The 20 Best Clouston Syndrome Doctors in The United States

Eli Sprecher is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Sprecher is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Ectodermal Dysplasias, Aplasia Cutis Congenita, Clouston Syndrome, and Naegeli-Franceschetti-Jadassohn Syndrome.

Kenneth Huttner is a Pediatrics provider practicing medicine in Waltham, Massachusetts. Dr. Huttner is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

Ilona Frieden is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

Dorothy Grange is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Saint Louis, Missouri. Dr. Grange is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Grange is currently accepting new patients.

Neurosurgeon Anita Bhansali, M.D., is fellowship-trained in functional neurosurgery from the esteemed Swedish Neuroscience Institute, which is a leader in the comprehensive clinical care of neurological disorders. She is a Fellow of the American Association of Neurological Surgeons. Dr. Bhansali's areas of specialization include the evaluation and treatment of functional neurosurgical disorders such as epilepsy, movement disorders, and pain syndromes. Her additional areas of special interest and focus include the treatment of cervical spine instability and degenerative spine disease, and deep brain and nerve stimulation for Parkinson's disease and other neurological conditions.Dr. Bhansali earned her medical degree at the University of Washington School of Medicine in Seattle. She completed her neurological surgery residency at the University of Chicago Medical Center in Illinois before going on to complete her fellowship training at the Swedish Neuroscience Institute, also in Seattle. She is published in numerous medical journals and publications on a wide variety of topics in neurosurgery. Dr. Bhansali is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Subarachnoid Hemorrhage, Chronic Subdural Hematoma, Delirium, Deep Brain Stimulation, and Gastrostomy.

Dr. Christopher Hess is a neuroradiologist, a specialist in diagnosing nervous system disorders with advanced imaging technologies. He uses MRI to diagnose and monitor neurodegenerative disorders such as dementia, and movement disorders such as Parkinson's disease and epilepsy. He also has expertise in diagnosing vascular anomalies (abnormalities involving blood vessels) and in CT-guided spinal procedures. He serves as chair of the UCSF Department of Radiology and Biomedical Imaging. Hess earned his medical degree at the University of Illinois College of Medicine. He earned a master of science degree and doctorate in electrical engineering at the University of Illinois at Urbana-Champaign. He completed a residency in radiology and a fellowship in neuroradiology at UCSF. Dr. Hess is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Arteriovenous Malformation, Aplasia Cutis Congenita, Deep Brain Stimulation, and Vertebroplasty. Dr. Hess is board certified in American Board Of Radiology, Neuroradiology and American Board Of Radiology, Diagnostic Radiology. Dr. Hess is currently accepting new patients.

Beth Drolet is a Dermatologist practicing medicine in Madison, Wisconsin. Dr. Drolet is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Hemangioma, Sternal Cleft, Aplasia Cutis Congenita, and Clouston Syndrome.

C Hansen is a Dermatologist practicing medicine in Murray, Utah. Dr. Hansen is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Pachyonychia Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita. Dr. Hansen is board certified in American Board Of Dermatology. Dr. Hansen is currently accepting new patients.

Denise Metry is a Pediatrics provider practicing medicine in Corpus Christi, Texas. Dr. Metry is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

Mark Mamlouk is a Neuroradiologist practicing medicine in Santa Clara, California. He has been practicing medicine for over 18 years. Dr. Mamlouk is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Cerebrospinal Fluid Leak, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Tissue Biopsy.

Mohit Maheshwari is a Radiologist practicing medicine in Milwaukee, Wisconsin. Dr. Maheshwari is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

. Dr. Ajayi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Obesity in Children, Autism Spectrum Disorder, Ectodermal Dysplasias, and Zlotogora-Ogur Syndrome. Dr. Ajayi is board certified in American Board Of Pediatrics.

. Dr. Nirujogi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and High Cholesterol. Dr. Nirujogi is board certified in American Board Of Family Medicine.

