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    Last Updated: 10/30/2025

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    MediFind found 101 doctor with experience in Neurofibromatosis Type 1 (NF1).

    Location
    LocationClose
    101 providers found
      Ian Pollack
      Elite in Neurofibromatosis Type 1 (NF1)
      General Surgery
      Elite in Neurofibromatosis Type 1 (NF1)
      General Surgery

      UPMC Children's Hospital Of Pittsburgh, Pediatric Neurological Surgery

      4401 Penn Avenue, 
      Pittsburgh, PA 
      Languages Spoken:
      English

      Ian Pollack, MD, is Chief of Pediatric Neurosurgery at UPMC Children’s Hospital of Pittsburgh, A. Leland Albright Professor of Neurosurgery, and vice-chair for Academic Affairs at the University of Pittsburgh School of Medicine. He is professor of clinical and translational science and distinguished professor of neurosurgery at the University of Pittsburgh. Dr. Pollack is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Gliomatosis Cerebri, Brain Tumor, Posterior Fossa Decompression, and Craniectomy.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Johns Hopkins University

      601 N Caroline St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Jaishri Blakeley is a Neurologist in Baltimore, Maryland. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)
      Genoa, IT 

      Pasquale Striano practices in Genoa, Italy. Mr. Striano is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Epilepsy, Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, and Seizures.

      Learn about our expert tiers
      Elite in Neurofibromatosis Type 1 (NF1)
      Neurology | Pediatrics
      Elite in Neurofibromatosis Type 1 (NF1)
      Neurology | Pediatrics
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Roger Packer is a Neurologist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Packer is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Brain Tumor, Diffuse Midline Glioma H3 K27M-Mutant, Medulloblastoma, and Gliomatosis Cerebri.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)
      Naples, IT 

      Silverio Perrotta practices in Naples, Italy. Mr. Perrotta is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Beta Thalassemia, Anemia, Hemolytic Anemia, Thalassemia, and Splenectomy.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)
      Nagoya, JP 

      Yoshihiro Nishida practices in Nagoya, Japan. Mr. Nishida is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Fibromatosis, Desmoid Tumor, Adult Soft Tissue Sarcoma, Osteotomy, and Pancreaticoduodenectomy.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)
      Université Paris Est, 
      Creteil, FR 

      Pierre Wolkenstein practices in Creteil, France. Mr. Wolkenstein is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, Scalded Skin Syndrome, and Kidney Transplant.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      536 S Trimble Rd, 
      Mansfield, OH 
      Languages Spoken:
      English

      Maryam Fouladi is a Pediatric Hematologist Oncology provider in Mansfield, Ohio. Dr. Fouladi is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Diffuse Midline Glioma H3 K27M-Mutant, Glioma, Medulloblastoma, and Brain Stem Cancer.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      1275 York Ave, 
      New York, NY 
      Languages Spoken:
      English

      Ira Dunkel is a Pediatric Hematologist Oncology provider in New York, New York. Dr. Dunkel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Retinoblastoma, Diffuse Midline Glioma H3 K27M-Mutant, Glioma, and Brain Stem Cancer.

      Elite in Neurofibromatosis Type 1 (NF1)
      Family Medicine
      Elite in Neurofibromatosis Type 1 (NF1)
      Family Medicine
      224 S 10th Ave, 
      Siler City, NC 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Michael Fisher is a primary care provider, practicing in Family Medicine in Siler City, North Carolina. Dr. Fisher is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), Osteotomy, and Intrauterine Device Insertion. Dr. Fisher is currently accepting new patients.

      Joel A. Kaplan
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Hematology | Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Hematology | Oncology

      Atrium Health Levine Children’s Cancer & Blood Disorders, A Facility Of Carolinas Medical Center

      1001 Blythe Blvd., Suite 3000, 
      Charlotte, NC 
      Experience:
      24+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Joel Kaplan is a Hematologist and a Pediatrics provider in Charlotte, North Carolina. Dr. Kaplan has been practicing medicine for over 24 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Medulloblastoma, Langerhans Cell Histiocytosis, and Bone Marrow Aspiration. Dr. Kaplan is currently accepting new patients.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      8906 Bradmoor Dr, 
      Bethesda, MD 
      Languages Spoken:
      English

      Brigitte Widemann is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Widemann is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      UCL Great Ormond Street Institute For Child Health

      London, ENG, GB 

      Darren Hargrave practices in London, United Kingdom. Mr. Hargrave is rated as a Distinguished expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Gliomatosis Cerebri, Diffuse Midline Glioma H3 K27M-Mutant, and Brain Tumor.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      720 20th St S, 
      Birmingham, AL 
      Languages Spoken:
      English

      Bruce Korf is a Medical Genetics specialist and a Pediatrics provider in Birmingham, Alabama. Dr. Korf is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and RASopathies.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)
      3401 Civic Center Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Robert Avery is a Neurologist in Philadelphia, Pennsylvania. Dr. Avery is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Optic Glioma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Increased Intracranial Pressure, and Thymectomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      4800 Sand Point Way Ne, Mailstop B-6553, 
      Seattle, WA 
      Languages Spoken:
      English
      Offers Telehealth

      Sarah Leary is a Pediatric Hematologist Oncology provider in Seattle, Washington. Dr. Leary is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Medulloblastoma, Glioma, Embryonal Tumor with Multilayered Rosettes, Diffuse Midline Glioma H3 K27M-Mutant, and Bone Marrow Aspiration.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Pediatric Hematology Oncology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Jonathan Schwartz is a Pediatrics specialist and a Pediatric Hematologist Oncology provider in Rochester, Minnesota. Dr. Schwartz is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Congenital Aplastic Anemia, Fanconi Anemia, Aplastic Anemia, Splenectomy, and Bone Marrow Transplant.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Christopher Moertel is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Moertel is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      705 Riley Hospital Dr, Roc 4340, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Steven Rhodes is a Pediatric Hematologist Oncology provider in Indianapolis, Indiana. Dr. Rhodes is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Optic Glioma, and Malignant Peripheral Nerve Sheath Tumor.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Offers Telehealth

      Lars Wagner is a Pediatric Hematologist Oncology provider in Cincinnati, Ohio. Dr. Wagner is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Ewing Sarcoma, Osteosarcoma, Adult Soft Tissue Sarcoma, Rhabdomyosarcoma, and Bone Marrow Aspiration.

      Showing 1-20 of 101

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near me?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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