The 20 Best Koolen De Vries Syndrome Doctors Near Me in Richmond, VA

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 11 doctor with experience in Koolen De Vries Syndrome near Richmond, VA. Of these, 11 are Experienced.

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11 providers found
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Office

    7001 Forest Ave Ste 300, 
    Richmond, VA 
     (4.3 miles away)
    Languages Spoken:
    English

    Camille Haisley is a Dermatologist practicing medicine in Richmond, Virginia. Dr. Haisley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Familial Atypical Multiple Mole Melanoma Syndrome, Giant Congenital Melanocytic Nevus, Giant Congenital Nevus, and Neurocutaneous Melanosis.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    1250 E Marshall St, Box 980264, 
    Richmond, VA 
     (0.4 miles away)
    Languages Spoken:
    English

    Christa Tabacaru is a Pediatrics provider practicing medicine in Richmond, Virginia. Dr. Tabacaru is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Infantile Apnea, Apnea of Prematurity, Cerebral Hypoxia, and Subglottic Stenosis. Dr. Tabacaru is board certified in American Board Of Pediatrics.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Virginia Commonwealth University Health System Authority

    1300 E Marshall St, 
    Richmond, VA 
     (0.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    John Mccarty is an Oncologist practicing medicine in Richmond, Virginia. Dr. Mccarty is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Graft Versus Host Disease (GvHD), Multiple Myeloma, Acute Myeloid Leukemia (AML), Bone Marrow Transplant, and Colonoscopy.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    1001 E Leigh St, 
    Richmond, VA 
     (1.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Arturo Saavedra is a Dermatologist practicing medicine in Richmond, Virginia. Dr. Saavedra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Graft Versus Host Disease (GvHD), Actinic Keratosis, Scalded Skin Syndrome, and Erythema Multiforme.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    UVA Health Pediatric Specialty Care Richmond

    5875 Bremo Rd Ste 500, 
    Richmond, VA 
     (5.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Douglas Allen is a Pediatric Cardiologist practicing medicine in Richmond, Virginia. Dr. Allen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Ventricular Septal Defects, Marfan Syndrome, and Arachnodactyly.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Pediatric & Adolescent Health Partners

    13821 Village Mill Drive, Ste A, 
    Midlothian, VA 
     (12.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Patricia Mulreany is a Pediatrics provider practicing medicine in Midlothian, Virginia. Dr. Mulreany is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Autism Spectrum Disorder, Chronic Rhinosinusitis with Nasal Polyps (CRSwNP), Croup, and Herpangina.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Children's National Medical Center

    7603 Forest Ave Ste 401, 
    Richmond, VA 
     (8.2 miles away)
    Languages Spoken:
    English

    Mary Donofrio is a Pediatric Cardiologist practicing medicine in Richmond, Virginia. Dr. Donofrio is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Vascular Ring, Double Aortic Arch, Ebstein's Anomaly, and Septoplasty.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Pediatric & Adolescent Health Partners

    13821 Village Mill Drive, Ste A, 
    Midlothian, VA 
     (12.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Andrea Willis is a Pediatrics provider practicing medicine in Midlothian, Virginia. Dr. Willis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Van Der Woude Syndrome, Developmental Dysphasia Familial, Autism Spectrum Disorder, and Croup.

    Experienced in Koolen De Vries Syndrome
    Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Gastroenterology

    Office

    1630 Wilkes Ridge Pkwy Ste 202, 
    Richmond, VA 
     (12.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Krista Edelman is a Gastroenterologist practicing medicine in Richmond, Virginia. Dr. Edelman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses Irritable Bowel Syndrome (IBS), Familial Adenomatous Polyposis, Diarrhea, Gastrectomy, and Endoscopy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Pediatric & Adolescent Health Partners PC

    13821 Village Mill Dr Ste A, 
    Midlothian, VA 
     (12.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jonathan Mason is a Pediatrics provider practicing medicine in Midlothian, Virginia. Dr. Mason is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Autism Spectrum Disorder, Developmental Dysphasia Familial, Croup, and Delayed Growth.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Office

    10571 Telegraph Rd Ste 110, 
    Glen Allen, VA 
     (13.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Annemarie Tull is a Pediatrics provider practicing medicine in Glen Allen, Virginia. Dr. Tull is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Croup, Asthma in Children, Autism Spectrum Disorder, and Delayed Growth.

    Showing 1-11 of 11

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Richmond, VA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Richmond, VA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Richmond, VA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Richmond, VA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Richmond, VA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Richmond, VA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Richmond, VA?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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