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    Last Updated: 10/30/2025

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    MediFind found 23 doctor with experience in Danon Disease near Florida, US. Of these, 22 are Experienced and 1 are Advanced.

    Location
    LocationClose
    23 providers found
      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Florida Hospital Medical Group Inc

      2600 Westhall Ln, 
      Maitland, FL 
      Languages Spoken:
      English, Japanese
      Accepting New Patients
      Offers Telehealth

      Mari Mori is a Medical Genetics specialist and a Pediatrics provider in Maitland, Florida. Dr. Mori is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Glycogen Storage Disease Type 7, FG Syndrome, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), and Von Gierke Disease. Dr. Mori is currently accepting new patients.

      Chakra Chaulagain
      Experienced in Danon Disease
      Hematology Oncology
      Experienced in Danon Disease
      Hematology Oncology

      Egil And Pauline Braathen Center/Maroone Cancer Center

      2950 Cleveland Clinic Boulevard, 
      Weston, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Chakra Chaulagain is a Hematologist Oncology provider in Weston, Florida. Dr. Chaulagain is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Multiple Myeloma, Monoclonal Gammopathy of Undetermined Significance (MGUS), Smoldering Multiple Myeloma, Tissue Biopsy, and Splenectomy.

      Walter J. Quan
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology

      University Of Florida Jacksonville Physicians, Inc.

      653 W 8th St, 
      Jacksonville, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Walter Quan is a Hematologist Oncology specialist and a Hematologist in Jacksonville, Florida. Dr. Quan is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Inflammatory Breast Cancer, Angiosarcoma, Follicular Lymphoma, and Burkitt Lymphoma. Dr. Quan is currently accepting new patients.

      Learn about our expert tiers
      Chieh-lin Fu
      Experienced in Danon Disease
      Hematology
      Experienced in Danon Disease
      Hematology

      Egil And Pauline Braathen Center/Maroone Cancer Center

      2950 Cleveland Clinic Boulevard, 
      Weston, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Chieh-lin Fu is a Hematologist in Weston, Florida. Dr. Fu is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are B-Cell Lymphoma, Multiple Myeloma, Non-Hodgkin Lymphoma, Myelodysplastic Syndrome (MDS), and Bone Marrow Aspiration.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Florida Clinical Practice Association Inc

      2001 Sw 13th St, Gi Clinic At Endoscopy Cen, 
      Gainesville, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sankarasubramoney Subramony is a Neurologist in Gainesville, Florida. Dr. Subramony is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Myotonic Dystrophy Type 2, Myotonic Dystrophy, Hereditary Ataxia, and Paramyotonia Congenita. Dr. Subramony is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Neurology | Neurology
      Experienced in Danon Disease
      Pediatric Neurology | Neurology
      6535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Omer Abdul-Hamid is a Pediatric Neurologist and a Neurologist in Orlando, Florida. Dr. Abdul-Hamid is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotonia Congenita, Congenital Myasthenic Syndrome, Dysferlinopathy, and Duchenne Muscular Dystrophy. Dr. Abdul-Hamid is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease
      4500 San Pablo Rd S, 
      Jacksonville, FL 
      Languages Spoken:
      English

      Kathleen Kennelly is a Neurologist in Jacksonville, Florida. Dr. Kennelly is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Focal Dystonia, Chronic Polyradiculoneuritis, Miller-Fisher Syndrome, and Guillain-Barre Syndrome.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology

      The Nemours Foundation

      1717 S Orange Ave, 100 Childrens Clinic, 
      Orlando, FL 
      Languages Spoken:
      English, Farsi, German, Turkish
      Accepting New Patients

      Bahram Kakavand is a Pediatric Cardiologist and a Cardiologist in Orlando, Florida. Dr. Kakavand is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Familial Neurocardiogenic Syncope, Ectopic Heartbeat, Fainting, and Inappropriate Sinus Tachycardia (IST). Dr. Kakavand is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      Baycare Medical Group, Inc.

