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    Last Updated: 01/09/2026

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    MediFind found 676 doctor with experience in Danon Disease near The United States. Of these, 556 are Experienced, 104 are Advanced, 13 are Distinguished and 3 are Elite.

    Location
    LocationClose
    676 providers found
      Barry H. Greenberg
      Elite in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Elite in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      Regents Of The University Of California

      200 W Arbor Dr, Mc 8201, 
      San Diego, CA 
      Languages Spoken:
      English

      Barry Greenberg is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in San Diego, California. Dr. Greenberg is rated as an Elite provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Failure, Danon Disease, Heart Failure with Preserved Ejection Fraction (HFpEF), Heart Transplant, and Cardiac Ablation.

      Mei-tsi B. Lawing
      Advanced in Danon Disease
      Family Medicine
      Advanced in Danon Disease
      Family Medicine

      Atrium Health Primary Care One Health Family Medicine Reese Blvd.

      13620 Reese Blvd., E., Suite 125, 
      Huntersville, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mei-tsi Lawing is a primary care provider, practicing in Family Medicine in Huntersville, North Carolina. Dr. Lawing is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Danon Disease, Pompe Disease, Transient Global Amnesia, and Type 2 Diabetes (T2D). Dr. Lawing is currently accepting new patients.

      Elite in Danon Disease
      Medical Genetics
      Elite in Danon Disease
      Medical Genetics

      University Physicians Incorporated

      12605 E 16th Ave, Uchealth Anschutz Medical, 
      Aurora, CO 
      Languages Spoken:
      English
      Offers Telehealth

      Matthew Taylor is a Medical Genetics provider in Aurora, Colorado. Dr. Taylor is rated as an Elite provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Gaucher Disease Type 1, Gaucher Disease, and Fabry Disease.

      Learn about our expert tiers
      Elite in Danon Disease
      Elite in Danon Disease

      University Physicians Incorporated

      12605 E 16th Ave, Uchealth Anschutz Medical, 
      Aurora, CO 
      Languages Spoken:
      English, German, Italian
      Accepting New Patients

      Luisa Mestroni is a Cardiologist in Aurora, Colorado. Dr. Mestroni is rated as an Elite provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Dilated Cardiomyopathy (DCM), Familial Dilated Cardiomyopathy, Cardiomyopathy, Heart Transplant, and Aortic Valve Replacement. Dr. Mestroni is currently accepting new patients.

      Nasir Z. Sulemanjee
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology

      Tendick Center For Advanced Heart Failure Therapies

      2900 W Oklahoma Ave 4th Fl Galleria, 
      Milwaukee, WI 
      Languages Spoken:
      English, Hindi, Urdu

      Nasir Sulemanjee is an Advanced Heart Failure and Transplant Cardiologist in Milwaukee, Wisconsin. Dr. Sulemanjee is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Cardiomyopathy, Pulmonary Veno-Occlusive Disease, Arrhythmogenic Right Ventricular Cardiomyopathy, Heart Transplant, and Lung Transplant.

      Maryjane A. Farr
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      University Of Texas Southwestern Medical Center At Dallas

      5939 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English

      Maryjane Farr is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Dallas, Texas. Dr. Farr is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Heart Failure, Cardiogenic Shock, Cardiomyopathy, Pulmonary Edema, and Heart Transplant.

      Thomas W. Hopkins
      Advanced in Danon Disease
      Internal Medicine
      Advanced in Danon Disease
      Internal Medicine
      2235 Douglas Blvd., Suite 510, 
      Roseville, CA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Thomas Hopkins is a primary care provider, practicing in Internal Medicine in Roseville, California. Dr. Hopkins is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Pompe Disease, Danon Disease, Obesity, and Hypertension. Dr. Hopkins is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Florida Hospital Medical Group Inc

      2600 Westhall Ln, 
      Maitland, FL 
      Languages Spoken:
      English, Japanese
      Accepting New Patients

      Mari Mori is a Medical Genetics specialist and a Pediatrics provider in Maitland, Florida. Dr. Mori is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Glycogen Storage Disease Type 7, FG Syndrome, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), and Von Gierke Disease. Dr. Mori is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Andrea Swenson is a Neurologist in Iowa City, Iowa. Dr. Swenson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Rhizotomy. Dr. Swenson is currently accepting new patients.

