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    Last Updated: 02/22/2026

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    MediFind found 7204 doctor with experience in Ehlers-Danlos Syndrome (EDS). Of these, 6681 are Experienced, 400 are Advanced, 82 are Distinguished and 33 are Elite.

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    7,204 providers found
      Elite in Ehlers-Danlos Syndrome (EDS)

      Dr. Bernadette Riley
      Family Medicine
      Elite in Ehlers-Danlos Syndrome (EDS)

      Dr. Bernadette Riley
      Family Medicine

      Office

      600 Northern Blvd, 
      Greenvale, NY 
      516-686-1300
      Languages Spoken:
      English
      See accepted insurances
      Offers Telehealth

      Bernadette Riley is a primary care provider, practicing in Family Medicine in Greenvale, New York. Dr. Riley is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Hypermobile Joints, and Prerenal Azotemia.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Fransiska Malfait
      Elite in Ehlers-Danlos Syndrome (EDS)

      Fransiska Malfait
      Gent, VLG, BE 

      Fransiska Malfait practices in Gent, Belgium. Malfait is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Ehlers-Danlos Syndrome (EDS), Cutis Laxa, Hypermobile Joints, and Osteogenesis Imperfecta.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Tomoki Kosho
      Elite in Ehlers-Danlos Syndrome (EDS)

      Tomoki Kosho
      Matsumoto, JP 

      Tomoki Kosho practices in Matsumoto, Japan. Mr. Kosho is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Miller Syndrome, Hypermobile Joints, and Spinal Fusion.

      Learn about our expert tiers
      Elite in Ehlers-Danlos Syndrome (EDS)

      Delfien Syx
      Elite in Ehlers-Danlos Syndrome (EDS)

      Delfien Syx
      Gent, VLG, BE 

      Delfien Syx practices in Gent, Belgium. Syx is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Ehlers-Danlos Syndrome (EDS), Hypotonia, Hypermobile Joints, and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

      Elite in Ehlers-Danlos Syndrome (EDS)

      Dr. Peter H. Byers
      Medical Genetics
      Elite in Ehlers-Danlos Syndrome (EDS)

      Dr. Peter H. Byers
      Medical Genetics

      The Association Of University Physicians

      1959 Ne Pacific St, 
      Seattle, WA 
      206-598-4333
      Languages Spoken:
      English, Hindi, Spanish
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Peter Byers is a Medical Genetics provider in Seattle, Washington. Dr. Byers is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Osteogenesis Imperfecta, and Hypotonia. Dr. Byers is currently accepting new patients.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Dr. Clair A. Francomano
      Medical Genetics
      Elite in Ehlers-Danlos Syndrome (EDS)

      Dr. Clair A. Francomano
      Medical Genetics

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      888-484-3258
      Languages Spoken:
      English
      See accepted insurances
      Accepting New Patients
      Offers Telehealth

      Clair Francomano is a Medical Genetics provider in Indianapolis, Indiana. Dr. Francomano is rated as an Elite provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Brittle Cornea Syndrome, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Spinal Fusion. Dr. Francomano is currently accepting new patients.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Xavier P. Jeunemaitre
      Elite in Ehlers-Danlos Syndrome (EDS)

      Xavier P. Jeunemaitre
      Paris, FR 

      Xavier Jeunemaitre practices in Paris, France. Mr. Jeunemaitre is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Fibromuscular Dysplasia (FMD), Ehlers-Danlos Syndrome (EDS), Pseudohypoaldosteronism Type 1, and Angioplasty.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Marco Ritelli
      Elite in Ehlers-Danlos Syndrome (EDS)

      Marco Ritelli
      Brescia, IT 

      Marco Ritelli practices in Brescia, Italy. Mr. Ritelli is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Hypermobile Joints, and Arterial Tortuosity Syndrome.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Marina Colombi
      Elite in Ehlers-Danlos Syndrome (EDS)

      Marina Colombi
      Brescia, IT 

      Marina Colombi practices in Brescia, Italy. Ms. Colombi is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Hypermobile Joints, and Arterial Tortuosity Syndrome.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Asma Fikree
      Elite in Ehlers-Danlos Syndrome (EDS)

      Asma Fikree
      London, ENG, GB 

      Asma Fikree practices in London, United Kingdom. Ms. Fikree is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Hypermobile Joints, Indigestion, and Swallowing Difficulty.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Lies Rombaut
      Elite in Ehlers-Danlos Syndrome (EDS)

      Lies Rombaut
      Gent, VLG, BE 

      Lies Rombaut practices in Gent, Belgium. Rombaut is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Ehlers-Danlos Syndrome (EDS), Hypermobile Joints, Marfan Syndrome, and Chronic Pain.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Qasim Aziz
      Elite in Ehlers-Danlos Syndrome (EDS)

      Qasim Aziz
      26 Ashfield Street, 
      London, ENG, GB 

      Qasim Aziz practices in London, United Kingdom. Mr. Aziz is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Acute Pain, Hypermobile Joints, and Irritable Bowel Syndrome (IBS).

