The 20 Best Clouston Syndrome Doctors Near Me in Durham, NC

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 10 doctor with experience in Clouston Syndrome near Durham, NC. Of these, 10 are Experienced.

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10 providers found
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Duke Children's Health Center Neurosurgery Clinic

    2301 Erwin Rd, 
    Durham, NC 
     (2.3 miles away)
    Experience:
    28+ years
    Languages Spoken:
    English
    Offers Telehealth

    I am the chief of pediatric neurosurgery at Duke Children's Hospital. I treat a wide variety of conditions affecting the brain and spine in children, including tumors, hydrocephalus, trauma, and craniosynostosis. I consider it a real privilege to earn a family's trust with their child's health. I enjoy building relationships with the family unit and understanding the specific details of their situation that need consideration in their child's care to ensure a smooth hospitalization experience. Our team leverages the expertise available at Duke Children's Hospital to achieve the best possible outcome for each patient. Witnessing a child return to a normal or improved life after intervention is incredibly gratifying, and seeing them thrive years later is one of the most special aspects of pediatric neurosurgery. Dr. Greene is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Chiari Malformation Type 2, Myelomeningocele, Syringomyelia, Posterior Fossa Decompression, and Craniectomy. Dr. Greene is board certified in American Board Of Neurological Surgery, Focused Practice Pediatric Neurological Surgery , American Board Of Neurological Surgery, Pediatric Neurosurgery , and American Board Of Neurological Surgery, Neurological Surgery.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics

    Lenox Baker Children's Hospital

    3000 Erwin Rd, 
    Durham, NC 
     (2.9 miles away)
    Experience:
    40+ years
    Languages Spoken:
    English
    Offers Telehealth

    I am a clinical geneticist and a pediatrician with a deep interest in undiagnosed and rare genetic disorders. I provide medical care for children and adults with chromosome 22q11.2 deletion syndrome and diagnostic evaluation for patients with symptoms and signs of genetic disorders, when evaluations have not provided a specific diagnosis. Dr. Shashi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses DiGeorge Syndrome, Hypotonia, Immune Defect due to Absence of Thymus, and Micrognathia. Dr. Shashi is board certified in American Board Of Medical Genetics And Genomics, Clinical Genetics And Genomics - General.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Duke University Hospital

    2301 Erwin Rd, 
    Durham, NC 
     (2.2 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Daniel Kenney is a Neurologist practicing medicine in Durham, North Carolina. He has been practicing medicine for over 17 years. Dr. Kenney is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Cardiofaciocutaneous Syndrome, Seizures, and Thrombectomy.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    5324 Mcfarland Rd # 210, 
    Durham, NC 
     (4.1 miles away)
    Experience:
    23+ years
    Languages Spoken:
    English
    Offers Telehealth

    Daniela Kroshinsky is a Dermatologist practicing medicine in Durham, North Carolina. She has been practicing medicine for over 23 years. Dr. Kroshinsky is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Calciphylaxis, Cellulitis, Calcinosis, and Acute Febrile Neutrophilic Dermatosis. Dr. Kroshinsky is board certified in American Board Of Dermatology, Dermatology.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    5324 Mcfarland Rd # 210, 
    Durham, NC 
     (4.1 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sarah Wolfe is a Dermatologist practicing medicine in Durham, North Carolina. She has been practicing medicine for over 19 years. Dr. Wolfe is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Steatocystoma Multiplex, Actinic Keratosis, Epidermoid Cyst, and Basal Cell Skin Cancer. Dr. Wolfe is board certified in American Board Of Dermatology, Dermatology.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology

    Office

    6011 Farrington Rd, 
    Chapel Hill, NC 
     (7.4 miles away)
    Languages Spoken:
    English

    Nathaniel Wooten is a Pediatric Neurologist practicing medicine in Chapel Hill, North Carolina. Dr. Wooten is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Clouston Syndrome, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Notalgia Paresthetica.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology

    UNC Hospitals Pulmonary Function Lab

    101 Manning Dr, 
    Chapel Hill, NC 
     (10.6 miles away)
    Languages Spoken:
    English

    Sheng-che Hung is a Neuroradiologist practicing medicine in Chapel Hill, North Carolina. Dr. Hung is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Stroke, Pediatric Low-Grade Glioma (pLGG), Subarachnoid Hemorrhage, and Brain Aneurysm.

    Experienced in Clouston Syndrome
    Pediatrics | Medical Genetics
    Experienced in Clouston Syndrome
    Pediatrics | Medical Genetics

    University Of North Carolina At Chapel Hill

    101 Manning Dr, 
    Chapel Hill, NC 
     (10.6 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Clara Hildebrandt is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Chapel Hill, North Carolina. She has been practicing medicine for over 10 years. Dr. Hildebrandt is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Ring Chromosome 18, Hypotonia, Chromosome 18p Deletion, Blepharophimosis, and Gastrostomy. Dr. Hildebrandt is currently accepting new patients.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    2201 Old Nc Highway 86, 
    Hillsborough, NC 
     (12.1 miles away)
    Languages Spoken:
    English

    Dean Morrell is a Dermatologist practicing medicine in Hillsborough, North Carolina. Dr. Morrell is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Molluscum Contagiosum, Acne, Atopic Dermatitis, and Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects.

    Experienced in Clouston Syndrome
    Internal Medicine
    Experienced in Clouston Syndrome
    Internal Medicine

    Office

    1021 Darrington Dr Ste 101, 
    Cary, NC 
     (14.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Suneha Sundaram is a primary care provider, practicing in Internal Medicine in Cary, North Carolina. Dr. Sundaram is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Leishmaniasis, Focal Dermal Hypoplasia, COVID-19, Endoscopy, and Colonoscopy.

    Showing 1-10 of 10

    Last Updated: 04/28/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor near Durham, NC?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor near Durham, NC?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors near Durham, NC?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors near Durham, NC?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor near Durham, NC?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor near Durham, NC?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors near Durham, NC?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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