The 20 Best Danon Disease Doctors Near Me in Orlando, FL

Find the Top Danon Disease Experts and Specialists

The 20 Best Danon Disease Doctors near Orlando, FL

Last Updated: 02/22/2026

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MediFind found 7 doctor with experience in Danon Disease near Orlando, FL. Of these, 7 are Experienced.

Location
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7 providers found
    Experienced in Danon Disease
    Experienced in Danon Disease

    Orlando Health Medical Group Surgery-Downtown Orlando

    14 W Gore St, 
    Orlando, FL 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Vahid Tohidi is a Neurologist in Orlando, Florida. Dr. Tohidi is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Peripheral Neuropathy, Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy (SMA).

    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    Experienced in Danon Disease
    Medical Genetics | Pediatrics

    Orlando Health Medical Group Inc

    60 W Gore St, 
    Orlando, FL 
     (0.6 miles away)
    Languages Spoken:
    English, Hindi, Marathi
    Accepting New Patients
    Offers Telehealth

    Aditi Dagli is a Medical Genetics specialist and a Pediatrics provider in Orlando, Florida. Dr. Dagli is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Early Infantile Epileptic Encephalopathy, Angelman Syndrome, Ehlers-Danlos Syndrome (EDS), and Alstrom Syndrome. Dr. Dagli is currently accepting new patients.

    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    60 W Gore St, 
    Orlando, FL 
     (0.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Patricia Wheeler is a Medical Genetics specialist and a Pediatrics provider in Orlando, Florida. Dr. Wheeler is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Increased Head Circumference, Microcephaly, Hypotonia, and SRD5A3-CDG. Dr. Wheeler is currently accepting new patients.

    Learn about our expert tiers
    Omer A. Hamid
    Experienced in Danon Disease
    Experienced in Danon Disease

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English, Arabic

    Omer Hamid is a Neurologist in Orlando, Florida. Dr. Hamid has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotonia Congenita, Congenital Myasthenic Syndrome, Dysferlinopathy, and Duchenne Muscular Dystrophy.

    Bahram Kakavand
    Experienced in Danon Disease
    Experienced in Danon Disease

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Languages Spoken:
    English, Farsi, German

    I was born in Iran, moved to Germany at age 18 for college, and have lived in the United States since 1992. I’ve always been close to my parents, brothers and sister. Our relationship gave me a sense of respect for the concept of family that is reflected in the way I treat patients and families today. My interest in cardiology began when I was just eight or nine years old reading a schoolbook about heart function; I decided then and there on my career. I chose to work with children because of their great need and limited ability to express themselves. It’s rewarding to connect and understand what they’re trying to say. Because children are very delicate, I insist on precision with every service I provide. I’m also passionate about getting the diagnosis right. Sometimes parents bring their child to me after multiple doctors have given up trying to diagnose them. I like the challenge and the opportunity to provide treatment that will help. Many of my patients — for example, kids with congenital heart conditions — must be treated over a period of months or even years. I try to really manage their condition and help their family be part of the care team. I’m also interested in providing medicine that has been lacking in Florida. Dysautonomia, a nervous system disorder, is one of them. Dr. Kakavand is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Familial Neurocardiogenic Syncope, Ectopic Heartbeat, Fainting, and Inappropriate Sinus Tachycardia (IST).

    Thieu Nguyen
    Experienced in Danon Disease
    Cardiology
    Experienced in Danon Disease
    Cardiology

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    7+ years
    Languages Spoken:
    English, Vietnamese

    Thieu Nguyen is a Cardiologist in Orlando, Florida. Dr. Nguyen has been practicing medicine for over 7 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Aortopulmonary Window, Aorta-Pulmonary Artery Fistula, Ventricular Septal Defects, and Heart Murmurs.

    Dima Turpin
    Experienced in Danon Disease
    Cardiology
    Experienced in Danon Disease
    Cardiology

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English, Arabic, Turkish

    Dima Turpin is a Cardiologist in Orlando, Florida. Dr. Turpin has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Aorta-Pulmonary Artery Fistula, Aortopulmonary Window, Interrupted Aortic Arch, and Patent Ductus Arteriosus.

    Showing 1-7 of 7

    Last Updated: 02/22/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor near Orlando, FL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor near Orlando, FL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors near Orlando, FL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors near Orlando, FL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor near Orlando, FL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor near Orlando, FL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors near Orlando, FL?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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