The 20 Best Danon Disease Doctors Near Me in Orlando, FL

Find the Top Danon Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 18 doctor with experience in Danon Disease near Orlando, FL. Of these, 18 are Experienced.

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18 providers found
    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English

    I was born in Iran, moved to Germany at age 18 for college, and have lived in the United States since 1992. I’ve always been close to my parents, brothers and sister. Our relationship gave me a sense of respect for the concept of family that is reflected in the way I treat patients and families today. My interest in cardiology began when I was just eight or nine years old reading a schoolbook about heart function; I decided then and there on my career. I chose to work with children because of their great need and limited ability to express themselves. It’s rewarding to connect and understand what they’re trying to say. Because children are very delicate, I insist on precision with every service I provide. I’m also passionate about getting the diagnosis right. Sometimes parents bring their child to me after multiple doctors have given up trying to diagnose them. I like the challenge and the opportunity to provide treatment that will help. Many of my patients — for example, kids with congenital heart conditions — must be treated over a period of months or even years. I try to really manage their condition and help their family be part of the care team. I’m also interested in providing medicine that has been lacking in Florida. Dysautonomia, a nervous system disorder, is one of them. Dr. Kakavand is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Familial Neurocardiogenic Syncope, Ectopic Heartbeat, Fainting, and Inappropriate Sinus Tachycardia (IST). Dr. Kakavand is board certified in American Board Of Pediatrics.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology
    Referral may be required

    Pediatrix Cardiology Associates

    625 Sixth Ave S, Ste 120, 
    St. Petersburg, FL 
    Experience:
    44+ years
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Jorge McCormack is board certified in pediatric cardiology and pediatric cardiac electrophysiology, and is with BayCare Medical Group in Tampa Bay, Florida, where he sees patients from birth throughout adulthood. Before joining BayCare Medical Group, he practiced at Pediatric Cardiology Associates. Dr. McCormack earned a Doctor of Medicine from the University of Puerto Rico in San Juan, Puerto Rico, performed a pediatrics internship and residency at Baylor College of Medicine in Houston, Texas, and completed a research fellowship and clinical fellowship in pediatric cardiology from the University of Miami School of Medicine in Miami, Florida. Dr. McCormack has a clinical interest in electrophysiology and manages arrhythmias, pacemakers and sudden death syndromes. Dr. McCormack is a Fellow of the American Academy of Pediatrics, the American College of Cardiology and the Heart Rhythm Society and is a member of the North American Society of Pacing and Electrophysiology and the Pediatric and Congenital Electrophysiology Society. He’s affiliated with St. Joseph’s Hospital, St. Joseph’s Children’s Hospital and many other hospitals throughout Tampa Bay. Dr. Mccormack is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Block, Heart Murmurs, Long QT Syndrome, and Wolff-Parkinson-White Syndrome. Dr. Mccormack is board certified in Pediatric Cardiology and Pediatrics.

    Experienced in Danon Disease
    Cardiology
    Experienced in Danon Disease
    Cardiology
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    7+ years
    Languages Spoken:
    English, Vietnamese

    Thieu Nguyen is a Cardiologist practicing medicine in Orlando, Florida. He has been practicing medicine for over 7 years. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Aortopulmonary Window, Aorta-Pulmonary Artery Fistula, Ventricular Septal Defects, and Heart Murmurs. Dr. Nguyen is board certified in American Board Of Pediatrics.

    Learn about our expert tiers
    Experienced in Danon Disease
    Hematology Oncology
    Experienced in Danon Disease
    Hematology Oncology
    Referral may be required

    Egil And Pauline Braathen Center/Maroone Cancer Center

    2950 Cleveland Clinic Boulevard, 
    Weston, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Chakra Chaulagain is a Hematologist Oncology provider practicing medicine in Weston, Florida. Dr. Chaulagain is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 61 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Monoclonal Gammopathy of Undetermined Significance (MGUS), Plasmacytoma, Tissue Biopsy, and Splenectomy. Dr. Chaulagain is board certified in American Board Of Internal Medicine, 2015.