Rhonda Schnur is a Pediatrics provider practicing medicine in Camden, New Jersey. She has been practicing medicine for over 45 years. Dr. Schnur is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Increased Head Circumference. Dr. Schnur is board certified in American Board Of Medical Genetics And Genomics,Clinical Biochemical Genetics , 1987 and American Board Of Pediatrics,Pediatrics , 1986.

Dr. Elaine Siegfried diagnoses and treats skin-related disorders in infants and children. She specializes in treatments for atopic dermatitis and other eczemas, psoriasis, and vascular birthmarks. She participates in clinical trials for new treatments for eczema and psoriasis. Dr. Siegfried is interested in research investigating atopic dermatitis and pediatric drug development. She is a professor of pediatrics and dermatology in the Department of Pediatrics, Division of Dermatology, at Saint Louis University School of Medicine. Dr. Siegfried is a past president and director of the American Board of Dermatology. She serves on the editorial board of Dermatology Times. Her memberships include the Society for Pediatric Dermatology, the American Academy of Dermatology, the National Eczema Association and The National Foundation for Ectodermal Dysplasias. Prior to earning her medical degree, Dr. Siegfried designed her undergraduate major, which was scientific art. Dr. Siegfried is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Atopic Dermatitis, Molluscum Contagiosum, Aplasia Cutis Congenita, and Clouston Syndrome. Dr. Siegfried is board certified in American Board Of Dermatology , American Board Of Dermatology/Pediatric Dermatology , and Missouri State Board Of Registration.

Sancy Leachman is a Dermatologist practicing medicine in Salt Lake City, Utah. Dr. Leachman is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Melanoma, Sunburn, Pachyonychia Congenita, and Familial Atypical Multiple Mole Melanoma Syndrome. Dr. Leachman is board certified in Unknown. Dr. Leachman is currently accepting new patients.

Ashfaq Marghoob is a Dermatologist practicing medicine in Hauppauge, New York. Dr. Marghoob is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Basal Cell Skin Cancer, Melanoma, Seborrheic Keratosis, and Familial Atypical Multiple Mole Melanoma Syndrome.

Jennifer Leiding, M.D., is associate director for clinical research in the Johns Hopkins All Children’s Institute for Clinical and Translational Research and assistant director of the Center for Cellular and Gene Therapy in the Johns Hopkins All Children’s Cancer & Blood Disorders Institute. She is also an associate professor of pediatrics (pending academic review) based on the St. Petersburg, Florida, campus in the Johns Hopkins University of School of Medicine. Dr. Leiding, whose clinical specialty is allergy and immunology, focuses on strategic growth of, and mentorship in, clinical research and early-phase trials campus-wide, as well as cellular and gene therapies for cancer and blood disorders. Her personal line of research and national leadership focuses on cooperative multicenter studies of primary immunodeficiency diseases, including chronic granulomatous disease (CGD) and other rare diseases in children. She returned to Johns Hopkins All Children’s in 2024 after previously serving on the faculty at the USF Morsani College of Medicine and the medical staff of All Children’s for nearly a decade. In between, she worked as a medical director at a gene therapy-focused biotech company. Dr. Leiding earned her medical degree from USF before training there as an intern and resident in pediatrics. She completed her clinical and research fellowship in both allergy and immunology at the National Institute of Allergy and Infectious Diseases. Dr. Leiding is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Chronic Granulomatous Disease, Primary Immunodeficiency (PID), Severe Combined Immunodeficiency (SCID), and Clouston Syndrome. Dr. Leiding is board certified in American Board Of Allergy And Immunology and American Board Of Pediatrics.

Howard Weiner is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Weiner is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Endoscopy. Dr. Weiner is board certified in Neurology.

Bruce Gelb is a Pediatric Cardiologist practicing medicine in New York, New York. Dr. Gelb is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses RASopathies, Congenital Heart Disease (CHD), Cardiomyopathic Lentiginosis, Noonan Syndrome, and Heart Transplant.