The 20 Best Koolen De Vries Syndrome Doctors Near Me in Avon, OH

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 13 doctor with experience in Koolen De Vries Syndrome near Avon, OH. Of these, 13 are Experienced.

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13 providers found
    Experienced in Koolen De Vries Syndrome
    Plastic Surgery
    Experienced in Koolen De Vries Syndrome
    Plastic Surgery

    Avon - Richard E. Jacobs Health Center

    33100 Cleveland Clinic Boulevard, 
    Avon, OH 
     (1.6 miles away)
    Experience:
    34+ years
    Languages Spoken:
    English
    Offers Telehealth

    Michael Fritz is a Plastic Surgeon practicing medicine in Avon, Ohio. He has been practicing medicine for over 34 years. Dr. Fritz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Facial Paralysis, Bell's Palsy, Recurrent Peripheral Facial Palsy, Bone Graft, and Tissue Biopsy. Dr. Fritz is board certified in American Board Of Facial Plastic And Reconstructive Surgery, 2007.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Avon - Richard E. Jacobs Health Center

    33100 Cleveland Clinic Boulevard, 
    Avon, OH 
     (1.6 miles away)
    Experience:
    39+ years
    Languages Spoken:
    English

    Laura Milgram is a Pediatrics provider practicing medicine in Avon, Ohio. She has been practicing medicine for over 39 years. Dr. Milgram is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Ciliary Dyskinesia-Bronchiectasis, Kartagener Syndrome, Primary Ciliary Dyskinesia (PCD), and Tracheoesophageal Fistula. Dr. Milgram is board certified in American Board Of Pediatrics, 2000.

    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine

    Avon - Richard E. Jacobs Health Center

    33100 Cleveland Clinic Boulevard, 
    Avon, OH 
     (1.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Deena Khabbaza is a Pulmonary Medicine provider practicing medicine in Avon, Ohio. Dr. Khabbaza is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Lung Metastases, Chronic Obstructive Pulmonary Disease (COPD), Pleurisy, and Pleural Effusion. Dr. Khabbaza is board certified in American Board Of Internal Medicine, 2017.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Vascular Surgery
    Experienced in Koolen De Vries Syndrome
    Vascular Surgery

    Avon - Richard E. Jacobs Health Center

    33100 Cleveland Clinic Boulevard, 
    Avon, OH 
     (1.6 miles away)
    Experience:
    42+ years
    Languages Spoken:
    English
    Offers Telehealth

    Gerald Bishop is a Vascular Surgeon practicing medicine in Avon, Ohio. He has been practicing medicine for over 42 years. Dr. Bishop is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Carotid Artery Disease, Arterial Embolism, Peripheral Artery Disease, and Arterial Insufficiency. Dr. Bishop is board certified in Alliance For Physician Certification And Advancement, 2010.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Elyria Family Health Center

    303 Chestnut Commons Drive, 
    Elyria, OH 
     (7.5 miles away)
    Experience:
    37+ years
    Languages Spoken:
    English

    John Kukay is a Pediatrics provider practicing medicine in Elyria, Ohio. He has been practicing medicine for over 37 years. Dr. Kukay is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Autism Spectrum Disorder, Developmental Dysphasia Familial, Delayed Growth, and DiGeorge Syndrome. Dr. Kukay is board certified in American Board Of Pediatrics, 2002.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Amherst Family Health Center

    5172 Leavitt Road, 
    Lorain, OH 
     (9.3 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English

    Nila Ambani is a Pediatrics provider practicing medicine in Lorain, Ohio. She has been practicing medicine for over 19 years. Dr. Ambani is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Delayed Growth, Chronic Idiopathic Constipation (CIC), Encopresis, Malnutrition, and Liver Transplant. Dr. Ambani is board certified in American Board Of Pediatrics, 2021.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology

    Amherst Family Health Center

    5172 Leavitt Road, 
    Lorain, OH 
     (9.3 miles away)
    Languages Spoken:
    English, Bengali, Hindi

    Sudeshna Mitra is a Pediatric Neurologist practicing medicine in Lorain, Ohio. Dr. Mitra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Stereotypic Movement Disorder, Spasmus Nutans, Tourette Syndrome, and Increased Head Circumference. Dr. Mitra is board certified in American Board Of Psychiatry And Neurology, 2009.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Amherst Family Health Center

    5172 Leavitt Road, 
    Lorain, OH 
     (9.3 miles away)
    Experience:
    15+ years
    Languages Spoken:
    English

    Clare O'hare is a Pediatric Cardiologist practicing medicine in Lorain, Ohio. She has been practicing medicine for over 15 years. Dr. O'hare is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Double Inlet Left Ventricle, Ventricular Septal Defects, Bicuspid Aortic Valve, and Patent Ductus Arteriosus. Dr. O'hare is board certified in American Board Of Pediatrics, 2022.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Amherst Family Health Center

    5172 Leavitt Road, 
    Lorain, OH 
     (9.3 miles away)
    Experience:
    24+ years
    Languages Spoken:
    English

    Amy Dimarino is a Pediatrics provider practicing medicine in Lorain, Ohio. She has been practicing medicine for over 24 years. Dr. Dimarino is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Ciliary Dyskinesia-Bronchiectasis, Primary Ciliary Dyskinesia (PCD), Asthma, and Asthma in Children. Dr. Dimarino is board certified in American Board Of Pediatrics, 2014.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Lorain Family Health And Surgery Center

    5700 Cooper Foster Park Road West, 
    Lorain, OH 
     (10.0 miles away)
    Experience:
    33+ years
    Languages Spoken:
    English, Marathi

    Vaishali Flask is a Pediatrics provider practicing medicine in Lorain, Ohio. She has been practicing medicine for over 33 years. Dr. Flask is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Delayed Growth, Autism Spectrum Disorder, Short Stature (Growth Disorders), and Wildervanck Syndrome. Dr. Flask is board certified in American Board Of Pediatrics, 2000.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Office

    125 E Broad St Ste 101, 
    Elyria,, OH 
     (6.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Heather Gornik is a Cardiologist practicing medicine in Elyria,, Ohio. Dr. Gornik is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Spontaneous Coronary Artery Dissection (SCAD), Peripheral Artery Disease, Carotid Artery Disease, Angioplasty, and Heart Bypass Surgery.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Westlake Medical Campus Building A

    850 Columbia Road, 
    Westlake, OH 
     (7.1 miles away)
    Experience:
    40+ years
    Languages Spoken:
    English
    Offers Telehealth

    Patricia Gannon is a primary care provider, practicing in Internal Medicine in Westlake, Ohio. She has been practicing medicine for over 40 years. Dr. Gannon is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Urinary Incontinence, Hypothyroidism, Vitamin D Deficiency, and Crohn's Disease. Dr. Gannon is board certified in American Board Of Internal Medicine, 1993.

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology
    303 Chestnut Commons Dr, 
    Elyria, OH 
     (7.5 miles away)
    Experience:
    24+ years
    Languages Spoken:
    English

    Matthew Janik is a Dermatologist practicing medicine in Elyria, Ohio. He has been practicing medicine for over 24 years. Dr. Janik is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 82 other conditions, according to our data. His clinical expertise encompasses Actinic Keratosis, Warts, Seborrheic Keratosis, and Graham-Little-Piccardi-Lassueur Syndrome. Dr. Janik is board certified in American Board Of Dermatology, 2010.

    Showing 1-13 of 13

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Avon, OH?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Avon, OH?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Avon, OH?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Avon, OH?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Avon, OH?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Avon, OH?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Avon, OH?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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