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    Last Updated: 01/09/2026

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    MediFind found 1136 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near The United States. Of these, 970 are Experienced, 138 are Advanced, 20 are Distinguished and 8 are Elite.

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    1,136 providers found
      Elite in Von Hippel-Lindau (VHL) Syndrome
      Urology | Plastic Surgery
      Elite in Von Hippel-Lindau (VHL) Syndrome
      Urology | Plastic Surgery
      10 Center Drive Rm 2-5942, 
      Bethesda, MD 
      Languages Spoken:
      English

      Mark Ball is a Plastic Surgeon and an Urologist in Bethesda, Maryland. Dr. Ball is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Renal Oncocytoma, Nephrectomy, and Prostatectomy.

      Miguel A. Materin
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Duke Eye Center

      2351 Erwin Rd, 
      Durham, NC 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Miguel Materin is an Ophthalmologist in Durham, North Carolina. Dr. Materin is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, and Choroid Plexus Carcinoma. Dr. Materin is currently accepting new patients.

      Elite in Von Hippel-Lindau (VHL) Syndrome
      Elite in Von Hippel-Lindau (VHL) Syndrome

      Osu Internal Medicine LLC

      452 W 10th Ave, 
      Columbus, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Russell Lonser is a Neurosurgery provider in Columbus, Ohio. Dr. Lonser is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Hemangioma, Awake Craniotomy, and Craniectomy. Dr. Lonser is currently accepting new patients.

      Learn about our expert tiers
      Elite in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Elite in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery

      University Of Virginia Physicians Group

      1 Hospital Dr, Fl 3, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Offers Telehealth

      Ashok Asthagiri is a Neurosurgery provider in Charlottesville, Virginia. Dr. Asthagiri is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Neurofibromatosis Type 2 (NF2), Von Hippel-Lindau (VHL) Syndrome, Neurofibromatosis, Awake Craniotomy, and Gamma Knife Radiosurgery.

      Elite in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Elite in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      National Institutes Of Health Crc Rm 3-2531, 10 Center Drive, Msc 1204, 
      Bethesda, MD 
      Languages Spoken:
      English

      Emily Chew is an Ophthalmologist in Bethesda, Maryland. Dr. Chew is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Geographic Atrophy, Diabetic Retinopathy, and Cataract Removal.

      Elite in Von Hippel-Lindau (VHL) Syndrome
      Elite in Von Hippel-Lindau (VHL) Syndrome
      525 W Brown Rd, 
      Mesa, AZ 
      Languages Spoken:
      English
      Accepting New Patients

      Kristin Huntoon is a Neurosurgery provider in Mesa, Arizona. Dr. Huntoon is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Hemangioma, Deep Brain Stimulation, and Vertebroplasty. Dr. Huntoon is currently accepting new patients.

      Elite in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery | General Surgery
      Elite in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Steven Chang is a Neurosurgery specialist and a General Surgeon in Stanford, California. Dr. Chang is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Arteriovenous Malformation, Meningioma, Cerebral Arteriovenous Malformation, Awake Craniotomy, and Gamma Knife Radiosurgery.

      Elite in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      Elite in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Tobias Else is an Endocrinologist in Ann Arbor, Michigan. Dr. Else is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Adrenal Cancer, Adrenocortical Carcinoma, Adrenal Gland Adenoma, Neuroendocrine Tumor, and Thyroidectomy.

      Elite in Von Hippel-Lindau (VHL) Syndrome
      Elite in Von Hippel-Lindau (VHL) Syndrome
      10 Center Dr, Room 3d20, 
      Bethesda, MD 
      Languages Spoken:
      English

      Prashant Chittiboina is a Neurosurgery provider in Bethesda, Maryland. Dr. Chittiboina is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Cushing's disease, Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Pituitary Tumor, and Laminectomy.

      Allan H. Friedman
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Duke Cancer Center Brain Tumor Clinic

      20 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Allan Friedman is a Neurosurgery provider in Durham, North Carolina. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Glioma, Astrocytoma, Glioblastoma, Awake Craniotomy, and Laminectomy. Dr. Friedman is currently accepting new patients.

      Jodi K. Maranchie
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Distinguished in Von Hippel-Lindau (VHL) Syndrome

      UPMC Department Of Urology

      5200 Centre Avenue, Suite 209, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jodi Maranchie is an Urologist in Pittsburgh, Pennsylvania. Dr. Maranchie is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Bladder Cancer, Renal Cell Carcinoma (RCC), Muscle Invasive Bladder Cancer, Nephrectomy, and Cystectomy. Dr. Maranchie is currently accepting new patients.

