The 20 Best Koolen De Vries Syndrome Doctors Near Me in sterling, VA

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 36 doctor with experience in Koolen De Vries Syndrome near sterling, VA. Of these, 35 are Experienced and 1 are Advanced.

Location
LocationClose
36 providers found
    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Loudoun Medical Group PC

    46440 Benedict Dr Ste 107, 
    Sterling, VA 
     (1.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Martin is a primary care provider, practicing in Family Medicine in Sterling, Virginia. Dr. Martin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 44 other conditions, according to our data. His clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, Cellulitis, and Prostatectomy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Whole Child Pediatrics

    20925 Professional Plz, 
    Ashburn, VA 
     (4.6 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Stephanie Corn is a Pediatrics provider practicing medicine in Ashburn, Virginia. Dr. Corn is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Autism Spectrum Disorder, Respiratory Syncytial Virus (RSV) Infection, Colonic Atresia, and Diarrhea. Dr. Corn is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Whole Child Pediatrics

    20925 Professional Plz, 
    Ashburn, VA 
     (4.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lindsay Russow is a Pediatrics provider practicing medicine in Ashburn, Virginia. Dr. Russow is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Scarlet Fever, Obesity in Children, Autism Spectrum Disorder, and Croup. Dr. Russow is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology
    Referral may be required

    Fairfax Radiology Center Of Lansdowne

    19455 Deerfield Ave, 102, 
    Lansdowne, VA 
     (5.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Ian Mills is a Pediatric Radiologist and a Radiologist practicing medicine in Lansdowne, Virginia. Dr. Mills is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 55 other conditions, according to our data. His clinical expertise encompasses Idiopathic Short Stature (ISS), Familial Short Stature (FSS), Short Stature (Growth Disorders), and Gas Bloat Syndrome. Dr. Mills is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology | Radiology
    Referral may be required

    Fairfax Radiology Center Of Lansdowne

    19455 Deerfield Ave, 102, 
    Lansdowne, VA 
     (5.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    John Lee is a Pediatric Radiologist and a Radiologist practicing medicine in Lansdowne, Virginia. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 67 other conditions, according to our data. His clinical expertise encompasses Bronchogenic Cyst, Gallbladder Disease, Gas Bloat Syndrome, and Pleurisy. Dr. Lee is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Inova Schar Cancer Institute

    8081 Innovation Park Dr, Level 5 - Chesapeake Clinic, 
    Fairfax, VA 
     (14.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jennifer Desimone is a Dermatologist practicing medicine in Fairfax, Virginia. Dr. Desimone is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Cutaneous T-Cell Lymphoma (CTCL), Mycosis Fungoides, T-Cell Lymphoma, and Squamous Cell Skin Carcinoma. Dr. Desimone is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Ashburn Pediatrics

    24805 Pinebrook Rd, 109, 
    Chantilly, VA 
     (7.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Maura Carroll is a Pediatrics provider practicing medicine in Chantilly, Virginia. Dr. Carroll is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Respiratory Syncytial Virus (RSV) Infection, Delayed Growth, Autism Spectrum Disorder, and Croup. Dr. Carroll is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    OrthoBethesda

    19735 Germantown Rd #120, 
    Germantown, MD 
     (11.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Brett Hampton is an Orthopedics provider practicing medicine in Germantown, Maryland. Dr. Hampton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Osteoarthritis, Spinal Stenosis, Tendinitis, Hip Replacement, and Knee Replacement. Dr. Hampton is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (13.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kenneth Rosenbaum is a Pediatrics provider practicing medicine in Rockville, Maryland. Dr. Rosenbaum is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Triple X Syndrome, Williams Syndrome, and Distal 18q Deletion Syndrome. Dr. Rosenbaum is board certified in Pediatrics: American Board Of Pediatrics, 1976, Clinical Cytogenetics: American Board Of Medical Genetics And Genomics, 1982, and Clinical Genetics (MD): American Board Of Medical Genetics And Genomics, 1982. Dr. Rosenbaum is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (13.4 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Laura Tochen is a Pediatric Neurologist practicing medicine in Rockville, Maryland. She has been practicing medicine for over 17 years. Dr. Tochen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses CACH Syndrome, Pelizaeus-Merzbacher Disease, Leukodystrophy, Metachromatic Leukodystrophy, and Deep Brain Stimulation. Dr. Tochen is board certified in American Board Of Psychiatry And Neurology, 2014. Dr. Tochen is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Cardiology | Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Cardiology | Pediatric Cardiology
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (13.4 miles away)
    Languages Spoken:
    English, Japanese
    Accepting New Patients
    Offers Telehealth

