The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me

Last Updated: 02/22/2026

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MediFind found 4297 doctor with experience in Von Hippel-Lindau (VHL) Syndrome. Of these, 3829 are Experienced, 386 are Advanced, 66 are Distinguished and 16 are Elite.

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4,297 providers found
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Urology | Plastic Surgery
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Urology | Plastic Surgery
    10 Center Drive Rm 2-5942, 
    Bethesda, MD 
    Languages Spoken:
    English

    Mark Ball is a Plastic Surgeon and a Urologist in Bethesda, Maryland. Dr. Ball is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Renal Oncocytoma, Nephrectomy, and Prostatectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery | General Surgery
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery | General Surgery

    Stanford Health Care

    500 Pasteur Dr, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Steven Chang is a Neurosurgery specialist and a General Surgeon in Palo Alto, California. Dr. Chang is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Arteriovenous Malformation, Meningioma, Cerebral Arteriovenous Malformation, Awake Craniotomy, and Gamma Knife Radiosurgery.

    Umberto Capitanio
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Milan, IT 

    Umberto Capitanio practices in Milan, Italy. Mr. Capitanio is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Renal Cell Carcinoma (RCC), Prostate Cancer, Von Hippel-Lindau (VHL) Syndrome, Nephrectomy, and Prostatectomy.

    Learn about our expert tiers
    Francesco Montorsi
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Milan, IT 

    Francesco Montorsi practices in Milan, Italy. Mr. Montorsi is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Prostate Cancer, Bladder Cancer, Renal Cell Carcinoma (RCC), Prostatectomy, and Cystectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    8 Xishiku Street, 
    Beijing, CN 

    Kan Gong practices in Beijing, China. Mr. Gong is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Renal Cell Carcinoma (RCC), Nephrectomy, and Thrombectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    Ohio State University Hospital-Pavilion

    300 W 10th Ave, 
    Columbus, OH 
    Languages Spoken:
    English

    Russell Lonser is a Neurosurgery provider in Columbus, Ohio. Dr. Lonser is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Hemangioma, Awake Craniotomy, and Craniectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    UVA Health Neuro Oncology

    1240 Lee St Fl 3, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Ashok Asthagiri is a Neurosurgery provider in Charlottesville, Virginia. Dr. Asthagiri is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Neurofibromatosis Type 2 (NF2), Von Hippel-Lindau (VHL) Syndrome, Neurofibromatosis, Awake Craniotomy, and Gamma Knife Radiosurgery.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Milan, IT 

    Alessandro Larcher practices in Milan, Italy. Mr. Larcher is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Renal Cell Carcinoma (RCC), Von Hippel-Lindau (VHL) Syndrome, Prostate Cancer, Nephrectomy, and Prostatectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Dept Of Transfusion Medicine/Nih Clinical Center

    10 Center Dr, 
    Bethesda, MD 
    Languages Spoken:
    English

    Emily Chew is an Ophthalmologist in Bethesda, Maryland. Dr. Chew is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Geographic Atrophy, Diabetic Retinopathy, and Cataract Removal.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    Select Specialty Hosp-Columbus

    410 W 10th Ave, 
    Columbus, OH 
    Languages Spoken:
    English

    Kristin Huntoon is a Neurosurgery provider in Columbus, Ohio. Dr. Huntoon is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Hemangioma, Deep Brain Stimulation, and Vertebroplasty.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Milan, IT 

    Andrea Salonia practices in Milan, Italy. Ms. Salonia is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Erectile Dysfunction (ED), Premature Ejaculation, Infertility, Prostatectomy, and Cystectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Endocrinology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Tobias Else is an Endocrinologist in Ann Arbor, Michigan. Dr. Else is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Adrenal Cancer, Adrenocortical Carcinoma, Adrenal Gland Adenoma, Neuroendocrine Tumor, and Thyroidectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Groningen, GR, NL 

    Thera Links practices in Groningen, Netherlands. Ms. Links is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Thyroid Cancer, Von Hippel-Lindau (VHL) Syndrome, Lhermitte-Duclos Disease, Thyroidectomy, and Hormone Replacement Therapy (HRT).

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Padova, IT 

    Stefania Zovato practices in Padova, Italy. Ms. Zovato is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Neuroendocrine Tumor, Parathyroidectomy, and Salpingo-Oophorectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    No. 1 Dongjiaomingxiang Street, Dongcheng District, 
    Beijing, CN 

    Kaifang Ma practices in Beijing, China. Ma is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Their top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Renal Cell Carcinoma (RCC), Vasectomy, and Nephrectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    79 Qingchun Road, 
    Hangzhou, CN 

    Wuping Yang practices in Hangzhou, China. Yang is rated as an Elite expert by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Their top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), and Vasectomy.

    John Novak
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Bassett Health Center Cobleskill

    136 Parkway Drive, 
    Cobleskill, NY 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Novak is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Enlarged Prostate (BPH), Type 2 Diabetes (T2D), and Lymphangitis.

    Shyam Patel
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology

    Bassett Medical Center

    1 Atwell Road, 
    Cooperstown, NY 
    Languages Spoken:
    English

    . Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Mantle Cell Lymphoma (MCL), Lung Nodules, Vertigo, and CAPOS Syndrome.

    Carol L. Shields
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology | Oncology
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology | Oncology

    Ophthalmology - Wills Eye Hospital

    840 Walnut Street, Floor 10, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Carol Shields is an Oncologist and an Ophthalmologist in Philadelphia, Pennsylvania. Dr. Shields is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Retinoblastoma, Melanoma of the Eye, Uveal Melanoma, Vitrectomy, and Iridectomy. Dr. Shields is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Nuclear Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology | Nuclear Medicine

    Hospital Of The University Of Pennsylvania Radiology

    Nuclear Medicine & Clinical Molecular Imaging, 1 Donner, 3400 Spruce Street, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Galperin is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Emphysema, Pleurisy, Pleural Effusion, and Lung Nodules.

    Showing 1-20 of 4,297

    Last Updated: 02/22/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors near me?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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