The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors in The United States

Dr. Else’s primary appointment is with the Division of Metabolism, Endocrinology and Diabetes. He received his MD degree from the University of Hamburg, Germany. He pursued his clinical training at the University of Hamburg (Residency: Internal Medicine) and the University of Michigan (Residency: Internal Medicine, Fellowship: Endocrinology). His main research interests are the genetics of endocrine tumors. Dr. Else’s clinical practice focuses on the care for patients with benign and malignant endocrine tumors, particularly pheochromocytoma, adrenocortical tumors and neuroendocrine tumors as well as accompanying hormone excess syndromes (e.g Cushing syndrome, primary aldosteronism). Dr. Else has a particular interest in taking care of patients with hereditary syndromes that predispose to the development of endocrine tumors (e.g. Multiple Endocrine Neoplasia (MEN) type 1, MEN2A & MEN2B, Hereditary Paraganglioma Syndrome). He attends the Multidisciplinary Endocrine Oncology Clinic, where patients with tumors receive diagnostic procedures and treatment. In addition he is part of the Cancer Genetics Clinic, which evaluates patients for hereditary syndromes and also facilitates regular exams and surveillance for patients at risk for endocrine tumors. Dr. Else is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 105 other conditions, according to our data. His clinical expertise encompasses Adrenal Cancer, Adrenocortical Carcinoma, Adrenal Gland Adenoma, Neuroendocrine Tumor, and Thyroidectomy. Dr. Else is board certified in Internal Medicine and Endocrinology, Diabetes & Metabolism.

Russell Lonser is a Neurosurgery provider practicing medicine in Columbus, Ohio. Dr. Lonser is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Hemangioma, Awake Craniotomy, and Craniectomy.

Ashok Asthagiri is a Neurosurgery provider practicing medicine in Charlottesville, Virginia. Dr. Asthagiri is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 52 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 2 (NF2), Von Hippel-Lindau (VHL) Syndrome, Neurofibromatosis, Awake Craniotomy, and Gamma Knife Radiosurgery.

Emily Chew is an Ophthalmologist practicing medicine in Bethesda, Maryland. Dr. Chew is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Geographic Atrophy, Von Hippel-Lindau (VHL) Syndrome, and Cataract Removal.

Kristin Huntoon is a Neurosurgery provider practicing medicine in Columbus, Ohio. Dr. Huntoon is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Hemangioma, Deep Brain Stimulation, and Vertebroplasty.

Prashant Chittiboina is a Neurosurgery provider practicing medicine in Bethesda, Maryland. Dr. Chittiboina is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Cushing's disease, Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Pituitary Tumor, and Laminectomy.

John Novak is a primary care provider, practicing in Internal Medicine in Cobleskill, New York. Dr. Novak is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Enlarged Prostate (BPH), Type 2 Diabetes (T2D), and Lymphangitis.

Dr. Maranchie is a surgical oncologist specializing in urologic cancers of the urinary tract and male genitalia.  She completed urology residency at Harvard University in 1999, followed by a fellowship in Urologic Oncology at the National Cancer Institute.  Her practice is focused on the care of patients with cancer of the kidney, bladder and testis, employing minimally invasive approaches, nephron-sparing and nerve-sparing surgery and urinary tract reconstruction.  She has specialty expertise in familial or inherited cancer syndromes, offering targeted surveillance with organ-preserving surgery when indicated.LGBTQIA+ Affirming: This provider has completed training on how to create a safe, comfortable, and welcoming environment for LGBTQIA+ patients. This provider may or may not offer LGBTQIA+ specific medical or surgical care. Please ask when scheduling. Dr. Maranchie is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Bladder Cancer, Renal Cell Carcinoma (RCC), Muscle Invasive Bladder Cancer, Nephrectomy, and Cystectomy. Dr. Maranchie is board certified in American Board Of Urology. Dr. Maranchie is currently accepting new patients.

