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    Last Updated: 01/09/2026

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    MediFind found 6663 doctor with experience in RASopathies near The United States. Of these, 6148 are Experienced, 468 are Advanced, 40 are Distinguished and 7 are Elite.

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    6,663 providers found
      Bruce D. Gelb
      Elite in RASopathies
      Pediatric Cardiology | Pediatrics
      Elite in RASopathies
      Pediatric Cardiology | Pediatrics

      Icahn School Of Medicine At Mount Sinai

      1 Gustave L Levy Pl, 
      New York, NY 
      Languages Spoken:
      English

      Bruce Gelb is a Pediatric Cardiologist and a Pediatrics provider in New York, New York. Dr. Gelb is rated as an Elite provider by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Congenital Heart Disease (CHD), Cardiomyopathic Lentiginosis, Noonan Syndrome, and Heart Transplant.

      Elite in RASopathies
      Medical Genetics
      Elite in RASopathies
      Medical Genetics

      Nemours DuPont Hospital For Children

      1600 Rockland Road, Department Of General Pediatrics, 
      Wilmington, DE 
      Languages Spoken:
      English

      Karen Gripp is a Medical Genetics provider in Wilmington, Delaware. Dr. Gripp is rated as an Elite provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Costello Syndrome, RASopathies, Noonan Syndrome, and Cardiofaciocutaneous Syndrome.

      Elite in RASopathies
      Internal Medicine
      Elite in RASopathies
      Internal Medicine
      20 Watsessing Ave, 
      Bloomfield, NJ 
      Languages Spoken:
      English

      Marco Tartaglia is a primary care provider, practicing in Internal Medicine in Bloomfield, New Jersey. Dr. Tartaglia is rated as an Elite provider by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Noonan Syndrome, Cardiomyopathic Lentiginosis, and Rommen Mueller Sybert Syndrome.

      Are you looking for a specific type of RASopathies?

      Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

      Learn about our expert tiers
      Elite in RASopathies
      Holistic Medicine
      Elite in RASopathies
      Holistic Medicine
      317 N El Camino Real Ste 306, 
      Encinitas, CA 
      Languages Spoken:
      English

      Amy Roberts is a Holistic Medicine provider in Encinitas, California. Ms. Roberts is rated as an Elite provider by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies and Legius Syndrome.

      Elite in RASopathies
      Medical Genetics | Pediatrics
      Elite in RASopathies
      Medical Genetics | Pediatrics
      225 E Chicago Ave # 59, 
      Chicago, IL 
      Languages Spoken:
      English

      Carlos Prada is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Prada is rated as an Elite provider by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Smith-Kingsmore Syndrome, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1).

      Elite in RASopathies
      Pediatric Endocrinology
      Elite in RASopathies
      Pediatric Endocrinology

      Boston Children's Health Physicians Llp

      755 N Broadway, Suite 400, 
      Sleepy Hollow, NY 
      Languages Spoken:
      English

      Alicia Romano is a Pediatric Endocrinologist in Sleepy Hollow, New York. Dr. Romano is rated as an Elite provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Short Stature (Growth Disorders), and Idiopathic Short Stature (ISS).

      Elite in RASopathies
      Medical Genetics | Pediatrics
      Elite in RASopathies
      Medical Genetics | Pediatrics
      2825 50th St Rm 2284, Uc Davis Mind Institute, 
      Sacramento, CA 
      Languages Spoken:
      English

      Katherine Rauen is a Medical Genetics specialist and a Pediatrics provider in Sacramento, California. Dr. Rauen is rated as an Elite provider by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Costello Syndrome, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

      Walter P. Jacobsen
      Experienced in RASopathies
      Experienced in RASopathies

      Aurora Spine Surgery

      2901 W Kinnickinnic River Pkwy, Ste 102, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Offers Telehealth

      Walter Jacobsen is a Neurologist in Milwaukee, Wisconsin. Dr. Jacobsen is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Sciatica, Invertebral Disc Disease, Legius Syndrome, Vertebroplasty, and Bone Graft.

      Distinguished in RASopathies
      Distinguished in RASopathies

      Global Pathology Laboratory Services Inc

      16250 NW 59th Ave Ste 201, 
      Miami Lakes, FL 
      Languages Spoken:
      English

      Jacqueline Russo is a Dermatologist in Miami Lakes, Florida. Dr. Russo is rated as a Distinguished provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, Extramammary Paget Disease, and Actinic Keratosis.

      Advanced in RASopathies
      Advanced in RASopathies

      University Of Alabama Health Services Foundation, PC

      619 19th St S, 
      Birmingham, AL 
      Languages Spoken:
      English
      Accepting New Patients

      Winfield Fisher is a Neurosurgery provider in Birmingham, Alabama. Dr. Fisher is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Brain Aneurysm, Cerebellum Agenesis Hydrocephaly, Hydrocephalus, Awake Craniotomy, and Gastrostomy. Dr. Fisher is currently accepting new patients.

      Advanced in RASopathies
      Advanced in RASopathies

      University Medical Associates Of The Medical University Of South Carol

      171 Ashley Ave, 
      Charleston, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Theodore Mcrackan is an Otolaryngologist in Charleston, South Carolina. Dr. Mcrackan is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Hearing Loss, Cholesteatoma, Schwannoma, Mastoidectomy, and Myringotomy. Dr. Mcrackan is currently accepting new patients.

