The 20 Best Erdheim-Chester Disease Doctors in The United States
Find the Top Erdheim-Chester Disease Experts and Specialists
Mayo Clinic Hospital In Florida
Jason Young is a Radiologist practicing medicine in Jacksonville, Florida. Dr. Young is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Rosai-Dorfman Disease, Erdheim-Chester Disease, Interstitial Lung Disease, and Primary Lymphoma of the Brain.
MN - Cancer Hematology
Jithma Abeykoon is a Hematologist practicing medicine in Rochester, Minnesota. Dr. Abeykoon is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Waldenstrom Macroglobulinemia, Reticulohistiocytoma, Histiocytosis, Tissue Biopsy, and Bone Marrow Transplant.
Rockefeller Outpatient Pavilion
Eli Diamond is an Oncologist practicing medicine in New York, New York. Dr. Diamond is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Erdheim-Chester Disease, Glioblastoma, Astrocytoma, Brain Tumor, and Awake Craniotomy. Dr. Diamond is currently accepting new patients.
Mayo Clinic-Rochester
Gaurav Goyal is a Hematologist practicing medicine in Virginia Beach, Virginia. Dr. Goyal is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Histiocytosis, Reticulohistiocytoma, Non-Langerhans-Cell Histiocytosis, Bone Marrow Transplant, and Bone Marrow Aspiration.
MN - Cancer Hematology
Mithun Shah is a Hematologist practicing medicine in Rochester, Minnesota. Dr. Shah is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Histiocytosis, Reticulohistiocytoma, Acute Myeloid Leukemia (AML), Bone Marrow Transplant, and Bone Marrow Aspiration.
HealthPartners Frauenshuh Cancer Center
Gordon Ruan is an Oncologist practicing medicine in Saint Louis Park, Minnesota. Dr. Ruan is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Reticulohistiocytoma, Histiocytosis, Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, and Bone Marrow Aspiration.
Penn Radiology DCR
. Dr. Goldberg is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Visceromegaly, Lung Nodules, Emphysema, Chylous Ascites, and Prostatectomy. Dr. Goldberg is board certified in American Board Of Radiology.
Vanderbilt Medical Group- Teleneurology
. Dr. Berkman is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cerebelloparenchymal Disorder 3, Stroke, Erdheim-Chester Disease, and Dysarthria. Dr. Berkman is board certified in American Board Of Psychiatry & Neurology.
BHMA Cancer Care- Johnson City
. Dr. Rendo is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Light Chain Deposition Disease (LCDD), Non-Langerhans-Cell Histiocytosis, Hemophagocytic Lymphohistiocytosis, and Reticulohistiocytoma. Dr. Rendo is board certified in American Board Of Internal Medicine.
Texas Health Internal Medicine
Aitazaz Shah is a primary care provider, practicing in Internal Medicine in Denton, Texas. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, Vertebroplasty, and Bone Graft.
Northeast Georgia Physicians Group Dawsonville
Katia Adams is a primary care provider, practicing in Family Medicine in Dawsonville, Georgia. She has been practicing medicine for over 40 years. Dr. Adams is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypothyroidism. Dr. Adams is board certified in American Board Of Family Medicine, Family Medicine - 2002. Dr. Adams is currently accepting new patients.
Inova Neurology - Fairfax
"Dr. Rahul Davé is a specialty care physician board certified in neurology at Inova Health System. He joined Inova Neurology in 2017. He specializes in the treatment of multiple sclerosis, neuromyelitis optica (NMO), optic neuritis, transverse myelitis, neuro-sarcoid, neurologic complications of rheumatologic diseases, autoimmune encephalitis, PML, inflammatory neuropathies, myasthenia gravis, paraneoplastic disorders, vasculitis and neuro-infectious diseases (including Lyme). He is the Medical Director of the interdisciplinary Inova Multiple Sclerosis and Neuro-Immunology Center, which is recognized by the Consortium of Multiple Sclerosis Centers and is also a recipient of a ""Partner"" award by the National Multiple Sclerosis Society. He lectures broadly about multiple sclerosis and related diseases, teaches students, conducts research and serves as an expert consultant for the development of novel therapeutics. Current research interests include anti-MOG syndrome and novel therapeutics for neuro-inflammatory disorders. Prior to joining Inova, Dr. Davé worked at the National Institutes of Health (NIH), where he evaluated complicated multiple sclerosis patients and participated in the Undiagnosed Diseases Program, and conducted several clinical trials and laboratory research. He continues to maintain a Special Volunteer appointment at NIH where his research focus is Erdheim-Chester Disease. Dr. Davé became interested in neurology because family members struggled with neurologic diseases. His goal is to allow his patients to lead active lives by helping them understand and treat their diseases. Having lived all over the United States of America, Dr. Davé and his wife fell in love with the Washington, DC metro region. They currently reside in Bethesda, MD. In his spare time he likes to hike, cook and garden.". Dr. Dave is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Erdheim-Chester Disease, Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), and Transverse Myelitis.
UT MD Anderson Cancer Center
Filip Janku is a primary care provider, practicing in Oncologist in Cary, North Carolina. Dr. Janku is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses PIK3CA-Related Overgrowth Spectrum, Colorectal Cancer, Gastrointestinal Stromal Tumor, Lung Cancer, and Tissue Biopsy.
Clinical Cancer Center-Froedtert Hospital
Razelle Kurzrock is an Oncologist practicing medicine in Milwaukee, Wisconsin. Dr. Kurzrock is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses PIK3CA-Related Overgrowth Spectrum, Castleman Disease, Multicentric Castleman Disease (MCD), Lymphoid Hyperplasia, and Tissue Biopsy.
CHI Memorial Internal Medicine Associates - Hixson Pike
Mario Mariani is a primary care provider, practicing in Internal Medicine in Chattanooga, Tennessee. Dr. Mariani is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Macroamylasemia, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Mariani is currently accepting new patients.
MN - Neuro MS
William Tobin is a Neurologist practicing medicine in Rochester, Minnesota. Dr. Tobin is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Tumefactive Multiple Sclerosis, Cerebelloparenchymal Disorder 3, Multiple Sclerosis (MS), and Erdheim-Chester Disease.
Worcester Internal Medicine Inc.
Bogdan Nedelescu is a primary care provider, practicing in Internal Medicine in Worcester, Massachusetts. Dr. Nedelescu is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 78 other conditions, according to our data. His clinical expertise encompasses Dementia, Necrosis, Heart Failure, Endoscopy, and Hip Replacement.
Mayo Clinic-Rochester
Aldo Acosta is an Internal Medicine provider practicing medicine in Virginia Beach, Virginia. Dr. Acosta is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Histiocytosis, Reticulohistiocytoma, Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, and Bone Marrow Transplant.
Mayo Clinic-Rochester
Saurabh Zanwar is an Internal Medicine provider practicing medicine in Virginia Beach, Virginia. Dr. Zanwar is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Waldenstrom Macroglobulinemia, Histiocytosis, Reticulohistiocytoma, Bone Marrow Aspiration, and Bone Marrow Transplant.
Parimal J. Soni MD PC
Parimal Soni is a primary care provider, practicing in Internal Medicine in Chesapeake, Virginia. Dr. Soni is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Multiple Symmetric Lipomatosis, Fumarase Deficiency, Erdheim-Chester Disease, and Dihydropyrimidine Dehydrogenase Deficiency.
Last Updated: 04/28/2026