    Experienced in Danon Disease
    Pediatrics
    Experienced in Danon Disease
    Pediatrics
    Referral may be required

    Johns Hopkins All Children's Outpatient Care, St. Petersburg

    601 5th Street South, Suite 520, Suite 520, 
    Saint Petersburg, FL 
    Languages Spoken:
    English, Turkish
    Offers Telehealth

    Meral Gunay-Aygun is a professor of pediatrics and genetic medicine at Johns Hopkins University School of Medicine. Dr. Gunay-Aygun specializes in the diagnosis and treatment of children and adults with inherited metabolic diseases including diagnostic evaluation and follow-up of newborns with abnormal newborn screens for inherited metabolic diseases. After serving 14 years as an attending physician at The Johns Hopkins Hospital in Baltimore, she joined the medical staff of Johns Hopkins All Children’s Hospital in St. Petersburg, Florida in 2022. Dr. Gunay-Aygun earned her medical degree from Hacettepe University School of Medicine, Ankara, Turkey. She completed pediatrics and medical genetics residencies at Case Western Reserve University, Cleveland, Ohio, and a biochemical genetics fellowship at the National Institutes of Health’s National Human Genome Research Institute, Bethesda, Maryland. She has made numerous research contributions, especially in the study of inherited ciliopathies, for which she has earned international recognition. Dr. Gunay-Aygun received the Innovative Leadership Award from Genetic Alliance, as well as the NHGRI Merit Award for her research on Autosomal Recessive Polycystic Kidney Disease/Congenital Hepatic Fibrosis. She is a member of myriad professional organizations, including the American Society of Human Genetics, the American Academy of Pediatrics, the Society of Pediatric Research and the Society for Inherited Metabolic Disorders. Dr. Gunay is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Ornithine Translocase Deficiency, Ornithine Transcarbamylase Deficiency, and 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency. Dr. Gunay is board certified in American Board Of Medical Genetics And Genomics and American Board Of Pediatrics.

    Experienced in Danon Disease
    Neurology | Neuromusculoskeletal Medicine
    Experienced in Danon Disease
    Neurology | Neuromusculoskeletal Medicine
    Referral may be required

    Orlando Health Neuroscience Institute – Downtown

    76 W. Underwood St., 2nd Floor, 
    Orlando, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Vahid Tohidi, MD, PhD, is a board-certified neurologist and neuromuscular specialist with Orlando Health Neuroscience Institute Neurology Group. In addition to his role as division director of neuromuscular and peripheral disorders, he focuses his practice on diagnosis, treatment and management of patients with neurological disease related to peripheral nervous system disorders.Neuromuscular SpecialistAs a neuromuscular specialist, Dr. Tohidi treats patients with peripheral nervous system disorders and autonomic disorders, including spinal cord disorders, peripheral nerves, and neuromuscular and muscular disorders. He offers different types of procedures and diagnostic tests in order to produce the best possible results in all cases. These procedures and diagnostic tests include:NCS/EMG studiesSingle fiber EMGUltrasound for peripheral nervesAutonomic testingDr. Tohidi’s TrainingDr. Tohidi earned his medical degree at the Iran University of Medical Sciences in Tehran and later earned a PhD in biology from Rutgers University in Newark, New Jersey. He then went on to complete an internship of internal medicine at St. Francis, and a neurology residency at the Seton Hall University School of Health and Medical Sciences in Edison, New Jersey. Dr. Tohidi concluded his postdoctoral training at the Hospital for Special Surgery in New York City with a fellowship in neuromuscular medicine.About Dr. TohidiDr. Tohidi is a diplomate of the American Board of Psychiatry and Neurology, with additional certification in neuromuscular medicine, and also certified by the United Council for Neurologic Subspecialties in autonomic disorders.He is a member of the American Association of Neuromuscular and Electrodiagnostic Medicine, American Academy of Neurology, and American Autonomic Society. Throughout his education and career, he has participated in clinical research studies as principal investigator or co-investigator, and his work has appeared in numerous medical publications. Dr. Tohidi is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy (SMA).

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    Orlando Health Arnold Palmer Hospital For Children Division Of Genetics - Spring Lake

    7243 Della Dr., 2nd Floor, Suite G, 
    Orlando, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Patricia Wheeler, MD, is a geneticist at Orlando Health Arnold Palmer Hospital for Children. She is board certified in medical genetics and in pediatrics.Dr. Wheeler earned her medical degree, as well as an MS degree in medical and molecular genetics, from Indiana University School of Medicine. She completed a pediatric residency at Riley Hospital for Children at Indiana University Health. She also completed a residency and fellowship in medical and molecular genetics at Indiana University. Dr. Wheeler is a fellow of the American College of Medical Genetics and Genomics.Prior to joining Orlando Health Arnold Palmer in 2004, Dr. Wheeler worked as an attending geneticist at New England Medical Center, Boston, and as a genetic consultant for numerous hospitals in Massachusetts. She also served as director of the medical genetics residency program for three years at Tufts Medical Center in Boston.Dr. Wheeler is an active researcher and lecturer in the field of genetics and has had many genetics-related articles published in medical journals. She is a member of the American Society of Human Genetics. Dr. Wheeler is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Increased Head Circumference, Microcephaly, SRD5A3-CDG, and Micrognathia. Dr. Wheeler is board certified in American Board Of Medical Genetics and American Board Of Pediatrics.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Uf Health Hematology And Oncology-Jacksonville

