The 20 Best Neurofibromatosis Type 1 (NF1) Doctors in The United States

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 09/26/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 5840 doctor with experience in Neurofibromatosis Type 1 (NF1) near The United States. Of these, 2196 are Elite, 1730 are Experienced, 319 are Advanced and 49 are Distinguished.

Location
LocationClose
5,840 providers found
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Referral may be required

    Metropolitan Urological Specialist PC

    160 E 32nd St, 
    New York, NY 
    Languages Spoken:
    English

    Kaleb Yohay is a Pediatric Neurologist practicing medicine in New York, New York. Dr. Yohay is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Batten Disease.

    Elite in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Elite in Neurofibromatosis Type 1 (NF1)
    Dermatology
    Referral may be required

    UVA Health Dermatology

    1221 Lee St, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lu Le is a Dermatologist practicing medicine in Charlottesville, Virginia. Dr. Le is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and RASopathies. Dr. Le is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

    10753 Falls Road, Pavilion II STE 115, 
    Lutherville, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jaishri Blakeley is a Neurologist practicing medicine in Lutherville, Maryland. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology. Dr. Blakeley is currently accepting new patients.

    Learn about our expert tiers
    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Carlos Romo is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Romo is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Neurofibromatosis Type 2 (NF2). Dr. Romo is board certified in American Board Of Psychiatry And Neurology. Dr. Romo is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Neurology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology | Neurology
    Referral may be required

    Comer Children's Hospital - Hyde Park

    5721 S. Maryland Ave., 
    Chicago, IL 
    Languages Spoken:
    English, Italian
    Accepting New Patients
    Offers Telehealth

    James Tonsgard is a Pediatric Neurologist and a Neurologist practicing medicine in Chicago, Illinois. Dr. Tonsgard is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies. Dr. Tonsgard is board certified in Pediatrics and Practicing Since1978. Dr. Tonsgard is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Hematology Oncology
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Languages Spoken:
    English

    Aerang Kim is a Pediatric Hematologist Oncology provider practicing medicine in Washington, Washington, D.c.. Dr. Kim is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Adult Soft Tissue Sarcoma. Dr. Kim is board certified in Pediatrics: American Board Of Pediatrics, 2004 and Pediatric Hematology-Oncology: American Board Of Pediatrics, 2009.

    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Oncology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatrics | Oncology
    Referral may be required

    Johns Hopkins Children's Center

    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Christine Pratilas is a Pediatrics specialist and an Oncologist practicing medicine in Baltimore, Maryland. Dr. Pratilas is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Osteotomy. Dr. Pratilas is board certified in American Board Of Pediatrics. Dr. Pratilas is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Office

    55 Fruit St # 9, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Scott Plotkin is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    David Gutmann is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Optic Glioma, Neurofibromatosis Type 1 (NF1), and Glioma. Dr. Gutmann is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Family Medicine
    Elite in Neurofibromatosis Type 1 (NF1)
    Family Medicine

    Planned Parenthood South Atlantic

    1765 Dobbins Dr, 
    Chapel Hill, NC 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Michael Fisher is a primary care provider, practicing in Family Medicine in Chapel Hill, North Carolina. Dr. Fisher is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), Osteotomy, and Intrauterine Device Insertion. Dr. Fisher is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics
    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics
    Referral may be required

    University Of Utah Pediatric Genetic & Metabolism Clinic

    81 North Mario Capecchi Drive, 
    Salt Lake City, UT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Viskochil is a Medical Genetics provider practicing medicine in Salt Lake City, Utah. Dr. Viskochil is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and Prader-Willi Syndrome. Dr. Viskochil is board certified in American Board Of Medical Genetics & Genomics. Dr. Viskochil is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Nicole Ullrich is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Ullrich is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Gliomatosis Cerebri. Dr. Ullrich is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Referral may be required

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
    Languages Spoken:
    English
    Accepting New Patients

    Steven Rhodes is a Hematologist and an Oncologist practicing medicine in Indianapolis, Indiana. Dr. Rhodes is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, RASopathies, and Malignant Peripheral Nerve Sheath Tumor. Dr. Rhodes is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Elite in Neurofibromatosis Type 1 (NF1)
    Referral may be required

    University Of Texas Southwestern Medical Center

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Justin Jordan is a Neurologist practicing medicine in Dallas, Texas. He has been practicing medicine for over 17 years. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Tissue Biopsy. Dr. Jordan is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Elite in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Referral may be required

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Moertel is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Moertel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies. Dr. Moertel is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Referral may be required
    1717 6th Ave S, 
    Birmingham, AL 
    Languages Spoken:
    English
    Accepting New Patients

    Bruce Korf is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Birmingham, Alabama. Dr. Korf is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and RASopathies. Dr. Korf is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Referral may be required

    Children's Hospital Los Angeles

    4650 W Sunset Blvd, 
    Los Angeles, CA 
    Languages Spoken:
    English

    Tena Rosser is a Pediatric Neurologist practicing medicine in Los Angeles, California. Dr. Rosser is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Aplasia Cutis Congenita, and Clouston Syndrome.

    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Referral may be required

    Lpch Medical Group Div Of Lucile

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    David Stevenson is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Palo Alto, California. Dr. Stevenson is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 100 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, RASopathies, Costello Syndrome, and Deep Brain Stimulation.

    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Elite in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Referral may be required

    Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Experience:
    44+ years
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Schorry is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Cincinnati, Ohio. She has been practicing medicine for over 44 years. Dr. Schorry is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Brittle Cornea Syndrome, and Vascular Ehlers-Danlos Syndrome (VEDS). Dr. Schorry is currently accepting new patients.

    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Elite in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Referral may be required

    UT MD Anderson Cancer Center

    1515 Holcombe Blvd, 
    Houston, TX 
    Languages Spoken:
    English
    Offers Telehealth

    John Slopis is a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Slopis is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Legius Syndrome.

    Showing 1-20 of 5,840

    Last Updated: 09/26/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in The United States?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.