Dr. Comi graduated from SUNY Buffalo School of Medicine and received her training in pediatrics at the Children's Hospital of Buffalo and her child neurology training at Johns Hopkins Medicine. Her clinical specialization is in the treatment of the neurological aspects of Sturge-Weber syndrome and other disorders related to capillary malformation. Dr. Comi's clinical research interests focus on improving the early diagnosis and treatment of brain involvement in Sturge-Weber syndrome in order to prevent ischemic brain injury in affected infants and young children, and on studies to understand what causes Sturge-Weber syndrome. Her laboratory research work deals with the pathogenesis of Sturge-Weber syndrome, recently shown to be caused by a somatic mutation, and on developing new drug targets, screening assays, models and therapeutic strategies for Sturge-Weber syndrome. Her lab group also works on developing better neuroprotective and neuroregenerative responses to brain injury resulting from impaired blood flow to the brain. Dr. Comi is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Sturge-Weber Syndrome, Parkes Weber Syndrome, Stork Bite, Epilepsy in Children, and Endovascular Embolization. Dr. Comi is board certified in American Board Of Psychiatry And Neurology.

Carol Shields is an Oncologist and an Ophthalmologist practicing medicine in Philadelphia, Pennsylvania. Dr. Shields is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 38 other conditions, according to our data. Her clinical expertise encompasses Retinoblastoma, Melanoma of the Eye, Uveal Melanoma, Vitrectomy, and Iridectomy. Dr. Shields is board certified in Ophthalmology. Dr. Shields is currently accepting new patients.

Maya Galperin is a Radiologist and a Nuclear Medicine provider practicing medicine in Philadelphia, Pennsylvania. Dr. Galperin is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Emphysema, Pleurisy, Pleural Effusion, and Lung Nodules. Dr. Galperin is board certified in American Board Of Nuclear Medicine and American Board Of Radiology.

Shawna Boyle is a Urologist practicing medicine in Bristol, Tennessee. Dr. Boyle is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Chromophobe Renal Cell Carcinoma, Renal Cell Carcinoma (RCC), Wilms Tumor, Nephrectomy, and Reconstructive Urology Surgery. Dr. Boyle is board certified in American Board Of Urology.

Ashley Sumrall is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Sumrall is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Glioma, Gliosarcoma, Brain Tumor, and Astrocytoma. Dr. Sumrall is board certified in American Board Of Internal Medicine and American Board Of Internal Medicine, Medical Oncology. Dr. Sumrall is currently accepting new patients.

Judson Davies is a Urologist practicing medicine in Omaha, Nebraska. He has been practicing medicine for over 18 years. Dr. Davies is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Prostate Cancer, Familial Prostate Cancer, Muscle Invasive Bladder Cancer, Ureteroscopy, and Reconstructive Urology Surgery.

Charles Rosen is a Neurosurgery provider practicing medicine in Bloomington, Illinois. Dr. Rosen is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Ear Barotrauma, Stroke, Hydrocephalus, Hormone Replacement Therapy (HRT), and Thrombectomy. Dr. Rosen is board certified in American Board Of Neurological Surgery.

Pratap Challa is an Ophthalmologist practicing medicine in Durham, North Carolina. He has been practicing medicine for over 33 years. Dr. Challa is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Iridectomy, and Cataract Removal. Dr. Challa is board certified in American Board Of Ophthalmology, Ophthalmology.

