The 20 Best Clouston Syndrome Doctors Near Me in Madison, WI

Find the Top Clouston Syndrome Experts and Specialists

The 20 Best Clouston Syndrome Doctors near Madison, WI

Last Updated: 02/22/2026

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MediFind found 11 doctor with experience in Clouston Syndrome near Madison, WI. Of these, 9 are Experienced, 1 are Advanced and 1 are Distinguished.

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11 providers found
    Distinguished in Clouston Syndrome
    Dermatology
    Distinguished in Clouston Syndrome
    Dermatology

    University Of Wisconsin Medical Foundation Inc

    1 S Park St, 
    Madison, WI 
     (0.3 miles away)
    Languages Spoken:
    English

    Beth Drolet is a Dermatologist in Madison, Wisconsin. Dr. Drolet is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hemangioma, Sternal Cleft, PHACE Syndrome, and Clouston Syndrome.

    Advanced in Clouston Syndrome
    Dermatology
    Advanced in Clouston Syndrome
    Dermatology

    University Of Wisconsin Hospitals & Clinics Authority

    20 S Park St, 
    Madison, WI 
     (0.4 miles away)
    Languages Spoken:
    English

    Olivia Davies is a Dermatologist in Madison, Wisconsin. Dr. Davies is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

    James Miller
    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    SSM Health Dean Medical Group Specialty Services

    1821 S. Stoughton Road, 
    Madison, WI 
     (4.6 miles away)
    Languages Spoken:
    English

    James Miller is a Dermatologist in Madison, Wisconsin. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Fabry Disease, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Pediatrics
    Experienced in Clouston Syndrome
    Pediatrics

    University Of Wisconsin Medical Foundation Inc

    1 S Park St, 
    Madison, WI 
     (0.3 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Lisa Arkin is a Pediatrics provider in Madison, Wisconsin. Dr. Arkin has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Discoid Lupus Erythematosus (DLE), Cutaneous Lupus Erythematosus (CLE), Localized Scleroderma, and Perniosis.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Laura Eisenmenger is a Radiologist in Madison, Wisconsin. Dr. Eisenmenger is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Stroke, CACH Syndrome, Arteriovenous Malformation, PHACE Syndrome, and Thrombectomy.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Justin Brucker is a Neuroradiologist in Madison, Wisconsin. Dr. Brucker has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Stroke, Subarachnoid Hemorrhage, Cerebellum Agenesis Hydrocephaly, and Chiari Malformation.

    Experienced in Clouston Syndrome
    Radiology
    Experienced in Clouston Syndrome
    Radiology

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Priya Sarv is a Radiologist in Madison, Wisconsin. Dr. Sarv has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Primary Lymphoma of the Brain, Double Aortic Arch, Vascular Ring, and Cat Scratch Disease.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Susan Rebsamen is a Neuroradiologist in Madison, Wisconsin. Dr. Rebsamen is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Cavernous Sinus Thrombosis, Brain Aneurysm, Stroke, Meningioma, and Posterior Fossa Decompression.

    Experienced in Clouston Syndrome
    Pediatrics
    Experienced in Clouston Syndrome
    Pediatrics

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Tess Jewell is a Pediatrics provider in Madison, Wisconsin. Dr. Jewell is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Jeffrey Helgager is a Pediatric Neurologist in Madison, Wisconsin. Dr. Helgager is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Gliomatosis Cerebri, Omsk Hemorrhagic Fever, Seizures, and Kyasanur Forest Disease.

    Experienced in Clouston Syndrome
    Sleep Medicine
    Experienced in Clouston Syndrome
    Sleep Medicine

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Kristin Seaborg is a Sleep Medicine provider in Madison, Wisconsin. Dr. Seaborg is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Parkes Weber Syndrome, Sturge-Weber Syndrome, Glucose Transporter Deficiency, and Aplasia Cutis Congenita.

    Showing 1-11 of 11

    Last Updated: 02/22/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor near Madison, WI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor near Madison, WI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors near Madison, WI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors near Madison, WI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor near Madison, WI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor near Madison, WI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors near Madison, WI?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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