      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      593 Eddy St, 
      Providence, RI 
      Languages Spoken:
      English

      Robert Sokolic is a Hematologist Oncology specialist and a Hematologist in Providence, Rhode Island. Dr. Sokolic is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Severe Combined Immunodeficiency (SCID), Adenosine Deaminase Deficiency, Chronic B-Cell Leukemia (CBCL), Sickle Cell Disease, and Bone Marrow Transplant.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Monica Edwards is a primary care provider, practicing in Internal Medicine in Maywood, Illinois. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Lung Metastases, End-Stage Renal Disease (ESRD), Type 2 Diabetes (T2D), Pancreatectomy, and Bone Marrow Aspiration. Dr. Edwards is currently accepting new patients.

      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology

      New York University

      550 1st Ave, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Larry Chinitz is a Cardiac Electrophysiologist and a Cardiologist in New York, New York. Dr. Chinitz is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Atrial Fibrillation, Arrhythmias, Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology

      New York University

      560 1st Ave, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Anthony Aizer is a Cardiac Electrophysiologist and a Cardiologist in New York, New York. Dr. Aizer is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Atrial Fibrillation, Arrhythmias, Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

      Experienced in Danon Disease
      Neurology
      Experienced in Danon Disease
      Neurology

      University Of Cincinnati Physicians Company LLC

      68 Cavalier Blvd, 
      Florence, KY 
      Languages Spoken:
      English, Farsi
      Accepting New Patients

      Aram Zabeti is a Neurologist in Florence, Kentucky. Dr. Zabeti is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Optic Neuritis, and Neuromyelitis Optica. Dr. Zabeti is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English, Portuguese
      Accepting New Patients

      Maria Arruda is a Pediatric Cardiologist and a Cardiologist in Cleveland, Ohio. Dr. Arruda is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Sternal Cleft, Cor Triatriatum, Congenital Contractural Arachnodactyly, Ventricular Septal Defects, and Cardiac Ablation. Dr. Arruda is currently accepting new patients.

      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology

      Maine Center For Cancer Medicine And Blood Disorders PA

      2 Independence Dr, 
      Kennebunk, ME 
      Languages Spoken:
      English

      Julio Hajdenberg is a Hematologist Oncology specialist and a Hematologist in Kennebunk, Maine. Dr. Hajdenberg is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Reticulohistiocytoma, Histiocytosis, Factor 5 Deficiency, Prostate Cancer, and Bone Marrow Aspiration.

      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology

      Montefiore Medical Center

      111 E 210th St, 
      Bronx, NY 
      Languages Spoken:
      English

      Adaya Weissler-Snir is a Cardiac Electrophysiologist and a Cardiologist in Bronx, New York. Dr. Weissler-Snir is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Sengers Syndrome, Pacemaker Implantation, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Danon Disease
      Experienced in Danon Disease

      Lehigh Valley Physician Group

      1250 S Cedar Crest Blvd, 300 Lvpg Cardiology, 
      Allentown, PA 
      Languages Spoken:
      English

      Apurva Vyas is a Cardiologist in Allentown, Pennsylvania. Dr. Vyas is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Attack, Cardiogenic Shock, Apoplexy, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Integrated Cardiology Group LLC

      1600 S 48th St, 600 Bryan Heart, 
      Lincoln, NE 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Balwanz is a Cardiologist in Lincoln, Nebraska. Dr. Balwanz has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Heart Failure, Angina, Pacemaker Implantation, and Heart Bypass Surgery. Dr. Balwanz is currently accepting new patients.

      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology

      Gundersen Lutheran Medical Center Inc

      1836 S Ave, 
      La Crosse, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Paul Letendre is a Hematologist Oncology specialist and a Hematologist in La Crosse, Wisconsin. Dr. Letendre is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Paget Disease of the Breast, Familial Colorectal Cancer, Oligodendroglioma, and Astrocytoma. Dr. Letendre is currently accepting new patients.

      Showing 1-20 of 676

      Last Updated: 01/09/2026

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in The United States?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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