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    Last Updated: 01/09/2026

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    MediFind found 844 doctor with experience in Erdheim-Chester Disease near The United States. Of these, 716 are Experienced, 113 are Advanced, 10 are Distinguished and 5 are Elite.

    Location
    LocationClose
    844 providers found
      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease

      Memorial Neurology Group

      160 E 53rd St, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Eli Diamond is a Neurologist in New York, New York. Dr. Diamond is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Glioblastoma, Astrocytoma, Brain Tumor, and Awake Craniotomy.

      Jithma P. Abeykoon
      Elite in Erdheim-Chester Disease
      Hematology | Oncology | Hematology Oncology
      Elite in Erdheim-Chester Disease
      Hematology | Oncology | Hematology Oncology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Jithma Abeykoon is a Hematologist and an Oncologist in Rochester, Minnesota. Dr. Abeykoon is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Waldenstrom Macroglobulinemia, Histiocytosis, Reticulohistiocytoma, Tissue Biopsy, and Bone Marrow Transplant. Dr. Abeykoon is currently accepting new patients.

      Elite in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology
      Elite in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology

      University Of Alabama Health Services Foundation, PC

      619 19th St S, 
      Birmingham, AL 
      Languages Spoken:
      English
      Accepting New Patients

      Gaurav Goyal is a Hematologist Oncology specialist and a Hematologist in Birmingham, Alabama. Dr. Goyal is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Histiocytosis, Reticulohistiocytoma, Non-Langerhans-Cell Histiocytosis, Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Goyal is currently accepting new patients.

      Learn about our expert tiers
      Elite in Erdheim-Chester Disease
      Hematology | Oncology | Hematology Oncology
      Elite in Erdheim-Chester Disease
      Hematology | Oncology | Hematology Oncology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mithun Shah is a Hematologist and an Oncologist in Rochester, Minnesota. Dr. Shah is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Histiocytosis, Reticulohistiocytoma, Acute Myeloid Leukemia (AML), Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Shah is currently accepting new patients.

      Elite in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology
      Elite in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology

      Park Nicollet Clinic

      15800 95th Ave N, 
      Maple Grove, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Gordon Ruan is a Hematologist Oncology specialist and a Hematologist in Maple Grove, Minnesota. Dr. Ruan is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Reticulohistiocytoma, Histiocytosis, Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, and Bone Marrow Aspiration.

      Filip P. Janku
      Distinguished in Erdheim-Chester Disease
      Internal Medicine
      Distinguished in Erdheim-Chester Disease
      Internal Medicine
      1515 Holcombe Blvd, 
      Houston, TX 
      Languages Spoken:
      English

      Filip Janku is a primary care provider, practicing in Internal Medicine in Houston, Texas. Dr. Janku is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Gastrointestinal Stromal Tumor, Colorectal Cancer, Lung Cancer, Cholangiocarcinoma (Bile Duct Cancer), and Tissue Biopsy.

      Razelle Kurzrock
      Distinguished in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology
      Distinguished in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology
      9200 W Wisconsin Ave, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Razelle Kurzrock is a Hematologist Oncology specialist and a Hematologist in Milwaukee, Wisconsin. Dr. Kurzrock is rated as a Distinguished provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Castleman Disease, Multicentric Castleman Disease (MCD), Lymphoid Hyperplasia, Adult Soft Tissue Sarcoma, and Tissue Biopsy. Dr. Kurzrock is currently accepting new patients.

      Sunil Dhir
      Advanced in Erdheim-Chester Disease
      Internal Medicine
      Advanced in Erdheim-Chester Disease
      Internal Medicine
      5900 Coyle Ave., Suite A, 
      Carmichael, CA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sunil Dhir is a primary care provider, practicing in Internal Medicine in Carmichael, California. Dr. Dhir is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Lymphangitis, Industrial Bronchitis, Asthma, and Asthma in Children. Dr. Dhir is currently accepting new patients.

      Kamran Ayub
      Advanced in Erdheim-Chester Disease
      Family Medicine
      Advanced in Erdheim-Chester Disease
      Family Medicine

      GI Partners Of Illinois, LLC

      9921 Southwest Hwy, 
      Oak Lawn, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Kamran Ayub is a primary care provider, practicing in Family Medicine in Oak Lawn, Illinois. Dr. Ayub is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Bile Duct Obstruction, Gallstones, Watermelon Stomach, Endoscopy, and Colonoscopy.

      Experienced in Erdheim-Chester Disease
      Family Medicine
      Experienced in Erdheim-Chester Disease
      Family Medicine

      University Primary Care Practices Inc

      590 N Leavitt Rd, 
      Amherst, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Timothy Wagner is a primary care provider, practicing in Family Medicine in Amherst, Ohio. Dr. Wagner is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Type 2 Diabetes (T2D), Hypothyroidism, Hypertension, and Familial Hypertension. Dr. Wagner is currently accepting new patients.

      Experienced in Erdheim-Chester Disease
      Internal Medicine
      Experienced in Erdheim-Chester Disease
      Internal Medicine

      Texas Health Physicians Group

      Denton, TX 
      Languages Spoken:
      English
      Offers Telehealth

      Aitazaz Shah is a primary care provider, practicing in Internal Medicine in Denton, Texas. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Vertebroplasty, and Bone Graft.

