The 20 Best Koolen De Vries Syndrome Doctors Near Me in Fairfax, VA

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 15 doctor with experience in Koolen De Vries Syndrome near Fairfax, VA. Of these, 15 are Experienced.

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15 providers found
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology

    Fairfax Radiological Consultants PLLC

    8260 Willow Oaks Corporate Dr, 750, 
    Fairfax, VA 
     (4.3 miles away)
    Languages Spoken:
    English

    Ian Mills is a Pediatric Radiologist and a Radiologist practicing medicine in Fairfax, Virginia. Dr. Mills is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 55 other conditions, according to our data. His clinical expertise encompasses Idiopathic Short Stature (ISS), Familial Short Stature (FSS), Short Stature (Growth Disorders), and Gas Bloat Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology

    Fairfax Radiological Consultants PLLC

    8260 Willow Oaks Corporate Dr, 750, 
    Fairfax, VA 
     (4.3 miles away)
    Languages Spoken:
    English

    John Lee is a Pediatric Radiologist and a Radiologist practicing medicine in Fairfax, Virginia. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 67 other conditions, according to our data. His clinical expertise encompasses Bronchogenic Cyst, Gallbladder Disease, Gas Bloat Syndrome, and Pleurisy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Inova Schar Cancer Institute

    8081 Innovation Park Dr, Level 5 - Chesapeake Clinic, 
    Fairfax, VA 
     (4.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Jennifer DeSimone is a specialty care physician board certified in dermatology. She joined Inova Medical Group with 5 years of clinical experience. She has a special interest in management of cutaneous lymphomas, skin cancer in organ transplant recipients and other complex skin cancers. Most recently Dr. DeSimone served as a Director of Cutaneous Lymphoma. Dr. DeSimone became interested in lymphomas of the skin because of the rarity of the disease and the need for greater understanding of its origin and development of more effective therapy. Her goal is to help educate her patients about skin cancer etiology, management and importantly, prevention. A native of Northern Virginia, Dr. DeSimone currently resides in Fairfax County with her husband and two children. In her spare time she enjoys cooking, entertaining, and trail running. Dr. Desimone is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Cutaneous T-Cell Lymphoma (CTCL), Mycosis Fungoides, T-Cell Lymphoma, and Lymphomatoid Papulosis.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (4.1 miles away)
    Languages Spoken:
    English

    Juan Noguera is a Neurologist practicing medicine in Fairfax, Virginia. Dr. Noguera is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Rasmussen Encephalitis, Seizures, Cortical Dysplasia, and Focal or Multifocal Malformations in Neuronal Migration.

    Experienced in Koolen De Vries Syndrome
    Neurology
    Experienced in Koolen De Vries Syndrome
    Neurology

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (4.1 miles away)
    Languages Spoken:
    English

    Murad Omery is a Neurologist practicing medicine in Fairfax, Virginia. Dr. Omery is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Aphantasia, Migraine, and Concussion.

    Experienced in Koolen De Vries Syndrome
    Pediatrics | Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatrics | Pediatric Pulmonology

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (4.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    James Clayton is a Pediatrics specialist and a Pediatric Pulmonologist practicing medicine in Fairfax, Virginia. Dr. Clayton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Bilateral Perisylvian Polymicrogyria, Hydranencephaly, Agyria Pachygyria Polymicrogyria, and VLDLR-Associated Cerebellar Hypoplasia.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology | Pediatrics

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (4.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dinesh Pillai is a Pediatrics specialist and a Pediatric Pulmonologist practicing medicine in Fairfax, Virginia. Dr. Pillai is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Asthma, Chronic Cough, Obesity in Children, and Laryngomalacia.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology

    Inova Children's Ophthalmology - Willow Oaks

    8280 Willow Oaks Corporate Dr, 300, 
    Fairfax, VA 
     (4.3 miles away)
    Languages Spoken:
    English

    Dr. Airaj Fasiuddin is a specialty care physician board certified in ophthalmology. She joined Inova in 2024 and has been practicing since 2007. Dr. Fasiuddin has a background in academic pediatric ophthalmology with special interests in uveitis, retinopathy of prematurity, cataract, amblyopia and strabismus. She enjoys connecting with children, ensuring they feel comfortable and safe during their eye exams. Her care philosophy includes educating families to create a partnership that ensures the best visual outcomes for their children. She believes in early detection, focused care plans and remaining accessible to her patients. She has over 15 years of experience in specialized, comprehensive eye care for children. Dr Fasiuddin joined Inova to create a new ophthalmology service line for the hospital. She is dedicated to a multi-disciplinary approach with Inova colleagues for complex conditions. Her vision includes expanding services for children in the community, ensuring that every child has access to specialized attention for their eye care needs. Dr. Fasiuddin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Amblyopia, X-Linked Infantile Nystagmus, and Coloboma of Iris.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Pediatric Cardiology Associates

    8500 Executive Park Ave Ste 110, 
    Fairfax, VA 
     (2.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Annette Ansong is a Pediatric Cardiologist practicing medicine in Fairfax, Virginia. Dr. Ansong is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Interrupted Aortic Arch, Coronary Artery Fistula, Ventricular Septal Defects, and Congenital Heart Disease (CHD).

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct Ste 300, 
    Fairfax, VA 
     (2.6 miles away)
    Languages Spoken:
    English

    Marie Bernadette is a Nurse Practitioner practicing medicine in Fairfax, Virginia. Ms. Bernadette is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Wolf-Hirschhorn Syndrome, Hydranencephaly, Bilateral Perisylvian Polymicrogyria, and Orofaciodigital Syndrome 6.

    Experienced in Koolen De Vries Syndrome
    Pediatrics | Physiatry
    Experienced in Koolen De Vries Syndrome
    Pediatrics | Physiatry

    Children's National Medical Center

    3023 Hamaker Ct, 500 Pm&r, 
    Fairfax, VA 
     (4.1 miles away)
    Languages Spoken:
    English

    Olga Morozova is a Physiatrist and a Pediatrics provider practicing medicine in Fairfax, Virginia. Dr. Morozova is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Orofaciodigital Syndrome 6.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (4.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Patti Decorte is a Nurse Practitioner practicing medicine in Fairfax, Virginia. Ms. Decorte is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Hydranencephaly, Lissencephaly 1, Orofaciodigital Syndrome 6, and Bilateral Perisylvian Polymicrogyria.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Pediatric Developmental Solutions

    8320 Old Courthouse Rd, 
    Vienna, VA 
     (6.2 miles away)
    Languages Spoken:
    English

    Amir Miodovnik is a Pediatrics provider practicing medicine in Vienna, Virginia. Dr. Miodovnik is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Autism Spectrum Disorder, Delayed Growth, Koolen De Vries Syndrome, and Microcephaly Deafness Syndrome.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Loudoun Medical Group PC

    46440 Benedict Dr Ste 107, 
    Sterling, VA 
     (12.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Martin is a primary care provider, practicing in Family Medicine in Sterling, Virginia. Dr. Martin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 44 other conditions, according to our data. His clinical expertise encompasses Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Cellulitis.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Neighborhood Health At East Glebe RD.

    2 E Glebe Rd, 
    Alexandria, VA 
     (13.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Pilar Tam is a Pediatrics provider practicing medicine in Alexandria, Virginia. Dr. Tam is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Obesity in Children, Vitamin D Deficiency, Delayed Growth, and Roseola.

    Showing 1-15 of 15

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Fairfax, VA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Fairfax, VA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Fairfax, VA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Fairfax, VA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Fairfax, VA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Fairfax, VA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Fairfax, VA?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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