The 20 Best Danon Disease Doctors Near Me in Florida, US

Find the Top Danon Disease Experts and Specialists

The 20 Best Danon Disease Doctors in Florida, US

Last Updated: 02/22/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 23 doctor with experience in Danon Disease near Florida, US. Of these, 23 are Experienced.

Location
LocationClose
23 providers found
    Jorge Mccormack
    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Pediatric Cardiology Associates

    625 6th Avenue South, Suite 120, Suite 120, 
    St Petersburg, FL 
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Jorge Mccormack is a Pediatric Cardiologist in St Petersburg, Florida. Dr. Mccormack is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Congenital Heart Block, Heart Murmurs, Long QT Syndrome, and Wolff-Parkinson-White Syndrome.

    Chakra Chaulagain
    Experienced in Danon Disease
    Hematology Oncology
    Experienced in Danon Disease
    Hematology Oncology

    Egil And Pauline Braathen Center/Maroone Cancer Center

    2950 Cleveland Clinic Boulevard, 
    Weston, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Chakra Chaulagain is a Hematologist Oncology provider in Weston, Florida. Dr. Chaulagain is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Multiple Myeloma, Monoclonal Gammopathy of Undetermined Significance (MGUS), Smoldering Multiple Myeloma, Tissue Biopsy, and Splenectomy.

    Meral Gunay
    Experienced in Danon Disease
    Pediatrics
    Experienced in Danon Disease
    Pediatrics

    Johns Hopkins All Children's Outpatient Care, St. Petersburg

    601 5th Street South, Suite 520, Suite 520, 
    Saint Petersburg, FL 
    Languages Spoken:
    English, Turkish
    Offers Telehealth

    Meral Gunay-Aygun is a professor of pediatrics and genetic medicine at Johns Hopkins University School of Medicine. Dr. Gunay-Aygun specializes in the diagnosis and treatment of children and adults with inherited metabolic diseases including diagnostic evaluation and follow-up of newborns with abnormal newborn screens for inherited metabolic diseases. After serving 14 years as an attending physician at The Johns Hopkins Hospital in Baltimore, she joined the medical staff of Johns Hopkins All Children’s Hospital in St. Petersburg, Florida in 2022. Dr. Gunay-Aygun earned her medical degree from Hacettepe University School of Medicine, Ankara, Turkey. She completed pediatrics and medical genetics residencies at Case Western Reserve University, Cleveland, Ohio, and a biochemical genetics fellowship at the National Institutes of Health’s National Human Genome Research Institute, Bethesda, Maryland. She has made numerous research contributions, especially in the study of inherited ciliopathies, for which she has earned international recognition. Dr. Gunay-Aygun received the Innovative Leadership Award from Genetic Alliance, as well as the NHGRI Merit Award for her research on Autosomal Recessive Polycystic Kidney Disease/Congenital Hepatic Fibrosis. She is a member of myriad professional organizations, including the American Society of Human Genetics, the American Academy of Pediatrics, the Society of Pediatric Research and the Society for Inherited Metabolic Disorders. Dr. Gunay is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Phenylketonuria (PKU), Ornithine Translocase Deficiency, Ornithine Transcarbamylase Deficiency, and 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency.

    Learn about our expert tiers
    Omer A. Hamid
    Experienced in Danon Disease
    Experienced in Danon Disease

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    10+ years
    Languages Spoken:
    English, Arabic

    Omer Hamid is a Neurologist in Orlando, Florida. Dr. Hamid has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotonia Congenita, Congenital Myasthenic Syndrome, Dysferlinopathy, and Duchenne Muscular Dystrophy.

    Bahram Kakavand
    Experienced in Danon Disease
    Experienced in Danon Disease

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English, Farsi, German

    I was born in Iran, moved to Germany at age 18 for college, and have lived in the United States since 1992. I’ve always been close to my parents, brothers and sister. Our relationship gave me a sense of respect for the concept of family that is reflected in the way I treat patients and families today. My interest in cardiology began when I was just eight or nine years old reading a schoolbook about heart function; I decided then and there on my career. I chose to work with children because of their great need and limited ability to express themselves. It’s rewarding to connect and understand what they’re trying to say. Because children are very delicate, I insist on precision with every service I provide. I’m also passionate about getting the diagnosis right. Sometimes parents bring their child to me after multiple doctors have given up trying to diagnose them. I like the challenge and the opportunity to provide treatment that will help. Many of my patients — for example, kids with congenital heart conditions — must be treated over a period of months or even years. I try to really manage their condition and help their family be part of the care team. I’m also interested in providing medicine that has been lacking in Florida. Dysautonomia, a nervous system disorder, is one of them. Dr. Kakavand is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Familial Neurocardiogenic Syncope, Ectopic Heartbeat, Fainting, and Inappropriate Sinus Tachycardia (IST).

    Thieu Nguyen
    Experienced in Danon Disease
    Cardiology
    Experienced in Danon Disease
    Cardiology

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    7+ years
    Languages Spoken:
    English, Vietnamese

    Thieu Nguyen is a Cardiologist in Orlando, Florida. Dr. Nguyen has been practicing medicine for over 7 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Aortopulmonary Window, Aorta-Pulmonary Artery Fistula, Ventricular Septal Defects, and Heart Murmurs.

