The 20 Best Danon Disease Doctors in The United States

Barry Greenberg is a Cardiologist practicing medicine in La Jolla, California. Dr. Greenberg is rated as an Elite provider by MediFind in the treatment of Danon Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Heart Failure with Preserved Ejection Fraction (HFpEF), Danon Disease, Heart Transplant, and Cardiac Ablation.

Luisa Mestroni is a Cardiologist practicing medicine in Aurora,, Colorado. Dr. Mestroni is rated as an Elite provider by MediFind in the treatment of Danon Disease. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Dilated Cardiomyopathy (DCM), Familial Dilated Cardiomyopathy, Cardiomyopathy, Heart Transplant, and Transcatheter Aortic Valve Replacement (TAVR).

Matthew Taylor is a Medical Genetics provider practicing medicine in Aurora, Colorado. Dr. Taylor is rated as an Elite provider by MediFind in the treatment of Danon Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Gaucher Disease Type 1, Gaucher Disease, and Fabry Disease.

Nasir Sulemanjee is an Advanced Heart Failure and Transplant Cardiologist practicing medicine in Milwaukee, Wisconsin. Dr. Sulemanjee is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Pulmonary Veno-Occlusive Disease, Pulmonary Hypertension, Arrhythmogenic Right Ventricular Cardiomyopathy, and Heart Transplant. Dr. Sulemanjee is board certified in American Board Of Internal Medicine, Advanced Heart Failure And Transplant Cardiology.

Cheri Fadlon is a Cardiologist practicing medicine in Allentown, Pennsylvania. Dr. Fadlon is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Heart Failure with Preserved Ejection Fraction (HFpEF), Pompe Disease, Danon Disease, and Ectopic Heartbeat. Dr. Fadlon is board certified in American Board Of Internal Medicine - Cardiovascular Disease and American Board Of Internal Medicine - Internal Medicine.

Mei-tsi Lawing is a primary care provider, practicing in Family Medicine in Huntersville, North Carolina. Dr. Lawing is rated as an Advanced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, Danon Disease, Transient Global Amnesia, and Type 2 Diabetes (T2D). Dr. Lawing is currently accepting new patients.

Christopher Lee is a Neurologist practicing medicine in Nashville, Tennessee. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Guillain-Barre Syndrome, and Gamma Knife Radiosurgery. Dr. Lee is board certified in American Board Of Psychiatry & Neurology.

Bradley Nelson is an Interventional Cardiologist practicing medicine in Reno, Nevada. Dr. Nelson is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Phosphoglycerate Mutase Deficiency, Heart Attack, and Cardiomyopathy.

Madelena Martin is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Sacramento, California. Dr. Martin is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, Danon Disease, Phenylketonuria (PKU), and Fabry Disease. Dr. Martin is board certified in Medical Genetics And Genomics Clin Biochemical Genetic and Medical Genetics And Genomics Clin Genetics & Genomic. Dr. Martin is currently accepting new patients.

Gary Ma is a Cardiologist practicing medicine in San Diego, California. He has been practicing medicine for over 10 years. Dr. Ma is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Danon Disease, Aortic Valve Stenosis, and Cardiomyopathy.

Carl Robinson is a Neurologist practicing medicine in Lewiston, Maine. Dr. Robinson is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Migraine, Danon Disease, Pompe Disease, and Peripheral Neuropathy.

Richard Forte is a Hematologist and an Oncologist practicing medicine in New Hyde Park, New York. Dr. Forte is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Monoclonal Gammopathy of Undetermined Significance (MGUS), Schnitzler Syndrome, and Multiple Myeloma.

Maryjane Farr is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Farr is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Heart Failure, Cardiogenic Shock, Cardiomyopathy, Pulmonary Edema, and Heart Transplant.

Justin Persson MD, provides expert care for conditions related to the brain, spine and nervous system at Avera Medical Group Neurology in Sioux Falls, SD. Dr. Persson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Memory Loss, Guillain-Barre Syndrome, Chronic Polyradiculoneuritis, Miller-Fisher Syndrome, and Gamma Knife Radiosurgery. Dr. Persson is board certified in American Board Of Psychiatry And Neurology - Neurology.

Dr. Virginia E. Kimonis is a board-certified UCI Health clinician-scientist who specializes in the diagnosis and treatment of children and adults with neuromuscular, neurodegenerative, dysmorphia and other complex disorders.Her clinical interests include inclusion body myopathy, Paget disease, Pompe disease, frontotemporal dementia, Prader Willi syndrome, morbid obesity and craniosynostosis.Kimonis earned her medical degree at the University of Southampton Medical School in Southampton, England. She completed a residency in pediatrics at Massachusetts General Hospital in Boston, followed by a fellowship in clinical and biochemical genetics at the National Institutes of Health (NIH) and Children's National Hospital in Washington, D.C.The author or co-author of more than 175 peer-reviewed publications in prestigious journals, Kimonis has focused her research primarily on inherited muscle disorders, lysosomal storage diseases, Prader Willi and several other rare disorders. She developed the Lysosomal Disease Program, established a registry study among a large cohort of patients with Pompe disease, and conducted a study of resistance training for axial and respiratory muscles in Pompe disease as an adjunct to enzyme replacement treatment.She also discovered multisystem proteinopathy, a new disease type associated with mutations in the VCP gene that overlaps with Pompe disease. She has received research funding from numerous agencies, including NIH, the Muscular Dystrophy Association, the Paget Foundation and other rare disease foundations.Kimonis also is a lead investigator with the newly establishedNational Organization for Rare Disorders (NORD) Rare Disease Center of Excellence, a joint program of UCI Health and Children's Hospital of Orange County (CHOC). Dr. Kimonis is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Prader-Willi Syndrome, Pompe Disease, Fabry Disease, Danon Disease, and Hormone Replacement Therapy (HRT). Dr. Kimonis is board certified in American Board Of Medical Genetics And Genomics - Clinical Genetics And Genomics.

