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    Last Updated: 10/30/2025

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    MediFind found 6037 doctor with experience in Neurofibromatosis Type 1 (NF1) near The United States. Of these, 1862 are Experienced, 323 are Advanced, 48 are Distinguished and 28 are Elite.

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    6,037 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Mass General Brigham Cancer Institute: Neuro-Oncology

      55 Fruit Street, Yawkey Center For Outpatient Care, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      8906 Bradmoor Dr, 
      Bethesda, MD 
      Languages Spoken:
      English

      Brigitte Widemann is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Widemann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)
      1 Childrens Pl, Div Neurology Pediatrics, 
      Saint Louis, MO 
      Languages Spoken:
      English

      David Gutmann is a Neurologist in Saint Louis, Missouri. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Optic Glioma, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Glioma.

      Learn about our expert tiers
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Johns Hopkins University

      601 N Caroline St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Jaishri Blakeley is a Neurologist in Baltimore, Maryland. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.

      Elite in Neurofibromatosis Type 1 (NF1)
      Family Medicine
      Elite in Neurofibromatosis Type 1 (NF1)
      Family Medicine
      224 S 10th Ave, 
      Siler City, NC 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Michael Fisher is a primary care provider, practicing in Family Medicine in Siler City, North Carolina. Dr. Fisher is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), Osteotomy, and Intrauterine Device Insertion. Dr. Fisher is currently accepting new patients.

      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      100 Mario Capecchi Dr, 
      Salt Lake City, UT 
      Languages Spoken:
      English
      Offers Telehealth

      David Viskochil is a Medical Genetics specialist and a Pediatrics provider in Salt Lake City, Utah. Dr. Viskochil is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome).

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology

      Dana-Farber Cancer Institute, Inc.

      450 Brookline Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Nicole Ullrich is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Ullrich is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Optic Glioma.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Justin Jordan is a Neurologist in Boston, Massachusetts. Dr. Jordan is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      705 Riley Hospital Dr, Roc 4340, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Steven Rhodes is a Pediatric Hematologist Oncology provider in Indianapolis, Indiana. Dr. Rhodes is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Optic Glioma, and Malignant Peripheral Nerve Sheath Tumor.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Christopher Moertel is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Moertel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.

      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics

      Lpch Medical Group Div Of Lucile

      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      David Stevenson is a Medical Genetics specialist and a Pediatrics provider in Palo Alto, California. Dr. Stevenson is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, RASopathies, Costello Syndrome, and Deep Brain Stimulation.

      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      720 20th St S, 
      Birmingham, AL 
      Languages Spoken:
      English

      Bruce Korf is a Medical Genetics specialist and a Pediatrics provider in Birmingham, Alabama. Dr. Korf is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and RASopathies.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Neurology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Neurology

      Childrens Hospital Los Angeles Medical Group Inc

      4650 W Sunset Blvd, 
      Los Angeles, CA 
      Languages Spoken:
      English

      Tena Rosser is a Pediatric Neurologist and a Pediatrics provider in Los Angeles, California. Dr. Rosser is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Memory Loss.

      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics

      Children's Hospital Medical Center

      3333 Burnet Ave, Ml 5021, 
      Cincinnati, OH 
      Languages Spoken:
      English

      Elizabeth Schorry is a Medical Genetics specialist and a Pediatrics provider in Cincinnati, Ohio. Dr. Schorry is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Brittle Cornea Syndrome, and Vascular Ehlers-Danlos Syndrome (VEDS).

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Neurology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics | Neurology

      MD Anderson

      2130 W Holcombe Blvd, Univ Of Tx M D Ande Life, 
      Houston, TX 
      Languages Spoken:
      English

      John Slopis is a Pediatric Neurologist and a Pediatrics provider in Houston, Texas. Dr. Slopis is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Schwannomatosis.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Washington University

      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
      Languages Spoken:
      English

      Angela Hirbe is an Oncologist in Saint Louis, Missouri. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Adult Soft Tissue Sarcoma.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Pediatrics

      New York University

      111 Broadway, 
      New York, NY 
      Languages Spoken:
      English

      Kaleb Yohay is a Pediatric Neurologist and a Pediatrics provider in New York, New York. Dr. Yohay is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and CLN2 Disease.

      Elite in Neurofibromatosis Type 1 (NF1)
      Dermatology
      Elite in Neurofibromatosis Type 1 (NF1)
      Dermatology

      University Of Virginia Physicians Group

      1221 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Offers Telehealth

      Lu Le is a Dermatologist in Charlottesville, Virginia. Dr. Le is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and RASopathies.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Neurology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Neurology

      The University Of Chicago

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Offers Telehealth

      James Tonsgard is a Pediatrics specialist and a Neurologist in Chicago, Illinois. Dr. Tonsgard is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Schwannomatosis.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      225 E Chicago Ave # 30, 
      Chicago, IL 
      Languages Spoken:
      English

      Miriam Bornhorst is a Pediatric Hematologist Oncology provider in Chicago, Illinois. Dr. Bornhorst is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Optic Glioma, and Glioma.

      Showing 1-20 of 6,037

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors in The United States?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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