    Dima Turpin
    Experienced in Danon Disease
    Cardiology
    Experienced in Danon Disease
    Cardiology

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    10+ years
    Languages Spoken:
    English, Arabic, Turkish

    Dima Turpin is a Cardiologist in Orlando, Florida. Dr. Turpin has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Aorta-Pulmonary Artery Fistula, Aortopulmonary Window, Interrupted Aortic Arch, and Patent Ductus Arteriosus.

    Walter Quan
    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Uf Health Hematology And Oncology-Jacksonville

    1900 Boulevard Bldg B # Pavilion, 
    Jacksonville, FL 
    Languages Spoken:
    English

    Walter Quan is an Internal Medicine provider in Jacksonville, Florida. Dr. Quan is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Inflammatory Breast Cancer, Angiosarcoma, Burkitt Lymphoma, and Follicular Lymphoma.

    Experienced in Danon Disease
    Experienced in Danon Disease

    Uf Health Neuromedicine-Fixel Institute

    3009 SW Williston Rd, 
    Gainesville, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Sub Subramony is a Neurologist in Gainesville, Florida. Dr. Subramony is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Myotonic Dystrophy, Myotonic Dystrophy Type 2, Hereditary Ataxia, and Paramyotonia Congenita.

    Experienced in Danon Disease
    Experienced in Danon Disease
    4500 San Pablo Rd S, 
    Jacksonville, FL 
    Languages Spoken:
    English

    Kathleen Kennelly is a Neurologist in Jacksonville, Florida. Dr. Kennelly is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Focal Dystonia, Chronic Polyradiculoneuritis, Guillain-Barre Syndrome, and Miller-Fisher Syndrome.

    Experienced in Danon Disease
    Experienced in Danon Disease

    Orlando Health Medical Group Surgery-Downtown Orlando

    14 W Gore St, 
    Orlando, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Vahid Tohidi is a Neurologist in Orlando, Florida. Dr. Tohidi is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Peripheral Neuropathy, Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy (SMA).

    Experienced in Danon Disease
    Experienced in Danon Disease
    13101 Bruce B Downs Blvd, 
    Tampa, FL 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Christopher Griffith is a Medical Genetics provider in Tampa, Florida. Dr. Griffith is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, Multiple Sulfatase Deficiency, Fabry Disease, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome). Dr. Griffith is currently accepting new patients.

    Experienced in Danon Disease
    Family Medicine
    Experienced in Danon Disease
    Family Medicine

    Cosmetic Vein Clinic Of Florida Inc

    2225 59th St W Ste B, 
    Bradenton, FL 
    Languages Spoken:
    English

    Arthur Cohen is a primary care provider, practicing in Family Medicine in Bradenton, Florida. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Pompe Disease and Danon Disease.

    Experienced in Danon Disease
    Neurology
    Experienced in Danon Disease
    Neurology

    Neurology Department At Medical Center Clinic - Building 1, Floor 3

    8333 N Davis Hwy, 
    Pensacola, FL 
    Languages Spoken:
    English

    Ethan Gore is a Neurologist in Pensacola, Florida. Dr. Gore is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Memory Loss, Alzheimer's Disease, Primary Orthostatic Tremor, and Migraine with Brainstem Aura.

    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    Experienced in Danon Disease
    Medical Genetics | Pediatrics

    Orlando Health Medical Group Inc

    60 W Gore St, 
    Orlando, FL 
    Languages Spoken:
    English, Hindi, Marathi
    Accepting New Patients
    Offers Telehealth

    Aditi Dagli is a Medical Genetics specialist and a Pediatrics provider in Orlando, Florida. Dr. Dagli is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Early Infantile Epileptic Encephalopathy, Angelman Syndrome, Ehlers-Danlos Syndrome (EDS), and Alstrom Syndrome. Dr. Dagli is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease

    Michael Z Kalter M. D M. S P A

    601 University Blvd Ste 102, 
    Jupiter, FL 
    Languages Spoken:
    English

    James Stafford is a Neurologist in Jupiter, Florida. Dr. Stafford is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Primary Progressive Aphasia, Frontotemporal Dementia, Hemangioblastoma, and Cerebellar Degeneration.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Kane Clinic

    900 SE Salerno Rd, 
    Stuart, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Kenney is a primary care provider, practicing in Internal Medicine in Stuart, Florida. Dr. Kenney is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and High Cholesterol. Dr. Kenney is currently accepting new patients.

    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    60 W Gore St, 
    Orlando, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Patricia Wheeler is a Medical Genetics specialist and a Pediatrics provider in Orlando, Florida. Dr. Wheeler is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Increased Head Circumference, Microcephaly, Hypotonia, and SRD5A3-CDG. Dr. Wheeler is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease

    Office

    1131 N 35th Ave, 
    Hollywood, FL 
    Languages Spoken:
    English

    Francis Jeshira is a Pediatrics provider in Hollywood, Florida. Dr. Jeshira is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Biotinidase Deficiency, Maple Syrup Urine Disease, 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency, and Argininosuccinic Aciduria.

    Experienced in Danon Disease
    Family Medicine
    Experienced in Danon Disease
    Family Medicine

    Office

    2850 N Federal Hwy Fl 2, 
    Lighthouse Point, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Clarissa Harris is a primary care provider, practicing in Family Medicine in Lighthouse Point, Florida. Dr. Harris is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Anemia, High Cholesterol, Glucocorticoid-Remediable Aldosteronism, and Hypertension.

    Showing 1-20 of 23

    Last Updated: 02/22/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor in Florida, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor in Florida, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors in Florida, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors in Florida, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor in Florida, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor in Florida, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors in Florida, US?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Danon Disease Doctors by city