialist and a Neurologist in Rochester, Minnesota. Dr. Dhamija is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Retinal Vasculopathy with Cerebral Leukodystrophy, Cowden Syndrome, Lhermitte-Duclos Disease, and Bannayan-Riley-Ruvalcaba Syndrome.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Mayo Clinic

      Rochester, MN 
      Languages Spoken:
      English

      Waleed Brinjikji is a Radiologist in Rochester, Minnesota. Dr. Brinjikji is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Brain Aneurysm, Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Thrombectomy, and Embolectomy.

      Experienced in Clouston Syndrome
      Pediatrics | Emergency Medicine | Hospital Medicine
      Experienced in Clouston Syndrome
      Pediatrics | Emergency Medicine | Hospital Medicine
      1300 Anne St NW, 
      Bemidji, MN 
      Languages Spoken:
      English, Hindi, Telugu
      Accepting New Patients

      Giridhar Guntreddi is a Pediatrics specialist and an Emergency Medicine provider in Bemidji, Minnesota. Dr. Guntreddi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Respiratory Syncytial Virus (RSV) Infection, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita. Dr. Guntreddi is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Lakes Dermatology PA

      14305 Southcross Dr W, Suite 110, 
      Burnsville, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Nicole Gunasekera is a Dermatologist in Burnsville, Minnesota. Dr. Gunasekera is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Vitiligo, Focal Dermal Hypoplasia, Cellulitis, and Actinic Keratosis. Dr. Gunasekera is currently accepting new patients.

      Experienced in Clouston Syndrome
      Neurology
      Experienced in Clouston Syndrome
      Neurology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Ugur Sener is a Neurologist in Rochester, Minnesota. Dr. Sener is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Astrocytoma, Glioma, Brain Tumor, and Glioblastoma.

      Experienced in Clouston Syndrome
      Dermatology | Pediatrics
      Experienced in Clouston Syndrome
      Dermatology | Pediatrics

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Molly Youssef is a Dermatologist and a Pediatrics provider in Rochester, Minnesota. Dr. Youssef has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Burning Mouth Syndrome, Glossodynia, Sternal Cleft, and Lichen Planus. Dr. Youssef is currently accepting new patients.

      Experienced in Clouston Syndrome
      Pediatric Neurology
      Experienced in Clouston Syndrome
      Pediatric Neurology
      225 Smith Ave N, Suite 201, 
      Saint Paul, MN 
      Languages Spoken:
      English

      Michael Frost is a Pediatric Neurologist in Saint Paul, Minnesota. Dr. Frost is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Epilepsy.

      Experienced in Clouston Syndrome
      Pediatric Hematology Oncology
      Experienced in Clouston Syndrome
      Pediatric Hematology Oncology

      Children's Health Care

      2525 Chicago Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Michael Richards is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Richards is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Langerhans Cell Histiocytosis, Hepatoblastoma, Histiocytosis, Reticulohistiocytoma, and Bone Marrow Aspiration.

      Experienced in Clouston Syndrome
      Medical Genetics
      Experienced in Clouston Syndrome
      Medical Genetics
      2525 Chicago Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Vikas Bhambhani is a Medical Genetics provider in Minneapolis, Minnesota. Dr. Bhambhani is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Chediak-Higashi Syndrome, Micrognathia, Tyrosinemia Type 3, and Tyrosinemia Type 2. Dr. Bhambhani is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English, Tamil
      Accepting New Patients

      Saranya Wyles is a Dermatologist in Rochester, Minnesota. Dr. Wyles is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Pemphigoid Gestationis, Pityriasis Rubra Pilaris, Basal Cell Skin Cancer, and Autosomal Recessive Hypotrichosis. Dr. Wyles is currently accepting new patients.

      Showing 1-20 of 24

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor in Minnesota, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor in Minnesota, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors in Minnesota, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors in Minnesota, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor in Minnesota, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor in Minnesota, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors in Minnesota, US?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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