The 20 Best Dysferlinopathy Doctors Near Me

Find the Top Dysferlinopathy Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 2239 doctor with experience in Dysferlinopathy. Of these, 1916 are Experienced, 259 are Advanced, 58 are Distinguished and 6 are Elite.

Location
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2,239 providers found
    Elite in Dysferlinopathy
    Elite in Dysferlinopathy
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Laura Rufibach practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Rufibach is rated as an Elite expert by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Miyoshi Myopathy, Dysferlinopathy, Limb-Girdle Muscular Dystrophy, and Cramp-Fasciculation Syndrome.

    Elite in Dysferlinopathy
    Elite in Dysferlinopathy
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Simone Spuler practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Spuler is rated as an Elite expert by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Dysferlinopathy, Limb-Girdle Muscular Dystrophy, Miyoshi Myopathy, and Myotonic Dystrophy Type 2.

    Elite in Dysferlinopathy
    Elite in Dysferlinopathy
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Anna Mayhew practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Mayhew is rated as an Elite expert by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Dysferlinopathy, Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, and Spinal Muscular Atrophy (SMA).

    Learn about our expert tiers
    Elite in Dysferlinopathy
    Elite in Dysferlinopathy
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Heather Hilsden practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Hilsden is rated as an Elite expert by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Dysferlinopathy, Limb-Girdle Muscular Dystrophy, and Miyoshi Myopathy.

    Elite in Dysferlinopathy
    Elite in Dysferlinopathy
    Referral may be required

    Nationwide Children's Hospital

    700 Childrens Dr, 
    Columbus, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Jerry Mendell is a Neurologist practicing medicine in Columbus, Ohio. Dr. Mendell is rated as an Elite provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Limb-Girdle Muscular Dystrophy, and Spinal Muscular Atrophy (SMA). Dr. Mendell is currently accepting new patients.

    Elite in Dysferlinopathy
    Elite in Dysferlinopathy
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Ursula Moore practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Moore is rated as an Elite expert by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Dysferlinopathy, Miyoshi Myopathy, Limb-Girdle Muscular Dystrophy, and Thymidine Kinase 2 Deficiency (TK2d).

    Distinguished in Dysferlinopathy
    Neurology
    Distinguished in Dysferlinopathy
    Neurology
    Referral may be required

    Fletcher Allen Health Care Inc

    1 S Prospect St, 
    Burlington, VT 
    Languages Spoken:
    English, Hindi
    Offers Telehealth

    Rup Tandan is a Neurologist practicing medicine in Burlington, Vermont. Dr. Tandan is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Dysferlinopathy, Primary Lateral Sclerosis, and Thymectomy. Dr. Tandan is board certified in American Board Of Psychiatry And Neurology - Neurology.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Trinity Clinic

    700 Davey Crockett Drive, Suite 500, Suite 500, 
    New Boston, TX 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Phillip Pace is a primary care provider, practicing in Family Medicine in New Boston, Texas. Dr. Pace is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Sciatica, Chronic Pain, Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Pace is board certified in American Board Of Family Medicine. Dr. Pace is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    SpecialtyCare, Inc.

    Brentwood, TN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Alyson Hommel is a Neurologist practicing medicine in Brentwood, Tennessee. Dr. Hommel is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Peripheral Neuropathy, Dysferlinopathy, and Facioscapulohumeral Muscular Dystrophy (FSHD). Dr. Hommel is board certified in The American Board Of Psychiatry And Neurology - Neurology, Neurology, American Board Of Electrodiagnostic Medicine - Electrodiagnostic Medicine, and The American Board Of Psychiatry And Neurology - Neuromuscular Medicine. Dr. Hommel is currently accepting new patients.

    Advanced in Dysferlinopathy
    Pediatrics | Internal Medicine
    Advanced in Dysferlinopathy
    Pediatrics | Internal Medicine
    Referral may be required

    Primary Care WAM

    501 West 14th Wam Street, Primary Care Suite 2nd Flr, 
    Wilmington, DE 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Justin Eldridge is a primary care provider, practicing in Pediatrics and Internal Medicine in Wilmington, Delaware. Dr. Eldridge is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Dysferlinopathy, Cerebral Palsy, and Type 2 Diabetes (T2D). Dr. Eldridge is currently accepting new patients.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Community Health Association Of Spokane

    15812 E Indiana Ave, 
    Spokane Valley, WA 
    Languages Spoken:
    English, Dutch, Filipino, Korean
    Accepting New Patients
    Offers Telehealth

    Jordan Espiritu is a primary care provider, practicing in Family Medicine in Spokane Valley, Washington. Dr. Espiritu is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Type 2 Diabetes (T2D). Dr. Espiritu is currently accepting new patients.

