Expertise in
16
conditions

Benedicte Heron-Longe

Paris, FR 
Clinical Trials:Currently Recruiting for 1 Trial
Expertise in
16
conditions
Paris, FR 

Overview

Benedicte Heron-Longe practices practicing medicine in Paris, France.

Ms. Heron-Longe is highly rated in 16 conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Niemann-Pick Disease, Mucopolysaccharidoses (MPS), and Non-Langerhans-Cell Histiocytosis.

She is actively involved in clinical research, co-authoring 78 peer reviewed articles and participating in 7 clinical trials.

Gender

Female

Locations

Paris, France
Other Locations
La Roche, France
France
Avenue Du 14-Juillet, Bondy, 93143, France

Clinical Research

Clinical research consists of overseeing clinical studies of patients undergoing new treatments and therapies, and publishing articles in peer reviewed medical journals. Experts who actively participate in clinical research are generally at the forefront of the fields and aware of the most up-to-date advances in treatments for their patients.

7 Clinical Trials

Phase I/II/III Gene Transfer Clinical Trial of scAAV9.U1a.hSGSH for Mucopolysaccharidosis (MPS) IIIA
Phase I/II/III Gene Transfer Clinical Trial of scAAV9.U1a.hSGSH for Mucopolysaccharidosis (MPS) IIIA
Enrollment Status: Recruiting
Publish Date: August 21, 2026
Intervention Type: Drug, Biological
Study Drug: ABO-102
Study Phase: Phase 2/Phase 3
Arimoclomol Prospective Double-blind, Randomised, Placebo-controlled Study in Patients Diagnosed With Niemann-Pick Disease Type C
Arimoclomol Prospective Double-blind, Randomised, Placebo-controlled Study in Patients Diagnosed With Niemann-Pick Disease Type C
Enrollment Status: Completed
Publish Date: November 29, 2024
Intervention Type: Drug
Study Drug: Arimoclomol
Study Phase: Phase 2/Phase 3
An Open-Label Adaptive-Design Study of Intracisternal Adenoassociated Viral Vector Serotype rh.10 Carrying the Human β-Galactosidase cDNA for Treatment of GM1 Gangliosidosis
An Open-Label Adaptive-Design Study of Intracisternal Adenoassociated Viral Vector Serotype rh.10 Carrying the Human β-Galactosidase cDNA for Treatment of GM1 Gangliosidosis
Enrollment Status: Terminated
Publish Date: June 09, 2023
Intervention Type: Genetic
Study Phase: Phase 1/Phase 2
A Long-term Follow-up Study of Patients With MPS IIIB From Gene Therapy Clinical Trials Involving the Administration of ABO-101 (rAAV9.CMV.hNAGLU)
A Long-term Follow-up Study of Patients With MPS IIIB From Gene Therapy Clinical Trials Involving the Administration of ABO-101 (rAAV9.CMV.hNAGLU)
Enrollment Status: Terminated
Publish Date: May 31, 2022
Intervention Type: Biological
Phase I/II Gene Transfer Clinical Trial of rAAV9.CMV.hNAGLU for Mucopolysaccharidosis (MPS) IIIB
Phase I/II Gene Transfer Clinical Trial of rAAV9.CMV.hNAGLU for Mucopolysaccharidosis (MPS) IIIB
Enrollment Status: Terminated
Publish Date: May 05, 2022
Intervention Type: Biological
Study Drug: rAAV9.CMV.hNAGLU
Study Phase: Phase 1/Phase 2
Open-label, Single-arm, Multi-center Study of Intracerebral Administration of Adeno-associated Viral (AAV) Serotype rh.10 Carrying Human N-sulfoglucosamine Sulfohydrolase (SGSH) cDNA for Treatment of Mucopolysaccharidosis Type IIIA
Open-label, Single-arm, Multi-center Study of Intracerebral Administration of Adeno-associated Viral (AAV) Serotype rh.10 Carrying Human N-sulfoglucosamine Sulfohydrolase (SGSH) cDNA for Treatment of Mucopolysaccharidosis Type IIIA
Enrollment Status: Unknown
Publish Date: August 31, 2021
Intervention Type: Drug
Study Phase: Phase 2/Phase 3
A Prospective Non-therapeutic Study in Patients Diagnosed With Niemann-Pick Disease Type C in Order to Characterise the Individual Patient Disease Profile and Historic Signo-symptomatology Progression Pattern
A Prospective Non-therapeutic Study in Patients Diagnosed With Niemann-Pick Disease Type C in Order to Characterise the Individual Patient Disease Profile and Historic Signo-symptomatology Progression Pattern
Enrollment Status: Completed
Publish Date: May 18, 2017
View 6 Less Clinical Trials

78 Total Publications

Increased intervals in enzyme replacement therapy for stable type 1 Gaucher disease: A non-inferiority sequential trial emulation.
Increased intervals in enzyme replacement therapy for stable type 1 Gaucher disease: A non-inferiority sequential trial emulation.
Journal: Journal of internal medicine
Published: February 28, 2026

Frequently Asked Questions about Benedicte Heron-Longe

Is Benedicte Heron-Longe a top-rated expert for Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome)?

MediFind is an objective health platform that identifies experts based on real-world data. Benedicte Heron-Longe is classified as an Distinguished expert for Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), meaning they are among the top experts in the country for this condition. This ranking is based on their volume of patients, published research, and peer connections.

Does Benedicte Heron-Longe participate in research or clinical trials?

Yes. Benedicte Heron-Longe has published 78 articles and abstracts on conditions like Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). You can view a list of Benedicte Heron-Longe's latest peer-reviewed publications and clinical trial participation on their profile to see if they are active in new treatments.

Areas of Expertise

MediFind evaluates expertise by pulling from factors such as number of articles a doctor has published in medical journals, participation in clinical trials, speaking at industry conferences, prescribing and referral patterns, and strength of connections with other experts in their field.

Learn more about MediFind’s expert tiers

Find Ms. Heron-Longe's expertise for a condition
ConditionClose
    View All 12 Advanced Conditions
    View All 45 Experienced Conditions
    Want to save this expert for later?
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
     
     
     
     
    Learn about our expert tiers
    Learn More
    Are you the provider on this profile?
    Claim Profile