The 20 Best Koolen De Vries Syndrome Doctors Near Me in Virginia, US

Find the Top Koolen De Vries Syndrome Experts and Specialists

The 20 Best Koolen De Vries Syndrome Doctors in Virginia, US

Last Updated: 02/22/2026

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MediFind found 99 doctor with experience in Koolen De Vries Syndrome near Virginia, US. Of these, 99 are Experienced.

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99 providers found
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology | Pediatrics | Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology | Pediatrics | Gastroenterology

    University Of Virginia Physicians Group

    1204 W Main St, Fl 3, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Frank Dipaola is a Pediatric Gastroenterologist and a Pediatrics provider in Charlottesville, Virginia. Dr. Dipaola is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Biliary Atresia, Alagille Syndrome, Cholestasis, Bile Duct Obstruction, and Liver Transplant. Dr. Dipaola is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology

    Mayo Clinic-Rochester

    5716 Cleveland St Ste 200, 
    Virginia Beach, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Oksana Hamidi is an Endocrinologist in Virginia Beach, Virginia. Dr. Hamidi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Pheochromocytoma, Cushing's syndrome, Adrenal Cancer, Addison's Disease, and Hormone Replacement Therapy (HRT).

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    The Battle Building At UVA Children's Hospital

    1204 W Main St, 
    Charlottesville,, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Vergales is a Pediatric Cardiologist in Charlottesville,, Virginia. Dr. Vergales is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Ventricular Septal Defects, Patent Ductus Arteriosus, and Mitral Atresia.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology

    Ifrc LLC

    2722 Merrilee Dr, 
    Fairfax, VA 
    Languages Spoken:
    English

    Ian Mills is a Pediatric Radiologist in Fairfax, Virginia. Dr. Mills is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Idiopathic Short Stature (ISS), Familial Short Stature (FSS), Short Stature (Growth Disorders), and Gas Bloat Syndrome.

    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology

    UVA Health Pituitary Clinic

    415 Ray C Hunt Dr Fl Second Ste 2100, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Gregory Hong is an Endocrinologist in Charlottesville, Virginia. Dr. Hong is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Prolactinoma, Pituitary Tumor, Hypothalamic Tumor, and Acromegaly.

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology

    Pariser Dermatology Specialists LTD.

    6160 Kempsville Cir Ste 200A, 
    Norfolk, VA 
    Languages Spoken:
    English

    Robert Baer is a Dermatologist in Norfolk, Virginia. Dr. Baer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Actinic Keratosis, Warts, Seborrheic Keratosis, and Psoriasis.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Carilion Children's Pediatric Cardiology

    4348 Electric Rd, 
    Roanoke, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Asma Habib is a Pediatric Cardiologist in Roanoke, Virginia. Dr. Habib is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Tricuspid Atresia, Pulmonary Valves Agenesis, Pulmonary Atresia, and Transposition of the Great Arteries.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology

    UVA Health Pediatric Endocrinology

    1204 W Main St Fl 6, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Santhi Logel is a Pediatric Endocrinologist in Charlottesville, Virginia. Dr. Logel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Short Stature (Growth Disorders), Familial Short Stature (FSS), Idiopathic Short Stature (ISS), and Type 1 Diabetes (T1D).

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    UVA Health Pediatric Cardiology

    1204 W Main St Fl 6, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Peter Dean is a Pediatric Cardiologist in Charlottesville, Virginia. Dr. Dean is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Truncus Arteriosus, Ventricular Septal Defects, Coarctation of the Aorta, and Gastrostomy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Office

    7001 Forest Ave Ste 300, 
    Richmond, VA 
    Languages Spoken:
    English

    Camille Haisley is a Dermatologist in Richmond, Virginia. Dr. Haisley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Familial Atypical Multiple Mole Melanoma Syndrome, Giant Congenital Nevus, Giant Congenital Melanocytic Nevus, and Neurocutaneous Melanosis.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Pediatric Cardiology Associates

    8500 Executive Park Ave Ste 110, 
    Fairfax, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Annette Ansong is a Pediatric Cardiologist in Fairfax, Virginia. Dr. Ansong is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Interrupted Aortic Arch, Coronary Artery Fistula, Ventricular Septal Defects, and Congenital Heart Disease (CHD).

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Carilion Clinic Dermatology & Mohs Surgery

    1 Riverside Cir Ste 300, 
    Roanoke, VA 
    Languages Spoken:
    English

    Philip E Wakefield is a Dermatologist in Roanoke, Virginia. Dr. E Wakefield is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Actinic Keratosis, Basal Cell Skin Cancer, Extramammary Paget Disease, and Rosacea.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology

    Ifrc LLC

    2722 Merrilee Dr, 
    Fairfax, VA 
    Languages Spoken:
    English

    John Lee is a Pediatric Radiologist in Fairfax, Virginia. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Bronchogenic Cyst, Gallbladder Disease, Gas Bloat Syndrome, and Pleurisy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Pediatric & Adolescent Health Partners

    13821 Village Mill Drive, Ste A, 
    Midlothian, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Andrea Willis is a Pediatrics provider in Midlothian, Virginia. Dr. Willis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Van Der Woude Syndrome, Developmental Dysphasia Familial, Autism Spectrum Disorder, and Croup.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Inova Schar Cancer-Chesapeake Clinic (Dept Of Fairfax Hospital)

    8081 Innovation Park Dr Fl 5, 
    Fairfax, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Jennifer Desimone is a Dermatologist in Fairfax, Virginia. Dr. Desimone is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cutaneous T-Cell Lymphoma (CTCL), Mycosis Fungoides, T-Cell Lymphoma, and Lymphomatoid Papulosis.

    Experienced in Koolen De Vries Syndrome
    Palliative Medicine
    Experienced in Koolen De Vries Syndrome
    Palliative Medicine

    UVA Health University Medical Center

    1215 Lee St, 
    Charlottesville, VA 
    Languages Spoken:
    English

    Noreen Crain is a Palliative Medicine provider in Charlottesville, Virginia. Dr. Crain is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cri-Du-Chat Syndrome, Multiple Epiphyseal Dysplasia, Microcephaly Deafness Syndrome, and Early Infantile Epileptic Encephalopathy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    UVA Health General Gynecology

    1221 Hospital Dr Fl 3, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Arturo Saavedra is a Dermatologist in Charlottesville, Virginia. Dr. Saavedra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Graft Versus Host Disease (GvHD), Actinic Keratosis, Scalded Skin Syndrome, and Erythema Multiforme.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Children's National Medical Center

    7603 Forest Ave Ste 401, 
    Richmond, VA 
    Languages Spoken:
    English

    Mary Donofrio is a Pediatric Cardiologist in Richmond, Virginia. Dr. Donofrio is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Vascular Ring, Double Aortic Arch, Ebstein's Anomaly, and Septoplasty.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Office

    1204 W Main St Fl 4, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Frank Volberg is a Radiologist in Charlottesville, Virginia. Dr. Volberg is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Bronchogenic Cyst, Horseshoe Kidney, and Tracheobronchopathia Osteoplastica.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    UVA Health Pediatric Specialty Care Richmond

    5875 Bremo Rd Ste 500, 
    Richmond, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Douglas Allen is a Pediatric Cardiologist in Richmond, Virginia. Dr. Allen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Marfan Syndrome, and Arachnodactyly.

    Showing 1-20 of 99

    Last Updated: 02/22/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor in Virginia, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor in Virginia, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors in Virginia, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors in Virginia, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor in Virginia, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Virginia, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Virginia, US?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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