The 20 Best Clouston Syndrome Doctors in The United States

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 916 doctor with experience in Clouston Syndrome near The United States. Of these, 775 are Experienced, 121 are Advanced, 16 are Distinguished and 4 are Elite.

Location
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916 providers found
    Elite in Clouston Syndrome
    Elite in Clouston Syndrome
    Referral may be required

    Office

    1701 Divisadero St # 340, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Ilona Frieden is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Vascular Birthmark. Dr. Frieden is currently accepting new patients.

    Elite in Clouston Syndrome
    Pediatrics
    Elite in Clouston Syndrome
    Pediatrics
    Referral may be required

    Children's Hospital Primary Care Center (CHPCC)

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Eli Sprecher is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Sprecher is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Naegeli-Franceschetti-Jadassohn Syndrome. Dr. Sprecher is currently accepting new patients.

    Elite in Clouston Syndrome
    Elite in Clouston Syndrome
    Referral may be required

    The Dialysis Center At Waltham

    135 Beaver St, 
    Waltham, MA 
    Languages Spoken:
    English

    Kenneth Huttner is a Pediatrics provider practicing medicine in Waltham, Massachusetts. Dr. Huttner is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

    Learn about our expert tiers
    Elite in Clouston Syndrome
    Medical Genetics | Pediatrics
    Elite in Clouston Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    Washington University

    1 Childrens Pl, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Dorothy Grange is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Saint Louis, Missouri. Dr. Grange is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita. Dr. Grange is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    UVA Health Dermatology

    1221 Lee St, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Barrett Zlotoff is a Dermatologist practicing medicine in Charlottesville, Virginia. Dr. Zlotoff is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Seborrheic Keratosis, Atopic Dermatitis, Pityriasis Rubra Pilaris, and Stork Bite. Dr. Zlotoff is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Montgomery County

    9850 Key West Avenue, 
    Rockville, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Colleen Cotton is a Pediatrics provider practicing medicine in Rockville, Maryland. Dr. Cotton is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Vascular Birthmark, Stork Bite, Aplasia Cutis Congenita, and Ectodermal Dysplasias. Dr. Cotton is board certified in American Board Of Dermatology, 2019 and American Board Of Dermatology, 2020. Dr. Cotton is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Pediatrics | Dermatology
    Distinguished in Clouston Syndrome
    Pediatrics | Dermatology
    Referral may be required

    1 S Park St Medical Center Dermatology Clinic, Suite 701

    1 S Park St, Suite 701, 
    Madison, WI 
    Languages Spoken:
    English
    Accepting New Patients

    Beth Drolet is a Pediatrics specialist and a Dermatologist practicing medicine in Madison, Wisconsin. Dr. Drolet is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Hemangioma, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita. Dr. Drolet is board certified in Pediatric Dermatology and Dermatology. Dr. Drolet is currently accepting new patients.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    Referral may be required

    University Hospitals

    11100 Euclid Ave, 
    Cleveland, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Kord Honda is a Dermatologist practicing medicine in Cleveland, Ohio. Dr. Honda is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 79 other conditions, according to our data. His clinical expertise encompasses Melanoma, Erythroderma, Hereditary Mucoepithelial Dysplasia, and Stiff Skin Syndrome. Dr. Honda is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral required

    Atrium Health Wake Forest Baptist Dermatology-Country Club

    4618 Country Club Rd, 
    Winston Salem, NC 
    Languages Spoken:
    English
    Accepting New Patients

    Amy Mcmichael is a Dermatologist practicing medicine in Winston Salem, North Carolina. Dr. Mcmichael is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Hypotrichosis, Alopecia Areata, Graham-Little-Piccardi-Lassueur Syndrome, and GAPO Syndrome. Dr. Mcmichael is currently accepting new patients.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    Referral may be required

    Kevin W. Broder M. D. Incorporated

    8899 University Center Ln Ste 350, 
    San Diego, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Arisa Ortiz is a Dermatologist practicing medicine in San Diego, California. Dr. Ortiz is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, Acne, and Epidural Lipomatosis. Dr. Ortiz is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    MCV Physicians At Stony Point

    9109 Stony Point Dr, 
    Richmond, VA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kimberly Salkey is a Dermatologist practicing medicine in Richmond, Virginia. Dr. Salkey is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Hypotrichosis, Alopecia Areata, Graham-Little-Piccardi-Lassueur Syndrome, and Hirsutism in Women. Dr. Salkey is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Distinguished in Clouston Syndrome
    Referral may be required
    676 N St Clair St Ste 1600, Arkes Pavilion, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients

    Amy Paller is a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Paller is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Discoid Lupus Erythematosus (DLE), Plaque Psoriasis, Ectodermal Dysplasias, Clouston Syndrome, and Gastrostomy. Dr. Paller is board certified in American Board Of Dermatology - Dermatology (Certified). Dr. Paller is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Dermatology
    Distinguished in Clouston Syndrome
    Dermatology
    Referral may be required

    U Of U Dermatology-Wakara

    417 S Wakara Way, 
    Salt Lake City, UT 
    Languages Spoken:
    English, German
    Accepting New Patients

    C Hansen is a Dermatologist practicing medicine in Salt Lake City, Utah. Dr. Hansen is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Pachyonychia Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita. Dr. Hansen is board certified in American Board Of Dermatology. Dr. Hansen is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Distinguished in Clouston Syndrome
    Referral may be required

    Driscoll Children's Hospital

    3533 S Alameda St, 
    Corpus Christi, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Denise Metry is a Pediatrics provider practicing medicine in Corpus Christi, Texas. Dr. Metry is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Stork Bite. Dr. Metry is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Distinguished in Clouston Syndrome
    Referral may be required

    CUIMC/Herbert Irving Pavilion

    161 Fort Washington Ave, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Maria Garzon is a Pediatrics provider practicing medicine in New York, New York. Dr. Garzon is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Vascular Birthmark. Dr. Garzon is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Penn State Health Medical Group - All About Children

    655 Walnut St, 
    West Reading, PA 
    Languages Spoken:
    English

    Abimbola Ajayi is a Pediatrics provider practicing medicine in West Reading, Pennsylvania. Dr. Ajayi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Obesity in Children, Autism Spectrum Disorder, AEC Syndrome, and EEC Syndrome. Dr. Ajayi is board certified in American Board Of Pediatrics.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Texas Health Neurosurgery And Spine Specialists

    800 5th Ave, Ste 500, 
    Fort Worth, TX 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Anita Bhansali is a Neurosurgery provider practicing medicine in Fort Worth, Texas. Dr. Bhansali is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Subarachnoid Hemorrhage, Chronic Subdural Hematoma, Delirium, Deep Brain Stimulation, and Gastrostomy. Dr. Bhansali is currently accepting new patients.

    Experienced in Clouston Syndrome
    Pediatrics | Hematology | Oncology
    Experienced in Clouston Syndrome
    Pediatrics | Hematology | Oncology
    Referral may be required

    Levine Children's Hospital

    1000 Blythe Blvd., 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joel Kaplan is a Pediatrics specialist and a Hematologist practicing medicine in Charlotte, North Carolina. Dr. Kaplan is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Gliomatosis Cerebri, Medulloblastoma, and Bone Marrow Aspiration. Dr. Kaplan is board certified in American Board Of Pediatrics, Pediatric Hematology And Oncology and American Board Of Pediatrics. Dr. Kaplan is currently accepting new patients.

    Experienced in Clouston Syndrome
    Neonatology | Medical Genetics
    Experienced in Clouston Syndrome
    Neonatology | Medical Genetics
    Referral may be required

    Center For Complex Obstetric Medicine

    1825 Fourth St., Third Floor, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Mary Norton is a Neonatologist and a Medical Genetics provider practicing medicine in San Francisco, California. Dr. Norton is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Fetal Edema, Hydrops Fetalis, Alpha Thalassemia, and Hemolytic Disease of the Newborn. Dr. Norton is board certified in American Board Of Obstetrics And Gynecology, Obstetrics & Gynecology, American Board Of Medical Genetics And Genomics, Clinical Genetics And Genomics, and American Board Of Obstetrics And Gynecology, Maternal-Fetal Medicine. Dr. Norton is currently accepting new patients.

    Experienced in Clouston Syndrome
    Family Medicine
    Experienced in Clouston Syndrome
    Family Medicine

    Tower Health Medical Group Family Medicine - Exeter

    3703 Perkiomen Ave, 
    Reading, PA 
    Experience:
    17+ years
    Languages Spoken:
    English, Hindi, Telugu

    Swayam Nirujogi is a primary care provider, practicing in Family Medicine in Reading, Pennsylvania. She has been practicing medicine for over 17 years. Dr. Nirujogi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and High Cholesterol. Dr. Nirujogi is board certified in American Board Of Family Medicine.

    Showing 1-20 of 916

    Last Updated: 09/26/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in The United States?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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