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    Last Updated: 10/30/2025

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    MediFind found 9 doctor with experience in Clouston Syndrome near Minneapolis, MN. Of these, 8 are Experienced and 1 are Distinguished.

    Location
    LocationClose
    9 providers found
      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics | Pediatric Neurology
      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics | Pediatric Neurology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Experience:
      47+ years
      Languages Spoken:
      English
      Accepting New Patients

      William Dobyns is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Dobyns has been practicing medicine for over 47 years and is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Increased Head Circumference, Lissencephaly, Cerebellar Hypoplasia, and Cortical Dysplasia. Dr. Dobyns is currently accepting new patients.

      Eloise R. Galligan
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Market Street Dermatology

      275 Market St, Suite 215, 
      Minneapolis, MN 
       (1.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Eloise Galligan is a Dermatologist in Minneapolis, Minnesota. Dr. Galligan is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Vascular Birthmark, Hirsutism in Women, Erythema Nodosum, and PHACE Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Clouston Syndrome
      Pediatric Hematology Oncology
      Experienced in Clouston Syndrome
      Pediatric Hematology Oncology

      Children's Health Care

      2525 Chicago Ave, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      Michael Richards is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Richards is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Langerhans Cell Histiocytosis, Hepatoblastoma, Histiocytosis, Reticulohistiocytoma, and Bone Marrow Aspiration.

      Learn about our expert tiers
      Experienced in Clouston Syndrome
      Medical Genetics
      Experienced in Clouston Syndrome
      Medical Genetics
      2525 Chicago Ave, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Vikas Bhambhani is a Medical Genetics provider in Minneapolis, Minnesota. Dr. Bhambhani is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Chediak-Higashi Syndrome, Micrognathia, Tyrosinemia Type 3, and Tyrosinemia Type 2. Dr. Bhambhani is currently accepting new patients.

      Experienced in Clouston Syndrome
      Neurology | Pediatric Neurology
      Experienced in Clouston Syndrome
      Neurology | Pediatric Neurology
      2512 S 7th St, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Kenney-Jung is a Neurologist and a Pediatric Neurologist in Minneapolis, Minnesota. Dr. Kenney-Jung is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), Cardiofaciocutaneous Syndrome, CACH Syndrome, Seizures, and Thrombectomy. Dr. Kenney-Jung is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Fairview Express Care

      500 Harvard St Se, 
      Minneapolis, MN 
       (1.7 miles away)
      Languages Spoken:
      English, Ukrainian
      Accepting New Patients
      Offers Telehealth

      Maria Hordinsky is a Dermatologist in Minneapolis, Minnesota. Dr. Hordinsky is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Autosomal Recessive Hypotrichosis, Alopecia Areata, Graham-Little-Piccardi-Lassueur Syndrome, and Alopecia Universalis. Dr. Hordinsky is currently accepting new patients.

      Experienced in Clouston Syndrome
      Pediatric Neurology
      Experienced in Clouston Syndrome
      Pediatric Neurology
      225 Smith Ave N, Suite 201, 
      Saint Paul, MN 
       (8.0 miles away)
      Languages Spoken:
      English

      Michael Frost is a Pediatric Neurologist in Saint Paul, Minnesota. Dr. Frost is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Epilepsy.

      Sarah S. Asch
      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Hometown Pediatric Dermatology, PLLC

      10 Charles Lake Rd, 
      North Oaks, MN 
       (11.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sarah Asch is a Dermatologist in North Oaks, Minnesota. Dr. Asch is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Becker's Nevus, Epidermal Nevus, Hidradenitis Suppurativa, and Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects. Dr. Asch is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Associated Skin Care Specialists, PA

      11107 Ulysses St Ne, Suite 200, 
      Blaine, MN 
       (12.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Steven Kempers is a Dermatologist in Blaine, Minnesota. Dr. Kempers is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Lamellar Ichthyosis, Nonbullous Congenital Ichthyosiform Erythroderma, Fetal Retinoid Syndrome, and Actinic Keratosis. Dr. Kempers is currently accepting new patients.

      Showing 1-9 of 9

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near Minneapolis, MN?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near Minneapolis, MN?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near Minneapolis, MN?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near Minneapolis, MN?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near Minneapolis, MN?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near Minneapolis, MN?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near Minneapolis, MN?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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