Dr. Tahseen Mozaffar is a board-certified UCI Health neurologist who specialize in neuromuscular disorders, including amyotrophic lateral sclerosis (ALS), myasthenia gravis, inflammatory myopathies, Pompe disease, muscle pathology and all types of muscular dystrophies.He serves as director of the UCI Health ALS & Neuromuscular Center, one of only six Muscular Dystrophy Association-designated centers in California.Mozaffar earned his medical degree at the Aga Khan University in Karachi, Pakistan, where he completed a rotating internship in internal medicine and general surgery. He completed a neurology residency at Barnes-Jewish Hospital in St. Louis, Mo., followed by a fellowship in neuromuscular disorders at Washington University, also in St. Louis.His research focus includes clinical and translational studies of neuromuscular disorders and he is the principal site investigator of more than a dozen clinical trials for myasthenia gravis, immune myopathies and rare and ultra-rare myopathies. He is also the lead UCI investigator for NeuroNEXT, a collaborative national effort to help streamline phase 2 clinical trials for brain disorders that is supported by the National Institute of Neurological Disorders and Stroke (NINDS).As an expert in rare and ultra-rare myopathies, he advises many pharmaceutical companies on clinical trial design and the identification of disease targets. He serves on a Pompe disease advisory board for Amicus Therapeutics and Spark Therapeutics, as well as on the data safety monitoring board for Acceleron and Sarepta Therapeutics. He also is a reviewer with the Emerging Technologies and Training in Neurosciences (ETTN) group for the National Institutes of Health (NIH). He has co-authored more than 175 peer-reviewed publications and has written or co-written more than a dozen book chapters and reviews.Mozaffar, who is also fluent in Hindi and Urdu, sees patients inIrvineandOrange. Dr. Mozaffar is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Inclusion Body Myositis, Myositis, Limb-Girdle Muscular Dystrophy, and Thymectomy. Dr. Mozaffar is board certified in American Board Of Psychiatry And Neurology - Neurology.

My mission, along with the St. Joseph Medical Group, is to focus on innovative clinical care and the pursuit of excellence through scholarly activities. This allows me to provide patients with state-of-the-art patient services and exceptional patient experiences. Dr. Ladha is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Spinal Muscular Atrophy (SMA). Dr. Ladha is board certified in Psychiatry & Neurology (Neurology) and Psychiatry & Neurology (Sub: Neuromuscular Medicine). Dr. Ladha is currently accepting new patients.

Dr. Christine E. Seidman is the director of the Cardiovascular Genetics Program and a cardiovascular medicine specialist at Brigham and Women’s Hospital (BWH). In addition, she is the Thomas W. Smith Professor of Medicine at Harvard Medical School.She received her medical degree from The George Washington School of Medicine and Health Sciences. She completed an internal medicine residency at The Johns Hopkins Hospital and a cardiology fellowship at Massachusetts General Hospital. Dr. Seidman is board certified in internal medicine and cardiovascular disease. Her clinical interests include cardiovascular medicine and genetics.Dr. Seidman also leads the Seidman Laboratory to elucidate genetic causes for heart disease and other disorders. Notable achievements include the discovery of the first genetic cause of congenital heart malformations. Dr. Seidman promotes collaboration between the Laboratory and the BWH Cardiovascular Genetics Center to translate research discoveries into better diagnostics and improved management strategies. She has authored over 300 peer-reviewed articles and received research funding from the Howard Hughes Medical Institute and National Institutes of Health. Dr. Seidman is rated as an Advanced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Cardiomyopathy, Familial Hypertrophic Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Dilated Cardiomyopathy (DCM), and Heart Transplant. Dr. Seidman is board certified in Internal Medicine and Cardiovascular Disease.

Mazen Dimachkie is a Neurologist practicing medicine in Fairway, Kansas. He has been practicing medicine for over 38 years. Dr. Dimachkie is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Myositis, Inclusion Body Myositis, Myasthenia Gravis, Thymectomy, and Tissue Biopsy. Dr. Dimachkie is board certified in United Council For Neurologic Subspecialties, Clinical Neuromuscular Pathology - 2015 , American Board Of Psychiatry And Neurology, Neuromuscular Medicine - 2008 , American Board Of Psychiatry And Neurology, Clinical Neurophysiology - 1996 , and American Board Of Psychiatry And Neurology, Neurology - 1995. Dr. Dimachkie is currently accepting new patients.

Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 8 years. Dr. Priestley is rated as an Advanced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Fabry Disease, Biotinidase Deficiency, Ornithine Transcarbamylase Deficiency, and Multiple Sulfatase Deficiency. Dr. Priestley is board certified in American Board Of Medical Genetics And Genomics, American Board Of Medical Genetics And Genomics, and American Board Of Pediatrics.