MediFind found 1136 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near The United States. Of these, 970 are Experienced, 138 are Advanced, 20 are Distinguished and 8 are Elite.
Mark Ball is a Plastic Surgeon and an Urologist in Bethesda, Maryland. Dr. Ball is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Renal Oncocytoma, Nephrectomy, and Prostatectomy.
Duke Eye Center
Miguel Materin is an Ophthalmologist in Durham, North Carolina. Dr. Materin is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, and Choroid Plexus Carcinoma. Dr. Materin is currently accepting new patients.
Osu Internal Medicine LLC
Russell Lonser is a Neurosurgery provider in Columbus, Ohio. Dr. Lonser is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Hemangioma, Awake Craniotomy, and Craniectomy. Dr. Lonser is currently accepting new patients.
University Of Virginia Physicians Group
Ashok Asthagiri is a Neurosurgery provider in Charlottesville, Virginia. Dr. Asthagiri is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Neurofibromatosis Type 2 (NF2), Von Hippel-Lindau (VHL) Syndrome, Neurofibromatosis, Awake Craniotomy, and Gamma Knife Radiosurgery.
Emily Chew is an Ophthalmologist in Bethesda, Maryland. Dr. Chew is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Geographic Atrophy, Diabetic Retinopathy, and Cataract Removal.
Kristin Huntoon is a Neurosurgery provider in Mesa, Arizona. Dr. Huntoon is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Hemangioma, Deep Brain Stimulation, and Vertebroplasty. Dr. Huntoon is currently accepting new patients.
Stanford Health Care
Steven Chang is a Neurosurgery specialist and a General Surgeon in Stanford, California. Dr. Chang is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Arteriovenous Malformation, Meningioma, Cerebral Arteriovenous Malformation, Awake Craniotomy, and Gamma Knife Radiosurgery.
Regents Of The University Of Michigan
Tobias Else is an Endocrinologist in Ann Arbor, Michigan. Dr. Else is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Adrenal Cancer, Adrenocortical Carcinoma, Adrenal Gland Adenoma, Neuroendocrine Tumor, and Thyroidectomy.
Prashant Chittiboina is a Neurosurgery provider in Bethesda, Maryland. Dr. Chittiboina is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Cushing's disease, Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Pituitary Tumor, and Laminectomy.
Duke Cancer Center Brain Tumor Clinic
Allan Friedman is a Neurosurgery provider in Durham, North Carolina. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Glioma, Astrocytoma, Glioblastoma, Awake Craniotomy, and Laminectomy. Dr. Friedman is currently accepting new patients.
UPMC Department Of Urology
Jodi Maranchie is an Urologist in Pittsburgh, Pennsylvania. Dr. Maranchie is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Bladder Cancer, Renal Cell Carcinoma (RCC), Muscle Invasive Bladder Cancer, Nephrectomy, and Cystectomy. Dr. Maranchie is currently accepting new patients.
The Kennedy Krieger Institute
Dr. Comi graduated from SUNY Buffalo School of Medicine and received her training in pediatrics at the Children's Hospital of Buffalo and her child neurology training at Johns Hopkins Medicine. Her clinical specialization is in the treatment of the neurological aspects of Sturge-Weber syndrome and other disorders related to capillary malformation. Dr. Comi's clinical research interests focus on improving the early diagnosis and treatment of brain involvement in Sturge-Weber syndrome in order to prevent ischemic brain injury in affected infants and young children, and on studies to understand what causes Sturge-Weber syndrome. Her laboratory research work deals with the pathogenesis of Sturge-Weber syndrome, recently shown to be caused by a somatic mutation, and on developing new drug targets, screening assays, models and therapeutic strategies for Sturge-Weber syndrome. Her lab group also works on developing better neuroprotective and neuroregenerative responses to brain injury resulting from impaired blood flow to the brain. Dr. Comi is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Stork Bite, Epilepsy in Children, and Endovascular Embolization.
Ophthalmology - Wills Eye Hospital
Carol Shields is an Oncologist and an Ophthalmologist in Philadelphia, Pennsylvania. Dr. Shields is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Retinoblastoma, Melanoma of the Eye, Uveal Melanoma, Vitrectomy, and Iridectomy. Dr. Shields is currently accepting new patients.
Rimas Lukas is a Hematologist Oncology specialist and a Neurologist in Chicago, Illinois. Dr. Lukas has been practicing medicine for over 24 years and is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Astrocytoma, Glioma, Glioblastoma, Brain Tumor, and Gastrostomy.
Eyeone Plc
Yevgeniy Shildkrot is an Ophthalmologist in Fishersville, Virginia. Dr. Shildkrot is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Retinal Detachment, Choroid Plexus Carcinoma, Melanoma of the Eye, Vitrectomy, and Cataract Removal. Dr. Shildkrot is currently accepting new patients.
State University Of Iowa
Herbert Boldt is an Ophthalmologist in Iowa City, Iowa. Dr. Boldt is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Melanoma of the Eye, Retinal Detachment, Choroid Plexus Carcinoma, Vitrectomy, and Cataract Removal. Dr. Boldt is currently accepting new patients.
Stanford Health Care
Benjamin Chung is an Urologist and a General Surgeon in Stanford, California. Dr. Chung is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Ureterocele, WT1-Related Wilms Tumor Syndromes, Chromophobe Renal Cell Carcinoma, Reconstructive Urology Surgery, and Nephrectomy.
Stanford Health Care
Lawrence Shuer is a Neurosurgery specialist and a General Surgeon in Stanford, California. Dr. Shuer is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Meningioma, Choroid Plexus Papilloma, Pallister-Hall Syndrome, Awake Craniotomy, and Thrombectomy.
Stanford Health Care
Prithvi Mruthyunjaya is an Ophthalmologist in Stanford, California. Dr. Mruthyunjaya is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Melanoma of the Eye, Uveal Melanoma, Retinal Detachment, Vitrectomy, and Trabeculectomy.
Bassett Health Center Cobleskill
. Dr. Novak is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Enlarged Prostate (BPH), Type 2 Diabetes (T2D), and Lymphangitis.
Last Updated: 01/09/2026






