The 20 Best Erdheim-Chester Disease Doctors in The United States
Find the Top Erdheim-Chester Disease Experts and Specialists
MN - Cancer Hematology
Jithma Abeykoon is a Hematologist practicing medicine in Rochester, Minnesota. Dr. Abeykoon is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Waldenstrom Macroglobulinemia, Reticulohistiocytoma, Histiocytosis, Tissue Biopsy, and Bone Marrow Transplant.
Mayo Clinic-Rochester
Gaurav Goyal is a Hematologist practicing medicine in Virginia Beach, Virginia. Dr. Goyal is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Histiocytosis, Reticulohistiocytoma, Non-Langerhans-Cell Histiocytosis, Bone Marrow Transplant, and Bone Marrow Aspiration.
MN - Cancer Hematology
Mithun Shah is a Hematologist practicing medicine in Rochester, Minnesota. Dr. Shah is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Histiocytosis, Reticulohistiocytoma, Acute Myeloid Leukemia (AML), Bone Marrow Transplant, and Bone Marrow Aspiration.
HealthPartners Frauenshuh Cancer Center
Gordon Ruan is an Oncologist practicing medicine in Saint Louis Park, Minnesota. Dr. Ruan is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Reticulohistiocytoma, Histiocytosis, Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, and Bone Marrow Aspiration.
Penn Radiology DCR
Ari Goldberg is a Radiologist practicing medicine in Phoenixville, Pennsylvania. Dr. Goldberg is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Visceromegaly, Lung Nodules, Emphysema, Chylous Ascites, and Prostatectomy. Dr. Goldberg is board certified in American Board Of Radiology.
Vanderbilt Medical Group- Teleneurology
Jillian Berkman is a Neurologist practicing medicine in Nashville, Tennessee. Dr. Berkman is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cerebelloparenchymal Disorder 3, Stroke, Erdheim-Chester Disease, and Dysarthria. Dr. Berkman is board certified in American Board Of Psychiatry & Neurology.
BHMA Cancer Care- Johnson City
Matthew Rendo is a Hematologist Oncology specialist and a Hematologist practicing medicine in Johnson City, Tennessee. Dr. Rendo is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Light Chain Deposition Disease (LCDD), Non-Langerhans-Cell Histiocytosis, Hemophagocytic Lymphohistiocytosis, and Reticulohistiocytoma. Dr. Rendo is board certified in American Board Of Internal Medicine.
Texas Health Internal Medicine
Aitazaz Shah is a primary care provider, practicing in Internal Medicine in Denton, Texas. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, Vertebroplasty, and Bone Graft.
Northeast Georgia Physicians Group Dawsonville
Katia Adams is a primary care provider, practicing in Family Medicine in Dawsonville, Georgia. She has been practicing medicine for over 40 years. Dr. Adams is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypothyroidism. Dr. Adams is board certified in American Board Of Family Medicine, Family Medicine - 2002. Dr. Adams is currently accepting new patients.
Clinical Cancer Center-Froedtert Hospital
Razelle Kurzrock is an Oncologist practicing medicine in Milwaukee, Wisconsin. Dr. Kurzrock is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses PIK3CA-Related Overgrowth Spectrum, Castleman Disease, Multicentric Castleman Disease (MCD), Lymphoid Hyperplasia, and Tissue Biopsy.
MN - Neuro MS
William Tobin is a Neurologist practicing medicine in Rochester, Minnesota. Dr. Tobin is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Tumefactive Multiple Sclerosis, Cerebelloparenchymal Disorder 3, Multiple Sclerosis (MS), and Erdheim-Chester Disease.
Worcester Internal Medicine Inc.
Bogdan Nedelescu is a primary care provider, practicing in Internal Medicine in Worcester, Massachusetts. Dr. Nedelescu is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 78 other conditions, according to our data. His clinical expertise encompasses Dementia, Necrosis, Heart Failure, Endoscopy, and Hip Replacement.
Mayo Clinic-Rochester
Aldo Acosta is an Internal Medicine provider practicing medicine in Virginia Beach, Virginia. Dr. Acosta is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Histiocytosis, Reticulohistiocytoma, Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, and Bone Marrow Transplant.
Mayo Clinic-Rochester
Saurabh Zanwar is an Internal Medicine provider practicing medicine in Virginia Beach, Virginia. Dr. Zanwar is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Waldenstrom Macroglobulinemia, Histiocytosis, Reticulohistiocytoma, Bone Marrow Aspiration, and Bone Marrow Transplant.
Parimal J. Soni MD PC
Parimal Soni is a primary care provider, practicing in Internal Medicine in Chesapeake, Virginia. Dr. Soni is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Multiple Symmetric Lipomatosis, Fumarase Deficiency, Erdheim-Chester Disease, and Dihydropyrimidine Dehydrogenase Deficiency.
Adam S. Nally D.O. P.C.
Adam Nally is a primary care provider, practicing in Family Medicine in Surprise, Arizona. Dr. Nally is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Cytochrome C Oxidase Deficiency, Mitochondrial Complex V Deficiency, Type B Insulin Resistance Syndrome, and Abdominal Obesity Metabolic Syndrome.
Dr. Mark G. Brooks
Mark Brooks is a primary care provider, practicing in Internal Medicine in Ocoee, Florida. Dr. Brooks is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 74 other conditions, according to our data. His clinical expertise encompasses Type 2 Diabetes (T2D), Heart Murmurs, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Brooks is board certified in American Board Of Internal Medicine. Dr. Brooks is currently accepting new patients.
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Gary Ulaner is a Radiologist practicing medicine in Irvine, California. Dr. Ulaner is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Rosai-Dorfman Disease, Erdheim-Chester Disease, Neuroendocrine Tumor, and Undifferentiated Pleomorphic Sarcoma.
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Frank Malensek is a primary care provider, practicing in Internal Medicine in Birmingham, Alabama. Dr. Malensek is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Multiple Symmetric Lipomatosis, Fumarase Deficiency, Erdheim-Chester Disease, and Gracile Syndrome. Dr. Malensek is currently accepting new patients.
Forefront Dermatology SC
Raymond Luna is a primary care provider, practicing in Family Medicine in Dayton, Ohio. Dr. Luna is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Cirrhosis, Xanthoma, Familial Combined Hyperlipidemia, and Familial Hypertension.
Last Updated: 04/28/2026



