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    Last Updated: 10/30/2025

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    MediFind found 6 doctor with experience in Danon Disease near Detroit, MI. Of these, 5 are Experienced and 1 are Advanced.

    Location
    LocationClose
    6 providers found
      Advanced in Danon Disease
      Internal Medicine
      Advanced in Danon Disease
      Internal Medicine
      3901 Beaubien St, 
      Detroit, MI 
       (1.6 miles away)
      Languages Spoken:
      English

      David Stockton is a primary care provider, practicing in Internal Medicine in Detroit, Michigan. Dr. Stockton is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Pompe Disease, Danon Disease, Multiple Sulfatase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      University Pediatricians

      3901 Beaubien St, Suite H, 
      Detroit, MI 
       (1.6 miles away)
      Languages Spoken:
      English

      Sanjeev Aggarwal is a Pediatric Cardiologist and a Cardiologist in Detroit, Michigan. Dr. Aggarwal is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Total Anomalous Pulmonary Venous Return, High Blood Pressure in Infants, Pulmonary Atresia, Heart Transplant, and Transmyocardial Revascularization.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      University Pediatricians

      3901 Beaubien St, Suite H, 
      Detroit, MI 
       (1.6 miles away)
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Deemah Mahadin is a Pediatric Cardiologist and a Cardiologist in Detroit, Michigan. Dr. Mahadin is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Kawasaki Disease, Patent Ductus Arteriosus, Ventricular Septal Defects, and Transposition of the Great Arteries. Dr. Mahadin is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      3901 Beaubien St, Pediatrics Education Office, 
      Detroit, MI 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Noelle Fabie is a Medical Genetics specialist and a Pediatrics provider in Detroit, Michigan. Dr. Fabie is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Micrognathia, Branchiootorenal Syndrome, Filippi Syndrome, and Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant. Dr. Fabie is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      University Pediatricians

      3901 Beaubien St, Suite H, 
      Detroit, MI 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Blake is a Pediatric Cardiologist and a Cardiologist in Detroit, Michigan. Dr. Blake is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Ventricular Septal Defects, Double Outlet Right Ventricle, Heart Murmurs, Double Outlet Left Ventricle, and Heart Transplant. Dr. Blake is currently accepting new patients.

      Daniel L. Menkes
      Experienced in Danon Disease
      Neuromusculoskeletal Medicine | Neurology
      Experienced in Danon Disease
      Neuromusculoskeletal Medicine | Neurology

      Corewell Health William Beaumont University Hospital Neuroscience Center

      3555 West 13 Mile Road, Suite N120, 
      Royal Oak, MI 
       (14.8 miles away)
      Experience:
      37+ years
      Languages Spoken:
      English, French, German
      Accepting New Patients

      Daniel Menkes is a Neuromusculoskeletal Medicine specialist and a Neurologist in Royal Oak, Michigan. Dr. Menkes has been practicing medicine for over 37 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita. Dr. Menkes is currently accepting new patients.

      Showing 1-6 of 6

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor near Detroit, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor near Detroit, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors near Detroit, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors near Detroit, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor near Detroit, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor near Detroit, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors near Detroit, MI?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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