The 20 Best Danon Disease Doctors in The United States

Find the Top Danon Disease Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 532 doctor with experience in Danon Disease near The United States. Of these, 421 are Experienced, 97 are Advanced, 9 are Distinguished and 5 are Elite.

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532 providers found
    Elite in Danon Disease
    Elite in Danon Disease
    Referral may be required

    Office

    9434 Medical Center Dr, 
    La Jolla, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Barry Greenberg is a Cardiologist practicing medicine in La Jolla, California. Dr. Greenberg is rated as an Elite provider by MediFind in the treatment of Danon Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Heart Failure with Preserved Ejection Fraction (HFpEF), Danon Disease, Heart Transplant, and Cardiac Ablation. Dr. Greenberg is currently accepting new patients.

    Elite in Danon Disease
    Medical Genetics
    Elite in Danon Disease
    Medical Genetics
    Referral may be required

    University Physicians Incorporated

    12605 E 16th Ave, Uchealth Anschutz Medical Campus, 
    Aurora, CO 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Taylor is a Medical Genetics provider practicing medicine in Aurora, Colorado. Dr. Taylor is rated as an Elite provider by MediFind in the treatment of Danon Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Gaucher Disease Type 1, Gaucher Disease, and Megalencephalic Leukoencephalopathy with Subcortical Cysts. Dr. Taylor is currently accepting new patients.

    Elite in Danon Disease
    Elite in Danon Disease
    Referral may be required

    University Of Colorado Hospital

    12605 E 16th Ave, 
    Aurora,, CO 
    Languages Spoken:
    English, German, Italian
    Accepting New Patients

    Luisa Mestroni is a Cardiologist practicing medicine in Aurora,, Colorado. Dr. Mestroni is rated as an Elite provider by MediFind in the treatment of Danon Disease. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Dilated Cardiomyopathy (DCM), Familial Dilated Cardiomyopathy, Cardiomyopathy, Heart Transplant, and Aortic Valve Replacement. Dr. Mestroni is currently accepting new patients.

    Learn about our expert tiers
    Elite in Danon Disease
    Advanced Heart Failure and Transplant Cardiology
    Elite in Danon Disease
    Advanced Heart Failure and Transplant Cardiology
    Referral may be required

    Regents Of The University Of California

    200 W Arbor Dr, 
    San Diego, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Kimberly Hong is an Advanced Heart Failure and Transplant Cardiologist practicing medicine in San Diego, California. Dr. Hong is rated as an Elite provider by MediFind in the treatment of Danon Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Danon Disease, Cardiomyopathy, Heart Failure with Preserved Ejection Fraction (HFpEF), Heart Transplant, and Patent Foramen Ovale Repair.

    Elite in Danon Disease
    Cardiology | Advanced Heart Failure and Transplant Cardiology
    Elite in Danon Disease
    Cardiology | Advanced Heart Failure and Transplant Cardiology
    Referral may be required

    Regents Of The University Of California

    200 W Arbor Dr, 
    San Diego, CA 
    Experience:
    10+ years
    Languages Spoken:
    English
    Offers Telehealth

    Quan Bui is a Cardiologist and an Advanced Heart Failure and Transplant Cardiologist practicing medicine in San Diego, California. He has been practicing medicine for over 10 years. Dr. Bui is rated as an Elite provider by MediFind in the treatment of Danon Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Cardiomyopathy, Heart Failure, Restrictive Cardiomyopathy (RCM), and Heart Transplant.

    Advanced in Danon Disease
    Family Medicine
    Advanced in Danon Disease
    Family Medicine

    Atrium Health Primary Care One Health Family Medicine Reese Blvd.

    13620 Reese Blvd., E., Suite 125, 
    Huntersville, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mei-tsi Lawing is a primary care provider, practicing in Family Medicine in Huntersville, North Carolina. Dr. Lawing is rated as an Advanced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Danon Disease, Pompe Disease, Transient Global Amnesia, and Type 2 Diabetes (T2D). Dr. Lawing is currently accepting new patients.

    Advanced in Danon Disease
    Advanced in Danon Disease
    Referral required

    Amc

    47 New Scotland Ave, 
    Albany, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Murnane is a Neurologist practicing medicine in Albany, New York. Dr. Murnane is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 66 other conditions, according to our data. His clinical expertise encompasses Hereditary Sensory Neuropathy Type 1 (HSN1), Andermann Syndrome, Sensorimotor Polyneuropathy, and Septic Arthritis. Dr. Murnane is currently accepting new patients.

    Experienced in Danon Disease
    Advanced Heart Failure and Transplant Cardiology
    Experienced in Danon Disease
    Advanced Heart Failure and Transplant Cardiology
    Referral may be required

    Tendick Center For Advanced Heart Failure Therapies

    2900 W Oklahoma Ave 4th Fl Galleria, 
    Milwaukee, WI 
    Languages Spoken:
    English, Hindi, Urdu
    Accepting New Patients

    Nasir Sulemanjee is an Advanced Heart Failure and Transplant Cardiologist practicing medicine in Milwaukee, Wisconsin. Dr. Sulemanjee is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Pulmonary Veno-Occlusive Disease, Pulmonary Hypertension, Heart Transplant, and Lung Transplant. Dr. Sulemanjee is board certified in American Board Of Internal Medicine, Advanced Heart Failure And Transplant Cardiology. Dr. Sulemanjee is currently accepting new patients.

