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    Last Updated: 10/30/2025

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    MediFind found 10 doctor with experience in Koolen De Vries Syndrome near Akron, OH. Of these, 9 are Experienced and 1 are Advanced.

    Location
    LocationClose
    10 providers found
      Jeffrey Bennett
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Akron General Health Center

      676 South Broadway Street, 
      Akron, OH 
       (0.9 miles away)
      Experience:
      20+ years
      Languages Spoken:
      English

      Jeffrey Bennett is a Pediatric Cardiologist in Akron, Ohio. Dr. Bennett has been practicing medicine for over 20 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cardiomyopathic Lentiginosis, Noonan Syndrome, Cardiofaciocutaneous Syndrome, and Multiple Pterygium Syndrome X Linked.

      Roy Kim
      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology
      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology

      Akron General Health Center

      676 South Broadway Street, 
      Akron, OH 
       (0.9 miles away)
      Experience:
      33+ years
      Languages Spoken:
      English

      Roy Kim is a Pediatric Endocrinologist in Akron, Ohio. Dr. Kim has been practicing medicine for over 33 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Short Stature (Growth Disorders), Familial Short Stature (FSS), Idiopathic Short Stature (ISS), and Hypogonadotropic Hypogonadism.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Senthilkumar Sankararaman
      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Akron General Health Center

      676 South Broadway Street, 
      Akron, OH 
       (0.9 miles away)
      Languages Spoken:
      English

      Senthilkumar Sankararaman is a Dietetics provider in Akron, Ohio. Mr. Sankararaman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Exocrine Pancreatic Insufficiency, Cyclic Vomiting Syndrome, Childhood Pancreatitis, Fecal Impaction, and Gastrostomy.

      Learn about our expert tiers
      Nathan Kraynack
      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Akron General Health Center

      676 South Broadway Street, 
      Akron, OH 
       (0.9 miles away)
      Experience:
      32+ years
      Languages Spoken:
      English

      Nathan Kraynack is a Pediatrics provider in Akron, Ohio. Dr. Kraynack has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pectus Excavatum, Ciliary Dyskinesia-Bronchiectasis, Kartagener Syndrome, and Primary Ciliary Dyskinesia (PCD).

      Mike Leonis
      Experienced in Koolen De Vries Syndrome
      Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatrics

      Akron General Health Center

      676 South Broadway Street, 
      Akron, OH 
       (0.9 miles away)
      Experience:
      38+ years
      Languages Spoken:
      English

      Mike Leonis is a Pediatrics provider in Akron, Ohio. Dr. Leonis has been practicing medicine for over 38 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Liver Failure, Chronic Idiopathic Constipation (CIC), Biliary Atresia, Delayed Growth, and Liver Transplant.

      Experienced in Koolen De Vries Syndrome
      Radiology
      Experienced in Koolen De Vries Syndrome
      Radiology
      1 Perkins Sq, 
      Akron, OH 
       (0.4 miles away)
      Languages Spoken:
      English

      Azam Eghbal is a Radiologist in Akron, Ohio. Dr. Eghbal is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Acro-Pectoro-Renal Field Defect, Parkes Weber Syndrome, Acropectoral Syndrome, and Klippel-Trenaunay Syndrome.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Cardiology
      1 Perkins Sq, 
      Akron, OH 
       (0.4 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Vanessa Hormaza is a Pediatric Cardiologist and a Cardiologist in Akron, Ohio. Dr. Hormaza is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Heart Murmurs, Aortopulmonary Window, Aorta-Pulmonary Artery Fistula, and Patent Ductus Arteriosus. Dr. Hormaza is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Wrh Physicians, Inc

      1900 23rd St, 
      Cuyahoga Falls, OH 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Steven Woolley is a Radiologist in Cuyahoga Falls, Ohio. Dr. Woolley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ascites, Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Diverticular Disease, and Vertigo. Dr. Woolley is currently accepting new patients.

      Gary Chen
      Experienced in Koolen De Vries Syndrome
      Radiology
      Experienced in Koolen De Vries Syndrome
      Radiology

      Clinic Medical Services Company, LLC

      762 S Cleveland Massillon Rd, 
      Fairlawn, OH 
       (6.8 miles away)
      Experience:
      28+ years
      Languages Spoken:
      English

      Gary Chen is a Radiologist in Fairlawn, Ohio. Dr. Chen has been practicing medicine for over 28 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pleurisy, Pleural Effusion, Visceromegaly, and Ascites.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      762 S Cleveland Massillon Rd, 
      Fairlawn, OH 
       (6.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mary Lesko is a Nurse Practitioner in Fairlawn, Ohio. Ms. Lesko is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Fractured Spine, Cervical Myelopathy, Muscle Spasms, and Sacroiliac Joint Disease. Ms. Lesko is currently accepting new patients.

      Showing 1-10 of 10

      Last Updated: 10/30/2025

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor near Akron, OH?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor near Akron, OH?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors near Akron, OH?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors near Akron, OH?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor near Akron, OH?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Akron, OH?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Akron, OH?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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