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    Last Updated: 01/09/2026

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    MediFind found 11 doctor with experience in Clouston Syndrome near Durham, NC. Of these, 11 are Experienced.

    Location
    LocationClose
    11 providers found
      Marie T. Mcdonald
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Duke Children's Health Center Genetics Clinic

      2301 Erwin Rd, 
      Durham, NC 
       (2.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Marie Mcdonald is a Pediatrics provider in Durham, North Carolina. Dr. Mcdonald is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Fabry Disease, Hypotonia, Spondyloepimetaphyseal Dysplasia Strudwick Type, and Microcephaly. Dr. Mcdonald is currently accepting new patients.

      Vandana S. Shashi
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics

      Lenox Baker Children's Hospital

      3000 Erwin Rd, 
      Durham, NC 
       (2.9 miles away)
      Languages Spoken:
      English, Hindi
      Accepting New Patients
      Offers Telehealth

      Vandana Shashi is a Medical Genetics specialist and a Pediatrics provider in Durham, North Carolina. Dr. Shashi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are DiGeorge Syndrome, Hypotonia, Immune Defect due to Absence of Thymus, and Micrognathia. Dr. Shashi is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Duke University Hospital

      2301 Erwin Rd, 
      Durham, NC 
       (2.2 miles away)
      Languages Spoken:
      English

      Daniel Kenney is a Neurologist in Durham, North Carolina. Dr. Kenney is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Cardiofaciocutaneous Syndrome, Seizures, and Thrombectomy.

      Learn about our expert tiers
      Daniela A. Kroshinsky
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Duke Pediatric Dermatology Patterson Place

      5324 McFarland Rd, 
      Durham, NC 
       (6.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniela Kroshinsky is a Dermatologist in Durham, North Carolina. Dr. Kroshinsky is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Calciphylaxis, Cellulitis, Calcinosis, and Acute Febrile Neutrophilic Dermatosis. Dr. Kroshinsky is currently accepting new patients.

      Sarah A. Wolfe
      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Duke Dermatology Patterson Place

      5324 McFarland Rd, 
      Durham, NC 
       (6.0 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Sarah Wolfe is a Dermatologist in Durham, North Carolina. Dr. Wolfe is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Steatocystoma Multiplex, Actinic Keratosis, Epidermoid Cyst, and Basal Cell Skin Cancer. Dr. Wolfe is currently accepting new patients.

      Experienced in Clouston Syndrome
      Internal Medicine
      Experienced in Clouston Syndrome
      Internal Medicine

      Duke University Health System, Inc

      2301 Erwin Rd, 
      Durham, NC 
       (2.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mariam Baig is a primary care provider, practicing in Internal Medicine in Durham, North Carolina. Dr. Baig is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Baig is currently accepting new patients.

      Experienced in Clouston Syndrome
      Neuroradiology | Radiology
      Experienced in Clouston Syndrome
      Neuroradiology | Radiology

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (10.6 miles away)
      Languages Spoken:
      English

      Sheng-che Hung is a Neuroradiologist and a Radiologist in Chapel Hill, North Carolina. Dr. Hung is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Stroke, Pediatric Low-Grade Glioma (pLGG), Subarachnoid Hemorrhage, and Brain Aneurysm.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (10.6 miles away)
      Languages Spoken:
      English

      Nathaniel Wooten is a Neurologist in Chapel Hill, North Carolina. Dr. Wooten is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Notalgia Paresthetica.

      Experienced in Clouston Syndrome
      Pediatrics | Medical Genetics
      Experienced in Clouston Syndrome
      Pediatrics | Medical Genetics

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (10.6 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Clara Hildebrandt is a Pediatrics specialist and a Medical Genetics provider in Chapel Hill, North Carolina. Dr. Hildebrandt has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ring Chromosome 18, Hypotonia, Chromosome 18p Deletion, Blepharophimosis, and Gastrostomy. Dr. Hildebrandt is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      University Of North Carolina At Chapel Hill

      410 Market St, 
      Chapel Hill, NC 
       (12.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Dean Morrell is a Dermatologist in Chapel Hill, North Carolina. Dr. Morrell is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Molluscum Contagiosum, Acne, Pyoderma Gangrenosum, and Atopic Dermatitis. Dr. Morrell is currently accepting new patients.

      Experienced in Clouston Syndrome
      Internal Medicine
      Experienced in Clouston Syndrome
      Internal Medicine

      Generations Family Practice PA

      1021 Darrington Dr, Suite 101, 
      Cary, NC 
       (14.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Suneha Sundaram is a primary care provider, practicing in Internal Medicine in Cary, North Carolina. Dr. Sundaram is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Leishmaniasis, Focal Dermal Hypoplasia, COVID-19, Endoscopy, and Colonoscopy. Dr. Sundaram is currently accepting new patients.

      Showing 1-11 of 11

      Last Updated: 01/09/2026

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near Durham, NC?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near Durham, NC?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near Durham, NC?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near Durham, NC?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near Durham, NC?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near Durham, NC?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near Durham, NC?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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