    Experienced in Danon Disease
    Advanced Heart Failure and Transplant Cardiology | Cardiology
    Experienced in Danon Disease
    Advanced Heart Failure and Transplant Cardiology | Cardiology
    Referral may be required

    University Of Penn - Medical Group

    3400 Spruce St, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Maryjane Farr is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Farr is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Heart Failure, Cardiogenic Shock, Cardiomyopathy, Pulmonary Edema, and Heart Transplant.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    LVPG Cardiology - Richland Township

    320 W Pumping Station Road, Suite 3, 
    Quakertown, PA 
    Experience:
    17+ years
    Languages Spoken:
    English, Gujarati , Hindi
    Accepting New Patients
    Offers Telehealth

    Apurva Vyas is a Cardiologist practicing medicine in Quakertown, Pennsylvania. He has been practicing medicine for over 17 years. Dr. Vyas is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Heart Attack, Cardiogenic Shock, Apoplexy, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR). Dr. Vyas is board certified in American Board Of Internal Medicine - Cardiovascular Disease. Dr. Vyas is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    Avera Medical Group Marshall — Bruce St

    300 S Bruce St, 
    Marshall, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Justin Persson is a Neurologist practicing medicine in Marshall, Minnesota. Dr. Persson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Memory Loss, Miller-Fisher Syndrome, Chronic Polyradiculoneuritis, Guillain-Barre Syndrome, and Gamma Knife Radiosurgery. Dr. Persson is board certified in American Board Of Psychiatry And Neurology - Neurology. Dr. Persson is currently accepting new patients.

    Experienced in Danon Disease
    Medical Genetics
    Experienced in Danon Disease
    Medical Genetics
    Referral required

    Duke Health Integrated Practice, Inc

    2301 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English, Russian
    Accepting New Patients
    Offers Telehealth

    Dmitriy Niyazov is a Medical Genetics provider practicing medicine in Durham, North Carolina. Dr. Niyazov is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Early Infantile Epileptic Encephalopathy, Thymidine Kinase 2 Deficiency (TK2d), Macroglossia, and Ehlers-Danlos Syndrome (EDS). Dr. Niyazov is board certified in American Board Of Medical Genetics And Genomics, Clinical Genetics And Genomics - General. Dr. Niyazov is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    Penn Heart And Vascular Center

    3400 Civic Center Boulevard, East Pavilion, 2nd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Sharlene Day is a Cardiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Day is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Familial Hypertrophic Cardiomyopathy, Heart Transplant, and Orchiectomy. Dr. Day is board certified in Cardiovascular Disease, 2012. Dr. Day is currently accepting new patients.

    Distinguished in Danon Disease
    Medical Genetics | Pediatrics
    Distinguished in Danon Disease
    Medical Genetics | Pediatrics
    Referral may be required

    UC Irvine Medical Center

    101 The City Drive South, Building 30, 
    Orange, CA 
    Languages Spoken:
    English, Greek, Hindi

    Virginia Kimonis is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Orange, California. Dr. Kimonis is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Prader-Willi Syndrome, Pompe Disease, Fabry Disease, Danon Disease, and Hormone Replacement Therapy (HRT). Dr. Kimonis is board certified in American Board Of Medical Genetics And Genomics - Clinical Genetics And Genomics.

    Distinguished in Danon Disease
    Distinguished in Danon Disease
    Referral may be required

    LVH Cardiology-1250 Cedar Crest

    1250 S Cedar Crest Blvd, Suite 300, 
    Allentown, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Cheri Fadlon is a Cardiologist practicing medicine in Allentown, Pennsylvania. Dr. Fadlon is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Heart Failure with Preserved Ejection Fraction (HFpEF), Pompe Disease, Danon Disease, and Ectopic Heartbeat. Dr. Fadlon is board certified in American Board Of Internal Medicine - Internal Medicine and American Board Of Internal Medicine - Cardiovascular Disease . Dr. Fadlon is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral required

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Christopher Lee is a Neurologist practicing medicine in Nashville, Tennessee. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Guillain-Barre Syndrome, and Gamma Knife Radiosurgery. Dr. Lee is board certified in American Board Of Psychiatry & Neurology. Dr. Lee is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Andrea Swenson is a Neurologist practicing medicine in Iowa City, Iowa. Dr. Swenson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 44 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Myasthenia Gravis, and Rhizotomy. Dr. Swenson is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    Loyola Outpatient Center

    2160 S First Ave, 
    Maywood, IL 
    Languages Spoken:
    English
    Accepting New Patients

    Matthew Mccoyd is a Neurologist practicing medicine in Maywood, Illinois. Dr. Mccoyd is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), Spasticity, and Myasthenia Gravis. Dr. Mccoyd is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    675 N St Clair St Ste 19-100, Galter Pavilion, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Elizabeth Mcnally is a Cardiologist practicing medicine in Chicago, Illinois. Dr. Mcnally is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Cardiomyopathy, Duchenne Muscular Dystrophy, Dilated Cardiomyopathy (DCM), and Hypertrophic Cardiomyopathy (HCM). Dr. Mcnally is board certified in American Board Of Internal Medicine - Cardiovascular Disease (Certified). Dr. Mcnally is currently accepting new patients.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Loyola University Medical Center

    2160 S 1st Ave, 
    Maywood, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Monica Edwards is a primary care provider, practicing in Internal Medicine in Maywood, Illinois. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Type 2 Diabetes (T2D), End-Stage Renal Disease (ESRD), Obesity, Pancreatectomy, and Bone Marrow Aspiration. Dr. Edwards is currently accepting new patients.

    Showing 1-20 of 532

    Last Updated: 11/08/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors in The United States?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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