    Seiji Ito is a Cardiologist and a Pediatric Cardiologist practicing medicine in Rockville, Maryland. Dr. Ito is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Tricuspid Atresia, Ebstein's Anomaly, Pulmonary Atresia, Pulmonary Valves Agenesis, and Pacemaker Implantation. Dr. Ito is board certified in Internal Medicine: American Board Of Internal Medicine, 2011, Adult Congenital Heart Disease: American Board Of Internal Medicine, 2017, Pediatrics: American Board Of Pediatrics, 2011, and Pediatric Cardiology: American Board Of Pediatrics, 2014. Dr. Ito is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Transplant Surgery | Pediatric Nephrology
    Experienced in Koolen De Vries Syndrome
    Transplant Surgery | Pediatric Nephrology
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (13.4 miles away)
    Languages Spoken:
    English, Hebrew
    Offers Telehealth

    Melissa Meyers is a Transplant Surgeon and a Pediatric Nephrologist practicing medicine in Rockville, Maryland. Dr. Meyers is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Nephrotic Syndrome, Posterior Urethral Valves, Koolen De Vries Syndrome, Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, and Kidney Transplant. Dr. Meyers is board certified in Pediatric Nephrology: American Board Of Pediatrics, 2022 and Pediatrics: American Board Of Pediatrics, 2015.

    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (13.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Pamela Mudd is a Pediatric Otolaryngologist practicing medicine in Rockville, Maryland. Dr. Mudd is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Stridor, Micrognathia, Enlarged Adenoids, Gastrostomy, and Endoscopy. Dr. Mudd is board certified in Otolaryngology: American Board Of Otolaryngology, 2013. Dr. Mudd is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (13.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Alexandra Wood is a Pediatric Neurologist practicing medicine in Rockville, Maryland. Dr. Wood is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Partial Seizure, and Epilepsy. Dr. Wood is board certified in American Board Of Psychiatry And Neurology, 2023. Dr. Wood is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (13.4 miles away)
    Languages Spoken:
    English, Tamil
    Offers Telehealth

    Geetha Susai is a Pediatrics provider practicing medicine in Rockville, Maryland. Dr. Susai is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Cardiofaciocutaneous Syndrome, Autism Spectrum Disorder, RASopathies, and Developmental Dysphasia Familial. Dr. Susai is board certified in Diplomate Of The American Board Of Optometry: National Board Of Examiners In Optometry, 2011.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (13.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Becker is a Pediatric Cardiologist practicing medicine in Rockville, Maryland. Dr. Becker is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Sinus of Valsalva Aneurysm, Interrupted Aortic Arch, Patent Ductus Arteriosus, and Ventricular Septal Defects. Dr. Becker is board certified in Pediatric Cardiology: American Board Of Pediatrics, 1998, Pediatrics: American Board Of Pediatrics, 1991, and American Board Of Pediatrics. Dr. Becker is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
     (13.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Gerard Martin is a Pediatric Cardiologist practicing medicine in Rockville, Maryland. Dr. Martin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Ventricular Septal Defects, Pulmonary Atresia, and Heart Murmurs. Dr. Martin is board certified in Pediatric Cardiology: American Board Of Pediatrics, 1988, Adult Congenital Heart Disease: American Board Of Internal Medicine, 2015, and Pediatrics: American Board Of Pediatrics, 1986. Dr. Martin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (14.1 miles away)
    Languages Spoken:
    English, Polish, Spanish

    Murad Omery is a Neurologist practicing medicine in Fairfax, Virginia. Dr. Omery is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Migraine, Concussion, and Tension Headache.

    Experienced in Koolen De Vries Syndrome
    Pediatrics | Physiatry
    Experienced in Koolen De Vries Syndrome
    Pediatrics | Physiatry
    Referral may be required

    Children's National Medical Center

    3023 Hamaker Ct, 500 Pm&r, 
    Fairfax, VA 
     (14.1 miles away)
    Languages Spoken:
    English, Russian
    Accepting New Patients

    Olga Morozova is a Pediatrics specialist and a Physiatrist practicing medicine in Fairfax, Virginia. Dr. Morozova is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Bilateral Perisylvian Polymicrogyria. Dr. Morozova is board certified in Pediatric Rehabilitation Medicine: American Board Of Physical Medicine And Rehabilitation, 2009, Physical Medicine And Rehabilitation: American Board Of Physical Medicine And Rehabilitation, 2007, and American Board Of Physical Medicine And Rehabilitation, 2009. Dr. Morozova is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatrics | Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatrics | Pediatric Pulmonology
    Referral may be required

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
     (14.1 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    James Clayton is a Pediatrics specialist and a Pediatric Pulmonologist practicing medicine in Fairfax, Virginia. Dr. Clayton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Lissencephaly 2, Lissencephaly 1, Hydranencephaly, and VLDLR-Associated Cerebellar Hypoplasia. Dr. Clayton is currently accepting new patients.

    Showing 1-20 of 36

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near sterling, VA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near sterling, VA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near sterling, VA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near sterling, VA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near sterling, VA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near sterling, VA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near sterling, VA?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

    More Koolen De Vries Syndrome Doctors by city