      Anne M. Comi
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Pediatric Neurology
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Pediatric Neurology

      The Kennedy Krieger Institute

      801 North Broadway, Room 553, Room 553, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Comi graduated from SUNY Buffalo School of Medicine and received her training in pediatrics at the Children's Hospital of Buffalo and her child neurology training at Johns Hopkins Medicine. Her clinical specialization is in the treatment of the neurological aspects of Sturge-Weber syndrome and other disorders related to capillary malformation. Dr. Comi's clinical research interests focus on improving the early diagnosis and treatment of brain involvement in Sturge-Weber syndrome in order to prevent ischemic brain injury in affected infants and young children, and on studies to understand what causes Sturge-Weber syndrome. Her laboratory research work deals with the pathogenesis of Sturge-Weber syndrome, recently shown to be caused by a somatic mutation, and on developing new drug targets, screening assays, models and therapeutic strategies for Sturge-Weber syndrome. Her lab group also works on developing better neuroprotective and neuroregenerative responses to brain injury resulting from impaired blood flow to the brain. Dr. Comi is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Stork Bite, Epilepsy in Children, and Endovascular Embolization.

      Carol L. Shields
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology | Oncology
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology | Oncology

      Ophthalmology - Wills Eye Hospital

      840 Walnut Street, Floor 10, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Carol Shields is an Oncologist and an Ophthalmologist in Philadelphia, Pennsylvania. Dr. Shields is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Retinoblastoma, Melanoma of the Eye, Uveal Melanoma, Vitrectomy, and Iridectomy. Dr. Shields is currently accepting new patients.

      Rimas V. Lukas
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Neurology | Hematology
      Distinguished in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Neurology | Hematology
      675 N St Clair St Ste 20-100, Galter Pavilion, 
      Chicago, IL 
      Experience:
      24+ years
      Languages Spoken:
      English
      Offers Telehealth

      Rimas Lukas is a Hematologist Oncology specialist and a Neurologist in Chicago, Illinois. Dr. Lukas has been practicing medicine for over 24 years and is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Astrocytoma, Glioma, Glioblastoma, Brain Tumor, and Gastrostomy.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Advanced in Von Hippel-Lindau (VHL) Syndrome

      Eyeone Plc

      17 N Medical Park Dr, 
      Fishersville, VA 
      Languages Spoken:
      English, Russian, Spanish
      Accepting New Patients
      Offers Telehealth

      Yevgeniy Shildkrot is an Ophthalmologist in Fishersville, Virginia. Dr. Shildkrot is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Retinal Detachment, Choroid Plexus Carcinoma, Melanoma of the Eye, Vitrectomy, and Cataract Removal. Dr. Shildkrot is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Herbert Boldt is an Ophthalmologist in Iowa City, Iowa. Dr. Boldt is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Melanoma of the Eye, Retinal Detachment, Choroid Plexus Carcinoma, Vitrectomy, and Cataract Removal. Dr. Boldt is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Urology | General Surgery
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Urology | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Benjamin Chung is an Urologist and a General Surgeon in Stanford, California. Dr. Chung is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Ureterocele, WT1-Related Wilms Tumor Syndromes, Chromophobe Renal Cell Carcinoma, Reconstructive Urology Surgery, and Nephrectomy.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery | General Surgery
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Lawrence Shuer is a Neurosurgery specialist and a General Surgeon in Stanford, California. Dr. Shuer is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Meningioma, Choroid Plexus Papilloma, Pallister-Hall Syndrome, Awake Craniotomy, and Thrombectomy.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Advanced in Von Hippel-Lindau (VHL) Syndrome

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English

      Prithvi Mruthyunjaya is an Ophthalmologist in Stanford, California. Dr. Mruthyunjaya is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Melanoma of the Eye, Uveal Melanoma, Retinal Detachment, Vitrectomy, and Trabeculectomy.

      John Novak
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine

      Bassett Health Center Cobleskill

      136 Parkway Drive, 
      Cobleskill, NY 
      Languages Spoken:
      English
      Offers Telehealth

      . Dr. Novak is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Enlarged Prostate (BPH), Type 2 Diabetes (T2D), and Lymphangitis.

      Showing 1-20 of 1,136

      Last Updated: 01/09/2026

      What is the definition of Von Hippel-Lindau (VHL) Syndrome?

      Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

      When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in The United States?

      Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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