The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors in The United States

Dr. Else’s primary appointment is with the Division of Metabolism, Endocrinology and Diabetes. He received his MD degree from the University of Hamburg, Germany. He pursued his clinical training at the University of Hamburg (Residency: Internal Medicine) and the University of Michigan (Residency: Internal Medicine, Fellowship: Endocrinology). His main research interests are the genetics of endocrine tumors. Dr. Else’s clinical practice focuses on the care for patients with benign and malignant endocrine tumors, particularly pheochromocytoma, adrenocortical tumors and neuroendocrine tumors as well as accompanying hormone excess syndromes (e.g Cushing syndrome, primary aldosteronism). Dr. Else has a particular interest in taking care of patients with hereditary syndromes that predispose to the development of endocrine tumors (e.g. Multiple Endocrine Neoplasia (MEN) type 1, MEN2A & MEN2B, Hereditary Paraganglioma Syndrome). He attends the Multidisciplinary Endocrine Oncology Clinic, where patients with tumors receive diagnostic procedures and treatment. In addition he is part of the Cancer Genetics Clinic, which evaluates patients for hereditary syndromes and also facilitates regular exams and surveillance for patients at risk for endocrine tumors. Dr. Else is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 105 other conditions, according to our data. His clinical expertise encompasses Adrenal Cancer, Adrenocortical Carcinoma, Adrenal Gland Adenoma, Neuroendocrine Tumor, and Thyroidectomy. Dr. Else is board certified in Internal Medicine and Endocrinology, Diabetes & Metabolism.

Mark Ball is a Plastic Surgeon and a Urologist practicing medicine in Bethesda, Maryland. Dr. Ball is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Renal Oncocytoma, Nephrectomy, and Prostatectomy. Dr. Ball is board certified in American Board Of Urology.

Steven Chang is a Neurosurgery specialist and a General Surgeon practicing medicine in Palo Alto, California. Dr. Chang is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 90 other conditions, according to our data. His clinical expertise encompasses Meningioma, Arteriovenous Malformation, Trigeminal Neuralgia, Awake Craniotomy, and Gamma Knife Radiosurgery.

Russell Lonser is a Neurosurgery provider practicing medicine in Columbus, Ohio. Dr. Lonser is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Hemangioma, Awake Craniotomy, and Craniectomy.

Ashok Asthagiri is a Neurosurgery provider practicing medicine in Charlottesville, Virginia. Dr. Asthagiri is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 52 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 2 (NF2), Von Hippel-Lindau (VHL) Syndrome, Neurofibromatosis, Awake Craniotomy, and Gamma Knife Radiosurgery.

Emily Chew is an Ophthalmologist practicing medicine in Bethesda, Maryland. Dr. Chew is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Geographic Atrophy, Von Hippel-Lindau (VHL) Syndrome, and Cataract Removal.

Kristin Huntoon is a Neurosurgery provider practicing medicine in Columbus, Ohio. Dr. Huntoon is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Hemangioma, Deep Brain Stimulation, and Vertebroplasty.

Prashant Chittiboina is a Neurosurgery provider practicing medicine in Bethesda, Maryland. Dr. Chittiboina is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Cushing's disease, Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Pituitary Tumor, and Laminectomy.

. Dr. Novak is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Enlarged Prostate (BPH), Type 2 Diabetes (T2D), and Lymphangitis.

. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Mantle Cell Lymphoma (MCL), Lung Nodules, Vertigo, and CAPOS Syndrome.

Dr. Maranchie is a surgical oncologist specializing in urologic cancers of the urinary tract and male genitalia.  She completed urology residency at Harvard University in 1999, followed by a fellowship in Urologic Oncology at the National Cancer Institute.  Her practice is focused on the care of patients with cancer of the kidney, bladder and testis, employing minimally invasive approaches, nephron-sparing and nerve-sparing surgery and urinary tract reconstruction.  She has specialty expertise in familial or inherited cancer syndromes, offering targeted surveillance with organ-preserving surgery when indicated.LGBTQIA+ Affirming: This provider has completed training on how to create a safe, comfortable, and welcoming environment for LGBTQIA+ patients. This provider may or may not offer LGBTQIA+ specific medical or surgical care. Please ask when scheduling. Dr. Maranchie is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Bladder Cancer, Renal Cell Carcinoma (RCC), Muscle Invasive Bladder Cancer, Nephrectomy, and Cystectomy. Dr. Maranchie is board certified in American Board Of Urology. Dr. Maranchie is currently accepting new patients.