    1900 Boulevard Bldg B # Pavilion, 
    Jacksonville, FL 
    Languages Spoken:
    English

    Walter Quan is an Internal Medicine provider practicing medicine in Jacksonville, Florida. Dr. Quan is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Inflammatory Breast Cancer, Angiosarcoma, Follicular Lymphoma, and Burkitt Lymphoma.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    Uf Health Neuromedicine-Fixel Institute

    3009 SW Williston Rd, 
    Gainesville, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Sub Subramony is a Neurologist practicing medicine in Gainesville, Florida. Dr. Subramony is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy, Myotonic Dystrophy Type 2, Hereditary Ataxia, and Paramyotonia Congenita.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    4500 San Pablo Rd S, 
    Jacksonville, FL 
    Languages Spoken:
    English

    Kathleen Kennelly is a Neurologist practicing medicine in Jacksonville, Florida. Dr. Kennelly is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Focal Dystonia, Miller-Fisher Syndrome, Guillain-Barre Syndrome, and Chronic Polyradiculoneuritis.

    Experienced in Danon Disease
    Family Medicine
    Experienced in Danon Disease
    Family Medicine

    Cosmetic Vein Clinic Of Florida Inc

    2225 59th St W Ste B, 
    Bradenton, FL 
    Languages Spoken:
    English

    Arthur Cohen is a primary care provider, practicing in Family Medicine in Bradenton, Florida. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His clinical expertise encompasses Danon Disease and Pompe Disease.

    Experienced in Danon Disease
    Neurology
    Experienced in Danon Disease
    Neurology
    Referral may be required

    Neurology Department At Medical Center Clinic - Building 1, Floor 3

    8333 N Davis Hwy, 
    Pensacola, FL 
    Languages Spoken:
    English

    Ethan Gore is a Neurologist practicing medicine in Pensacola, Florida. Dr. Gore is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Memory Loss, Alzheimer's Disease, Primary Orthostatic Tremor, and Migraine with Brainstem Aura.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Kane Clinic

    900 SE Salerno Rd, 
    Stuart, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Kenney is a primary care provider, practicing in Internal Medicine in Stuart, Florida. Dr. Kenney is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and High Cholesterol. Dr. Kenney is board certified in American Board Of Internal Medicine. Dr. Kenney is currently accepting new patients.

    Experienced in Danon Disease
    Family Medicine
    Experienced in Danon Disease
    Family Medicine

    Office

    2850 N Federal Hwy Fl 2, 
    Lighthouse Point, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Clarissa Harris is a primary care provider, practicing in Family Medicine in Lighthouse Point, Florida. Dr. Harris is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Anemia, High Cholesterol, Hypertension, and Glucocorticoid-Remediable Aldosteronism.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    Office

    1131 N 35th Ave, 
    Hollywood, FL 
    Languages Spoken:
    English

    Francis Jeshira is a Pediatrics provider practicing medicine in Hollywood, Florida. Dr. Jeshira is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Biotinidase Deficiency, Maple Syrup Urine Disease, 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency, and Argininosuccinic Aciduria.

    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    Referral may be required

    University Of Miami

    1611 Nw 12 Ave, 
    Miami, FL 
    Languages Spoken:
    English, Hebrew, Portuguese, Spanish
    Accepting New Patients

    Deborah Barbouth is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Miami, Florida. Dr. Barbouth is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Gaucher Disease Type 1, Gaucher Disease, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Splenectomy. Dr. Barbouth is currently accepting new patients.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Conviva Care Center East Hialeah

    522 W 25th St, 
    Hialeah, FL 
    Experience:
    10+ years
    Languages Spoken:
    English

    Adolfo Medina is a primary care provider, practicing in Internal Medicine in Hialeah, Florida. He has been practicing medicine for over 10 years. Dr. Medina is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Sciatica, Nephrosclerosis, Renovascular Hypertension, and Hypertensive Heart Disease.

    Experienced in Danon Disease
    Hematology
    Experienced in Danon Disease
    Hematology
    Referral may be required

    University Of Miami

    8170 Royal Palm Blvd, 
    Coral Springs, FL 
    Languages Spoken:
    English

    Neal Weinreb is a Hematologist practicing medicine in Coral Springs, Florida. Dr. Weinreb is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Gaucher Disease Type 1, Gaucher Disease, Farber Lipogranulomatosis, Gaucher Disease Type 2, and Splenectomy.

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    Last Updated: 04/28/2026

    When should I see a Danon Disease doctor near Orlando, FL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor near Orlando, FL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors near Orlando, FL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors near Orlando, FL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor near Orlando, FL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor near Orlando, FL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors near Orlando, FL?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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