      Advanced in RASopathies
      Neurology | Palliative Medicine | Hematology Oncology
      Advanced in RASopathies
      Neurology | Palliative Medicine | Hematology Oncology

      Yale University

      35 Park St, 
      New Haven, CT 
      Languages Spoken:
      English
      Offers Telehealth

      Sylvia Kurz is a Neurologist and a Palliative Medicine provider in New Haven, Connecticut. Dr. Kurz is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Neurofibromatosis Type 2 (NF2), Astrocytoma, Oligodendroglioma, and Brain Tumor.

      Advanced in RASopathies
      Rheumatology
      Advanced in RASopathies
      Rheumatology

      Yale University

      20 York St, 
      New Haven, CT 
      Languages Spoken:
      English
      Offers Telehealth

      Oana Zaha is a Rheumatologist in New Haven, Connecticut. Dr. Zaha is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Cardiofaciocutaneous Syndrome, Rheumatoid Arthritis (RA), RASopathies, and Relapsing Polychondritis.

      Advanced in RASopathies
      Otolaryngology
      Advanced in RASopathies
      Otolaryngology

      Regents Of The University Of California

      200 W Arbor Dr, 
      San Diego, CA 
      Languages Spoken:
      English

      Rick Friedman is an Otolaryngologist in San Diego, California. Dr. Friedman is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Acoustic Neuroma, Schwannoma, Hearing Loss, and Occupational Hearing Loss.

      Advanced in RASopathies
      Otolaryngology
      Advanced in RASopathies
      Otolaryngology

      University Of Virginia Physicians Group

      415 Ray C Hunt Dr, 
      Charlottesville, VA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Bradley Kesser is an Otolaryngologist in Charlottesville, Virginia. Dr. Kesser is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Acoustic Neuroma, Otitis, Schwannoma, Hearing Loss, and Myringotomy. Dr. Kesser is currently accepting new patients.

      Advanced in RASopathies
      Family Medicine
      Advanced in RASopathies
      Family Medicine

      University Medical Associates Of The Medical University Of South Carol

      1600 Midtown Ave, 
      Mount Pleasant, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Eric Matheson is a primary care provider, practicing in Family Medicine in Mount Pleasant, South Carolina. Dr. Matheson is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Neurofibromatosis Type 2 (NF2), RASopathies, Insomnia, Endoscopy, and Cardiac Ablation. Dr. Matheson is currently accepting new patients.

      Advanced in RASopathies
      Medical Genetics | Pediatrics
      Advanced in RASopathies
      Medical Genetics | Pediatrics

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English, French
      Accepting New Patients

      Amy Calhoun is a Medical Genetics specialist and a Pediatrics provider in Iowa City, Iowa. Dr. Calhoun is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Wolf-Hirschhorn Syndrome, Otospondylomegaepiphyseal Dysplasia, MELAS Syndrome, and Costello Syndrome. Dr. Calhoun is currently accepting new patients.

      David M. Kaylie
      Experienced in RASopathies
      Otolaryngology
      Experienced in RASopathies
      Otolaryngology

      Duke Ambulatory Surgery Center

      2400 Pratt St, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Kaylie is an Otolaryngologist in Durham, North Carolina. Dr. Kaylie is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Acoustic Neuroma, Schwannoma, Hearing Loss, Mastoidectomy, and Myringotomy. Dr. Kaylie is currently accepting new patients.

      Glenn J. Lesser
      Experienced in RASopathies
      Oncology | Hematology
      Experienced in RASopathies
      Oncology | Hematology

      Wake Forest University Health Sciences

      Medical Ctr Blvd, 
      Winston Salem, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Glenn Lesser is an Oncologist and a Hematologist in Winston Salem, North Carolina. Dr. Lesser is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Brain Tumor, Glioblastoma, Astrocytoma, Glioma, and Bone Marrow Aspiration. Dr. Lesser is currently accepting new patients.

      Jacob C. Hartz
      Experienced in RASopathies
      Pediatrics | Pediatric Cardiology
      Experienced in RASopathies
      Pediatrics | Pediatric Cardiology

      Atrium Health Levine Children's HEARTest Yard Congenital Heart Center

      1001 Blythe Blvd., Suite 500, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jacob Hartz is a Pediatrics specialist and a Pediatric Cardiologist in Charlotte, North Carolina. Dr. Hartz is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Homozygous Familial Hypercholesterolemia (HoFH), Ventricular Septal Defects, Tetralogy of Fallot, Heart Murmurs, and Pacemaker Implantation. Dr. Hartz is currently accepting new patients.

      Showing 1-20 of 6,663

      Last Updated: 01/09/2026

      What is the definition of RASopathies?

      RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

      When should I see a RASopathies doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a RASopathies doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank RASopathies doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by RASopathies doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a RASopathies doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

      Why is it important to get a second opinion from a different RASopathies doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a RASopathies doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my RASopathies doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female RASopathies doctors in The United States?

      Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a RASopathies doctor that offers video calls?

      Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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