      Elite in Ehlers-Danlos Syndrome (EDS)

      Shuji Mizumoto
      Elite in Ehlers-Danlos Syndrome (EDS)

      Shuji Mizumoto
      Nagoya, JP 

      Shuji Mizumoto practices in Nagoya, Japan. Mr. Mizumoto is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Spondyloepimetaphyseal Dysplasia Joint Laxity, and Spondylocostal Dysostosis.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Sofie Symoens
      Elite in Ehlers-Danlos Syndrome (EDS)

      Sofie Symoens
      Gent, VLG, BE 

      Sofie Symoens practices in Gent, Belgium. Ms. Symoens is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Osteogenesis Imperfecta, Cutis Laxa, and Autosomal Recessive Cutis Laxa Type 1.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Inge De Wandele
      Elite in Ehlers-Danlos Syndrome (EDS)

      Inge De Wandele
      Gent, VLG, BE 

      Inge De Wandele practices in Gent, Belgium. Ms. De Wandele is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Hypermobile Joints, Arterial Tortuosity Syndrome, and Familial Dysautonomia.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Salma Adham
      Elite in Ehlers-Danlos Syndrome (EDS)

      Salma Adham
      Montpellier, FR 

      Salma Adham practices in Montpellier, France. Ms. Adham is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Ehlers-Danlos Syndrome (EDS), Pseudoxanthoma Elasticum, and Meige Disease.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Marco Castori
      Elite in Ehlers-Danlos Syndrome (EDS)

      Marco Castori
      Foggia, IT 

      Marco Castori practices in Foggia, Italy. Mr. Castori is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are De Barsy Syndrome, Ehlers-Danlos Syndrome (EDS), Hypermobile Joints, Autosomal Recessive Cutis Laxa Type 1, and Osteotomy.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Cecilia Giunta
      Elite in Ehlers-Danlos Syndrome (EDS)

      Cecilia Giunta
      Zurich, ZH, CH 

      Cecilia Giunta practices in Zurich, Switzerland. Ms. Giunta is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Keratosis Follicularis Spinulosa Decalvans, Hyperelastic Skin, and Osteogenesis Imperfecta.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Karelle Benistan
      Elite in Ehlers-Danlos Syndrome (EDS)

      Karelle Benistan
      Garches, FR 

      Karelle Benistan practices in Garches, France. Benistan is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Their top areas of expertise are Ehlers-Danlos Syndrome (EDS), Hypermobile Joints, Vascular Ehlers-Danlos Syndrome (VEDS), and Hypotonia.

      Elite in Ehlers-Danlos Syndrome (EDS)

      Claudia Celletti
      Elite in Ehlers-Danlos Syndrome (EDS)

      Claudia Celletti
      Rome, IT 

      Claudia Celletti practices in Rome, Italy. Ms. Celletti is rated as an Elite expert by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Hypermobile Joints, De Barsy Syndrome, and Spasticity.

      Showing 1-20 of 7,204

      Last Updated: 02/22/2026

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Ehlers-Danlos Syndrome (EDS) doctor near me?

      You can find an Ehlers-Danlos Syndrome (EDS) doctor in any of the 10 largest U.S. cities by clicking below:

      Ehlers-Danlos Syndrome (EDS) doctor near New York, NY
      Ehlers-Danlos Syndrome (EDS) doctor near Los Angeles, CA
      Ehlers-Danlos Syndrome (EDS) doctor near Chicago, IL
      Ehlers-Danlos Syndrome (EDS) doctor near Houston, TX
      Ehlers-Danlos Syndrome (EDS) doctor near Phoenix, AZ
      Ehlers-Danlos Syndrome (EDS) doctor near Philadelphia, PA
      Ehlers-Danlos Syndrome (EDS) doctor near Atlanta, GA
      Ehlers-Danlos Syndrome (EDS) doctor near Boston, MA
      Ehlers-Danlos Syndrome (EDS) doctor near Dallas, TX
      Ehlers-Danlos Syndrome (EDS) doctor near San Jose, CA

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near me?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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