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    Last Updated: 10/30/2025

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    MediFind found 943 doctor with experience in Clouston Syndrome near The United States. Of these, 798 are Experienced, 120 are Advanced, 21 are Distinguished and 4 are Elite.

    Location
    LocationClose
    943 providers found
      Elite in Clouston Syndrome
      Pediatrics
      Elite in Clouston Syndrome
      Pediatrics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Eli Sprecher is a Pediatrics provider in Boston, Massachusetts. Dr. Sprecher is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Naegeli-Franceschetti-Jadassohn Syndrome. Dr. Sprecher is currently accepting new patients.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Interlenkin Genetrics, Inc., 135 Beaver Street, 
      Waltham, MA 
      Languages Spoken:
      English

      Kenneth Huttner is a Neonatologist in Waltham, Massachusetts. Dr. Huttner is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

      Elite in Clouston Syndrome
      Pediatrics | Dermatology
      Elite in Clouston Syndrome
      Pediatrics | Dermatology

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
      Languages Spoken:
      English

      Ilona Frieden is a Pediatrics specialist and a Dermatologist in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

      Learn about our expert tiers
      Elite in Clouston Syndrome
      Medical Genetics | Pediatrics
      Elite in Clouston Syndrome
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Dorothy Grange is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Grange is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Grange is currently accepting new patients.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      University Of Virginia Physicians Group

      1221 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Barrett Zlotoff is a Dermatologist in Charlottesville, Virginia. Dr. Zlotoff is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Seborrheic Keratosis, Atopic Dermatitis, Pityriasis Rubra Pilaris, and Familial Multiple Nevi Flammei. Dr. Zlotoff is currently accepting new patients.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Yale University

      800 Howard Ave, 
      New Haven, CT 
      Languages Spoken:
      English

      Keith Choate is a Dermatologist in New Haven, Connecticut. Dr. Choate is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Nonbullous Congenital Ichthyosiform Erythroderma, Darier Disease, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, and Lamellar Ichthyosis.

      Sancy A. Leachman
      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome

      Dermatology Division University Of Utah Medical Center

      50 N Medical Dr, 
      Salt Lake City, UT 
      Languages Spoken:
      English
      Accepting New Patients

      Sancy Leachman is a Dermatologist in Salt Lake City, Utah. Dr. Leachman is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Melanoma, Pachyonychia Congenita, Aplasia Cutis Congenita, Clouston Syndrome, and Tissue Biopsy. Dr. Leachman is currently accepting new patients.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Polish, Spanish

      Lacey Kruse is a Dermatologist in Chicago, Illinois. Dr. Kruse is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Familial Multiple Nevi Flammei, Stork Bite, Linear Hamartoma Syndrome, and Vascular Birthmark.

      Experienced in Clouston Syndrome
      Dermatology | General Surgery
      Experienced in Clouston Syndrome
      Dermatology | General Surgery

      Wk Dermatology Clinic

      2300 Hospital Dr, Suite 400, 
      Bossier City, LA 
      Languages Spoken:
      English
      Accepting New Patients

      Sarah Baker is a Dermatologist and a General Surgeon in Bossier City, Louisiana. Dr. Baker is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Rosacea, Atopic Dermatitis, Actinic Keratosis, and Plaque Psoriasis. Dr. Baker is currently accepting new patients.

      Experienced in Clouston Syndrome
      Neurology
      Experienced in Clouston Syndrome
      Neurology

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
      Languages Spoken:
      English, Portuguese, Spanish
      Accepting New Patients

      Jose Biller is a Neurologist in Maywood, Illinois. Dr. Biller is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Stroke, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, Transient Ischemic Attack (TIA), Thrombectomy, and Gastrostomy. Dr. Biller is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Texas Health Physicians Group

      800 5th Ave, Suite 500, 
      Fort Worth, TX 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anita Bhansali is a Neurosurgery provider in Fort Worth, Texas. Dr. Bhansali is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Subarachnoid Hemorrhage, Chronic Subdural Hematoma, Delirium, Deep Brain Stimulation, and Gastrostomy. Dr. Bhansali is currently accepting new patients.

      Experienced in Clouston Syndrome
      Obstetrics and Gynecology | Medical Genetics | Neonatology
      Experienced in Clouston Syndrome
      Obstetrics and Gynecology | Medical Genetics | Neonatology

      Ucsf Medical Group Business Services

      400 Parnassus Ave, A887, 
      San Francisco, CA 
      Languages Spoken:
      English

      Mary Norton is an Obstetrics and Gynecologist and a Medical Genetics provider in San Francisco, California. Dr. Norton is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Fetal Edema, Hydrops Fetalis, Alpha Thalassemia, and Hemolytic Disease of the Newborn.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Kord Honda is a Dermatologist in Cleveland, Ohio. Dr. Honda is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Melanoma, Erythroderma, Nakajo-Nishimura Syndrome, and Stiff Skin Syndrome. Dr. Honda is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Wake Forest University Health Sciences

      4610 Country Club Rd, 
      Winston Salem, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Amy Mcmichael is a Dermatologist in Winston Salem, North Carolina. Dr. Mcmichael is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Autosomal Recessive Hypotrichosis, Alopecia Areata, Graham-Little-Piccardi-Lassueur Syndrome, and GAPO Syndrome. Dr. Mcmichael is currently accepting new patients.

      Experienced in Clouston Syndrome
      Neonatology | Obstetrics and Gynecology
      Experienced in Clouston Syndrome
      Neonatology | Obstetrics and Gynecology

      Froedtert Andthe Medical College Of Wisconsin Community Physicians Inc

      3212 Pleasant Valley Rd, 
      West Bend, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Anna Palatnik is a Neonatologist and an Obstetrics and Gynecologist in West Bend, Wisconsin. Dr. Palatnik is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Gestational Diabetes, Preeclampsia, High Blood Pressure in Infants, Salpingo-Oophorectomy, and Hormone Replacement Therapy (HRT). Dr. Palatnik is currently accepting new patients.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Regents Of The University Of California

      200 W Arbor Dr, 
      San Diego, CA 
      Languages Spoken:
      English

      Arisa Ortiz is a Dermatologist in San Diego, California. Dr. Ortiz is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, Ringworm, and Acne.

      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics

      Spectrum Health Hospitals

      25 Michigan St Ne, Corewell Health Grand Rapi, 
      Grand Rapids, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Laurie Seaver is a Medical Genetics specialist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Seaver is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hypotonia, 1p36 Deletion Syndrome, Smith-Magenis Syndrome, and Potocki-Lupski Syndrome. Dr. Seaver is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Mcv Associated Physicians

      401 N 11th St, 
      Richmond, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kimberly Salkey is a Dermatologist in Richmond, Virginia. Dr. Salkey is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Autosomal Recessive Hypotrichosis, Alopecia Areata, Graham-Little-Piccardi-Lassueur Syndrome, and Hirsutism in Women. Dr. Salkey is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Yale University

      800 Howard Ave, 
      New Haven, CT 
      Languages Spoken:
      English

      Richard Antaya is a Dermatologist in New Haven, Connecticut. Dr. Antaya is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hemi 3 Syndrome, Epidermal Nevus, Junctional Epidermolysis Bullosa, and Linear Nevus Sebaceous Syndrome.

      Distinguished in Clouston Syndrome
      Dermatology
      Distinguished in Clouston Syndrome
      Dermatology
      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      Dawn Siegel is a Dermatologist in Palo Alto, California. Dr. Siegel is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Vascular Birthmark.

      Showing 1-20 of 943

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors in The United States?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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