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    Last Updated: 10/30/2025

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    MediFind found 10 doctor with experience in Koolen De Vries Syndrome near Norfolk, VA. Of these, 10 are Experienced.

    Location
    LocationClose
    10 providers found
      Experienced in Koolen De Vries Syndrome
      Pediatrics | Neonatology
      Experienced in Koolen De Vries Syndrome
      Pediatrics | Neonatology
      601 Children's Lane, 
      Norfolk, VA 
       (1.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Bleznak is a Pediatrics specialist and a Neonatologist in Norfolk, Virginia. Dr. Bleznak is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Activated PI3K Delta Syndrome (APDS), Epilepsy in Children, and Biliary Atresia. Dr. Bleznak is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      601 Childrens Ln, 
      Norfolk, VA 
       (1.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Thomas Gallagher is an Otolaryngologist in Norfolk, Virginia. Dr. Gallagher is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tracheobronchomalacia, Laryngomalacia, Branchial Cleft Cyst, Myringotomy, and Endoscopy. Dr. Gallagher is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Koolen De Vries Syndrome
      Physician Assistant
      Experienced in Koolen De Vries Syndrome
      Physician Assistant
      850 Southampton Ave, 
      Norfolk, VA 
       (1.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Allyse Harris is a Physician Assistant in Norfolk, Virginia. Ms. Harris is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Koolen De Vries Syndrome and Neurofibromatosis Type 1 (NF1).

      Learn about our expert tiers
      Experienced in Koolen De Vries Syndrome
      Internal Medicine | Hospital Medicine
      Experienced in Koolen De Vries Syndrome
      Internal Medicine | Hospital Medicine

      Sentara Medical Group

      600 Gresham Dr, 
      Norfolk, VA 
       (1.3 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Vishal Vasavada is a Hospital Medicine provider in Norfolk, Virginia. Dr. Vasavada has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Chronic Inflammatory Response Syndrome (CIRS), Heart Failure with Preserved Ejection Fraction (HFpEF), End-Stage Renal Disease (ESRD), and Gallbladder Disease. Dr. Vasavada is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      811 Redgate Ave, 
      Norfolk, VA 
       (1.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Regina Wagner is a Nurse Practitioner in Norfolk, Virginia. Ms. Wagner is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are RASopathies and Koolen De Vries Syndrome. Ms. Wagner is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Childrens Specialty Group PLLC

      301 Riverview Ave, 
      Norfolk, VA 
       (1.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Katrina Lesher is a Physiatrist in Norfolk, Virginia. Dr. Lesher is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Contracture Deformity, and Developmental Expressive Language Disorder. Dr. Lesher is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Childrens Specialty Group PLLC

      301 Riverview Ave, 
      Norfolk, VA 
       (1.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Charles Dillard is a Physiatrist in Norfolk, Virginia. Dr. Dillard is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Foot Drop, Cerebral Palsy, Traumatic Brain Injury, and Contracture Deformity. Dr. Dillard is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Interventional Cardiology | Cardiology
      Experienced in Koolen De Vries Syndrome
      Interventional Cardiology | Cardiology

      Sentara Medical Group

      301 Riverview Ave, Suite 700, 
      Norfolk, VA 
       (1.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Gregory Suero-Abreu is an Interventional Cardiologist and a Cardiologist in Norfolk, Virginia. Dr. Suero-Abreu is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Endocarditis, Heart Attack, Angina, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement. Dr. Suero-Abreu is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatrics | Pediatric Pulmonology | Pulmonary Medicine
      Experienced in Koolen De Vries Syndrome
      Pediatrics | Pediatric Pulmonology | Pulmonary Medicine

      Childrens Specialty Group PLLC

      601 Childre's Ln, 
      Norfolk, VA 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Carlos Sendon is a Pediatrics specialist and a Pediatric Pulmonologist in Norfolk, Virginia. Dr. Sendon is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Obstructive Sleep Apnea, Cerebral Hypoxia, Kartagener Syndrome, Cystic Fibrosis, and Adenoidectomy. Dr. Sendon is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Family Medicine
      Experienced in Koolen De Vries Syndrome
      Family Medicine
      7447 Central Business Park Dr, Suite 104, 
      Norfolk, VA 
       (4.7 miles away)
      Languages Spoken:
      English

      Brian Doeren is a primary care provider, practicing in Family Medicine in Norfolk, Virginia. Dr. Doeren is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Malnutrition, and Urinary Tract Infection in Children.

      Showing 1-10 of 10

      Last Updated: 10/30/2025

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor near Norfolk, VA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor near Norfolk, VA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors near Norfolk, VA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors near Norfolk, VA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor near Norfolk, VA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Norfolk, VA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Norfolk, VA?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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