Dr. Tsai was born in New York City and raised in rural Wisconsin. Since leaving the north woods, he has crisscrossed the country for his education and training, consistently earning recognition along the way for exceptional achievement. He graduated Summa Cum Laude from Harvard University as a member of Phi Beta Kappa. As a student at the prestigious School of Medicine at Washington University in Saint Louis, Dr. Tsai's education was fully supported by a merit-based George Wilson Distinguished Student Scholarship. He earned his M.D. and graduated Alpha Omega Alpha with a Merck Manual Award – an award given to three graduates for outstanding academic achievement. He completed his internship at the University of California, San Francisco, before being awarded the Bank of America Giannini Foundation Medical Research Fellowship and the Knights Templar Eye Foundation Pediatric Ophthalmology Research Grant to spend two years in the Ocular Oncology Laboratory at UCSF developing improved methods of genetic testing for patients with retinoblastoma. He then headed east for his residency in ophthalmology at the Wilmer Eye Institute at Johns Hopkins, where he first met his future colleagues, Drs. Joel Pearlman, Rob Equi, and Margaret Chang. He then returned to UCSF to complete his clinical fellowship in ocular oncology in 2006-7.Dr. Tsai has served on the academic faculty at the Wilmer Eye Institute and at UCSF. He has published papers and presented work at national meetings on retinoblastoma, uveal melanoma, and intraocular lymphoma. He has also served as a peer-reviewer for several journals, including Ophthalmology and Archives of Ophthalmology. He is a member of the American Academy of Ophthalmology, the American Medical Association, and the American Society of Retina Specialists. He is a past President, Program Chair, and Secretary of the Alta Ophthalmology Society in Sacramento. He is board certified by the American Board of Ophthalmology.Aside from his mission to provide compassionate care for his patients, Dr. Tsai enjoys eating and he tries to compensate for this by indoor rock climbing and chasing after his two young children. On Sundays in the fall, he shows his Wisconsin roots as a die-hard Green Bay Packers fan.We provide exceptional care and compassionate service to optimize the vision of patients with retinal disease. Dr. Tsai is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Melanoma of the Eye, Choroid Plexus Carcinoma, Retinal Detachment, and Metastatic Uveal Melanoma. Dr. Tsai is board certified in Ophthalmology. Dr. Tsai is currently accepting new patients.

I specialize in the diagnosis and treatment of patients with ocular tumors, including benign and malignant tumors of the eye. I have been working in this field for more than 20 years. Cancer of the eye is a rare disease, but once the tumor is found we begin the treatment process; the key is to be diagnosed and treated timely and correctly. My goal is to improve the prognosis of these rare eye diseases in terms of life, conservation of the eye and sight. There is a large team dedicated to ocular oncology at Duke Health. I work very closely with colleagues across Duke Eye Center and from Duke Cancer Center, specialists in children and adults, to develop the best diagnosis and treatment plans for patients suffering from cancer of the eye with the mission of providing optimal prognosis for life, eye and vision preservation. Dr. Materin is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, Choroid Plexus Carcinoma, and Vitrectomy.

Adam Metwalli is a General Surgeon and an Oncologist practicing medicine in Philadelphia, Pennsylvania. Dr. Metwalli is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Renal Oncocytoma, Von Hippel-Lindau (VHL) Syndrome, Nephrectomy, and Hormone Replacement Therapy (HRT). Dr. Metwalli is board certified in Urology. Dr. Metwalli is currently accepting new patients.

Ajay Niranjan, MD, specializes in neurosurgery. He practices at the University of Pittsburgh Physicians, Department of Neurological Surgery and is affiliated with UPMC Presbyterian.  Dr. Niranjan is associate professor of neurological surgery at the University of Pittsburgh School of Medicine. He received his medical degree from King George’s Medical College in Lucknow, India, where he also completed his neurosurgical residency. Dr. Niranjan then completed a fellowship in image-guided neurosurgery at the University of Pittsburgh.A leading expert on stereotactic radiosurgery, Dr. Niranjan has helped develop guidelines for stereotactic radiosurgery for trigeminal neuralgia, pituitary adenomas, arteriovenous malformations, acoustic neuromas, and brain metastases.Dr. Niranjan has co-authored more than 120 articles in journals such as Neurosurgery, Journal of Neurosurgery, and Journal of Neuro-oncology; contributed more than 55 book chapters; and edited two books on stereotactic radiosurgery. Dr. Niranjan is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Schwannoma, Brain Tumor, Metastatic Brain Tumor, Gamma Knife Radiosurgery, and Rhizotomy. Dr. Niranjan is currently accepting new patients.