      3003 W Dr Martin Luther King Jr Blvd, Mab 2nd Floor, 
      Tampa, FL 
      Experience:
      44+ years
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Jorge Mccormack is a Pediatric Cardiologist and a Cardiologist in Tampa, Florida. Dr. Mccormack has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Congenital Heart Block, Heart Murmurs, Long QT Syndrome, and Wolff-Parkinson-White Syndrome. Dr. Mccormack is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      601 5th St S, 
      St Petersburg, FL 
      Languages Spoken:
      English, Vietnamese
      Accepting New Patients

      Thieu Nguyen is a Pediatric Cardiologist and a Cardiologist in St Petersburg, Florida. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Aortopulmonary Window, Aorta-Pulmonary Artery Fistula, Ventricular Septal Defects, and Patent Ductus Arteriosus. Dr. Nguyen is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Orlando Health Medical Group Inc

      14 W Gore St, 
      Orlando, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Vahid Tohidi is a Neurologist in Orlando, Florida. Dr. Tohidi is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Peripheral Neuropathy, Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy (SMA). Dr. Tohidi is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      13535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English, Arabic, Turkish
      Accepting New Patients

      Dima Turpin is a Pediatric Cardiologist and a Cardiologist in Orlando, Florida. Dr. Turpin is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Aorta-Pulmonary Artery Fistula, Aortopulmonary Window, Interrupted Aortic Arch, and Patent Ductus Arteriosus. Dr. Turpin is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      University Medical Service Association Inc

      13101 Bruce B Downs Blvd, Suite 105, 
      Tampa, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Christopher Griffith is a Medical Genetics provider in Tampa, Florida. Dr. Griffith is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Fabry Disease, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome). Dr. Griffith is currently accepting new patients.

      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine
      6090 26th St W, 
      Bradenton, FL 
      Languages Spoken:
      English

      Arthur Cohen is a primary care provider, practicing in Family Medicine in Bradenton, Florida. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease and Pompe Disease.

      Experienced in Danon Disease
      Experienced in Danon Disease

      West Florida Medical Center Clinic PA

      8333 N Davis Hwy, 
      Pensacola, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Ethan Gore is a Neurologist in Pensacola, Florida. Dr. Gore is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Memory Loss, Alzheimer's Disease, Primary Orthostatic Tremor, and Migraine with Brainstem Aura. Dr. Gore is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease
      601 University Blvd, Suite 102 101, 
      Jupiter, FL 
      Languages Spoken:
      English

      James Stafford is a Neurologist in Jupiter, Florida. Dr. Stafford is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Primary Progressive Aphasia, Frontotemporal Dementia, Hemangioblastoma, and Cerebellar Degeneration.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Orlando Health Medical Group Inc

      60 W Gore St, 
      Orlando, FL 
      Languages Spoken:
      English, Hindi, Marathi
      Accepting New Patients
      Offers Telehealth

      Aditi Dagli is a Medical Genetics specialist and a Pediatrics provider in Orlando, Florida. Dr. Dagli is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Early Infantile Epileptic Encephalopathy, Angelman Syndrome, Ehlers-Danlos Syndrome (EDS), and Snyder-Robinson Syndrome. Dr. Dagli is currently accepting new patients.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      The Council On Aging Of Martin County Inc

      900 Se Salerno Rd, 
      Stuart, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Robert Kenney is a primary care provider, practicing in Internal Medicine in Stuart, Florida. Dr. Kenney is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and High Cholesterol. Dr. Kenney is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      60 W Gore St, 
      Orlando, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Patricia Wheeler is a Medical Genetics specialist and a Pediatrics provider in Orlando, Florida. Dr. Wheeler is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Increased Head Circumference, Microcephaly, Hypotonia, and SRD5A3-CDG. Dr. Wheeler is currently accepting new patients.

      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine

      Holy Cross Hospital Inc

      2850 N Federal Hwy, Pompano Beach Internal Med, 
      Lighthouse Point, FL 
      Languages Spoken:
      English, Portuguese, Spanish
      Accepting New Patients
      Offers Telehealth

      Clarissa Harris is a primary care provider, practicing in Family Medicine in Lighthouse Point, Florida. Dr. Harris is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Anemia, High Cholesterol, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Harris is currently accepting new patients.

      Showing 1-20 of 23

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in Florida, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in Florida, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors in Florida, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in Florida, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in Florida, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in Florida, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in Florida, US?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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