The 20 Best Koolen De Vries Syndrome Doctors Near Me in chantilly, VA

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 23 doctor with experience in Koolen De Vries Syndrome near chantilly, VA. Of these, 23 are Experienced.

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23 providers found
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Inova Schar Cancer Institute

    8081 Innovation Park Dr, Level 5 - Chesapeake Clinic, 
    Fairfax, VA 
     (11.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jennifer Desimone is a Dermatologist practicing medicine in Fairfax, Virginia. Dr. Desimone is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Cutaneous T-Cell Lymphoma (CTCL), Mycosis Fungoides, T-Cell Lymphoma, and Squamous Cell Skin Carcinoma. Dr. Desimone is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Ashburn Pediatrics

    24805 Pinebrook Rd, 109, 
    Chantilly, VA 
     (5.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Maura Carroll is a Pediatrics provider practicing medicine in Chantilly, Virginia. Dr. Carroll is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Respiratory Syncytial Virus (RSV) Infection, Delayed Growth, Autism Spectrum Disorder, and Croup. Dr. Carroll is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Loudoun Medical Group PC

    46440 Benedict Dr Ste 107, 
    Sterling, VA 
     (9.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Martin is a primary care provider, practicing in Family Medicine in Sterling, Virginia. Dr. Martin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 44 other conditions, according to our data. His clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, Cellulitis, and Prostatectomy.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct Ste 300, 
    Fairfax, VA 
     (9.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Marie Bernadette-Diez is a Nurse Practitioner practicing medicine in Fairfax, Virginia. Bernadette-Diez, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Wolf-Hirschhorn Syndrome, Orofaciodigital Syndrome 6, Bilateral Perisylvian Polymicrogyria, and Agyria Pachygyria Polymicrogyria. Bernadette-Diez, NP is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English, Polish, Spanish

    Murad Omery is a Neurologist practicing medicine in Fairfax, Virginia. Dr. Omery is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Migraine, Concussion, and Tension Headache.

    Experienced in Koolen De Vries Syndrome
    Pediatrics | Physiatry
    Experienced in Koolen De Vries Syndrome
    Pediatrics | Physiatry
    Referral may be required

    Children's National Medical Center

    3023 Hamaker Ct, 500 Pm&r, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English, Russian
    Accepting New Patients

    Olga Morozova is a Pediatrics specialist and a Physiatrist practicing medicine in Fairfax, Virginia. Dr. Morozova is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Bilateral Perisylvian Polymicrogyria. Dr. Morozova is board certified in Pediatric Rehabilitation Medicine: American Board Of Physical Medicine And Rehabilitation, 2009, Physical Medicine And Rehabilitation: American Board Of Physical Medicine And Rehabilitation, 2007, and American Board Of Physical Medicine And Rehabilitation, 2009. Dr. Morozova is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatrics | Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatrics | Pediatric Pulmonology
    Referral may be required

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    James Clayton is a Pediatrics specialist and a Pediatric Pulmonologist practicing medicine in Fairfax, Virginia. Dr. Clayton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Lissencephaly 2, Lissencephaly 1, Hydranencephaly, and VLDLR-Associated Cerebellar Hypoplasia. Dr. Clayton is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology | Pediatrics
    Referral may be required

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dinesh Pillai is a Pediatric Pulmonologist and a Pediatrics provider practicing medicine in Fairfax, Virginia. Dr. Pillai is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Asthma, Chronic Cough, Obesity in Children, and Laryngomalacia. Dr. Pillai is board certified in Pediatrics: American Board Of Pediatrics, 2007 and Pediatric Pulmonology: American Board Of Pediatrics, 2010. Dr. Pillai is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Northern Virginia

    3023 Hamaker Court, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English, Japanese
    Accepting New Patients
    Offers Telehealth

    Thomas Chang is a Pediatrics provider practicing medicine in Fairfax, Virginia. Dr. Chang is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Wildervanck Syndrome, Early Infantile Epileptic Encephalopathy, Koolen De Vries Syndrome, and Microcephaly Deafness Syndrome. Dr. Chang is board certified in Pediatric Rehabilitation Medicine: American Board Of Physical Medicine And Rehabilitation, 2019 and Physical Medicine And Rehabilitation: American Board Of Physical Medicine And Rehabilitation, 2015. Dr. Chang is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Northern Virginia

    3023 Hamaker Court, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English, Russian
    Offers Telehealth

    Natasha Shur is a Pediatrics provider practicing medicine in Fairfax, Virginia. Dr. Shur is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Pyruvate Carboxylase Deficiency, Phenylketonuria (PKU), Ehlers-Danlos Syndrome (EDS), and Increased Head Circumference. Dr. Shur is board certified in American Board Of Medical Genetics And Genomics, 2007 and Clinical Genetics (MD): American Board Of Medical Genetics And Genomics, 2018.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Northern Virginia