    Experienced in Dysferlinopathy
    Geriatrics | Internal Medicine
    Experienced in Dysferlinopathy
    Geriatrics | Internal Medicine
    Referral may be required

    Suburban Geriatrics Inc

    2901 Jolly Road, 
    Plymouth Meeting, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Pearlstein is a primary care provider, practicing in Geriatrics and Internal Medicine in Plymouth Meeting, Pennsylvania. Dr. Pearlstein is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 180 other conditions, according to our data. His clinical expertise encompasses Dementia, Alzheimer's Disease, Painful Swallowing, Gastrostomy, and Endoscopy. Dr. Pearlstein is board certified in  . Dr. Pearlstein is currently accepting new patients.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    University Hospitals Samaritan Medical Center

    1025 Center St, 
    Ashland, OH 
    Languages Spoken:
    English, Farsi
    Accepting New Patients
    Offers Telehealth

    Mehrdad Tavallaee is a primary care provider, practicing in Internal Medicine in Ashland, Ohio. Dr. Tavallaee is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 58 other conditions, according to our data. His clinical expertise encompasses Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Type 2 Diabetes (T2D). Dr. Tavallaee is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    Virginia Commonwealth University Health System Authority

    11958 W Broad St, 
    Henrico, VA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Nicholas Johnson is a Neurologist practicing medicine in Henrico, Virginia. Dr. Johnson is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Delta-Sarcoglycanopathy, X-Linked Dominant Scapuloperoneal Myopathy, Distal Myopathy 2, and Emery-Dreifuss Muscular Dystrophy. Dr. Johnson is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral required

    Amc

    47 New Scotland Ave, 
    Albany, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Murnane is a Neurologist practicing medicine in Albany, New York. Dr. Murnane is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 66 other conditions, according to our data. His clinical expertise encompasses Andermann Syndrome, Charcot-Marie-Tooth Disease, Septic Arthritis, and Hereditary Sensory Neuropathy Type 1 (HSN1). Dr. Murnane is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Andrea Swenson is a Neurologist practicing medicine in Iowa City, Iowa. Dr. Swenson is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 44 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Rhizotomy. Dr. Swenson is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    VCU Health - Ambulatory Care Center

    417 N. 11th Street, 
    Richmond, VA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kelly Gwathmey is a Neurologist practicing medicine in Richmond, Virginia. Dr. Gwathmey is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 52 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Chronic Inflammatory Demyelinating Polyneuropathy, Gastrostomy, and Tissue Biopsy. Dr. Gwathmey is currently accepting new patients.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Advocate Medical Group Primary Care

    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients

    Sam Fatoorehchi is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Fatoorehchi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Walker-Warburg Syndrome, Fukuyama Type Muscular Dystrophy, Oculopharyngeal Muscular Dystrophy, and X-Linked Dominant Scapuloperoneal Myopathy. Dr. Fatoorehchi is board certified in American Board Of Family Medicine. Dr. Fatoorehchi is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    St. Christopher's Pediatric Associates Neurology - Sewell

    100 Kings Way E, Ste C, 
    Sewell, NJ 
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Melvin is a Neurologist practicing medicine in Sewell, New Jersey. Dr. Melvin is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Generalized Tonic-Clonic Seizure, West Syndrome, Seizures, and Thymidine Kinase 2 Deficiency (TK2d). Dr. Melvin is board certified in American Board Of Psychiatry And Neurology. Dr. Melvin is currently accepting new patients.

    Experienced in Dysferlinopathy
    Neuroradiology | Neurology
    Experienced in Dysferlinopathy
    Neuroradiology | Neurology
    Referral may be required

    OSF Illinois Neurological Institute - Neurology

    200 East Pennsylvania Avenue, 
    Peoria, IL 
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Zallek is a Neuroradiologist and a Neurologist practicing medicine in Peoria, Illinois. Dr. Zallek is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Zallek is board certified in American Board Of Electrodiagnostic Medicine and American Board Of Psychiatry And Neurology. Dr. Zallek is currently accepting new patients.

    Showing 1-20 of 2,239

    Last Updated: 09/26/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors near me?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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