      Experienced in Erdheim-Chester Disease
      Family Medicine
      Experienced in Erdheim-Chester Disease
      Family Medicine

      Sentara Medical Group

      3920 Bridge Rd, Suite 207, 
      Suffolk, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sarai Morrison is a primary care provider, practicing in Family Medicine in Suffolk, Virginia. Dr. Morrison is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Infant Hyperglycemia. Dr. Morrison is currently accepting new patients.

      Experienced in Erdheim-Chester Disease
      Internal Medicine
      Experienced in Erdheim-Chester Disease
      Internal Medicine

      Wk Bossier Internal Medicine

      2400 Hospital Dr, Suite 420, 
      Bossier City, LA 
      Languages Spoken:
      English
      Accepting New Patients

      Attila Balogh is a primary care provider, practicing in Internal Medicine in Bossier City, Louisiana. Dr. Balogh is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are High Cholesterol, Familial Combined Hyperlipidemia, Xanthoma, Gastrostomy, and Endoscopy. Dr. Balogh is currently accepting new patients.

      Experienced in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology

      Maine Center For Cancer Medicine And Blood Disorders PA

      2 Independence Dr, 
      Kennebunk, ME 
      Languages Spoken:
      English

      Julio Hajdenberg is a Hematologist Oncology specialist and a Hematologist in Kennebunk, Maine. Dr. Hajdenberg is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Reticulohistiocytoma, Histiocytosis, Factor 5 Deficiency, Prostate Cancer, and Bone Marrow Aspiration.

      Experienced in Erdheim-Chester Disease
      Hematology | Transplant Surgery | Hematology Oncology
      Experienced in Erdheim-Chester Disease
      Hematology | Transplant Surgery | Hematology Oncology

      Memorial Hematology Lymphoma Group

      530 E 74th St, 
      New York, NY 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Hamza Hashmi is a Hematologist and a Transplant Surgeon in New York, New York. Dr. Hashmi is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Relapsed Refractory Multiple Myeloma (RRMM), Multiple Myeloma, Smoldering Multiple Myeloma, Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Hashmi is currently accepting new patients.

      Experienced in Erdheim-Chester Disease
      Family Medicine
      Experienced in Erdheim-Chester Disease
      Family Medicine

      The Regents Of The University Of California

      1260 15th St, Suite 1501, 
      Santa Monica, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Lawrence Dardick is a primary care provider, practicing in Family Medicine in Santa Monica, California. Dr. Dardick is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Attenuated Familial Adenomatous Polyposis.

      Experienced in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology

      Practice Associates Medical Group

      97 W Pkwy, 2nd Floor, 
      Pompton Plains, NJ 
      Languages Spoken:
      English, Hindi, Kannada
      Accepting New Patients
      Offers Telehealth

      Maithili Rao is a Hematologist Oncology specialist and a Hematologist in Pompton Plains, New Jersey. Dr. Rao is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Iron Deficiency Anemia, Childhood Iron Deficiency Anemia, Myelodysplastic Syndrome (MDS), Thrombocytopenia, and Bone Marrow Aspiration. Dr. Rao is currently accepting new patients.

      Experienced in Erdheim-Chester Disease
      Family Medicine
      Experienced in Erdheim-Chester Disease
      Family Medicine

      Arnett Clinic, LLC

      2600 Ferry St, 
      Lafayette, IN 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Joel Mulder is a primary care provider, practicing in Family Medicine in Lafayette, Indiana. Dr. Mulder is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Congenital Sucrase-Isomaltase Deficiency, Glucose Phosphate Isomerase Deficiency, Glucose-Galactose Malabsorption Deficiency, and Bronchitis. Dr. Mulder is currently accepting new patients.

      Experienced in Erdheim-Chester Disease
      Hematology Oncology
      Experienced in Erdheim-Chester Disease
      Hematology Oncology
      2160 S First Ave, (luh - North Ent., Rm 7604), 
      Maywood, IL 
      Languages Spoken:
      English

      Sucha Nand is a Hematologist Oncology provider in Maywood, Illinois. Dr. Nand is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Thalassemia, Non-Hodgkin Lymphoma, B-Cell Lymphoma, Hemangioma Thrombocytopenia Syndrome, and Bone Marrow Aspiration.

      Experienced in Erdheim-Chester Disease
      Family Medicine
      Experienced in Erdheim-Chester Disease
      Family Medicine

      Arnett Clinic, LLC

      810 S 6th St, 
      Monticello, IN 
      Languages Spoken:
      English, Croatian, Filipino, Romanian, Spanish
      Accepting New Patients

      Julie Becker is a primary care provider, practicing in Family Medicine in Monticello, Indiana. Dr. Becker is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Diabetic Hyperglycemic Hyperosmolar Syndrome. Dr. Becker is currently accepting new patients.

      Showing 1-20 of 844

      Last Updated: 01/09/2026

      What is the definition of Erdheim-Chester Disease?

      Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

      When should I see an Erdheim-Chester Disease doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Erdheim-Chester Disease doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Erdheim-Chester Disease doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Erdheim-Chester Disease doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Erdheim-Chester Disease doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

      Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Erdheim-Chester Disease doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Erdheim-Chester Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Erdheim-Chester Disease doctors in The United States?

      Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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