    3023 Hamaker Court, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Charles Berul is a Pediatric Cardiologist practicing medicine in Fairfax, Virginia. Dr. Berul is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Ventricular Fibrillation, Long QT Syndrome, Cardiac Ablation, and Heart Transplant. Dr. Berul is board certified in Pediatric Cardiology: American Board Of Pediatrics, 1994. Dr. Berul is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Referral may be required

    Northern Virginia

    3023 Hamaker Court, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Parisa Kaviany is a Pediatric Pulmonologist practicing medicine in Fairfax, Virginia. Dr. Kaviany is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Asthma, Situs Inversus, Congenital Unilateral Pulmonary Hypoplasia, and Cystic Fibrosis. Dr. Kaviany is board certified in American Board Of Pediatrics, 2022. Dr. Kaviany is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Northern Virginia

    3023 Hamaker Court, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mary Donofrio is a Pediatric Cardiologist practicing medicine in Fairfax, Virginia. Dr. Donofrio is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Double Aortic Arch, Vascular Ring, Hypoplastic Left Heart Syndrome (HLHS), and Septoplasty. Dr. Donofrio is board certified in Pediatric Cardiology: American Board Of Pediatrics, 1996 and American Board Of Pediatrics - Pediatric Cardiology, 1996. Dr. Donofrio is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Inova Children's Ophthalmology - Willow Oaks

    8280 Willow Oaks Corporate Dr, 300, 
    Fairfax, VA 
     (11.4 miles away)
    Languages Spoken:
    English, Hindi, Spanish, Urdu
    Accepting New Patients

    Airaj Fasiuddin is an Ophthalmologist practicing medicine in Fairfax, Virginia. Dr. Fasiuddin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Amblyopia, X-Linked Infantile Nystagmus, and Coloboma of Iris. Dr. Fasiuddin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology
    Referral may be required

    Fairfax Radiology Center Of Lansdowne

    19455 Deerfield Ave, 102, 
    Lansdowne, VA 
     (13.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Ian Mills is a Pediatric Radiologist and a Radiologist practicing medicine in Lansdowne, Virginia. Dr. Mills is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 55 other conditions, according to our data. His clinical expertise encompasses Idiopathic Short Stature (ISS), Familial Short Stature (FSS), Short Stature (Growth Disorders), and Gas Bloat Syndrome. Dr. Mills is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology
    Referral may be required

    Fairfax Radiology Center Of Lansdowne

    19455 Deerfield Ave, 102, 
    Lansdowne, VA 
     (13.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    John Lee is a Pediatric Radiologist and a Radiologist practicing medicine in Lansdowne, Virginia. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 67 other conditions, according to our data. His clinical expertise encompasses Bronchogenic Cyst, Gallbladder Disease, Gas Bloat Syndrome, and Pleurisy. Dr. Lee is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Whole Child Pediatrics

    20925 Professional Plz, 
    Ashburn, VA 
     (11.0 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Stephanie Corn is a Pediatrics provider practicing medicine in Ashburn, Virginia. Dr. Corn is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Autism Spectrum Disorder, Respiratory Syncytial Virus (RSV) Infection, Colonic Atresia, and Diarrhea. Dr. Corn is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Whole Child Pediatrics

    20925 Professional Plz, 
    Ashburn, VA 
     (11.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lindsay Russow is a Pediatrics provider practicing medicine in Ashburn, Virginia. Dr. Russow is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Scarlet Fever, Obesity in Children, Autism Spectrum Disorder, and Croup. Dr. Russow is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English, Portuguese, Spanish
    Accepting New Patients

    Juan Noguera is a Neurologist practicing medicine in Fairfax, Virginia. Dr. Noguera is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Anti-NMDA Receptor Encephalitis, Rasmussen Encephalitis, Concussion, and Encephalitis. Dr. Noguera is board certified in American Board Of Psychiatry And Neurology. Dr. Noguera is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (11.0 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Patti Decorte is a Nurse Practitioner practicing medicine in Fairfax, Virginia. Decorte, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Hydranencephaly, Coach Syndrome, VLDLR-Associated Cerebellar Hypoplasia, and Agyria Pachygyria Polymicrogyria. Decorte, NP is currently accepting new patients.

    Showing 1-20 of 23

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near chantilly, VA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near chantilly, VA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near chantilly, VA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near chantilly, VA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near chantilly, VA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near chantilly, VA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near chantilly, VA?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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