Dr. Comi graduated from SUNY Buffalo School of Medicine and received her training in pediatrics at the Children's Hospital of Buffalo and her child neurology training at Johns Hopkins Medicine. Her clinical specialization is in the treatment of the neurological aspects of Sturge-Weber syndrome and other disorders related to capillary malformation. Dr. Comi's clinical research interests focus on improving the early diagnosis and treatment of brain involvement in Sturge-Weber syndrome in order to prevent ischemic brain injury in affected infants and young children, and on studies to understand what causes Sturge-Weber syndrome. Her laboratory research work deals with the pathogenesis of Sturge-Weber syndrome, recently shown to be caused by a somatic mutation, and on developing new drug targets, screening assays, models and therapeutic strategies for Sturge-Weber syndrome. Her lab group also works on developing better neuroprotective and neuroregenerative responses to brain injury resulting from impaired blood flow to the brain. Dr. Comi is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Sturge-Weber Syndrome, Parkes Weber Syndrome, Stork Bite, Epilepsy in Children, and Endovascular Embolization. Dr. Comi is board certified in American Board Of Psychiatry And Neurology.

Carol Shields is an Oncologist and an Ophthalmologist practicing medicine in Philadelphia, Pennsylvania. Dr. Shields is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 38 other conditions, according to our data. Her clinical expertise encompasses Retinoblastoma, Melanoma of the Eye, Uveal Melanoma, Vitrectomy, and Iridectomy. Dr. Shields is board certified in Ophthalmology. Dr. Shields is currently accepting new patients.

. Dr. Galperin is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Emphysema, Pleurisy, Pleural Effusion, and Lung Nodules. Dr. Galperin is board certified in American Board Of Nuclear Medicine and American Board Of Radiology.

. Dr. Boyle is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Chromophobe Renal Cell Carcinoma, Renal Cell Carcinoma (RCC), Wilms Tumor, Nephrectomy, and Reconstructive Urology Surgery. Dr. Boyle is board certified in American Board Of Urology.

Ashley Sumrall is a Hematologist and an Oncologist practicing medicine in Charlotte, North Carolina. Dr. Sumrall is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Glioma, Gliosarcoma, Brain Tumor, and Astrocytoma. Dr. Sumrall is board certified in American Board Of Internal Medicine and American Board Of Internal Medicine, Medical Oncology. Dr. Sumrall is currently accepting new patients.

Judson Davies is a Urologist practicing medicine in Omaha, Nebraska. He has been practicing medicine for over 18 years. Dr. Davies is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Prostate Cancer, Familial Prostate Cancer, Muscle Invasive Bladder Cancer, Ureteroscopy, and Reconstructive Urology Surgery.

Charles Rosen is a Neurosurgery provider practicing medicine in Bloomington, Illinois. Dr. Rosen is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Ear Barotrauma, Stroke, Hydrocephalus, Hormone Replacement Therapy (HRT), and Thrombectomy. Dr. Rosen is board certified in American Board Of Neurological Surgery.

Dr. Malters became a physician with a single goal in mind: to provide the patients he treats with the opportunity for a better quality of life. His goal is to engage every patient so that they understand and participate in their medical care.A graduate of UCLA School of Medicine, Dr. Malters completed his residency at the prestigious Cedars-Sinai Medical Center. He is board-certified in internal medicine. Outside of the office, Dr. Malters enjoys traveling and spending time outdoors, where he hunts and hikes. Dr. Malters is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Urinary Tract Infection in Children, Urinary Tract Infection (UTI), Myasthenia Gravis, Hip Replacement, and Endoscopy. Dr. Malters is board certified in American Board Of Internal Medicine.

Pratap Challa is an Ophthalmologist practicing medicine in Durham, North Carolina. He has been practicing medicine for over 33 years. Dr. Challa is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Iridectomy, and Cataract Removal. Dr. Challa is board certified in American Board Of Ophthalmology, Ophthalmology.